Episodi
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Fez Awan @FezAwan three times kidney transplant recipient and Organ Donation Ambassador based in UK.
One of the kidney transplants Fez received was from the living organ donor, Fez’s father.
Fez is based in UK and actively involved kidney disease advocacy awareness and organ donation.
Fez is passionate empowering other renal patients and their family/ caregiver in kidney disease management and mental health.
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Meet Anel and Juan. Their family life has been impacted by kidney disease. Anel is the post-transplant kidney patient 24 years strong!
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Episodi mancanti?
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Weekly discussion with Renal Dietitian🙋🏻♀️ Mathea Ford @renaldiethq about Kidney Disease Management and Kidney Failure Prevention on IG @renalmateToday’s Topic:“ Treating Acidosis”🔸 What is the Acidosis?and its mechanisms regulating the acidity-alkalinity level🔸 Treatment of Acidosis:✔️with oral sodium bicarbonate✔️diet management
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The educational session with registered renal dietitian discussing blood pressure management:Doctors call high blood pressure “silent killer” as the high blood pressure can exist for decades before being detected yet it’s cause serious damage.Today we discussed:-What is Blood Pressure?-High Blood Pressure and Kidney Failure-Treating Blood Pressure-Measuring Blood pressure-Medication for High blood pressure
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Join weekly Talk on " Kidney Disease and Steps to Help You Avoid Dialysis":TODAY'S TOPIC: “Low-Protein Diet For CKD for pre-dialysis” with Renal Dietitian 🟣 Hunger management in transition to Low-protein diet.Sources of Energy:🟣 Going in Depth on Carbohydrates their source in our diet. 🟣 Fats and which of them are good and bad for you?Low-Protein and how much of protein in daily intake is good/ healthy amount for your body type. Phosphorous intake and its correlation with protein intake; Tracking Daily Protein intake..
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Meet Shima Fazelimanesh, Clinical Renal Dietitian specializing in Renal Diet, Bariatric and Diabetes management IG @rebel_nutrition_therapyShima shares the common gaps in kidney diet understanding and how misleading diet trends for weight loss may result in poor outcomes for kidney disease patients. Learn in depth about Keto Diet and its impact on the Body.
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Leila ( IG @Leila_Hope) received a shocking diagnosis of kidney failure at ER room where she went to checked on her blurry vision ... She was only 27 y.o. when see was admitted to dialysis. In her journey with kidney failure Leila developed the coping technique that transformed her health, wellbeing and the outlook on life. There were numbers of the impactful practices Leila adopted during her three years on dialysis such as yoga, acceptance and managing renal diet, etc.
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What made you to become kidney organ donor?
Meet Shawna Robinson, blood and pallets and kidney organ donor to Marc Coronel.
Shawna Robinson and Marc Coronel just have celebrated KIDNEYVERSARY 12/10/19.
From the young age Shawna was introduced to health care system by her grant mother who worked as medical transcriptionist which inspired to her to take the first job training at the hospital ER. Since then the high school student Shawna become an active blood and pallets donor. Learn more about Shawna mindset in her journey becoming kidney organ donor.
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Kellsey Reed, RD shares the importance addressing kidney disease management through the diet interventions in the earlier stages of CKD. Kellsey have helped many dialysis patients to gain confidence in eating ESRD friendly diet but she wanted to put her skills to empower early stage CKD patients, especially women to learn and adopt healthy eating habits to delay the progression of kidney disease.
Kellsey emphasizes the value of self-advocacy for patients to request needed education and referrals by their care team.
CKD Nutrition was created to help kidney patients live a full life with kidney disease. Tune in to learn more about Kellsey's approach to CKD diet management.
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Discussion with Leila & Jovan about physical health and consistent exercise with its importance managing quality of life for kidney patients.
Staying active by incorporating fitness in daily life may have a bright number of positive outcomes on health and wellbeing of kidney patients.
However adopting new healthy habits requires significant effort and commitment from patients, starting from learning new skills of proper exercise to find daily motivation to adhere to the exercise goals.
Jovan and Leila share their experiences managing exercise routes while going through the rollercoaster of kidney journey. -
Calah is a passionate and active advocate shares the awareness about early diagnosis of kidney disease, gaining fighter mentality to overcome the hardness of ESRD tosuccessfully manage day-to-day life on dialysis.Calah's diagnosis with kidney failure was unexpected... but she had seen the prior changes in her wellbeing and had experienced discomfiting alerting symptoms, which she had tried to manage without medical consultation.She was crushed into dialysis and spent over 18 months on hemodialysis, now having over 450 needle scars on her arm.However, Calah is so grateful for all knowledge and awareness she gained through kidney failure. She has learned and discovered an incredible strength in herself to fight for her life, connect closer with God, her church, and supportive friends & family.In her Dialysis management days Calah had a strong opinion about her body image, especially the look of her fistula. She has learned to be transparent and speak openly to her doctors about her health goals, which empowered her in every way to feel being in control of her health and dialysis treatments.After receiving her transplant and surviving through ESRD, Calah says:" Scars are my greatest medals in life".
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Search for a kidney organ donor is an emotional and challenging process that requires learning new ways to speak about personal illness and daily struggles living with kidney failure.
Jovan is a dialysis patient and the recipient of two kidney transplants. Leila has been a dialysis patient for 3 years and 6 years post kidney transplant. Jovan & Leila will share their kidney transplant journey in search for organ donors and overview the common ways to start looking for organ donation.
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She faced many challenges and hardness being diagnosed with Lupus and Lupus Nephritis, which went after her kidneys and caused Renal Failure. At the moment Gabrielle undergoes hemodialysis, while looking forward to the kidney transplant (looking for organ donor Blood B+). Living daily life with the chronic illness brought the great sense of purpose and passion to Gabrielle becoming an active patient advocate and educator to empower anyone facing Lupus and CKD diagnosis, especially educating underserved communities about Lupus. In the podcast we've discussed the following topics: - Life during 2020 for Lupus and Hemodialysis patients while being a super active Mom, who's working from home. - Gabrielle's experience facing and processing Lupus and ESRD diagnosises. - Lifestyle adjustments while being CKD and starting dialysis ( self-care, travels, family life, diet etc). - Becoming a mother and awareness about surrogacy. Setting up boundaries and processing emotions.
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Jovan and Leila Show addresses the importance of positive body-image for kidney disease patients.
For many renal and dialysis patients such as Jovan ( living with kidney disease entire life) or Leila ( being dialysis patient for 3 years) surgeries may sound less intimidating than for anyone who's never faced diagnosed of renal failure. However journey through the surgeries, gaining new scares and witnessing own body transformation can become an overwhelming and disturbing experience. Tune into Jovan & Leila's discussion how they experience their body image in different age and staged of kidney disease. Learn how to work on self-care practices to overcome the mental and physical barriers accepting yourself and your body.
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Conversation with Alicia about her personal experiences with Lupus and CKD diagnosis.
Hope this conversation can empower anyone who has been recently diagnosed or living with chronic illness such as lupus, lupus nephritis and kidney disease, etc.
Steps to follow taking diagnosis and how to be the best prep to take the newsThe importance of grief and acceptance after a diagnosis:5 STAGES:
🤍denial
🤍anger
🤍bargaining
🤍depression
❤️acceptance
Importance to take action and be open to a positive change in perspective. -
Part Two of the introduction of two new Co-Hosts.
" Relationship, Self-Love and Body Positivity can be really challenging to anyone who is facing chronic illness!"
This Show is dedicated to facilitating a kind, safe and empowering environment for kidney fighters to speak openly about experience and challenges living with kidney disease.
Meet Leila, co-host, Post Kidney Transplant Patient, Yoga Teacher and Health Care Coach.
Meet Jovan, co-host, fighting kidney disease for 35 years. Currently on hemodialysis. Soccer Coach and passionate advocate for Kidney Disease.
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Meet Jess Peniazek she is the SUPER MOM & LIVING KIDNEY DONOR to her son Noah.
Her son Noah was born via emergency c-section. He went a long period of time without oxygen and ended up with severe brain damage and kidney failure. At just 8 day old he started hemodialysis daily treatments for 4 hours a day.
He transitioned to peritoneal dialysis which was done at home every night for 12 hours. At just 14 months old Jess found out she was a perfect match and donated her kidney to Noah on 12/11/18. Her kidney gave Noah a new opportunity of life and for once he finally got to feel like a normal toddler. "He has made so much progress since transplant and continues to amaze us every day. We are so proud to call him our miracle baby. His smile lights up a room and he is the strongest little man we ever met. We are honored to walk for our son and celebrate his new life everyday!!"- Jess says.
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Jovan Pulido, ESRD patient based in Merced, CA. Jovan was born with kidney disease, through his lifetime he has received two kidney transplants, over 100 surgical procedures, and now he receives hemodialysis in Merced.
Jovan's childhood was untypical since he had to undergo pediatric transplant, IVIG treatments for 6 months and many other procedures required hospitalization. Unfortunately the first kidney transplant has lasted only 3 months.
The support system of friends and family has been an amazing value for Jovan through the years of ESRD.
Jovan received his second kidney transplant from his Mother, who always was his best advocate and supported managing ESRD.
Tune into Kidney Health Interview podcast to learn about Jovans' Journey... -
Relationship, Self-Love and Body Positivity can be really challenging to anyone who is facing chronic illness!
This Show is dedicated to facilitating a kind, safe and empowering environment for kidney fighters to speak openly about experience and challenges living with kidney disease.
Meet Leila, co-host, Post Kidney Transplant Patient, Yoga Teacher and Health Care Coach.
Meet Jovan, co-host, fighting kidney disease for 35 years. Currently on hemodialysis. Soccer Coach and passionate advocate for Kidney Disease.
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Nicole DeMasi, Registered Dietitian and Certified Diabetes Educator specializing in diabetes, kidney disease management using the plant based diet approach.
Follow Nicole DeMasi, RD on IG @nutritionbynikki and receive access to The Nutrition Guide for Kidney Disease and Diabetes Management www.nicoledemasi.com/renalmate.During the interview Nicole shared her expert's advice and science-based evidence addressing the following topics:
1. The common lifestyle risks in the development of diabetes and kidney disease.
2. Pros & cons following diets like Keto, Paleo and what are the risks associated with the development of disease and disorders?
3. The common miss-understandings management diabetes and insulin management with the diet? Nicole explained in detail on how the debates impact our body and how crucial the high fiber diet in the management of blood sugar. Also she overviewed the benefits of stress management and adoption of the active lifestyle which can significantly improve the management of chronic diseases, such as diabetes, CKD, etc.
4. Discussed the common barriers adopting the plant-based diet and shared science baked research that prove the positive benefits of PBWF diet.
5. The final part of the podcast was dedicated to Kidney Diet especially management of potassium and protein intake needs.
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