Episodes
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Dr Linda Bluestein, the Hypermobility MD joins this podcast to discuss the impact of connective tissue disorders like EDS, POTS, and MCAS and endometriosis.
Linda Bluestein, M.D. is an integrative pain medicine physician and former ballet dancer specializing in treating hypermobility disorders and other conditions involving persistent pain.
In addition to her private medical practice, Hypermobility MD, Dr. Bluestein is the founder and co-host of the podcast, “Bendy Bodies with the Hypermobility MD,” and former co-host of “Hypermobility Happy Hour.” Dr. Bluestein is the Director of Education for the nonprofit, EDS Wellness, Inc. and founder and executive director of Bendy Bodies, an organization dedicated to empowering hypermobile performing artists.
She has published a number of original research papers; presents work at national and international conferences, and is a contributing author for the book, Disjointed - Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders.
Dr. Bluestein is a member of the Board of Directors for the Bridge Dance Project, the Allergy and Immunology Working Group for the International Consortium on EDS and HSD, the Advisory Board for Doctors for Dancers, and the Resources Committee for the Dance Healthy Alliance of Canada.
More information about Dr. Bluestein can be found on her website, www.hypermobilitymd.com.
Dr. Bluestein is set to headline Endo Summit Workshop during The Endometriosis Summit 2022. For tickets to the event please head to www.theendometriosissummit.com
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Because when one partner has endometriosis, everyone around them has endometriosis we invited Brandon Johnson, a mental health counselor, to discuss how best to support your partner when endometriosis is the third person in your relationship.
Brandon is a licensed Social Worker whose goal is to guide you through life's most complex and difficult matters. Brandon has battled infertility himself, and realized that for many partners, especially men, the infertility journey is lonely. Knowing too many are suffering in silence he created Infertility Isn't Inferior to be a mental health resource.
https://www.infertilityisntinferior.com
Brandon has an active YouTube channel and has been features in The Endometriosis Summit Fertility Weekend and The Endometriosis Summit 2021.
More from Brandon can be found here: https://www.youtube.com/channel/UC1XuA4AdLKptl-4OJqx9O1A
Brandon speaks about infertility, endometriosis, and supporting the male partner here: https://www.youtube.com/watch?v=lL_c2JHceSs
Want to support more education on endometriosis from The Endometriosis Summit? Click here https://anchor.fm/sallie-sarrel/support
Follow The Endometriosis Summit on Instagram and Facebook
Subscribe to our YouTube Channel for extensive endometriosis education.
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Missing episodes?
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Join Peter Pruyn. Peter Pruyn, LMHC, (pronounced "prine") is a trauma psychotherapist, EMDR Consultant, and author who specializes in working with female survivors. He is in private practice in Northampton, Massachusetts and has a research interest in treating endometriosis pain with EMDR (Eye-Movement, Desensitization, and Reprocessing). His writing can be found at peterpruyn.medium.com.
An article summarizing many of the trauma treatment concepts I mentioned: Calming the Fear of Seeing a Trauma Therapist: https://tinyurl.com/n3nn3ezn
The case study of treating endo pain with EMDR I quoted from: Treating Endometriosis Pain with EMDR: https://tinyurl.com/yyys4sw6
What is EMDR?: https://tinyurl.com/y6jkmpwc
How to Find a Good EMDR Therapist: https://tinyurl.com/y7qtc4rn
The survivor advocacy organization I mentioned, PAVE (Promoting Awareness, Victim Empowerment): https://www.shatteringthesilence.org/
This is one of the most powerful pieces The Endometriosis Summit has ever produced. Trauma is a huge burden to those with endometriosis and we are grateful for Peter's time and effort in this piece. We hope to host Pruyn at our annual Endometriosis Summit in March of 2022.
Call the National Suicide Prevention Lifeline
1-800-273-8255
Want to support more education on endometriosis from The Endometriosis Summit? Click here https://anchor.fm/sallie-sarrel/support
Follow The Endometriosis Summit on Instagram and Facebook
Subscribe to our YouTube Channel for extensive endometriosis education.
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Explore self care, advocacy, and finding your voice with none other than Shantana Hazel.
Shantana is the Founder of Sister Girl Foundation. The Sister Girl Foundation is a non-profit organization geared towards providing awareness, education, support, and advocacy for those with Endometriosis, Breast and Ovarian Cancers. They are committed towards helping people throughout their journey by providing advocacy, support groups, education resources, workshops and events to bring the community together.
https://www.sister-girl.org
Shantana is the author of two books, 28 Ways on How to Advocate for Your Healthcare and A New Me: Mind, Body, Soul, Health & Wellness Journey. Each can be purchased here: https://www.sister-girl.org/sister-girl-store
Shantana is a force of nature and a beacon of positivity, she has spoken all over the world and leads the world in health advocacy.
She can be contacted through Sister Girl Foundation's website or on Facebook or Instagram @sistergirlfoundation
Want to support more education on endometriosis from The Endometriosis Summit? Click here https://anchor.fm/sallie-sarrel/support
Follow The Endometriosis Summit on Instagram and Facebook
Subscribe to our YouTube Channel for extensive endometriosis education.
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Join Gastroenterologist Dr. Murray Orbuch for this in-depth discussion on the burden endometriosis causes to your bowels. Dr. Murray Orbuch is an Assistant Clinical Professor at Mt Sinai in New York and a Clinical Attending at Mt Sinai Hospital in New York City. He set out to find the connection between young people and the stomach pains correlating to their periods. Since then his work has lead him to dealing with endometriosis and the gut including helping to diagnose and manage SIBO.
Reach Out to Dr Murray Orbuch HERE: https://www.murrayorbuchmd.com
Want to support more education on endometriosis from The Endometriosis Summit? Click here https://anchor.fm/sallie-sarrel/support
Follow The Endometriosis Summit on Instagram and Facebook
Subscribe to our YouTube Channel for extensive endometriosis education.
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Join Dr Amy Stein, PT DPT a pelvic physical therapist and owner of Beyond Basics in New York City for this amazing deep dive into multiple pain generators for endometriosis. Amy explores not just the evil twin of pelvic pain, intersticial cystitis, but the septuplets of pelvic pain. With so many generators of pain and attacks on the physical and central nervous system a pelvic physical therapist can be crucial in obtaining the best quality of life for anyone with endometriosis. Dr Amy Stein is among the best in the physical therapy pelvic health business. This podcast comes directly from Endo Summit 2021 where Amy was featured. The full visual version can be found https://www.youtube.com/watch?v=dzCK_gj52eI
Amy can be reached on Instagram @BeyondBasicsPT or at her website www.beyondbasicsphysicaltherapy.com. Her books Beating Endo and Heal Pelvic Pain can be purchased at https://beyondbasicsphysicaltherapy.com
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The following episode is an excerpt from The Endometriosis Summit 2021. The Endometriosis Summit is a 3 day patient and practitioner meeting about endometriosis and its related conditions. I Love Someone With Endometriosis lifts a veil of endometriosis- everyone around the person with endometriosis is affected by the disease.
Guest hosted by Casey Berna, MSW, a social worker and endometriosis advocate who specializes in endometriosis. Casey was also the Scientific Director of The Endometriosis Summit: Fertility Fare, held October 2020. Brandon Johnson, LSW joins as well. Johnson is a social worker who specializes in male infertility. From Canada, Emma Weiland and her mother Deb Weiland join to discuss how endometriosis affected the mother-daughter relationship. Claudia Campbell of Endo Fierce and her husband talk about their journey with endometriosis. The incomparable Les Hendersen, Founder and Director of Endo Queer and Les's partner Kristen round out the panel and speak their truth as only Les can. Dr. Sallie Sarrel is your host.
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Time to listen in and learn all the truth about endometriosis. This podcast has something for everyone in the endometriosis community. The Endometriosis Summit rounded up three of the top endometriosis and adhesion specialists in the country for this in depth discussion on the newest thoughts and approaches to adhesions in the person with endometriosis. This episode features Dr. John Dulemba, an excision of endometriosis and robotics specialist who focuses on adhesions and preventing recurrent disease. Dr. Jessica Opoku Anane from California joins Dr Dulemba and discusses everything in the person with endometriosis that should be evaluated and Dr Patrick Yeung, a reproductive specialist who also performs excision in St Louis, Missouri. Dr. Dulemba works with second look surgeries and Dr. Yeung is publishing on the use of Gore-tek to prevent adhesions in the fertility patient. The evening is hosted by Dr Andrea Vidali, @endometriosis_surgeon himself, who discusses the surgical techniques to prevent adhesions and how the immune responses of endometriosis may cause pain and miscarriage. Dr. Vidali is the Co-Founder of The Endometriosis Summit and practices in Hoboken NJ and New York City. His partner in endometriosis crime is Dr. Sallie Sarrel, a pelvic physical therapist and person with endometriosis who is the driving force behind the Endo Summit.
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