Episodes
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How do you begin the difficult dialogue around end-of-life wishes for your care recipient? When you are the caregiver for someone whose health is declining, the reality of death can be overshadowing and feel frightening to acknowledge. So often, it’s as though we fear that simply speaking about death will speed it to our door. Karla Kerr, a funeral director and death doula in Victoria, BC, sees things differently. She approaches conversations with families who are facing or have just experienced death in an exploratory and compassionate way that recognizes death is inevitable.
Respecting and upholding the wishes of care recipients can only be accomplished through practical, values-centred communication. Death has a tendency to reveal to us what is most important; engaging in these conversations can have a tremendous impact on the depth and intensity of our relationships, especially when we prioritize them when we still have plenty of time, rather than waiting until the end.
Discover how Karla’s experiences with hundreds of families at this pivotal moment can inform your own conversations with your care recipient:
The importance of acknowledging the inevitability of death and having reverence for the death process Why it is so beneficial to talk about what is most meaningful before the final moments The hard questions that will ensure you can take action with deference to their values and beliefs The positive impact of gratitude at every stage of our relationshipsResources:
Learn more about Karla Kerr, End of Life Planning and Care - https://karlakerr.ca/ A Caregiver’s Guide: A Handbook About End-of-Life Care - https://www.virtualhospice.ca/Assets/CHPCA%20caregivers_guide_2015_en_20170314094930.pdf After Death Checklist from Government of BC - https://www.familycaregiversbc.ca/wp-content/uploads/2021/03/After-Death-Checklist-Government-of-BC-1.pdf Proactively Planning for End-of-Life Blog - https://www.familycaregiversbc.ca/archives/19255 Canadian Hospice Palliative Care Association - https://www.chpca.ca/ Canadian Virtual Hospice - https://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home/Support/Support.aspx Family Caregivers of BC Caregiver Support Line - 1-877-520-3267 (Monday through Friday 8:30am to 4pm PT) -
What difficulties develop when a child becomes a caregiver to their own parent? Studies show that young caregivers make up at least 12% of Canadian youth. One of these young people is Kristie Mar. At just 16 years old, Kristie set aside a significant part of her adolescence to become the sole carer for her mother, who was navigating schizophrenia and anorexia. The medical professionals, counsellors, and groups from whom she sought assistance, however, never gave her the title of “caregiver.” As such, it took her years to think of herself in this way or discover the resources that search term could unlock.
Today, Kristie is a medical student and an active participant in this community. She wants to help increase awareness and resources for fellow adolescents who are thrust, so often unprepared and unsupported, into the role of caregiver for their family members.
Hear the difficulties a young caregiver faced, caring on her own, including:
The impact of expanding the narrow definition of “caregiver” to better identify young caregivers Where to uncover resources that help reduce the deep sense of isolation
The many facets of childhood that are lost to young caregivers Strategies for maintaining mental health while balancing childhood and a very adult responsibilityResources:
Powerhouse program for young caregivers - https://www.familycaregiversbc.ca/young-caregivers-2 Managing expectations - https://www.familycaregiversbc.ca/wp-content/uploads/2021/03/Managing-Expectations-April-2020-1.pdf Episode 11 How to Use Writing for Healing and Self Care - https://www.familycaregiversbc.ca/podcast/episode-11-how-to-use-writing-for-healing-and-self-care Episode 14 Creativity as a Form of Self Care - https://www.familycaregiversbc.ca/podcast/episode-14-creativity-as-a-form-of-self-care Family Caregivers of BC Caregiver Support Line - 1-877-520-3267 (Monday through Friday 8:30am to 4pm PT) Connect With Us!To read a full transcript of each episode, visit the Family Caregivers of BC website https://www.familycaregiversbc.ca/podcast
Visit us at our office:
#6 – 3318 Oak Street,
Victoria, BC
V8X 1R1
Hours are Monday through Friday, 8:30 am to 4:00 pmTelephone: (250) 384-0408
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
X / Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative - https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions - https://www.organizedsound.ca/
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Missing episodes?
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How can you build a healthier relationship with death and dying that will benefit both caregiver and recipient? Aaron Yukich is an end-of-life doula, mindfulness practitioner, and hospice care worker. In his work with the Family Caregivers of BC Caregiver Support Line, Aaron incorporates meaning-making and self-reflection into his sessions with caregivers, helping them uncover new ways to provide support to their care recipients without overlooking their own well-being.
The end-of-life process has many varied aspects. Aaron helps caregivers navigate this intricate spiritual and emotional experience with grace, through activities and mindsets that can offer comfort and even joy. He also guides them in practical considerations, such as establishing often-overlooked financial and personal mental health support structures.
Aaron shares his holistic perspective on providing end-of-life care:
Moving through the transition from palliative to hospice care Resources for addressing the impacts of caring for a care recipient Imbuing the time your loved one has left with more meaning Considering death and dying through a lens of celebration and reflection as well as griefResources:
United Way Better at Home - https://betterathome.ca/ Island Health Dementia Video Series - https://www.islandhealth.ca/learn-about-health/seniors/dementia-video-series Discover a local hospice - https://www.chpca.ca/listings/ Hospice care information and assistance - https://www.virtualhospice.ca/ Hospice resources with a cultural focus - https://livingmyculture.ca/ Navigating the End of Life: A Road Map for Caregivers webinar - https://www.familycaregiversbc.ca/archives/video/navigating-the-end-of-life-a-road-map-for-caregivers Finding Peace at the End of Life: A Death Doula's Guide for Families and Caregivers by Henry Fersko-Weiss (2020 edition) - https://bookshop.org/p/books/finding-peace-at-the-end-of-life-a-death-doula-s-guide-for-families-and-caregivers-henry-fersko-weiss/13032460?ean=9781590035023 Caring for the Dying: The Doula Approach to a Meaningful Death by Henry Fersko-Weiss (2017 edition) - https://www.amazon.ca/Caring-Dying-Doula-Approach-Meaningful/dp/1573246964 BC Grief and Bereavement Society: list of support groups and other help for BC residents (also some options are across Canada) Contact the Helpline at 604-738-9950 and toll-free 1-877-779-2223 - https://bcbh.ca/groupsandevents/ TalkDeath: death positive, grief and bereavement resources - https://www.talkdeath.com/ Family Caregivers of BC Caregiver Support Line: 1-877-520-3267 (Monday through Friday 8:30am to 4pm PT)Connect With Us!
To read a full transcript of each episode, visit the Family Caregivers of BC website https://www.familycaregiversbc.ca/podcast
Visit us at our office:
#6 – 3318 Oak Street,
Victoria, BC
V8X 1R1Hours are Monday through Friday, 8:30 am to 4:00 pm
Telephone: (250) 384-0408
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative - https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions - https://www.organizedsound.ca/
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How would you retain your sense of self if you required full-time care?
When Brooke Ellison was 11 years old, a car accident left her a ventilator-dependent quadriplegic. Her mother Jean stepped into the role of full-time caregiver, and their familial and caregiving relationship balance has continued for over thirty years.
Dr. Brooke Ellison graduated from Harvard, wrote two memoirs, and is a frequent public speaker on resilience, leadership, and hope. In this episode, she reflects on her experiences as a care recipient—both then and now. Specifically, Brooke shares how she navigates disability and how her definition of this term has changed and grown over the years.
Brooke shares what care feels like from the other side of the table:
Why building a routine is so important when unpredictability is unavoidable How Brooke’s concept of disability as vulnerability has changed over the years The challenge of finding alone time when care needs are so pervasive Considering and communicating about the future despite its uncertaintyResources:
Family Caregivers of BC Caregiver Support Line: 1-877-520-3267 (Monday through Friday 8:30am to 4pm PT) Learn more about Brooke - https://www.brookeellison.com/ Look Both Ways by Brooke Ellison - https://bookshop.org/p/books/look-both-ways-brooke-ellison/18034792?ean=9781951568184 Miracles Happen by Brooke Ellison - https://www.amazon.ca/Miracles-Happen-Mother-Daughter-Journey/dp/0786867701Connect With Us!
To read a full transcript of each episode, visit the Family Caregivers of BC website https://www.familycaregiversbc.ca/podcast
Visit us at our office:
#6 – 3318 Oak Street,
Victoria, BC
V8X 1R1
Hours are Monday through Friday, 8:30 am to 4:00 pmTelephone: (250) 384-0408
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative - https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions - https://www.organizedsound.ca/
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How do you honour both yourself and your family member when giving full-time care? In this episode, Jean Ellison speaks about her experience as a full-time caregiver to her daughter, Brooke, whose story of life as a ventilator-dependent quadriplegic is well-known and inspirational.
For more than 30 years, Jean Ellison has balanced the roles of full-time caregiver and mother. While it was always clear to Jean that Brooke would live at home and not in a care facility, accepting her new reality and career trajectory was not a simple process. Jean strives to find happiness and laughter in every day, treating each one as a clean slate for both herself and her daughter.
Get a glimpse into Jean’s challenging and heartening experience:
What it was like to be trained and tested to care for her own daughter Who she has become despite an unforeseeable change in her life’s direction Where she finds the middle ground between home care and motherly compassion How hope and acceptance can combine to create a fulfilling life despite the obstacles.Resources:
https://www.brookeellison.com/ Family Caregivers of BC Caregiver Support Line: 1-877-520-3267 (Monday through Friday 8:30am to 4pm PT)Connect With Us!
To read a full transcript of each episode, visit the Family Caregivers of BC website https://www.familycaregiversbc.ca/podcast
Visit us at our office:
#6 – 3318 Oak Street,
Victoria, BC
V8X 1R1Hours are Monday through Friday, 8:30 am to 4:00 pm
Telephone: (250) 384-0408
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]
Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative - https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions - https://www.organizedsound.ca/
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At some point in our lives, we’ll all be faced with a tough decision we didn’t see coming. In most caregiving situations, people enter the caregiving role with love and passion. Then pretty soon, they begin to see some of the bigger implications, such as how finances are a big factor in the choices that affect the care recipient OR the caregiver themself. In today’s episode, we chat with Shannon Lee Simmons, a Certified Financial Planner and the author of a new book “No Regret Decisions: Making Good Choices During Difficult Times”, to tackle some of the anxiety and emotional stress for caregivers that come with making important financial decisions. And answer the question, how do we make good decisions during difficult times?
Resources:
Shannon Lee Simmon’s new book: “No-Regret Decisions: Making Good Choices During Difficult Times” - https://bookshop.org/p/books/no-regret-decisions-making-difficult-decisions-in-difficult-times-shannon-lee-simmons/15788581?ean=9781443463454
Connect with Shannon - https://shannonleesimmons.com/
FCBC Overview of Financial General Resources, Tax Benefits and Credits for Caregivers - https://www.familycaregiversbc.ca/wp-content/uploads/2022/02/Guide-to-Financial-Assistance-for-Caregivers.pdf
Involuntary Separation Article - https://www.familycaregiversbc.ca/wp-content/uploads/2020/02/Involuntary-Separation.pdf
Government of Canada Benefits Finder - https://srv138.services.gc.ca/daf/q?id=37d7bcd6-f3f3-492b-ac3e-b869d7fb005c&goctemplateculture=en-ca
Family Caregivers of BC Caregiver Support Line: 1-877-520-3267 (Mon-Fri 8:30am-4pm PT)
Canada Revenue Agency General Enquiries Line: 1-800-959-8281 (Mon-Fri 8 am- 8pm and Saturday 9am-5pm)
Connect With Us!
To read a full transcript of each episode, visit the Family Caregivers of BC website https://www.familycaregiversbc.ca/podcast
Visit us at our office:
#6 – 3318 Oak Street,
Victoria, BC
V8X 1R1
Hours are Monday through Friday, 8:30 am and 4:00 pm
Telephone: (250) 384-0408
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]
Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative - https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions - https://www.organizedsound.ca/
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Many caregivers are supporting care recipients from a long distance. This form of caregiving brings with it a unique set of challenges as we try to provide support from afar. In this episode, Bill guides a panel of long distance caregivers, Mary Chan, Karla Wilson, and Victoria Lougheed, through a dynamic conversation filled with positive energy and laughter. The foursome came together to talk about their challenges of caring while not being able to physically be there, and to share some insights including some beautiful moments along the path that have made their caregiving journey a memorable experience.
Resources:
Caregiving From A Distance - https://www.familycaregiversbc.ca/wp-content/uploads/2021/04/Caregiving-from-a-Distance.pdf Tips For Long Distance Caregivers - https://www.familycaregiversbc.ca/wp-content/uploads/2021/04/Tips-for-Long-Distance-Caregivers.pdf Closing the Gap - https://www.familycaregiversbc.ca/wp-content/uploads/2021/04/Closing-the-Gap.pdf Caring For Yourself While Caring For Others (webinar) - https://www.familycaregiversbc.ca/archives/video/caring-for-yourself-while-caring-for-othersConnect With Us!
Family Caregivers of BC Website https://www.familycaregiversbc.ca/
Visit us at our office:
#6 – 3318 Oak Street,
Victoria, BC
V8X 1R1
Hours are Monday through Friday, 8:30 am and 4:00 pm.
Telephone: (250) 384-0408
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]
Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions https://www.organizedsound.ca/
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The experience of living and caring for someone with dementia is not always a universal experience and there can be different situations and patterns. However, there are some similar challenges caregivers face when trying to communicate with care recipients who are living with dementia. In this episode, Bill Israel speaks with Amelia Gillies, a Support and Education Coordinator with the Alzheimer's Society of BC about caring for someone living with dementia. Amelia shares stories she's heard on the support line, and also her own personal experience caregiving for people with dementia. Listen in as she provides education and suggestions for you to try when you’re caregiving.
Resources:
We’d love to share the First Link® Dementia Helpline as our primary resource:
English: 1-800-936-6033 Monday to Friday 9 am to 8 pm Cantonese and Mandarin: 1-833-674-5007 Monday to Friday 9 am to 4 pm Punjabi: 1-833-674-5003 Monday to Friday 9 am to 4 pm Alzheimer’s Society of BC https://alzheimer.ca/bc/ Creativity as a Form of Self Care episode https://www.familycaregiversbc.ca/podcast/episode-14-creativity-as-a-form-of-self-care Family Caregivers of BC Caregiver Support Line at 1-877-520-3267Connect With Us!
Family Caregivers of BC Website https://www.familycaregiversbc.ca/
Visit us at our office:
#6 – 3318 Oak Street,
Victoria, BC
V8X 1R1
Hours are Monday through Friday, 8:30 am and 4:00 pm
Telephone: (250) 384-0408
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]
Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions https://www.organizedsound.ca/
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How can we break down barriers and humanize the caregiving process? Through the power of pure emotion, unlocked through music. No matter what your musical background is, music used intentionally can be beneficial to improve health and well-being. Not only for the care recipient, but for you as well, as a caregiver. Today, we’ll hear how music enhances the care experience. I sat down with Bev Foster, a co-founder of the Room 217 Foundation and its Executive Director.
In this episode, Bev shares her experience caring for her dad and also for her grandmother who journeyed through dementia. Bev incorporated music into his palliative care and found that it was a very helpful tool both for her father and for herself. So much so, that Bev started a foundation to share music as a caregiving tool with other caregivers.
Resources:
Music Care by Room 217 Foundation https://www.musiccare.org/Connect With Us!
Family Caregivers of BC Website https://www.familycaregiversbc.ca/
Visit us at our office:
#6 – 3318 Oak Street,
Victoria, BC
V8X 1R1
Hours are Monday through Friday, 8:30 am and 4:00 pm.
Telephone: (250) 384-0408
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]
Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions https://www.organizedsound.ca/
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Engaging with creativity is a form of self-care that can benefit both a caregiver and a care recipient in many ways. In 2015, psychologist and art therapist Dr. Cathy Malchiodi cited multiple studies confirming that being creative can increase positive emotions, lessen depressive symptoms, reduce stress, decrease anxiety, and even improve immune system functioning. A 2016 study in The Journal of Positive Psychology supported these earlier findings, concluding that spending time on creative goals during a day is associated with higher activated positive affect (PA) on that day. Positive affect is the extent to which people experience positive moods, such as joy, happiness, and optimism. Higher positive effects lower stress and expand our perspective so that we notice more possibilities in our lives.
In today’s episode, Bill chats with Faye Melling, a caregiver for her adult daughter. Faye talks about how being creative has helped her deal with some of the ups and downs in her caregiving journey. She also shares how her daughter is using artistic expression as a way to deal with some of the challenges she’s experiencing due to her condition.
Resources:
Article on outcomes of art therapy and colouring for caregivers of cancer patients: https://www.sciencedirect.com/science/article/pii/S1462388919301152 Article on how creativity is an advantage for self-care: https://nyctherapy.com/therapists-nyc-blog/creativity-is-your-secret-advantage-for-mental-health-and-well-being/ Study on benefits of creative arts leisure program to caregivers: https://journals.sagepub.com/doi/full/10.1177/2055102915581563 Study on the connection between heart, healing, and public health with links to psychologist and art therapist Dr. Cathy Malchiodi https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2804629/ “Caregiver Well-Being” in the Resource Center at https://www.familycaregiversbc.ca/caregiver-learning-center/read-resourcesConnect With Us!
Family Caregivers of BC Website https://www.familycaregiversbc.ca/
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]
Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions https://www.organizedsound.ca/
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For many people as they age, living as long as they can in their own home is ideal. We love our comforts, our routine, and our independence. But there comes a time when the decision to have more support or to move into long-term care becomes a reality, whether because of a medical condition or safety concerns. This decision can be a significant challenge as there are many factors to consider when needing additional support.
In this episode, Janet Power, Executive Director of Sunrise Senior Living in Victoria BC, shares great information around transitioning to residential care and steps for gaining more support for the care recipient and caregiver.
Resources:
Moving from Home to Facility Flipbook FCBC Resource https://www.familycaregiversbc.ca/wp-content/uploads/2021/11/Moving-from-Home-to-Facility-Podcast-Resource-1.pdf For Long Term Care, to arrange LTC through the Health Authority, call the local Home and Community Care Office. (The BC Health Authority General Enquiry Lines that we have listed in the back of our Quarterly Newsletter) https://www2.gov.bc.ca/gov/content/health/accessing-health-care/home-community-care/how-to-arrange-for-care If you are interested in receiving assisted living services or know of someone who might be in need of these services, you can contact the home and community care office of your health authority or you can have a health care professional make a referral on your behalf. https://www2.gov.bc.ca/gov/content/health/accessing-health-care/home-community-care/care-options-and-cost/assisted-living Finding an Assisted Living Residence https://www2.gov.bc.ca/gov/content/health/assisted-living-in-bc/finding-an-assisted-living-residence Don’t Judge a Book by its Cover- What to Look for in a Care Facility https://www.familycaregiversbc.ca/wp-content/uploads/2021/04/Facility-Selection-Checklist.pdf How to Check Care Facility Records https://www.healthspace.ca/clients/viha/viha_website.nsf/CCFL-Main?OpenView Who Pays for Care? https://www2.gov.bc.ca/gov/content/health/accessing-health-care/home-community-care/who-pays-for-careOnline Tools and Apps:
Route 65 was developed by EngAge BC, a non-profit operating arm of the BC Care Providers Association (BCCPA), in response to a visible gap in quality information about seniors’ living and wellness options in the province. On Route 65, seekers can find more information on independent living, assisted living, long-term care and home health care options.
Route 65 also helps users navigate the seniors living and wellness continuum through our Glossary, Frequently Asked Questions and Resource pages, along with Walter, our 24-7 virtual concierge chatbot, who helps triage seekers to the most appropriate options.
Call 1-877-955-6565 or learn more at https://route65.ca/.
Connect With Us!
Family Caregivers of BC Website https://www.familycaregiversbc.ca/
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]
Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions https://www.organizedsound.ca/
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Once the decision has been made that placement in a care community is necessary, caregivers are often faced with the “what next” question. Because there are different levels of care and each community has a different ‘personality’, it’s very important to be as prepared as possible for the transition.
In this episode, we chat with Kathy Ajas, who for the last 17-years has worked in the retirement industry, including independent living, assisted living, and short and long-term care. Together, we explore questions caregivers have when considering moving to a new level of care with their care recipient.
Resources:
COVID-19 Survey Highlights- the Impact of COVID-19 on Caregivers https://www.familycaregiversbc.ca/virtual-caregiver-resource/covid-19-survey-highlights/ Moving from Home to Facility Flipbook FCBC Resource https://www.familycaregiversbc.ca/wp-content/uploads/2021/11/Moving-from-Home-to-Facility-Podcast-Resource-1.pdf For Long Term Care, to arrange LTC through the Health Authority, call the local Home and Community Care Office. (The BC Health Authority General Enquiry Lines that we have listed in the back of our Quarterly Newsletter). https://www2.gov.bc.ca/gov/content/health/accessing-health-care/home-community-care/how-to-arrange-for-care If you are interested in receiving assisted living services or know of someone who might be in need of these services, you can contact the home and community care office of your health authority or you can have a health care professional make a referral on your behalf. https://www2.gov.bc.ca/gov/content/health/accessing-health-care/home-community-care/care-options-and-cost/assisted-living Finding an Assisted Living Residence https://www2.gov.bc.ca/gov/content/health/assisted-living-in-bc/finding-an-assisted-living-residence Don’t Judge a Book by its Cover- What to Look for in a Care Facility https://www.familycaregiversbc.ca/wp-content/uploads/2021/04/Facility-Selection-Checklist.pdf How to Check Care Facility Records https://www.healthspace.ca/clients/viha/viha_website.nsf/CCFL-Main?OpenView Who Pays for Care? https://www.healthspace.ca/clients/viha/viha_website.nsf/CCFL-Main?OpenViewOnline Tools and Apps:
Route 65 https://route65.ca/
Route 65 was developed by EngAge BC, a non-profit operating arm of the BC Care Providers Association (BCCPA), in response to a visible gap in quality information about seniors’ living and wellness options in the province. On Route 65, seekers can find more information on independent living, assisted living, long-term care and home health care options. Route 65 also helps users navigate the seniors living and wellness continuum through their Glossary, Frequently Asked Questions and Resource pages, along with Walter, their 24-7 virtual concierge chatbot, who helps triage seekers to the most appropriate options. Contact 1-877-955-6565.
Connect With Us!
Family Caregivers of BC Website https://www.familycaregiversbc.ca/
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]
Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions https://www.organizedsound.ca/
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Research shows that family caregivers who list self-care as a priority can better provide care, are at lower risk of burnout and becoming ill, and find more joy in their role as a caregiver. Starting with small acts of self-care can create the opportunity to see the benefits. Calling a friend who lifts you up, accepting help, finding five minutes for a cup of tea in silence, or closing your eyes and breathing for 10 breaths are all acts of self-care.
Today we'll hear Rick's story, who shares his caregiving experience with both of his parents. Like many caregivers, Rick didn’t expect to be thrown into a caregiving role when he was. He quickly took on the many roles needed to ensure his parents were safe and well-cared for. Caregiving became a full-time job and it was during this time that he started to see his own health and wellness decline. He turned to writing to help him process his experience and feelings and this became a positive and reliant self-care strategy for him. In sharing his caregiving story, we hope you enjoy and feel supported by Rick's point of voice and maybe even consider your own favourite moments of self-care.
Resources:
Walking the Talk of Self-Care: Practical Strategies for Caregivers Webinar https://www.familycaregiversbc.ca/video/walking-the-talk-of-self-care-practical-strategies-for-caregivers/ Caregiver Burnout and Feeling Stuck Learning Video https://www.familycaregiversbc.ca/video/caregiver-burnout-and-feeling-stuck/ Checking In on How You are Feeling Article https://www.familycaregiversbc.ca/wp-content/uploads/2021/03/Checking-In-On-How-You-Are-Feeling.pdf Taking Care of Yourself: Self-Care Strategies for Family and Friend Caregivers Flipbook https://www.familycaregiversbc.ca/wp-content/uploads/2020/04/Taking-Care-of-Yourself-Self-Care-for-Caregivers-Booklet.pdf Learn more about FCBC Intensive Journal Writing Program https://www.familycaregiversbc.ca/learn-about-our-intensive-journal-workshop-for-caregivers/ What you Need to Know About Power of Attorney https://www.familycaregiversbc.ca/what-you-need-to-know-about-powers-of-attorney/Online Tools and Apps:
Wellness Together Canada https://wellnesstogether.ca/en-CAConnect With Us!
Family Caregivers of BC Website https://www.familycaregiversbc.ca/
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]
Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions https://www.organizedsound.ca/
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28% of Canadians or 1.8 million people, provided care to a family member or friend with a long-term health condition, disability or ageing need in the past year. Three-quarters of this group (6.1 million) were employed at the time, accounting for 35% of ALL employed Canadians. More and more people are becoming caregivers and a lot of these caregivers are balancing employment and caregiving.
In today’s episode, we hear from Rachel, who not only witnessed at a young age her mother be a caregiver, but then found herself caring for her Mother in her adult life. Rachel is part of the ‘sandwich generation’, currently raising and nurturing her own child and family, maintaining a full-time job and caregiving for her mother in Ontario. Rachel is an employed caregiver. When we use the term ‘employed caregiver’ we do not mean someone with a formal job as a paid caregiver, but rather someone that manages paid employment and at the same time is responsible for caregiving for a family or friend.Referenced Report:
Vanier Institute of the Family Report, 2017, https://vanierinstitute.ca/download/10536/Highlights:
What it means to be an employed caregiver Being part of the sandwich generation - caring for children and caring for ageing parents Being a caregiver while maintaining a full-time job Challenges of caregiving within the workplace Key things that support work and caregivingResources:
First Link Dementia Helpline https://alzheimer.ca/bc/en/help-support/find-support-bc/first-link-dementia-helpline Supporting a Family Caregiver (a friend, colleague and/or employee) in the Workplace Webinar https://www.familycaregiversbc.ca/video/supporting-a-family-caregiver-a-friendcolleague-and-or-employee-in-the-workplace/ Work and Care Webinar https://www.familycaregiversbc.ca/video/work-care-a-balancing-act/ Supporting Employed Caregivers Booklet https://www.familycaregiversbc.ca/wp-content/uploads/2020/08/Support-an-Employed-Caregiver.pdf Strategies to Make the Workplace more Caregiver Friendly
Tips and Tools for Employees (Canadian Hospice Palliative Care Organization) https://www.familycaregiversbc.ca/wp-content/uploads/2016/03/Strategies-to-Make-the-Workplace-More-Caregiver-Friendly.pdf Tips and Tools for Employers (Canadian Hospice Palliative Care Organization) http://hpcintegration.ca/media/60791/TWF%20TipsTools-CHCA-Employers-FINAL.pdf Work and Caregiving: A Balancing Act (Ontario Caregivers Association) https://ontariocaregiver.ca/wp-content/uploads/2020/04/OCO-Work-and-Caregiving-Toolkit-FINAL-Interactive-3.pdfConnect With Us!
Family Caregivers of BC Website https://www.familycaregiversbc.ca/
Telephone: (250) 384-0408
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions http://www.organizedsound.ca/
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When we think about grief, we often think of it as something that happens following a death. However, grief can begin long before death arrives. The grieving process can start as soon as a caregiver is aware that death is a likelihood or once death is on the horizon. Many caregivers dealing with an impending death will experience overwhelm, anxiety and dread. As well, before the death of a care recipient, caregivers grieve the loss of the person’s abilities and independence, loss of their cognitive abilities, loss of future dreams, loss of stability and the loss of their identity and the caregivers. Anticipatory loss is not just about accepting the future death, but of the many losses already occurring as an illness progresses.
Courtney Doherty is a registered clinical counsellor with the British Columbia Association of Clinical Counsellors. She currently works with Parkinson Society British Columbia, where she helped launch the counselling program in 2015. Today we talk about different forms and stages of loss and grief. And we talk about how a caregiver can plan for loss.
Highlights:
Ambiguous Loss and Anticipatory loss. Limbo or frozen grief process. The big role of a caregiver with the preparation of loss (logistics), identity change, and learning a new life (changes of emotions). Self-awareness of feeling the feelings and making them manageable.Resources:
Anticipatory Grief Package: Information for Patients and Families https://www.familycaregiversbc.ca/wp-content/uploads/2021/03/Anticipatory-Grief-Package-Information-for-Patients-and-Families-2021.pdf Navigating the End of Life: A Road Map for Caregivers Webinar https://www.familycaregiversbc.ca/video/navigating-the-end-of-life-a-road-map-for-caregivers/ Advance Care Planning Webinar https://www.familycaregiversbc.ca/video/advance-care-planning-for-caregivers/ How are you Coping with Ongoing Losses? Article https://www.familycaregiversbc.ca/wp-content/uploads/2020/02/Grief_How-Are-You-Coping-With-Ongoing-Losses_2018_2020.pdfLinks Mentioned in Episode:
Family Caregivers of BC Caregiver Support Groups https://www.familycaregiversbc.ca/family-caregiver-support-groups/ Parkinson Society BC Resources https://www.parkinson.bc.ca/resources-services/resources/ Caregiver Support Line, Toll-Free in BC: 1-877-520-3267.Connect With Us!
Family Caregivers of BC Website https://www.familycaregiversbc.ca/
Telephone: (250) 384-0408
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions http://www.organizedsound.ca/
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Have you ever said this to a struggling caregiver - “Let me know if there’s anything I can do to help?’ The offering has good intent, but many times people say it because they don’t know how to help, are uncomfortable, or want to be polite. And although 29 percent of caregivers in BC are in distress, you will still hear caregivers say: ‘I don’t need any help’ or ‘It’s okay, I’m fine’.
Today we hear from Jim and how he supported his friend Art and Art’s wife Grace during Grace’s diagnoses and disease. Jim shares how in the process of supporting his friends, and at first it wasn’t with great success, he learned a lot about himself. We talk about the FCBC Circle of Care model and how it worked for Jim and his support group.Highlights:
Watching a friend with caregiving How to support his caregiver friend and his wife who was ill and then dying Circle of Care concept and development with the support of Family Caregivers of British Columbia Strategies and tools to support Vulnerability, growth, and learning from a man's point of view The need to talk with other men and find his voice in communication and understandingResources:
The Embrace of a Caring Circle Article https://www.familycaregiversbc.ca/communication-skills/the-embrace-of-a-caring-circle/ Family Dynamics and Caregiving Article https://www.familycaregiversbc.ca/wp-content/uploads/2016/03/Family-Dynamics-and-Caregiving.pdf Communication Tips for Caregivers Article https://www.familycaregiversbc.ca/wp-content/uploads/2016/07/Communication-Skills-for-Family-Caregivers.pdf Accepting Help is Essential for Caregivers Article https://www.familycaregiversbc.ca/wp-content/uploads/2016/03/Accepting-Help-is-Essential.pdf Online Supports for Family Caregivers Article https://www.familycaregiversbc.ca/sharing-the-care/online-aids-for-caregivers/ Creating a Gold Medal Support Network Webinar https://www.youtube.com/watch?v=uNWGURkrO1Y Build Your Support Team (by Ontario Caregiver Organization) https://ontariocaregiver.ca/wp-content/uploads/2020/04/OCO-starter-kit-April14.pdf Medical Assistance in Dying, MAID Webinar https://www.familycaregiversbc.ca/video/medical-assistance-in-dying-maid/
Online Tools and Apps:
CaringBridge helps you create a free personal website to quickly share updates about your care recipient’s health journey. Share news and updates with everyone at the same time, activate your community and coordinate help, and receive emotional strength and support. https://www.caringbridge.org/ Lotsa Helping Hands features a free Help Calendar where you can post requests for support. Members of your community can quickly find ways to help, and Lotsa will send reminders and help coordinate logistics automatically so nothing falls through the cracks. Share how things are going, update requests, and receive support and feedback. http://lotsahelpinghands.com/ MealTrain is a free interactive online meal calendar with customized calendar dates, times and meal preferences. Invitations can be sent via email and Facebook including reminder emails, online journal updates and an optional donation fund add-on. https://www.mealtrain.com/ Tyze Connecting Care is an online tool that brings people together around someone receiving care.If you’re helping to care for someone Tyze is a simple way to keep everyone informed and get organized. Send updates to everyone at once from anywhere, keep track of everything in one place, access appointments, store documents and let family and friends know how to help. There may be a cost involved depending on options selected. http://tyze.com/caring-for-someone/ Ability411, they "answer questions and provide practical information about technologies, tools and equipment that increase independence and well-being for BC seniors, and support their families and care teams." https://www.ability411.ca/Links Mentioned in Episode:
Family Caregivers of BC Caregiver Support Groups https://www.familycaregiversbc.ca/family-caregiver-support-groups/ Caregiver Support Line, Toll-Free in BC: 1-877-520-3267.Connect With Us!
Family Caregivers of BC Website https://www.familycaregiversbc.ca/
Telephone: (250) 384-0408
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions http://www.organizedsound.ca/
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Becoming a caregiver can creep up on you. Maybe it starts with dropping by your mom’s house to do her laundry or taking your dad to a doctor’s appointment or delivering groceries to your friend. Gradually, you find yourself doing more and more as the person you are caring for needs more support. You may not even realize it, you are making a commitment to care for someone else.
Today we speak with Katrina who shares her experience of caregiving for her mother with Dementia. Katrina has strong values rooted in family and supporting family, which led her to care for her mother at home. Katrina’s episode is honest, raw and real. It is very inspiring to hear despite her caregiver challenges and lessons, she evolved and deepened her spiritual connection with self and with her mother.
Highlights:
Introspection during caregiving. Learning from the challenging and suffering moments of life. Her self-reflection and insight have helped deepen her connection with her mother and also advocate for her mother in the health system.Resources:
New to Caregiving Flipbook- https://www.familycaregiversbc.ca/caregiver-learning-center/read-resources/new-to-caregiving/ Challenges and Benefits of Caregiving: https://www.familycaregiversbc.ca/wp-content/uploads/2021/02/Challenges-and-Benefits-of-Caregiving.pdf New to Caregiving: Finding the Right Information - https://www.familycaregiversbc.ca/category/new-to-caregiving/ Navigating the HealthCare System Resource -http://www.familycaregiversbc.ca/wp-content/uploads/2016/09/Tips-for-Navigating-the-Healthcare-System.pdf Caregiver Support Line, Toll-Free in BC: 1-877-520-3267. Learn more about Katrina at https://designyourpath.ca/Connect With Us!
Family Caregivers of BC Website https://www.familycaregiversbc.ca/
Telephone: (250) 384-0408
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions http://www.organizedsound.ca/
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Grief is a human experience and it often feels messy or is accompanied by not knowing if you are "doing it right". Grief and loss can feel isolating. And many caregivers share different examples of grief, such as grieving the loss of your old life during caregiving and then also grieving the loss of the person you are caregiving for.
Normal does not exist during grief and in today's episode, we chat with Tricia Wallace, a Clinical Counsellor with Parkinson Society BC about the topic of caregiver grief and loss and suggestions on how to work with these emotions.
Highlights:
Grief and the grief process. Mourning rituals and practices. Grieving during caregiving (loss of 'old life') and also loss of the person you are caregiving for. There is no right or wrong way to grieve. Normal does not exist during grief. End of life planning.Resources on Grief and Loss:
Grief is a Universal Experience (Caregiver Grief Process and Life after Caregiving) https://www.familycaregiversbc.ca/emotions-of-caregiving/life-after-caregiving/ Canadian Virtual Hospice on Grief and Loss - Explore the process of grief and get support from the privacy of your home. https://www.mygrief.ca/ Canadian Virtual Hospice, Grief and Loss Articles https://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home/Topics/Topics/Emotional+Health/Grief+Work.aspx Grief and Loss Webinarwith Thomas Attig https://www.familycaregiversbc.ca/video/coach-caregiver-loss-grief/ The Grief Response Article, written by Janet McLean on Thomas Attig Work https://www.familycaregiversbc.ca/emotions-of-caregiving/the-grief-response/ BC Bereavement Helpline https://www.bcbh.ca/ - Support Line: 1-877-779-2223Links Mentioned in Episode:
Family Caregivers of BC Caregiver Support Groups https://www.familycaregiversbc.ca/family-caregiver-support-groups/ Parkinson Society BC Resources https://www.parkinson.bc.ca/resources-services/resources/ Caregiver Support Line, Toll-Free in BC: 1-877-520-3267.Connect With Us!
Family Caregivers of BC Website https://www.familycaregiversbc.ca/
Telephone: (250) 384-0408
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions http://www.organizedsound.ca/
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13 million Canadians or nearly half of the total population have provided care at some point in their lives. Yet caregiving may be a new term for many people. And often, unpaid caregivers do not identify with this title, as they feel it is part of their relationship with family or friends.
In today’s episode, we speak with Pat, who acknowledges that she was initially unfamiliar with the term caregiver, but learned more about this important role as she supported her husband, also named Pat, through his journey with Parkinson’s Disease and dementia.
Pat was engaged in a caregiver “learning process”, where she listened to her husband to better understand the effects of Parkinson's Disease in his daily life. Because of the value of their partnership, Pat’s relationship with her husband during his changing health conditions was sustained through humour and care.
You will gain insight into her caregiving journey, awareness of the caregiving role, and the unfolding responsibilities; including end of life care and her current caregiving stages of grief, bereavement, and honouring her husband and life-partner.
Highlights:
Caregiving was a new term for Pat and then she was full-in caregiving mode. Supporting her husband with humour and care for their relationship was very apparent. Loss and grief - knowing he is still there with her by showing up in signs or thoughts. Giving back by supporting others in a caregiver support group.Resources on Grief and Loss:
The Grief Response Article, By Janet McLean. Webinars around Grief and Loss: https://www.familycaregiversbc.ca/video/coach-caregiver-loss-grief/ and https://www.familycaregiversbc.ca/video/navigating-the-end-of-life-a-road-map-for-caregivers/Links Mentioned in Episode:
Janet Fast, “Caregiving for Older Adults with Disabilities: Present Costs, Future Challenges” Institute for Research on Public Policy Study (December 2015). Family Caregivers of BC Caregiver Support Groups Parkinson Society BC ResourcesCaregiver Support Line, Toll-Free in BC: 1-877-520-3267.
Connect With Us!
Family Caregivers of BC Website
Visit us at our office:
#6 – 3318 Oak Street
Victoria, BC V8X 1R1
Hours are Monday through Friday, 8:30 am and 4:00 pm.
Telephone: (250) 384-0408
Toll-Free Line Within BC: 1-877-520-3267
Fax: (250) 361-2660
Email: [email protected]
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BC Ministry of Health - Patients as Partners Initiative
Organized Sound Productions
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No matter where caregivers live, you have access to support.
Welcome to “Caregivers Out Loud”, a podcast powered by Family Caregivers of British Columbia. This season's podcast is hosted by Bill Israel who will be leading heartfelt, connective conversations with caregivers.
By sharing stories of caregivers and insight from community experts, we bring you perspective and connection, and ensure that you have support and balance from inspired caregivers, who are caregiving out loud.
Listen wherever you go by subscribing and listening to the podcast for free on your favourite podcast listening app or wherever you listen to audio. You can also listen, read through notes from each episode, and find additional caregiving resources on our website at https://www.familycaregiversbc.ca/podcast/.
For direct support, call our Caregiver Support Line Toll-Free in BC at 1-877-520-3267, Monday to Friday, 8:30 am to 7:00 pm Pacific time.
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