Episodes
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We've all heard of post-traumatic stress disorder (PTSD), but have you heard of post-traumatic growth? Post-traumatic growth is all about the positive transformations people can undergo after experiencing trauma. During this episode of Girls with Grafts, we hear from Christopher Gage, a burn survivor, and his caregiver and wife, Holly, on how post-traumatic growth impacted their healing journeys.
You'll also get a behind-the-scenes look at Chris and Holly's Healing Phoenix Arts Program, designed to provide a post-traumatic growth experience by introducing a new perspective on healing from a traumatic event. Through the dynamic and engaging program, Chris and Holly help survivors recognize the progress they have made towards their future and healing.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our GuestsHolly Gage is the creator and instructor of the Warrior Scar Jewelry workshops and co-founder of the Healing Phoenix Arts Program. Holly is a world-renowned jewelry artist and has instructed students of all ages and abilities with a soulful brend of creating during in-person workshops, interactive online classes, and retreats worldwide for almost 25 years. After her husband and son were involved in an explosion and fire in 2018, she became trained to support burn survivors and their families through the Phoenix SOAR program and certified in the Post Traumatic Growth program from the Boulder Crest Foundation. Together with her husband, Christopher Gage, they combine art with discussion as a healing modality for a Post Traumatic Growth experience.
Christopher Gage is the Group Discussion Facilitator of the Warrior Scar Jewelry Workshop and Co-Founder of the Healing Phoenix Arts Program. Christopher is a burn survivor whose recovery experience from his accident in 2018 is the number one event that has driven him to his current line of work. The explosion, fire, and destruction of his mobile restaurant has completely reshaped Christopherâs life for the better, in a positive way, resulting from working through the Post Traumatic Growth (PTG) process. Christopher learned there is a teaching component to PTG, and he has a need to give hope to those who have suffered trauma. Christopher is peer support trained and certified in Burn Survivor and PTG. Christopher speaks about PTG and is the author of a book detailing his journey to come later this year.
Links Learn more about the Healing Phoenix Arts ProgramLearn more about the Warrior Scar WorkshopRead Hollyâs testimonial of Phoenix World Burn Congress 2023Learn more about Phoenix SOAR (Survivors Offering Assistance in Recovery)
Podcast SponsorTodayâs podcast is powered by the Pritzker Hageman Law Firm! The Pritzker Hageman burn injury legal team helps burn survivors and their loved ones pursue compensation and justice throughout the United States. Learn more more at: LegalJourney.guide
Sponsor Girls with GraftsInterested in becoming a sponsor of the show? Email us at [email protected].
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Have you ever filled out our "contact us" form? If you have, then you've already met today's podcast guest: Liliana Palacios, Phoenix Society's Community Resource Coordinator! Liliana is a burn survivor who has worked with trauma survivors in various capacities throughout her career. She discovered her passion for community service after sustaining a major burn injury when she was 19.
In our conversation, Liliana provides a behind-the-scenes look at her role with Phoenix Society, reveals some of the frequently asked questions she hears from survivors and caregivers, talks about her own struggles as an amputee, and offers tips for those who are interested in giving back.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our GuestLiliana Palacios grew up in Los Angeles and is a proud mother to three grown-up kids. She studied at San Francisco State University, earning a Bachelor of Science in Health Education with a minor in Holistic Health and Women's Health Issues. Over the years, Lili has mainly worked supporting trauma survivors in various capacities. She discovered her passion for community service through her own experience as a burn survivor. Forty-one years ago, at the age of 19, Lili was in a house fire (she's on OG, yâall!). She attended Phoenix World Burn Congresses throughout the years. Through a fellow burn survivor and her mentor, she learned about the different resources available to the survivor community - which inspired her to get involved in community service. Her other interests include art, photography, cooking, and gardening, among other things.
Links Join our Facebook Group for Spanish-speaking survivors and caregiversDownload Saraâs STEPS in Spanish Sign up for Phoenix Societyâs Virtual Support GroupJoin our weekly Peer Support ChatContact Phoenix Society for Burn SurvivorsVisit our Burn Community Calendar
Podcast SponsorMölnlycke Health Care is a world-leading MedTech company that specializes in innovative solutions for wound care and surgical procedures. Mölnlycke products and solutions are used daily by hospitals, healthcare providers, and patients in over 100 countries around the world. Learn more by visiting: https://resources.phoenix-society.org/resource-marketplace/molnlycke.
Sponsor Girls with GraftsInterested in becoming a sponsor of the show? Email us at [email protected].
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Missing episodes?
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Ever wondered about donor-less skin grafts? Or how cryotherapy is used for pain control? What about spray-on skin? In this captivating podcast episode, we're joined by burn survivor and burn surgeon Dr. Jason Heard to explore these intriguing topics and more, as we delve into the latest trends and treatments in burn care.
Dr. Jason Heard, a burn survivor turned burn surgeon, brings a unique perspective to the field. At the age of 12, he experienced second and third-degree burns over 40% of his body. This life-altering event inspired him to dedicate his career to caring for others. Now a faculty member at the UC Davis Firefighters Burn Institute and Shriners Children's Northern California burn units, Dr. Heard's journey from patient to practitioner is a testament to the resilience of the human spirit.
Join us as we delve into the cutting-edge world of burn care with Dr. Heard. We'll explore the latest trends and treatments, from revolutionary laser surgeries and donor-less skin grafting to innovative cryotherapy for donor-site pain control and the game-changing foam dressing.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our GuestAfter sustaining a burn injury on almost half of his body at the age of 12, Dr. Jason Heard was drawn to the medical field and knew he wanted to help other burn survivors in the future. He completed his Bachelor of Science degree in Genetics and Biotechnology at the University of Iowa in 2011. During his undergraduate years, Jason completed many burn related research projects leading to multiple peer reviewed publications. He was also able to be heavily involved with a regional burn non-profit organization, Saint Florian Fire and Burn Foundation. Through this organization, Jason was able to not only attend but develop programming for multiple burn survivor programs. He was fortunate to serve on their Board of Directors from 2012-2014.
He enrolled into medical school at the University of Iowa Carver College of Medicine in 2012 and matched into general surgery residency at UC Davis in 2016, and ultimately completed his residency at the University of Iowa Hospitals and Clinics in 2021. Jason's passion for burn care and my aspiration of doing a burn/critical care persisted throughout my training and he completed his fellowship at UC Davis in 2022. He is currently a faculty member at UC Davis/Shriners Northern California Burn Units, where he continues to care for burn survivors during their initial hospital admission and throughout their recovery, including reconstructive procedures/treatments. Jason is also on Phoenix Society for Burn Survivorsâ Board of Directors.
Links Laser Treatment for Burn Scars: What Burn Survivors Want to KnowWill My Burn Skin Graft Go Away Over Time?Learn more about Spray-On SkinLearn more about the different type of skin grafts
Podcast SponsorTodayâs podcast is powered by Cunningham Law Firm! Located in Phoenix, Arizona and helping clients nationwide, the Cunningham Law Firm specializes in personal injury, wrongful death and burn related cases. Learn more by visiting https://cunninghamlawfirm.com.
Sponsor Girls with GraftsInterested in becoming a sponsor of the show? Email us at [email protected].
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In this inspiring episode of Girls with Grafts, Diana Tenney-Laperriere shares her story of survival. In 2010, one surprisingly warm early spring day turned into tragedy when Diana was burned over 90% of her body. At the age of 54, Diana was given less than a one percent chance to live. More than 400 days later, Diana returned home.
Years and countless surgeries later, Diana and her husband, Jerry, found a new calling to advocate and support burn survivors nationwide. In this episode, we talk with Diana about her struggle with alcoholism, how she and Jerry navigated their relationship post-accident, the importance of physical fitness in recovery, and how to advocate for yourself and loved ones.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our GuestIn 2010 at the age of 54, Diana Tenney-Laperriere was burned 94% of her body, which consisted of mostly third degree burns. Dianna spent over a year recovering from her injury in the hospital and then went on to have reconstructive surgeries for the next seven years.
She has spent most of the last 10+ years working with other burn survivors and medical researchers. She is the past president, secretary, and treasures of Burn Survivors of New England, co-coordinator of Knowledge Translation for the Boston-Harvard Burn Model Systems, trained Phoenix Society peer supporter, previous speaker with the American Burn Association, former Wellness Room Leader at Phoenix World Burn Congress, and so much more. She is extremely active in burn research and advocacy. Diana has also been sober for many years and is active in AA.
Dianna married her sweetheart, Jerry, in 2023 and has currently relocated with her husband, dog Barney, and cat Pebbles, to Tennessee to help care for her mother. Additionally, Diana is very physically active and participates in ZUMBA and yoga.
Links Get Your Copy of God Never MovedInformation about Alcoholics AnonymousBurn Survivors of New EnglandBoston-Harvard Burn Model SystemsVolunteer for Phoenix SOAR with Phoenix Society Research Opportunities with Phoenix SocietyBecome a Phoenix AdvocatePodcast SponsorToday's podcast is powered by Solvita (formerly Community Blood Center/Community Tissue Services). Solvita comes from âsolâ meaning sun and âvitaâ meaning life. As sunlight nurtures new life, Solvita takes the donor gift and transforms it into new hope, bringing the light of healing to patients through blood donations and tissue transplants. Learn more about them here: https://solvita.org/
Sponsor Girls with GraftsInterested in becoming a sponsor of the show? Email us at [email protected].
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Retired Occupational Therapist and dedicated burn survivor ally, Barbara-Anne Hodge joined todayâs episode of Girls with Grafts! We talk with Barb about her experience working on the burn unit for over 25 years and what led her to help establish the Mamingwey Burn Survivor Society. Although retired, her work with the burn community has not slowed down! Barb is now a dedicated volunteer, ally, and supporter to burn survivors around the world.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our GuestBarbara-Anne Hodge is a retired Occupational Therapist who worked for over 25 years on the Burn Unit at the HSC Hospital in Winnipeg, MB. In the course of her work, she came to know many burn survivors who were dealing with changes to their appearance and to their daily lives due to the burn injuries long after they left the hospital. To address these needs and alongside other Burn Unit staff, she helped establish the Mamingwey Burn Survivor Society in Manitoba in 2003. Today, this organization is known as the Mamingwey Burn Society Inc, and she continues in the role of Board Chair.
Barbara-Anne is also a member of the Canadian Burn Survivors Community and is the Secretary of the Board at the Canadian Skin Patient Alliance. She is a past board member of the Firefightersâ Burn Fund Inc. in Manitoba. She is now retired from hospital work and enjoys time spent with burn survivors and others as a volunteer through these various organizations. She is mom to 4 grown kids and a grandmother to 2, and spends as much time as possible with her family.
Links Learn more about the Mamingwey Burn Survivor SocietyGet connected with the Canadian Burn Survivors CommunitySign up for the Go For the Burn Run 2024Explore the Canadian Burn Survivors Communityâs Calendar of EventsJoin Phoenix Society for Burn Survivorsâ weekly Peer Support ChatWatch Girls with Grafts on YouTube! Podcast SponsorTodayâs podcast is powered by Johnson Controls! Johnson Controls is a global leader in fire safety and suppression technologies, helping to save lives and protect people around the world. Learn more about Johnson Controls by visiting their website: https://www.johnsoncontrols.com.
Sponsor Girls with GraftsInterested in becoming a sponsor of the show? Email us at [email protected].
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It's true: laughter is strong medicine.
Scientific studies have shown a direct correlation between humor and the diminishment of pain. In addition to easing tension and comforting others, comedy and laughter have been shown to help in various medical and psychological ways, including combatting fear, reducing stress, and even boosting the immune system.
In this episode of Girls with Grafts, Amber and Rachel are joined by burn survivor and quad amputee, Dan Gropper. Dan shares how humor and comedy has impacted his healing journey, shares his experience relearning how to walk, drive, and complete everyday activities after losing all four limbs, and how to keep a positive outlook on life.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our GuestDan Gropper is a burn survivor and quad amputee since December of 1989. âŻHeâs a âŻpeer supporter for fellow survivors, speaks and gives demonstrations to PT and OT students as well as doctors. Dan sits on the Nassau County advisory board to help improve the lives of the physically challenged. âŻHe loves to travel, exercise, box, and plays golf, go to concerts and games.
Links Read: Reflecting on My Experience at Phoenix World Burn Congress 2023Watch: The Healing Power of ComedyWatch: The Healing Power of Laughter Read: Joshua Gropper: Attorney, Advocate, AllyListen: Celebrating NFPAÂź's Fire Prevention Weekâą with Telgian's Pamela RenoPodcast SponsorTodayâs podcast is powered by Gropper & Nejat. For over 25 years, the team at Gropper & Nejat have helped individuals who have suffered fractures, surgeries, amputations, severe burns and other injuries get the financial reparations they deserve. If you are local to the New York, New Jersey, or PA areas, contact them today for a free evaluation of your case! https://www.groppernejat.com
Sponsor Girls with GraftsInterested in becoming a sponsor of the show? Email us at [email protected].
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Join us for an inspiring episode of "Beyond Survival," where we welcome the remarkable Michelle Escamilla as our special guest. Michelle's life is a testament to the power of resilience, self-love, and unwavering determination in the face of adversity.
As a burn survivor, spouse, friend, and passionate advocate for self-love, Michelle's story transcends the boundaries of mere survival. Despite enduring life-altering challenges, she embraces each day with courage and grace, refusing to be defined by her past experiences. Instead, Michelle embodies resilience as she navigates life's uncertainties with resilience and purpose.
In this heartfelt conversation, Michelle shares her personal journey, offering insights into how she has found strength and meaning in the face of adversity. From her experiences as a burn survivor to her dedication to serving her community in various capacities, Michelle's story is one of hope, empowerment, and the transformative power of self-love.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our GuestMichelle Escamilla (she/ella) joins us to share about her life including being a burn survivor, a spouse and friend, an advocate for self-love, and as someone who pushes through lifeâs adversities and uncertainties. Though one of her identities includes being a burn survivor, she describes living a life beyond âjust survivingâ. Michelle dedicates her life to serving the community in a variety of roles and most recently has begun podcasting to share her story and experience with others.
Links Become a Phoenix SOAR Peer Supporter today: https://resources.phoenix-society.org/phoenix-soar Join our Facebook group, connect with other survivors and caregivers, and attend our weekly support chatRead Burns are BeautifulâFive Survivors on Scars and Self-LoveRead Ask the ExpertsâFinding LoveRead Positive Self-LoveListen to the Make Believes Podcast (also on Spotify & Apple Podcasts) Listen to More Than A Survivor (also available on YouTube & Spotify)Follow Michelle on InstagramPodcast SponsorBuses by the Beach is a group of VW bus lovers, based in West Michigan. They camp, host events, and raise funds for Phoenix Society for Burn Survivors. Their first event of 2024, Buses BRRR, is coming up this weekend! Their main event, the Bus Benefit, will be held over memorial day weekend in Michigan. Learn more by visiting https://busesbythebeach.org/.
Sponsor Girls with GraftsInterested in becoming a sponsor of the show? Email us at [email protected].
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Weâre kicking off season 4 of Girls with Grafts during National Burn Awareness Week! National Burn Awareness Week is hosted by the American Burn Association and this yearâs theme is spreading awareness about preventing flammable liquid burn injuries.
And who better to join us than the American Burn Associationâs president, Dr. Rob Cartotto! In this episode, Dr. Cartotto and Rachel discuss what itâs like being a burn surgeon, common questions from burn survivors, and a behind-the-scenes look at burn care and research. Dr. Cartotto also shares his experience attending Phoenix World Burn Congress 2023 and whatâs ahead for the American Burn Association in 2024.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlsWithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our GuestDr. Rob Cartotto is a plastic and reconstructive surgeon and burn intensivist at the Ross Tilley Burn Centre in Toronto, Canada. He is a Professor in the Temerty Faculty of Medicine, Department of Surgery, at the University of Toronto. He currently serves as the President of the American Burn Association. His research interests span the continuum of burn care and he has been particularly interested in burn shock resuscitation, lung injury and mechanical ventilation after burns, surgical techniques and outcomes for burns of the hands and face, and the development of clinical practice guidelines for burn care. Outside of work he prefers being at his cabin rather than the city, and he is an amateur artist and avid backcountry camper.
Links Learn more about the American Burn Association and National Burn Awareness Week. Register for the ABA Annual Meeting. Take our State of the Survivor Report survey (survey closes February 29, 2024). Review our 2022 State of the Survivor Report. Explore our Tools for Social Empowerment Whitepaper to learn how to handle questions, comments, and staring after a burn injury. Explore other research opportunities. Podcast SponsorTodayâs podcast is powered by AlloSource! AlloSource is one of the largest human tissue providers, honoring tissue donors by creating innovative skin allografts to help burn surgeons heal patients. Learn more about AlloSource and their continuing education hours by visiting their Resource Marketplace Listing directly on Phoenix Societyâs website: https://resources.phoenix-society.org/resource-marketplace/allosource.
Sponsor Girls with GraftsInterested in becoming a sponsor of the show? Email us at [email protected].
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During this episode of Girls with Grafts, Amber Wilcox rejoins Rachel Kudlak for the final episode of Season Three. They begin the episode with a quick life update from Amber. The girls are then joined by CEO of Phoenix Society for Burn Survivors, Amy Acton, who shares a recap of 2023 and whatâs ahead for the organization in 2024.
Meet Our Guest
Amy Acton is the Chief Executive Officer for Phoenix Society for Burn Survivors, where she has served the organization for over 20 years. Amy is a burn survivor, former burn nurse, and leading advocate for the burn community. She has dedicated her career to promoting the expansion of burn recovery services and resources for burn survivors and their loved ones.
Podcast Sponsor
Todayâs podcast is powered by Buses by the Beach! Buses by the Beach are a group of VW van lovers, and while they are based in the West Michigan area, they draw VW bus owners and their families from all over the USA and Canada. Since 2002, Buses by the Beach have combined our love of Volkswagen-style camping with raising money for the Phoenix Society for Burn Survivors. Learn more about them here: https://busesbythebeach.org/
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at [email protected].
Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
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With over 20 years of experience, Dr. Jeffrey Schneider specializes in physical medicine and rehabilitation and first had his opportunity to work with burn patients shortly after the Station Nightclub Fire occurred while he was completing his residency. It was during that time that Dr. Schneider became interested in the long-term effects of a burn injury, and has since dedicated time to researching to better understand the impact of a burn injury.
In this episode, we speak with Dr. Schneider about his research, discuss areas of opportunity for the burn community, and understand more about what it means to classify burns as a âchronic conditionâ.
About Dr. Jeffrey C. Schneider
Dr. Jeffrey C. Schneider is the Medical Director of Burn, Trauma, & Orthopedic Rehabilitation and Director of the Rehabilitation Outcomes Group at Spaulding Rehabilitation Hospital. In addition, he serves as Division Chief of Comprehensive Rehabilitation and Associate Chair of Physical Medicine & Rehabilitation at Harvard Medical School. Dr. Schneiderâs research focus is on the long-term effects of burn injury. He is also the Principal Investigator and Project Director of the Boston-Harvard Burn Injury Model System (BHBIMS), a multi-institutional clinical and research collaboration between Spaulding Rehabilitation Hospital, Massachusetts General Hospital, Brigham and Womenâs Hospital, Boston University, and Shriners Hospitals for ChildrenâBoston.
Resources from the Show
Learn more about Spaulding RehabLearn more about the Station Nightclub Fire Watch âBurns as a Chronic Conditionâ featuring Dr. SchneiderCheckout Research Opportunities for Burn SurvivorsInformation about the Libre SurveyUnderstand more about the Burn Model SystemsRead more about the Harvey Stuart Allen Distinguished Service AwardListen to Gina Russo, Station Nightclub Survivor on Girls with GraftsGet articles to learn more about physical healing after an injuryPhoenix Society ResourcesAbout Spaulding Rehab
Spaulding is one of our Phoenix Partners and is a world leader in advanced rehabilitation treatment and research â serving the greater Boston region and beyond. Learn more about Spaulding Rehab: https://spauldingrehab.org/research/programs-labs/burn-injury
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at [email protected].
Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
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Itâs #GivingTuesday! Giving Tuesday is a global generosity movement unleashing the power of radical generosity. In honor of Giving Tuesday, we want to highlight a few of the ways you can give back to Phoenix Society and burn community. We hope todayâs podcast inspires you to find a way to give back that is meaningful to you.
Ways to Give Back
Double Your Impact & Become a Monthly Donor: By joining our monthly giving club today, your donations will be MATCHED dollar for dollar! Monthly gifts are especially meaningful because they ensure that Phoenix Society has the resources we need to reach survivors, caretakers, and healthcare partners - no matter where they are - all year round. Please visit https://give.phoenix-society.org/match23 to make a gift!Join Team Phoenix: Whether youâre running your first 5k or training for a triathlon, fuel your cause by making every mile count for the burn community. Learn more by visiting https://www.phoenix-society.org/ways-to-give/team-phoenix. Become a Phoenix SOAR Peer Supporter: Phoenix SOAR (Survivors Offering Assistance in Recovery) connects burn survivors and loved ones to a community of peer supporters who share similar experiences. Learn more by visiting https://www.phoenix-society.org/phoenix-soar or emailing [email protected].Meet Our Guests
Robert Duval has been the Fire Investigator for the NFPA (National Fire Protection Association), which is based in Quincy, Massachusetts, since 1997. Robert is responsible for conducting investigations of technically significant incidents in order to gather, âLessons Learnedâ from each incident to apply those lessons to improving NFPA codes and standards. The investigation of these incidents includes documenting the emergency services response, the structure(s) involved as well as the events leading up to and following the incident.
Robert was named the New England Regional Manager for NFPA in 2003. His region recently expanded to include NY and NJ and is now referred to as the Northeast Region. As Regional Director, Robert is responsible for outreach within the northeast states regarding code adoptions, and training. He also serves as a point of contact for stakeholders in the NFPA process; including the fire service, engineering and safety professionals.
Tony Gonzalez was burned on 95% of his body in February 1997. The accident was caused by a propane gas explosion at a friendâs vacation cabin in Wisconsin. Tony spent the next nine months in the ICU before spending another two months in rehab before returning home to the Chicago area. He had over 80 surgeries total and thanks his strong, close knit family for their endless support and guidance throughout his recovery.
In 1998, Tony met the founder of Phoenix Society, Alan, and his wife, Delwyn during a peer support visit at Loyola Medical Center. He went on to attend Phoenix World Burn Congress one year later and was trained as a Peer Supporter in the pilot program of Phoenix SOAR in 2001. Since then, Tony has been actively involved with Phoenix Society and the burn survivor community. Tony currently serves on Phoenix Societyâs Board of Directors and gives back to the organization in many ways, including his philanthropic support.
Shelby Mitchell currently resides in Wisconsin. She has a Goldendoodle named Josie who is her sidekick and goes everywhere that she can with Shelby. Shelby was burned in 2022 and has been involved with Phoenix Society since meeting a Peer Supporter while recovering in the hospital. Shelby recently completed the Phoenix SOAR training and has been a volunteer since September.
Podcast Sponsor
Todayâs podcast is powered by YOU! As a nonprofit, we do rely on the support from our donors, volunteers, supporters, and advocates. We couldnât do it without you and we sincerely thank you for all that you do for our community.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at [email protected].
Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
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Every year, wildfires burn across the United States, and a growing number of people are living where wildfires are a real risk. According to NFPA, every year, wildfires burn across the U.S., and more and more people are living where wildfires are a real risk. Nearly 45 million homes and more than 72,000 U.S. communities are now at risk.
In todayâs podcast, we sit down with Allyson Watson, a burn survivor of the 2003 San Diego Wildfires. Allyson shares her journey as a survivor, wildfire prevention tips, and advice for the survivors of the recent Maui wildfires.
About Allyson Watson
Allyson Watson is a burn survivor from the 2003 San Diego Wildfires. She lost her home, and was burned 2nd and 3rd degree over 86% of her body while trying to evacuate. She lost all 10 fingers, part of her upper lip, the tip of her nose, as well as her left ear due to the injuries. More devastating than her injuries; her 16 year old sister Ashleigh, was killed in the blaze.
Allyson has since rallied from that loss, went back to college, began a career in homeless outreach, got married, and is now the mother of two boys.
In her spare time, Allyson volunteers as a motivational speaker, hoping to educate the community on fire prevention and preparedness. She also enjoys photography, horseback riding, days at the beach, and any activities involving family. Interested in getting connected with Allyson? Contact Phoenix Society at [email protected].
Resources from the Show
Ready Set Go NFPA Wildfire ResourcesExplore Phoenix Societyâs wildfire safety and burn prevention tips.About Gropper & Nejat
For over 25 years, the team at Gropper & Nejat have helped individuals who have suffered fractures, surgeries, amputations, severe burns and other injuries get the financial reparations they deserve. If you are local to the New York, New Jersey, or PA areas, contact them today for a free evaluation of your case! https://www.groppernejat.com
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at [email protected].
Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
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Many burn survivors face the harsh reality after a burn injury of wondering if they will ever return back to ânormalâ. For many, the long journey to recovery can seem both overwhelming and uncertainânot knowing what the future can hold or how long recovery (both physical and emotional) may take. A burn survivorâs journey to recovery is not often quickâand it can be in these moments of uncertainty that finding purpose and motivation can help survivors overcome some of their darkest moments.
For Matt Manzari, a career in wakeskating that began at an early age seemed like what he was born to do. However, after two major traumatic eventsâa wakeskating water accident and an electrical burn injury, he was left not knowing what his future may hold. In this episode, we talk with Matt about his personal journey to recovery, how he found purpose after his accidents, and what returning back to ânormalâ meant for Matt.
About Matt Manzari
Matt Manzari fell in love with water sports at an early age. He started wakeskating and before he knew it, he was sponsored by Nike and traveling the world doing what he loved at the age of 15! It seemed like his career was established, and Matt knew what he would do for the rest of his life! However, God had other plans and began to work on his heart.
Matt went on to school to study Theology and four years laters, he was about to graduate and he and his wife were excited to move into full-time ministry. The weekend before his final exams, and even though he had pretty much removed himself from the sport, Matt entered into the pro tour contests to earn some extra money. However, tragedy struck and he was involved in an accident that doctors were amazed he survived.
A year later, Matt began working in ministry. He was trimming trees at a local church and a power line arched over to the metal bucket he was standing in. 14,000 Volts shot through his body and caused 4th and 5th-degree burns, which melted most of the skin off of his chest and arms, going deep enough to kill muscle and bone. Matt was rushed to the emergency center and doctors were not sure if he would ever wake from the coma he was in.
Miraculously, a few days later he woke up from the coma and began to speak. After multiple surgeries of tissue removal, artificial skin placement, and skin grafts, Matt was released just over three months later.
Resources from the Show
Visit Matt Manzariâs Website.Purchase Mattâs Book on Amazon.Learn More About Operation Wake Surf.Follow Matt on Facebook.Follow Matt on Instagram.Watch Matt on YouTube.Visit the Burn Community Bookshelf.Learn More About Phoenix Societyâs World Burn Congress.Watch âFinding Purpose After a Burn Injuryâ.Read the Article âPain Management After a Burn Injuryâ.Watch âTelling Your Story to Make a Differenceâ.Download Your Free Copy of âA Caregiverâs Guide to a Burn Injuryâ.Share Your Burn Survivor Story Online.Join the Online Burn Survivor Communities for Peer Support.Get Your Own Copy of Phoenix Societyâs Journey Magazine.For More Resources, Visit Us Here.About Mallinckrodt Pharmaceuticals
For more than 150 years, Mallinckrodt has been advancing the fields of science and medicine to improve the lives of people around the world. Learn more by visiting https://www.mallinckrodt.com.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at [email protected].
Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
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After a burn injury, many burn survivors are left with the appearance of visible burn scars that can sometimes make getting back out there after a burn injury difficult. There are several options that burn survivors may explore to help with the appearance of scars, all with a unique preference for the survivor and their own healing journey. While many survivors are comfortable with the appearance of scars as they are, every survivorâs journey and unique preference for how they manage the appearance of their scars is different.
In this episode, we talk with Murphy Miñoso, a paramedical tattoo artist, to learn more about this type of scar camouflaging and how it can impact the emotional and physical aspects of a survivor's burn recovery journey. We dive deep into the process of paramedical tattooing with Murphy as she shares with us more about what survivors can expect with choosing this type of treatment for burn scars.
About Murphy Miñoso
When Murphy Miñoso first learned about paramedical tattooing, she was immediately drawn to the power beyond its artistry. Its ability to change people both physically and emotionally was something that Murphy connected with on a very personal level. Through her tattooing services, she hopes to aid in the journey towards turning insecurity into confidence.
Seeing how artistic transformations could be so profound was always inspiring to Murphy. She originally began her career as a licensed cosmetologist, as well as a professional makeup artist. Murphy started her journey working in a high-end NYC salon and moved on to doing makeup for film and television in Louisiana and Chicago. After 11 years, she built a strong background in color theory and aesthetics and learned the deep importance of enhancing each individualâs unique beauty.
In a world with so much emphasis on physical appearance, it can be difficult to find the balance of inner and outer beauty. It fills her heart that she is now able to focus her passion for helping others and intertwine it with her affinity for nature and its ability to heal. This is where Willow & Birch was born. Murphy hopes to inspire some self-love and remind people that true happiness lies within themselves, regardless of the scars life brings along the way.
Resources from the Show
Visit Murphyâs Website.Visit Willow & Birch: Wellness Boutique and Paramedical Tattoo Studio | 324 N River St. East Dundee, IL 60118Email Willow & Birch: [email protected] Willow & Birch on Instagram.Follow Willow & Birch on Facebook.Read the Article âWhat Does it Mean When Someone Stares at Your Scars?â.Read More About Laser Treatment for Burns.Watch âMakeup Application Tips for Burn Survivorsâ.Watch âSkin Care After a Burn Injuryâ.Read the article âBurns are Beautifulâ.Read the Article âI Donât See Your Scarsâ.Get Your Own Copy of Phoenix Societyâs Journey Magazine.For More Resources, Visit Us Here.About Pye-Barker Fire & Safety
Pye-Barker is a nation leader in fire protection, life safety and security services to a wide variety of industries. Learn more and find a location near you by visiting www.pyebarkerfs.com.
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Interested in becoming a sponsor of the show? Email us at [email protected].
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Halloween is a time for fun, but letâs not forget that it can be tough for those with facial and visible differences. Portraying a burn survivor or someone with physical disfigurements can be extremely disrespectful and triggering. Additionally, burn survivors see an increase of harmful and hurtful messages during the spooky season.
In todayâs podcast, we sit down with influencer Tonya Meisenbach, better known as Burned Beauty 2018. Tonya shares her thoughts on Halloween and the negative comments and questions sheâs been receiving. We also chat about how survivors and those with visible differences are portrayed in Hollywood. From Darth Vader in Star Wars to Scar in The Lion King, filmmakers have long made a link between physical disfigurement and evil.
About Tonya Meisenbach
Tonya Meisenbach, better known as Burned Beauty 2018, is a wife, mother of two adult children, luminary, and humanitarian currently living in Atlanta, GA.
Formerly a Paralegal and Realtor, Tonya has always enjoyed helping and elevating others. After being burned over 35% of her upper body and almost losing the battle, nothing has changed, Tonya turned her pain into purpose, and although Tonya's methodology is different, the end goal remains the same, elevating others.
Tonya now uses hair, makeup, tutorials, and social media to help inspire other burn survivors in their recovery. She wants all survivors to understand that their wounds will heal, and that with the right mindset, they can and accomplish anything and overcome any obstacle thrown in their path.
Resources from the Show
Follow BurnedBeauty2018 on Facebook Follow BurnedBeauty2018 on InstagramFollow BurnedBeauty2018 on TikTokLearn more about Face Equality International Sign the Face Equality International PetitionLearn more about Visible Differences & Disfigurement in the ArtsAbout the Cunningham Law Firm
Located in Phoenix, Arizona and helping clients nationwide, the Cunningham Law Firm specializes in personal injury, wrongful death and burn related cases. Learn more by visiting https://cunninghamlawfirm.com.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at [email protected].
Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
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Taylor Campbell was just 8 months old when her burn injury occurred from a kitchen accident resulting in 64% of her body burned with a 7% chance of survival. Today, Taylor is 19 years old and has had over 30 surgeries since her accident. As a child burn survivor, Taylor has spent her life adapting to her burn injury, with countless surgeries and obstacles to overcome along the way.
In this episode, Taylor shares her journey as a child burn survivor to what life is now like as a 19-year-old college student and author. Taylor recalls details of her memories of facing school for the first time as a survivor, how she managed to overcome new challenges such as wearing a wig and provides advice for other survivors about getting back out there.
About Taylor Campbell
Taylor Campbell is a nineteen-year-old college student attending the University of North Carolina at Chapel Hill, majoring in Communications and minoring in Creative Writing with a focus on Journalism. She is the author of "Hope to the Third Degree" and is currently working on her second book, as writing is one of her true passions. She co-founded the Taylor Campbell Pledge Fund, located at the North Carolina Jaycee Burn Center Children's Hospital, aiming to raise funds to assist families with aftercare necessities.
Currently, Taylor is working towards becoming Leadership certified with John C. Maxwell and his team, which will be official this upcoming March. This certification will allow her to engage in coaching, speaking, and further, her writing career, as Taylor feels called to make a difference through sharing my story. In her free time, she enjoys the beach, staying active, engaging in outdoor activities, and spending time with her family.
Resources from the Show
Sharing Your Story as a Burn SurvivorResources about Burn Survivors and Returning to SchoolGetting Back Out There After a Burn InjuryTaylorâs Open Mic SubmissionAbout the Taylor Campbell Pledge FundLearn more about TaylorAbout AlloSource
AlloSource is Phoenix Societyâs Vision Partner and I want to take a quick moment and share a message from Dean Elliott, AlloSourceâs president and CEO:
âAlloSourceâs partnership with Phoenix Society has been a powerful extension of the physical healing we provide burn survivors through our allografts. Itâs given our organization the opportunity to support the mental and emotional journey burn survivors face as part of their healing process. Whether it is providing speakers to share their personal stories of survival or offering a platform for community involvement through time or donations, the Phoenix Society partnership has played a role in helping our employees further connect to our important work honoring tissue donors by creating products to help surgeons save and enhance lives.â
Learn more about Allosource
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at [email protected].
Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
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Each year, the National Fire Protection Association (NFPAÂź), hosts Fire Prevention Weekâą (FPW) to help with educating the public about the importance of fire safety. For more than 100 years, NFPA, the official sponsor of FPW, has hosted a fire prevention campaign and themes the week around a particular aspect of fire safety. This yearâs FPW campaign, âCooking Safety Starts with YOUâ, highlights the important actions that should be taken to stay safe in the kitchen. Join the NFPA to celebrate Fire Prevention Week on October 8th-14th and commit to kitchen and cooking safety!
In honor of Fire Prevention Week, in this special episode, we are joined by special guest Pamela Reno, Fire Protection Engineer & Regional Practice Leader at Telgian Engineering & Consulting, to discuss fire safety, learn more about her role as a fire protection engineer, and discuss key messages in honor of fire prevention week.
About Pamela RenoPamela Reno has more than 20 years of experience and knowledge of concepts, principles, and practices of fire prevention, fire protection, and life safety engineering in the healthcare, engineering consulting, and manufacturing industries. She facilitates process development, documentation, and technical leadership, and administers training to ensure company and regulatory policies are met. Mrs. Reno also oversees fire and life safety components of planning and design including resolving issues during construction and ensuring codes, plans, and standards are in compliance. She has developed new passive fire protection and life safety design standards for hospitals, family health centers, ambulatory surgical centers, and regional practice sites and has also performed life safety assessments in accordance with the 2012 Life Safety Code, Joint Commission Standards, and the Center for Medicaid and Medicare services regulations.
Mrs. Reno established and maintained a fire-safe environment by protecting patients, personnel, visitors, and property from fire, smoke, and other products of combustion for hospital campus buildings, family health centers, ambulatory surgical centers, and regional practice sites.
She has developed fire plans, which included:
Roles and responsibilities of employees during a fire emergencyHow to use fire alarms and fire extinguishersHow to contain fire and smokeEvacuation proceduresAdditionally, she has designed fire evacuation signs, ensured fire evacuation plans were up-to-date and current, trained operating room (OR) staff on fire safety in the OR, and conducted fire drills to ensure OR staff knew roles and responsibilities in the event of an OR fire. Pamela also plays an integral role in codes and standards development.
Resources from the Show Join Phoenix Society in Advocacy EffortsWhat to Know About Home Fire SprinklersHow to Read a Fire Extinguisher TagRead About Fire Safety AssumptionsRead About Embarking on a Journey of Healing Through Fire AdvocacyRead About Understanding and Preventing Flash FiresTips for Preventing Burns and Scalds in the KitchenFor more resources, visit us here.Learn More About TelgianLearn More About NFPAâs Fire Prevention Week About Telgian Engineering & ConsultingTelgian is committed to providing effective and innovative fire protection, life safety and security programs. Learn more Telgian at: https://www.telgian.com
Sponsor Girls with GraftsInterested in becoming a sponsor of the show? Email us at [email protected].
Enjoyed the show?ï»żTell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
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On Halloween in 1987, Anthony Razzano at the young age of 12 years old found himself influenced by peers huffing gas on a quad motorbike. In his recollection of a âsplit-second decision,â Anthony decided to join his peers and later returned home with a friend to continue the activity. Not realizing the dangers around gasoline, Anthonyâs friend lit a match causing burns to over 87% of Anthonyâs body. Anthony was given a 0% chance at living and had his last rights read to him three times over the course of his recovery.
In this episode, we talk with Anthony about his journey to recovery as a child burn survivor, the role mental health plays in burn injury recovery, and discuss how heâs overcome obstacles to become who he is today. Anthony shares his advice for other burn survivors, and talks about what to expect when reading his memoir, âAgainst All Oddsâ.
About Anthony Razzano
Anthony Razzano is a Certified Public Accountant (CPA), licensed sports agent, and an NFL-certified contract advisor. He has made a career out of negotiating successful contracts for his clients and providing expert tax and business advice since 2006. Born and raised in New Castle, Pennsylvania, Anthony harbored childhood dreams of becoming a professional football player.
However, at a young age, Anthony was tragically injured in a fire that resulted in burns covering 87% of his body, and he lost his left hand. Anthony was not expected to survive but defied all odds. After an intense recovery, he became the starting outside linebacker for the New Castle Red Hurricanes high school football team, demonstrating an unbreakable spirit and determination that has been a hallmark of his life.
Today, he is the author of the upcoming memoir, "Against All Odds," which tells his inspiring journey from the fire back to the football field, and his subsequent success in the fields of finance and sports management. Anthony is an embodiment of the power of resilience, fortitude, and tenacity.
Resources from the Show
Visit Anthonyâs Website.Purchase Anthonyâs Book on Amazon.Read More About Helping Child Burn Survivors Reclaim Life.Download the Guide for Parents and Caregivers of Burn Survivors.Watch âBuilding a Mindset that Serves You.âDownload the Guide âBeyond Survivingâ.Visit the Burn Community Bookshelf.Join the Online Burn Survivor Communities for Peer Support.Share Your Burn Survivor Story Online.Become a Phoenix Society SOAR Peer Supporter.Get Your Own Copy of Phoenix Societyâs Journey Magazine.Learn More About Ways to Give Back to Phoenix SocietyFor More Resources, Visit Us Here.About NFPA (National Fire Protection Association)
NFPA is a nonprofit that seeks to save lives and reduce loss with information, knowledge, & passion. Learn more about fire safety and explore their educational resources by visiting www.nfpa.org.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at [email protected].
Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
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We're just weeks away from Phoenix World Burn Congress 2023! To help attendees prepare for the event, we welcomed Megan Tinney, Phoenix WBC event manager, and Gina Russo, a key volunteer dedicated to ensuring that our first-time attendees are welcomed and supported at the conference, to the podcast!
About Gina RussoGina Russo was born and raised in Cranston, Rhode Island. She is a mother to two amazing sons and has worked at the local hospital for 32 years, In 2003, her and her fiancé attended a concert at the Station Nightclub in West Warwick that turned into a deadly blaze, killing 100 including her fiancé Alfred. Gina survived the accident with 3rd and 4th degree burns to 40% of her body - and she only learned about Alfred's death after coming out of a medically induced coma 12 weeks later.
In 2009, she self-published a book titled "From The Ashes." It was written for a therapeutic reason but wanted to share her story with others. She is proud to share that the book went on to sell for 3,500+ copies and opened up a world of public speaking about living and surviving such a tragic event.
Today, she is a Phoenix SOAR Peer Supporter and loves giving back and helping new survivors navigate their new life and get back to living. She has been married to her husband, Steven, for 15 years and loves her life as a burn survivor and what it has opened up for her. She is grateful for the opportunity to meet so many amazing person and the opportunity to help others.
About Megan TinneyMegan Tinney is responsible for developing, managing, and planning Phoenix World Burn Congress. As the Program Manager of Community Engagement, Megan expands community outreach, engagement opportunities, and virtual offerings. She began her career as a Physical Therapist at Shriners Hospital for Children, Galveston after earning her Doctorate in Physical Therapy from Shenandoah University.
Megan was first introduced to Phoenix Society at the 2009 Phoenix WBC before assisting with the conference next year in Galveston. Since 2010, Megan has held many roles within Phoenix WBC, including serving as the Event Coordinator Assistant for the past three years. In addition to her work with Phoenix Society, Megan also served as the Manager of Rehabilitation Services at Shriners Hospital for Children, Galveston and has worked in a variety of healthcare settings.
About Phoenix World Burn CongressPhoenix World Burn Congress (WBC) is a program of Phoenix Society for Burn Survivors, the leading national nonprofit organization dedicated to empowering people impacted by a burn injury.
Phoenix WBC began in 1985, developed by burn survivors, for burn survivors, to identify and understand the issues that impact the daily lives of those associated with burn trauma. Today, Phoenix WBC is the world's largest gathering of survivors, their families, burn care professionals and the fire service industry.
This life-changing biennial event connects attendees with support resources, educational programming, workshops, and, most importantly, each other. It is through these shared experiences that healing begins, because we have learned that nothing heals survivors like connection with other survivors.
Register today: https://pwbc2023.eventbrite.com/
Resources from the Show Register for Phoenix World Burn Congress 2023Download our Phoenix WBC Planning GuideView the full Phoenix WBC ScheduleFollow us on FacebookJoin our Phoenix Society Facebook GroupPhoenix Society ResourcesAbout MedStar HealthMedStar Health is a health system dedicated to caring for people in Maryland and the Washington, D.C., region, while advancing the practice of medicine through education, innovation and research. Learn more at www.medstarhealth.org.
About the D.C. Firefighters Burn FoundationThe D.C. Firefighters Burn Foundation is dedicated to assisting in the recovery and rehabilitation of injured firefighters and burn survivors from the Washington metropolitan region. The foundation supports burn research, treatment, and rehabilitation programs at Washington Hospital Center and Children's National Medical Center. Learn more at
www.dcffburnfoundation.org.
Sponsor Girls with GraftsInterested in becoming a sponsor of the show? Email us at [email protected].
Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
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At the age of 20, Grace Athena Flott was studying abroad in Paris when the apartment she lived in caught on fire causing burns to 45% of her body, a broken back and ankle, and the loss of two of her friends from the incident. Today, over a decade after her injury, Grace is an incredibly talented artist expressing and giving back to her community through her passion for the arts.
In this episode, we speak with Grace about her passion for art, and discuss with her how her art helps her advocate for appropriate representation of those with visible differences. Grace shares with us more about her current project featured in the Museum of Museums in Seattle, and shares vulnerable details about advice she has for survivors in accepting their own appearances.
Grace Flott
Grace Flott is a painter, arts educator, and burn survivor advocate. She is a member of the Jasmine Jahanshahi Fire Safety Foundation, a Phoenix SOAR volunteer, and a volunteer camp counselor for Camp Eyabsut, a camp for burn survivor kids of all ages. She grew up in eastern Washington State and now resides in Seattle, where she holds drawing and painting classes in her private studio and online
Resources from the Show
Learn more about Grace Athena FlottFinding an Audience for Your Story (Featuring Grace Athena Flott)The Art of Healing: Creativity and Community in Pediatric HealthcarePainting Through DarknessRead âYour Brain on ArtâPhoenix Society ResourcesAbout Pritzker Hageman
The Pritzker Hageman burn injury legal team helps burn survivors and their loved ones pursue compensation and justice throughout the United States. Learn more more at: LegalJourney.guide
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at [email protected].
Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
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