Episodios
-
Navigating the complexities of the special needs community is fraught with challenges, and the current workforce crisis in the disability sector is a cliff we're all facing together. Annette has seen firsthand how the pandemic has eroded the support program landscape as a special needs mom, attorney, and author. It's time we discuss the dire statistics and what they mean for our loved ones. The scarcity of direct support professionals (DSPs) is at a critical point.
In this episode of Parenting Impossible, we're pulling back the curtain on the harsh realities service providers are grappling with, from program cuts to the tough competition for attracting dedicated workers. Yet, amidst the stark outlook, there's a glimmer of hope on the horizon.
Annette is excited to share the recent settlement poised to relieve SSI beneficiaries and the proactive steps the Social Security Administration is taking to rectify overpayment issues. But let's not lose sight of the impending expiry of federal funding that could spell a reduction in community-based services. It's a heartfelt plea for awareness and action—we must bolster the ranks of DSPs and ensure the support structures our community relies on don't crumble. Your involvement is critical, and by sharing your thoughts and spreading the word, you can help ignite the changes we so desperately need.
Join me in this crucial conversation, and let's pave the way toward a more supportive future for those with special needs.
In this episode, you will hear:
The critical workforce crisis in the disability sector post-pandemic Some personal insights from Annette An examination of the direct support professional (DSP) shortage and service program cutbacks Recent settlements benefiting SSI beneficiaries and SSA's resolution of overpayment issues The implications of expiring federal funding from the American Rescue Plan on community-based services The need for legislative action to stabilize the DSP workforce and ensure sustainable disability supportFollow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
***
Episode Credits
If you like this podcast and are thinking of creating your own, consider talking to my producer, Emerald City Productions. They helped me grow and produce the podcast you are listening to right now. Find out more at https://emeraldcitypro.com Let them know I sent you.
Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
As the clock struck midnight, marking the start of a new year, Annette found herself immersed in a flood of memories and significant events.
On this episode of Parenting Impossible, carrying the weight of sorrow from the loss of her beloved daughter Elizabeth but strengthened by ten years of affection and the development of the Special Needs Law Group, Annette extends an invitation to you to partake in a personal journey of transformation and the intricate process of decision-making that defines our lives. Annette shares a cherished story from her childhood, in which setting a butterfly free symbolized the infinite potential of wishes. This experience profoundly shaped her perception of influence and purpose in her life and career.
Annette communicates her hope for the coming year—a desire for empowerment and the capability to navigate the often stormy seas of social support systems. Eager to improve this process, she is excited to announce the launch of new group coaching programs designed to offer a guiding light of support, consultation, and advice beyond the scope of traditional legal services. You will sense this podcast's renewed vigor, infused with the energy to spark change and foster connections through these shared coaching experiences.
Annette welcomes everyone to join her as they confront the challenges and celebrate the victories in creating significant legacies for themselves and those they advocate for in the disability community.
In this episode, you will hear:
Reflections on a decade of personal milestones: the loss of Annette’s daughter Elizabeth, her marriage, and the growth of the Special Needs Law Group The importance of transformation and the power of choices in personal and professional life A heartfelt letter from one of Annette’s clients and the profound impact of the Special Needs Law Group on the lives of those in the disability community Annette’s New Year's wish for empowerment and enabling individuals to navigate social support systems and take control of their futures New group coaching programs offering support, consultation, and guidance to those seeking to create a secure and fulfilling plan for their livesFollow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
Supporting Resources:
Sign up for the Special Needs Advocacy and Planning Masterclass AND Coaching Program: enroll.specialneedsfamilyservices.com/p/individuals-family-caregivers-cohort-group-coaching***
Episode Credits
If you like this podcast and are thinking of creating your own, consider talking to my producer, Emerald City Productions. They helped me grow and produce the podcast you are listening to right now. Find out more at
Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
¿Faltan episodios?
-
Sometimes, it’s essential to step back and assess the path we're on - that's exactly what I did this year. After years of fighting the impacts of a global crisis on both my personal and professional life, I made the radical decision to take a sabbatical year. A year to disconnect from “extracurriculars” and focus on my business, my team, and myself. A year to reflect on what truly brings me joy, and rediscover the activities and people I truly missed.
Join me as I recount the unanticipated benefits of this self-imposed sabbatical. Listen to how I navigated the process of refocusing my energy, honing my business, and fostering team cohesion. I'll share how this radical change led to the acquisition of new skills and realizations about my membership community. As I look back at the past year, I'll discuss my plans to gradually reintroduce aspects of my life, emphasizing only those that truly bring me joy. I'll also share my plans to revamp this podcast and my community outreach. This episode is a must-listen if you've ever considered a sabbatical or a reset in your life.
In this episode, you will hear:
Why I decided to take a sabbatical year to refocus on my business, team, and personal growth. The impacts of the global crisis on my personal and professional life led me to the decision of a sabbatical year. Exploring new hobbies and skills, such as baking bread and playing golf. How I decided to revamp my podcast and community outreach based on the insights I gained during my sabbatical.Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
Ever felt the pangs of frustration trying to navigate public spaces with a disability or care for someone who does? This frustration fueled the journey of an extraordinary parent advocating for change, Jayme Betts who serves as the Massachusetts Chapter Leader of the Changing Spaces Campaign. She shares an illuminating exploration of her mission to make public spaces more accessible for people with disabilities, inspired by her own experiences with her daughter, Sophia, who has Soto Syndrome.
Jayme’s story is one of determination and resilience, as she used her personal struggle to fuel her advocacy for universally accessible changing tables. With the lack of adequate facilities, she was compelled to start a chapter of Changing Spaces in Massachusetts, a national organization dedicated to enhancing accessibility in public areas. She shares her experience with the transformative impact of using a universal changing table for the first time, adding a powerful, personalized perspective that only a parent facing these challenges could offer.
Additionally, we delved into a potential solution that Jayme has championed – height-adjustable, secured changing tables with a significant support capacity. This innovation, which is set to be included in the International Building Code for 2024, could revolutionize the lives of individuals with disabilities. Jayme gives listeners a glimpse into her world of advocacy as she recounts her experience testifying before a joint committee, providing a firsthand understanding of the battles and triumphs on the road to making public spaces more accessible. This episode is a must-listen for anyone who seeks to understand more about the need for inclusivity and accessibility in our everyday spaces.
Learn more about the Changing Spaces Campaign in Massachusetts:
Website: https://www.changingspacescampaign.com/machapter
Link Tree with Resources: https://linktr.ee/changing_spaces_ma
Instagram: https://instagram.com/changing_spaces_ma
Facebook: https://www.facebook.com/profile.php?id=100089054724819Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
What's one of the biggest issues most special needs families worry about? Housing. This episode unlocks the complexities of the intricate world of housing for those with some form of intellectual or developmental disability or (IDD) with the help of special guest, Pam Blanton, founder and CEO of Partners4Housing. Tune in to discover how Partners4Housing is changing the lives of families in Washington state by empowering families to create housing solutions that meet the unique needs of their loved ones with IDD and create a real solution for the future.
Hear about Partners4Housing's unique roommate matching pool and shared living development services, and also dive into the challenges and strategies of a family-driven housing model. The figure of the caregiver stands central to our discussion as we unpack the various aspects of caregiver supports available and the importance of making the right choice. Housing issues can often feel daunting, but we've got you covered with discussions on Medicaid waivers and housing vouchers, serving up practical solutions for families in need.
To cap it all off, we take a deep look into shared living for families and how to navigate through the legalities of setting up a home for a loved one with special needs. From landlord-tenant law to caregiver agreements and household budgets, we've got it all covered. And don't miss out on learning about our Circle of Care on Mighty Networks - a refreshing platform for our disability community to connect, learn, and share experiences. This episode holds key insights for anyone looking to understand better the housing landscape for adults with disabilities, so sit back, relax and let's get the conversation started.Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
What happens when a mother’s fierce love for her special needs child intertwines with her passion for photography? Magic! Join us on this heartwarming journey with Marcie Randall, a dedicated mother, and an exceptional photographer, as she turns her struggles and triumphs navigating the healthcare system for her medically fragile son into a beacon of hope for other families. Marcie's inspiring story combines advocacy, photography, and parenting in a way that's as enlightening as it is moving.
Can capturing the moment make a difference? Absolutely! Marcie, through her business - Sunschein Photography, is on a mission to showcase the unique beauty of families with special needs. She generously shares her journey from being a parent and an advocate to becoming a photographer. We’ll explore the challenges of getting that perfect shot, and Marcie will reveal some of her secrets to preparing for a successful photo session. But more than tips and tricks, Marcie emphasizes the invaluable significance of family photos, especially for families like ours.
We wrap up our conversation on a high note, appreciating Marcie's commitment to capturing authentic reflections of families with special needs and fostering a sense of belonging and understanding. So, sit back and join us for this enlightening chat as we delve into the world of special needs through the lens of a camera and see the beauty and resilience it reveals.
Connect with Marcie Randall:
sunscheinphotography.com
facebook.com/sunscheinphotography
www.instagram.com/marcie_sunschein_photographyHave you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
Could you imagine being a mom and an Assistive Technology Specialist, honeycombing through multiple strategies to craft tools that best support your special needs child? Well, meet Cheryl Farley. A passionate mother and a specialist who's spent years perfecting this very craft. She's graced us with her story, detailing the educational journey of her son, Liam, and the unique challenges they faced in his smaller classroom setting. Listen in as she shares the creative routes they took to find job opportunities for Liam, and the delicate balance they needed to maintain - allowing him to tackle challenges head-on, yet knowing when to pause and reassess.
Now, ever wondered how to navigate through disability resources and support confidently? Cheryl explains her journey working directly with Annette Hines through the SNAP (Special Needs Advocacy and Planning) masterclass and coaching program. She walks us through her experience in applying for SSI for Liam, and setting up a Circle of Care - a support system beyond the immediate family. Hear from Cheryl herself how the online application process can be tackled, and the importance of having a strong Circle of Care. This isn't just about learning the ropes, it's about gaining confidence, building relationships, and ultimately finding balance in a sometimes turbulent sea. Don't miss a moment of this enlightening conversation with Cheryl. It's a testament to the strength of love, persistence, and creativity in the face of adversity. Learn more about the SNAP course on a previous episode, "Designing a Disability Support Plan for Independent Living."
Check out the Special Needs Academy SNAP masterclass online, which is applicable for anyone with special needs transitioning their services or caregivers: https://enroll.specialneedsfamilyservices.com/p/advocacy-planning-masterclass
If you have questions about the course or coaching programs, we invite you to schedule a call with our team here: calendly.com/imartinez-31/specialneedsacademyHave you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
The intensity of grief can feel like an insurmountable mountain. A profound loss, the passing of Host Annette Hines' beloved daughter, Elizabeth, led her down a path of unimaginable pain, reshaping her identity as a mother and her life. Through the waves of grief, Annette discovered a lifeline in a local grief group, offering a haven where she could share, cry, and heal. This episode serves as an open invitation to join in Annette's journey of remembrance, honoring suicide prevention month, and emphasizing how simple acts of kindness can make a world of difference.
If you or someone you know is experiencing a mental health crisis, call or text 988 immediately. If you are uncomfortable talking on the phone, you can chat the Suicide & Crisis Lifeline at 988lifeline.org. Learn the warning signs of suicide.
We all have a role to play in suicide prevention. It's about staying connected, ensuring safety, and assisting those in need. Annette shares her personal experiences with suicide, depression, and the transformation that followed Elizabeth's death. She also discusses the importance of getting involved at the local level and recommends resources available at 988lifeline.org. As we journey through this heart-wrenching topic, we hope to inspire listeners to be vigilant about suicide prevention, supporting those who are struggling, and honoring those we've lost. In the end, it comes down to kindness, compassion, and the courage to reach out to those in need.
Crisis Resources:Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
Are you ready to uncover the mysteries of Sensory Processing Disorder? We're elated to have certified occupational therapist assistants, Rachel Harrington and Jessica Hill, founders of Harkla Co in Boise, ID, on our show today. These remarkable women have recently become Certified Primitive Reflex Clinical Specialists, demonstrating their relentless pursuit of knowledge in the field of primitive reflexes. They're here to share insightful perspectives on what it means to be a COTA (Certified Occupational Therapist Assistant) and the significance of a synchronized treatment team.
Pull up a chair as Rachel and Jessica shed light on the intricate process of how our bodies and brains decipher eight senses, and the challenges that surface when this process hits a snag, a condition known as sensory processing disorder. They've got practical tips in their arsenal to recognize and manage this issue. As the conversation flows into the realm of sensory diets and advocacy, Rachel and Jessica offer invaluable suggestions for parents and educators to create an environment that nurtures learning for children grappling with sensory processing disorder.
Wrapping it all up, we delve into the crucial topic of supporting children with sensory needs. Our guests emphasize the need for open, clear communication between parents, educators, and professionals to ensure successful execution of sensory diet plans. They share wisdom on connecting with your child and setting an exemplary standard in emotional regulation. They prompt listeners to embark on this journey with a sensory checklist, a tool that aids in comprehending a child's sensory preferences. Remember, it's about taking one step at a time. So why wait? Tune in and make use of the treasure trove of resources available at Harkla.
Connect with Rachel and Jessica at Harkla:
Website: harkla.co
Facebook: @harklaproducts
Instagram: @harkla_family @allthingssensorypodcast
YouTube: @HarklaFamilyHave you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
Have you ever wondered about the unique life experiences of siblings of special needs children? We promise to enlighten you on this rarely discussed topic, as we welcome two individuals who've lived this reality -- Hillary Dunn Stanisz, a senior attorney at the Disability Law Center in Boston, and Alexandria Nadworny, a special needs financial planning specialist. Through a candid conversation, they share their personal journeys growing up alongside a special needs sibling, deciphering the balance of their own needs with those of their sibling, and the importance of a robust support network. This is a re-release of one of our earliest episodes.
Our dialogue evolves to discuss the unique dynamics that exist within a family having a child with special needs. Hillary and Alex delve into their childhood memories, talking about their siblings' pervasive medical challenges and the emotional impact it had on them. They shed light on how open communication within the family unit is pivotal and explain how they often had to play multiple roles, including the unexpected one of a quasi-parent.
Wrapping up our conversation, we share some practical advice for parents to ensure their typically developing children also have positive experiences. Focusing on tailored approaches, addressing potential feelings of jealousy, and promoting healthy relationships outside the family, we offer a comprehensive guide to managing these unique situations. Hillary and Alex reveal their fears of predeceasing a sibling with special needs and the hurdles of long-distance caregiving, while striving to maintain a balance with their personal lives. Come, join us for a heartfelt conversation on this compelling and unique subject.
You can find https://www.masiblingsupport.org/Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
In an emotionally charged conversation with Eric Jorgensen of True North Disability Planning, we venture deep into the heart of community and its indispensable role in special needs parenting. Through recounting her own journey with her daughter Elizabeth, born with a mitochondrial defect, Host Annette Hines unveils how community acted as their family lifeline, providing a shared belief system and collective elasticity to push forward. Eric, embodying his Navy ethos, emphasizes the value of a supportive community, a nurturing fixture that provides control and personalization, strikingly different from social media's impersonal landscape. Listen to a previous episode with Eric Jorgensen to learn about his own special needs parenting journey.
Driven by our shared experiences, we're excited to introduce our latest venture - a membership-based community platform. This is more than just a gathering spot; it's a space designed to bring resources together, fostering inclusivity and support. In our discussion, we dissect the potential of a community-based platform and how it allows users to personalize their experience, connect on a more profound level, and access vital resources. We invite service representatives to engage in sincere Q&As, moving beyond sales pitches to provide meaningful insights to the community.
To conclude, we extend an invitation to continue this enlightening conversation on Mighty Networks, our newly launched platform. It's a safe space to learn, share, and express ourselves as we navigate the challenging journey of special needs parenting together. As we embark on this transformative journey, we ask, "What does community mean to you?" We're eager to hear your thoughts, experiences, and insights as we work together to build a community that serves us all. Share your thoughts with us on our website: https://specialneedscompanies.com/podcasts/Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
Navigating the unknown waters of parenting a child with autism can feel like being adrift without a compass. In this dynamic conversation, we had the privilege of speaking with Joya Vandalan, a mother of three and a family nurse practitioner, who found her North Star in the midst of her own experiences raising a child with autism. Joya not only breathes life into the challenges she faced as a first-time mother and healthcare professional, but also shares her journey of creating Autsim Game Plan - a business born out of necessity, resilience, and unyielding love for her children.
Joya's perspective is enlightening, as she weaves tales of her personal experiences with integrative and functional medicine, and how it has shaped her approach to managing her daughter's autism. You'll hear her discuss food allergies, medication allergies and the hurdles she jumped over to establish her functional medicine practice, which she firmly believes can help others navigate their unique health challenges. There's an authenticity in her voice that resonates when she talks about her struggles and victories in starting her own practice, juggling her family life, and the invaluable lessons she's learnt along the way.
We also get into the nitty-gritty of healthcare options for children with special needs, a topic that often leaves parents feeling overwhelmed and uncertain. Joya sheds light on how to make informed decisions, offering her insights and experiences in a way that's tangible and actionable. We round off this conversation by underscoring the importance of sleep for both parents and children - something that's often overlooked but is paramount for everyone's wellbeing. Join us for this enlightening conversation that's sure to leave you feeling informed and inspired - whether you're a parent of a child with special needs or a healthcare professional seeking to understand more about functional medicine.Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
Knowing where to start with estate and special needs planning can be an intimidating task. However, don't be daunted, because this episode is your lifeline to understanding and managing this process effectively. Host Annette Hines describes the types of life planning she does for clients -- estate planning, guardianships and legal authorities, and advocacy and public benefits. Plus, she shares insightful tips on seeking the right professionals who can help steer your journey and provide the support you need.
Diving into the heart of planning, Annette presents an easy way to begin to map out a life and estate plan.
1. Outline your list of support people, known as your Circle of Care: List the important people in your life who fulfill specific roles in your life and those of your disabled person.
2. Gather all of your stuff and identify: What do I own? Where are my assets, both tangible and digital? What are my debts? What types of work benefits do I need to explore more like long-term care insurance?
3. Find an estate planning attorney and financial planner who understand your family and have special needs planning experience.
Mapping out these three elements is a great start to preparing to create a more comprehensive special needs estate plan. You can do that in our online Special Needs Estate Planning Masterclass that provides you with a course and workbook to gather all of your resources, create a comprehensive financial outline, and more! Plus, you can save 50% on the course with the code: PARENTING
Visit our Special Needs Academy website for more details: https://enroll.specialneedsfamilyservices.comHave you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
Navigating the back-to-school season can be a significant challenge, especially if your loved one is living with disabilities. As a mother of a profoundly disabled daughter, Elizabeth, Host Annette Hines has learned that preparation is everything. From creating checklists to setting achievable goals, we explore how to keep things in order, ensuring a smooth transition. This episode shares the story of Annette's journey and how it led her to become an advocate for the disability community.
The second part of our discussion is equally important - understanding the procedures, expectations, and the art of communication when it comes to dealing with care providers. We discuss the importance of asking questions, comprehending policies, and setting up effective communication channels. We also shed light on the significance of touring the school or program setting for identifying potential issues. It's not just about getting ready for a new school year, it's about building an environment that fosters understanding, awareness, and compassion. Whether you're a parent, caregiver, or just interested in the trials and triumphs of the disability community, this episode promises to enlighten and empower you to be an advocate for your disabled person.
Find a comprehensive Back-to-School checklist on our website to use for yourself or your family as you prepare fora new school year.Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
This episode is a re-release of a previous episode that aired in May 2020 in remembrance of Annette Hines' daughter Elizabeth who passed away from mitochondrial disease in 2013. Hines reflects on the heartwarming and sometimes heart-wrenching journey of being a special needs parent that involves joy, silver linings found in loss, and the challenges of moving on. Reflecting the start of the Parenting Impossible podcasting, Hines shares her enlightening conversation on Sydney Weiss's Seek the Joy podcast. Hear about Hines' book 'Butterflies and Second Chances', and the extraordinary experience of raising her beautiful daughters, Elizabeth and Caroline.
Navigating through grief and loss while still maintaining a connection with the special needs community has presented its own set of trials. Hear how this has impacted Hines' daughter Caroline and her experience growing up with a sibling with special needs. With your invaluable support, the podcast has grown and evolved, and your feedback and reviews continue to shape its future. Together, we've created a nurturing community; let's continue sharing our experiences, growing, and finding strength in our stories.Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
Hold your breath as you plunge into an awe-inspiring journey with Raja Marhaba, Special Education Advocate, Author (UNSTOPPABLE), and Founder of The Jonathan Foundation for Children with Learning Disabilities. Embark on a monumental David and Goliath journey that showcases a mother's determination in the face of adversity. Raja's struggles with a broken special education system and her relentless pursuit of justice for her children are nothing short of extraordinary. Hear her riveting story as she fearlessly battled her way to the Ninth Circuit Federal Court and bear witness to the sacrifices she made for her children's rights. She documents her experience and what she learned in her book, Unstoppable: A Parents' Survival Guide for Special Education Services with an IEP or 504 Plan.
Travel further down Marhaba's 26-year journey as she highlights the pitfalls and power dynamics of a faulty special education system. Feel the weight of the financial costs and the resilience required for navigating these murky waters. This episode unfolds the strength of a parent's love, shedding light on the lengths one will go to ensure their child's right to a free and appropriate education. Marhaba's compelling narrative serves as a beacon of hope for those embarking on a similar path. Her tireless community service has been recognized through awards including The 2021 The Diane Lipton Award, The Daily Point of Light Award, and the Prestigious Marquis Who's Who Biographical Registry.
Finally, you'll be privy to her transformative journey from middle-class living to becoming a relentless advocate for education. Learn about the faith that kept her going, her pro bono work, and involvement in the fight against child trafficking. Join us to revel in the power of advocacy and resilience. This is an episode that is bound to leave you inspired and educated.
Connect with Raja Marhaba:
Website: https://thejonathanfoundation.org and https://unstoppableadvocacy.com/About
Facebook: https://www.facebook.com/TheJonathanFoundation
Instagram: https://www.instagram.com/thejonathanfoundation
LinkedIn: https://www.linkedin.com/in/raja-marhaba-5a985b14Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
As a broadcaster, radio host, and digital media veteran, Tamara Taggart is no stranger to the spotlight. But it's her role as a mother and advocate for her son Beckett, diagnosed with Down syndrome at birth, that propels this episode into an insightful and heartfelt journey. Tamara candidly shares the battles she's faced, from the negativity of medical professionals to fighting for Beckett's education in a system not designed to accommodate his needs. This story of resilience, love, and the power of advocacy aired originally in November 2020, and is being re-released to encourage others to fight for meaningful inclusion for those in the disability world.
When her son Beckett was born, Tamara Taggart was thrust into a world she hadn't anticipated. Shocking diagnoses, disheartening attitudes, and daunting educational challenges became her reality. Yet, through it all, Tamara stood firm, demanding dignity, respect, and meaningful inclusion for Beckett. She confronted a culture of low expectations and fought to change the narrative for her son and others like him. This episode sheds light on the reality of raising a child with Down syndrome, the struggles families face, and the relentless pursuit of equality.
Language matters. This is a reality Tamara knows all too well. From a distressing diagnosis about her daughter to the language used in disability advocacy, words have a profound impact. Host Annette Hines had a similar experience with her daughter, Elizabeth. During an appointment with a neurologist early in Elizabeth’s life, he likened Elizabeth’s brain to “Swiss Cheese.” For a young mom watching her child fight for her life, those words cut deep, similar to how Tamara felt hearing the words Beckett’s doctors used to describe his condition.
Tamara's resilience, courage, and unyielding commitment to her son Beckett's well-being will inspire and move you. This isn't just about Down syndrome; it's about humanity, empathy, and the way we treat each other.
You can learn more about Tamara on her website and connect with her on Facebook, Twitter and Instagram. Join Annette’s Facebook Group, “Circle of Care” to be a part of a group of parents sharing encouragement and resources for children with disabilities.Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
Celebrating the 33rd anniversary of the Americans with Disabilities Act, we're taking a deep look into ableism and its effects on disability rights. Host Annette Hines is joined in this conversation by Peter Morin, an attorney from the Special Needs Law Group who is committed to providing a voice for the vulnerable and ensuring they receive the essential services they need. By battling the discrimination that stems from the misguided notion that individuals with disabilities are inherently inferior, we aim to make a change, and you can help, too, by spreading awareness with the hashtag #ADA33.
Navigating state agencies and organizations can be a daunting task, but Peter shares his invaluable insight on the matter. Do you know the importance of strategic planning, asking the right questions, and the precision required while filling out forms? Peter underscores these crucial elements, reminding us all that expressing urgency can potentially prioritize your case, providing needed waivers and exemptions. This episode also shines a light on the challenges families face while providing proof of their loved one's disability and the importance of having the right paperwork at hand.
Peter also talks about the power of gratitude. In the seemingly small act of saying thank you, we can forge stronger bonds and make a difference in the lives of those striving to improve the world for individuals with disabilities. Peter encourages us all to take action, no matter the scale, because every small act contributes to changing lives, one life at a time. So, join us in this crucial conversation and be a part of the change.Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
Who doesn't seek the comfort of familiar surroundings when dealing with life’s complex challenges? This sentiment rang true for Host Annette Hines during this heart-to-heart with Jessica Guzman, an extraordinary ABA (Applied Behavioral Analysis) therapist and behavioral consultant.
They unravel the profound sense of solace found in the natural environment and Annette's own personal experiences with her late daughter, Elizabeth. They delve into the thrilling world of ABA therapy in autism, offering insights into the journey of becoming a BCBA, modifying environments to influence behavior, and diverse approaches to ABA.
They also take a unique dive into the world of Behavior Analysis, highlighting the distinct roles of a BCBA and a behavior consultant. Jessica gracefully details her role of empowering parents and caregivers to take up her job, and the ultimate goal of clinicians to reach a point of termination and transition towards natural support. She elevates the conversation with her goal of making applied behavior analysis more accessible, providing caregivers with the tools to avoid challenging behaviors and a gentle reminder to be kind to themselves.
The final segment takes a reflective turn as we share our thoughts on life's imperfections, the comfort of familiar connections, and the shared joys and challenges of parenting. Jessica and Annette discuss the joy of witnessing parents teaching their children, the immense pride it brings, and the necessity for compassion in the time of a pandemic. They wrap up with a fun conversation about traveling woes, the pressures of portraying perfect lives on social media, and the simple pleasure of sharing a homemade apple pie.
We promise you an episode filled with laughter, poignant moments, and enlightening discussions. Tune in as they navigate the intricate maze of autism, behavior analysis, and above all, parenting.
This episode was originally recorded in September 2020, yet the recommendations from Jessica still apply to parents of autistic children today.Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
-
Have you ever wondered how a powerful support system can change the life of someone with a disability? Join Host Annette Hines in this passionate conversation with Susan Kahn, the brains behind Sue's Strategies, as we take a deep-dive into the significance of community for those navigating life with disabilities. They explore the trials and tribulations of Annette's personal journey within this community, and share her mission to empower, engage and educate others.
Susan Kahn, a revolutionary reading specialist, shares her captivating journey to transform how we approach reading in schools. Drawing from her experience with her third son who was born with learning disabilities, she shines a light on the power of phonics. Making a second career out of her passion, she entered private practice and has written 18 texts for sale on amazon; 53 free, animated videos; and 755 free blog articles to share her knowledge. They delve into her unique system of teaching children to learn flashcards and syllabicate words in just “five minutes a day”, her “two rules of syllabication,” and the importance of bringing this instruction to higher education.
In a society where reading is often the gateway to success, Susan discusses the profound impact reading difficulties can have on self-esteem and life outcomes. She talks about her innovative five-step process that utilizes phonemic awareness and memory strategies to help children learn to read, including those with learning disabilities. They discuss the urgent need for change in our education system and the potential implications of passing two bills now in the Massachusetts state legislature: S263 and H 579, “An Act to promote high quality comprehensive literacy instruction in all Massachusetts schools" that would require schools to use the science of reading. Be sure not to miss out on this conversation about revolutionizing education, the power of community, and much more.
Connect with Susan Kahn:
Website: https://www.suekahnreadnow.com/
Reddit: https://www.reddit.com/r/LearningStrategies/
Facebook: https://www.facebook.com/suesstrategies/
Twitter: https://twitter.com/SuesStrategies
LinkedIn: https://www.linkedin.com/in/susan-kahn-442a6628/
YouTube: https://www.youtube.com/channel/UCrvy_WQEjY21VVHmJl9jQKg
Blogger:Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.
- Mostrar más
