Episodios
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In this episode of the NICU Today Podcast, Martha is thrilled to welcome Kerri DiDario, Executive Director of the Eastern Pennsylvania Down Syndrome Center and proud mother of three. Kerri’s journey into motherhood began in 2004 when her firstborn daughter, Madison, was born seven weeks premature. This experience not only introduced her to the complexities of the NICU but also set her on a path of raising a medically complex child and planning for Madison’s future as an adult who will continue to rely on her family for care.
On today’s episode:
• Kerri shares the story of her early family life and the NICU journey with her daughter Madison.
• Life after the NICU: Kerri discusses the challenges and adjustments of bringing home a medically complex child after relying on round-the-clock care in the NICU.
• Growing the family: How Kerri balanced the demands of raising two more children while caring for Madison.
• Current updates: Kerri talks about how her children are doing today and the ongoing care and planning for Madison’s future.
• Planning ahead: Insights into how Kerri and her husband are preparing for Madison’s adulthood and the long-term care she will need.
• Advice for other families: Kerri offers practical advice for parents facing similar journeys.
• A shift in career: How Kerri’s personal experiences inspired her transition into the non-profit sector, focusing on supporting families like hers.
• Learn more: Information on where listeners can connect with the Eastern Pennsylvania Down Syndrome Center.
• Parting wisdom: Kerri’s biggest piece of advice for NICU families and others facing similar challenges.
Join us for a powerful conversation that explores the intersections of family, advocacy, and career, and offers invaluable insights for parents, caregivers, and anyone invested in supporting families through difficult medical journeys.
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On today's episode of NICU Today: A podcast by Today is a Good Day, Martha sits down with Matt Zalucki, a new father who recently relocated from upstate New York to Knoxville, Tennessee. While on vacation 1100 miles from home, their start to parenthood took an interesting twist. Matt is here to share more about their family’s journey
On today’s episode:
- Matt shares the unexpected twist in their journey to parenthood that began while on vacation, 1100 miles from home.
- Understanding HELLP Syndrome: Matt discusses the life-threatening complications his wife experienced and how it impacted their family.
- Navigating the unknown: How Matt and Kaylee managed the stress of dealing with a new health system in a new town, and the ways Matt advocated for his wife and newborn daughter, Amelia.
- Transitioning care: The story behind Amelia’s transfer back to their home hospital.
- Focusing on fatherhood: Matt opens up about his experience as a new dad in the NICU, offering advice for other fathers facing similar challenges.
- Life after the NICU: How Amelia is doing today and what life looks like for the Zalucki family post-NICU.
- Lessons learned: Matt reflects on the biggest takeaways from their NICU journey and shares valuable advice for parents navigating the aftermath.
Join Martha for a heartfelt episode that delves into the emotional and practical realities of parenting through medical challenges. Whether you’re a parent, a healthcare professional, or someone who values stories of resilience, this episode offers a poignant look into one family's journey through the unexpected.
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In this episode, I am thrilled to introduce our guest, Regina Clark, a Lehigh Valley NICU Family Advocate with Today is a Good Day. Regina works directly with families navigating the NICU journey, drawing on her decade of experience as a Special Education Teacher and her personal experience as a mother of two preemies.
On today’s episode:
- Regina shares her personal NICU journey, including the 106-day stay with her first-born who arrived 14 weeks early.
- Discussing the biggest struggles she faced during her time in the NICU and how she got through each day.
- Insights into the discharge process and what follow-up appointments entailed.
- Transitioning from the NICU to Early Intervention and what steps parents should take post-NICU.
- Entering school and understanding Individualized Education Plans (IEPs) with advice for parents seeking extra support for their child.
- The role of parents in the IEP process and how involved they can be.
- Additional advice for parents navigating similar challenges.
Join us for an inspiring episode that highlights Regina's dedication to supporting NICU families and her invaluable insights from both her professional and personal experiences. Whether you're a parent in the NICU, a healthcare professional, or someone interested in family advocacy, this episode offers essential support and guidance.
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In this episode, I am excited to introduce our guest, Dr. Marilyn Pendleton, a transdisciplinary leader and the founder and CEO of Your Voice Heard, LLC. Dr. Pendleton utilizes The Grief Recovery Method® and other holistic approaches to equip leaders and organizations with skills to promote mental health and well-being.
On today’s episode:
Dr. Pendleton shares what led her to this line of work and how she supports families.Insights into her company, Your Voice Heard, including the origin of its name and the services it offers.The definition of grief and its relevance to the NICU journey, including early delivery, pregnancy loss, and infant loss.An in-depth look at The Grief Recovery Method and how it helps individuals navigate through grief.Identifying signs of an unhealthy response to grief and when to seek professional support.Healthy ways to experience grief and strategies for coping with waves of grief.Guidance on helping children navigate grief when a sibling is born prematurely or needs to spend time in the NICU.Join us for an enlightening episode that highlights Dr. Pendleton's dedication to helping people move beyond significant emotional losses and realize their life's purpose. Whether you're a parent in the NICU, a healthcare professional, or someone experiencing grief, this episode offers valuable support and strategies.
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In today’s episode, Martha sits down with Dr. Allison Keen, a board-certified obstetrician and gynecologist at Philadelphia Women's Health & Wellness. With an impressive career spanning 17 years, Dr. Keen brings a wealth of experience and a deep commitment to patient advocacy to our conversation.
Dr. Keen shares the story of her journey into Obstetrics and Gynecology, tracing her path from the University of Denver to Drexel University College of Medicine and beyond. As Martha explores her career trajectory, listeners will gain insight into the motivations and experiences that have shaped Dr. Keen's approach to patient care.
Throughout the discussion, Dr. Keen offers valuable advice and insights on a range of topics:
She provides guidance for first-time pregnant patients, drawing on her expertise to address common concerns and offer reassurance.Dr. Keen discusses symptoms to be aware of during pregnancy and emphasizes the importance of proactive communication with healthcare providers.Martha dives into post-delivery care and NICU admission protocols, with Dr. Keen sharing recommendations for ensuring continuity of care and advocating for patients' needs.As Dr. Keen transitions from delivering babies to supporting patients in the next phase of their lives, she offers guidance on family planning and postpartum care.Finally, Dr. Keen shares a meaningful moment from her career, highlighting the profound impact of patient care on both physicians and families.Join Martha for an engaging conversation with Dr. Allison Keen, as they explore the challenges and rewards of obstetric and gynecological care and gain valuable insights into patient advocacy and compassionate healthcare delivery. Whether you're a parent-to-be, a healthcare professional, or simply interested in the field, this episode offers something for everyone.
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In this episode, I am thrilled to introduce our guest, Jenné Johns, MPH, a national health equity thought leader, author, and advocate for reducing healthcare disparities. Jenné wrote "Once Upon a Preemie," a groundbreaking children's book for parents of preemies in the NICU, inspired by her own experience advocating for her son.
On today’s episode:
Jenné shares her personal NICU experience and how she advocated for herself and her son.Advice for families navigating the NICU.The inspiration and process behind writing "Once Upon a Preemie."Information on where listeners can order her book.Discussion on her non-profit organization and the launch of the first Health and Racial Equity e-Learning Training program for healthcare providers.Details on the e-learning program, who can participate, and where to learn more.Reflecting on her NICU experience, Jenné shares what she wishes she had known during her stay.Her biggest piece of advice for NICU families.Join us for an empowering episode that highlights Jenné Johns' dedication to improving health equity and supporting NICU families. Whether you're a parent, healthcare professional, or advocate, this episode offers valuable perspectives and resources.
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In this episode, I am thrilled to introduce our guest, Colette, the co-founder and executive director of the Breastfeeding Resource Center (BRC). Since 2003, Colette has dedicated herself to providing accessible and equitable lactation support through the BRC, ensuring no family is left without assistance.
On today’s episode:
Colette shares the inspiration behind founding the BRC and how it has evolved over the years.We discuss why pumping is essential in the NICU and what parents can expect in the first few days.Colette offers advice for parents of extremely premature babies facing challenges in milk production.Insights into Pump Flange Sizing and how to size at home.Emotional tips for connecting with your baby while pumping and advocating in the NICU.The importance of skin-to-skin contact and transitioning to breastfeeding.Handling pumping after a loss and options like weaning and donating milk.Colette's "WHY" – her motivation for continuing this vital work.Join us for an insightful episode that highlights Colette's dedication to improving lactation support and healthcare equity. Whether you're a parent in the NICU, a healthcare professional, or someone interested in lactation, this episode is a valuable resource.
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In this episode, I am thrilled to introduce our guest, Colleen Weimer. Colleen is not only a devoted mother but a beacon of strength and resilience in the face of adversity. Her journey with her son, Sully, born at 30 weeks and weighing a mere 2lbs 3oz, is an inspiring tale of triumph over the challenges of prematurity and a rare heart condition known as transposition of the great arteries.
Our introduction to Colleen's story takes us through the 158 days spent in the hospital, where Sully, a tiny warrior, underwent open-heart surgery at just 5 weeks old. Colleen is here to share the details of their incredible journey.
On today’s episode:
Colleen delves into where their remarkable journey began, offering insights into the early days of Sully's life.Colleen shares her invaluable advice for families facing challenging diagnoses, drawing from her own experience and wisdom gained along the way.Colleen sheds light on the importance of building relationships with healthcare professionals and provides recommendations for others looking to establish strong connections with their caregiving team.Recognizing the non-linear progress in the NICU, Colleen discusses how she and her family managed the ups and downs, embracing the unpredictability of their journey.Colleen reflects on her experience bonding with Sully, offering a glimpse into the special moments that strengthened their connection.Colleen shares how she found hope each day, even during the most challenging times, and offers encouragement to others navigating similar journeys.Colleen explores the dynamics of bringing Sully home, managing visits from family and friends, and navigating the delicate balance of protecting Sully from germs.Colleen leaves our listeners with her most significant piece of advice for families navigating the NICU or CICU, imparting wisdom from her unique journey.Join us for an emotionally charged episode that unveils a story of courage, perseverance, and the enduring power of hope. Colleen Weimer's journey is a testament to the resilience of the human spirit, and her insights offer support and inspiration to families facing similar challenges. Whether you're a parent, a healthcare professional, or someone seeking a story of triumph, this episode is a must-listen.
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In this episode, we're honored to have Crystal Zukosky, a dedicated mother and aspiring family attorney, as our special guest. Crystal, a mom of two boys aged 18 and 2.5, brings a unique background in hotel restaurant management and culinary arts. Currently pursuing a Law and Society degree at Penn State University online, Crystal is actively involved in advocating for changes in Pennsylvania law to allow parents to be paid caregivers for their minor medically complex children.
Join us as we chat with Crystal about:
Crystal's family dynamics and her journey as a mom of two boysHer awareness of the NICU before her experience with her son, WillThe initial days in the NICU and how she coped with the challengesNavigating the emotional rollercoaster of the NICU journeyCrystal's advocacy efforts for her son and the support she receivedPractical strategies for keeping track of notes and reports from medical professionalsWill's extended NICU journey, including the surgery for a tracheostomy and the transition homeValuable advice for parents facing a similar journey in the NICUCrystal's involvement in advocating for legislative changes and the bill she's working to passAn update on how Will is doing todayWe're delighted to welcome Crystal Zukosky to share her inspiring story and insights into the NICU experience and the journey of caring for a medically complex child.
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In today's episode, we're thrilled to have Ashlee Adams, a licensed clinical social worker passionate about supporting infants and their parents, as our special guest. Ashlee's journey includes a master’s degree in social work from the University of Pittsburgh, with specializations in direct practice and integrated health. With experience in community, hospital, and private practice settings in Pittsburgh, Philadelphia, and New York City, Ashlee currently focuses on postpartum mental health and parenting in her private practice.
Join us for an insightful conversation with Ashlee as she shares:
Ashlee's background and her deep-rooted passion for working with infants and their familiesIdentifying the most significant challenges parents face in their journeyPractical advice for NICU parents feeling isolated in the midst of various struggles, from sleep deprivation to feeding issuesExploring the gaps in care for parents during and after the NICU experienceNavigating relationships in the face of adversity, drawing from personal experiencesAddressing the common feelings of isolation and inadequacy in parents and providing supportExamining the challenges faced by both moms and dads in the NICU journeyAshlee's key piece of advice for parents navigating the NICU experienceTune in for an honest and informative discussion with Ashlee Adams as we delve into the challenges and support systems for parents in the NICU journey.
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In today's episode, we're pleased to have Tracy Warren, co-founder and CEO of Astarte Medical, as our special guest. Tracy's extensive experience as a healthcare venture investor and her commitment to women's and children's health make her a valuable voice in the industry.
Join us as Tracy shares insights into her background and how her focus on nutrition developed, particularly in the Neonatal Intensive Care Unit (NICU). In this conversation:
Tracy sheds light on the often-overlooked topic of nutrition for babies in the NICUWe discuss the different types of nutrition crucial for the growth of premature infantsExplore the important questions NICU families should ask regarding their baby's nutritionUnderstand how families can track their baby's progress and ensure they are on the right developmental pathLearn about the collaborative efforts of the medical team in shaping a baby's nutrition in the NICUTracy provides practical recommendations for families actively participating in their baby's nutritional journeyTune in for an informative chat with Tracy Warren, where we break down the complexities of neonatal nutrition in the first 1000 days of life.
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In this episode, we are honored to welcome our special guest, Quinn Forster, who, along with her husband, both come from large families and always dreamt of building a big family of their own. With three children and seven years of marriage, their journey to parenthood has been nothing short of remarkable, brimming with unexpected twists and turns. Quinn is here to share her family's incredible story, which includes multiple stays in the Neonatal Intensive Care Unit (NICU).
On today's episode:
Quinn shares her family's extraordinary journey to parenthoodQuinn opens up about the stark differences between their first NICU experience and their third stayWhen reflecting on her family's NICU journey, Quinn imparts invaluable advice for other families going through similar challengesQuinn shares her insights into how she learned to ask the right questions, empowering her and her family throughout their NICU experiencesDiscover Quinn's recommendations for other families on how to cultivate a strong and supportive relationship with the medical teamQuinn sheds light on the practical aspects, explaining where she and her family kept track of crucial questions, reports, and updates from the medical teamQuinn shares an update on how her beloved little ones are doing todayJoin us for a touching and insightful conversation as we dive into Quinn's family journey through the NICU and the valuable lessons and experiences they've gathered along the way.
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In this episode, we are thrilled to introduce our special guest, Roxy Romeo, a radio veteran with a nationwide presence, whose warm and relatable personality has won her the hearts of listeners across 63 markets, including Miami, Houston, Atlanta, and Detroit. Despite her national success, Roxy remains the friend you've always wanted to have. Born and raised in Miami, she kickstarted her radio career with a Sunday morning 6 am shift. Today, she's a prominent figure in Philadelphia, co-hosting the Rise + Grind Morning Show on Power 99.
Roxy's connection with Today is a Good Day stems from a personal journey through the Neonatal Intensive Care Unit (NICU). In this episode, she graciously shares her family's experiences and emotions during their path to starting a family, including the challenges and triumphs they faced along the way.
On today’s episode:
Roxy shares her journey with starting a familyRoxy opens up about the feelings and emotions she felt when her sweet miracle ended up in the NICURoxy discusses the steps she took to become a part of her daughters care team and build a good relationship with the medical teamRoxy shares how she found a balance between home and the NICURoxy talks about her life Post-NICU with appointments, early intervention, and seeing specialistsRoxy opens about the guilt she faced and working through it today Roxy shares how she transitioned back to work and what that looked like for herRoxy shares a beautiful update about her daughter today -
In this episode, I’m excited to introduce our extraordinary guest, Adam Wood. With a captivating journey that's both inspiring and impactful, Adam brings his unique perspective as a retired U.S. Army veteran, a devoted NICU Dad, and a published author who's authored three heartwarming children's books centered around prematurity and the NICU. Adam's story is a testament to the resilience and strength of fathers in the NICU, and we can't wait to share it with you.
Adam's journey into fatherhood and the NICU is a story of determination, hope, and love. Join us as he shares the heartwarming tale of his family's path to parenthood, filled with trials and triumphs.
On today’s episode:
Adam's personal journey to starting a family, a journey that's bound to resonate with many.A deep dive into Adam's NICU experience, painting a vivid picture of the unique challenges and emotional moments he encountered.The biggest struggle he faced during his NICU journey and how he navigated through it, offering invaluable insights for others.Advice from Adam for fathers who are just embarking on their NICU journey, gleaned from his own experiences.Reflections on the lessons learned, as Adam shares what he knows now that he wishes he had known back then.Insights into why Adam decided to focus on the Dad's experience and the impact he's making through "Our Preemie Adventures."A look at his book series and how these heartwarming stories have provided support and hope to families navigating NICU life.Details on where you can find Adam's books, in case you're seeking a source of inspiration during your NICU journey.An update on how Adam's son is doing today, a story that's bound to warm your heart.Adam's dedication to supporting families, especially NICU Dads, shines through in his work and public speaking. His efforts to shed light on the unique challenges that men face during and after the NICU journey are truly commendable.
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In this episode, I am honored to introduce my distinguished guest, Dr. Melinda Elliott. Dr. Elliott is a seasoned neonatologist and serves as the Chief Medical Officer for Prolacta Bioscience, a company dedicated to advancing the well-being of premature infants. Her extensive career in neonatology has touched the lives of countless families, and her dedication to improving neonatal care is truly inspiring.
My introduction to Dr. Elliott occurred during a special tour of the Prolacta Bioscience Facility in Los Angeles, California. I was immediately struck by her passion for neonatology and her commitment to the littlest members of our society. A West Virginian at heart, Dr. Elliott's roots run deep, and her love for babies has been a guiding force throughout her medical journey.
On today’s episode:
1. Dr. Elliott's compelling background and her path to becoming a neonatologist.
2. The paramount importance of nutrition in the NICU for premature infants, shedding light on a vital aspect of neonatal care.
3. Delving into the profound concept that "breast milk is medicine" and understanding its transformative role in the NICU.
4. Offering guidance and support for parents who face the unique challenges of breastfeeding or pumping in the NICU, drawing from Dr. Elliott's wealth of experience.
5. Exploring the groundbreaking work carried out at Prolacta Bioscience, particularly their advancements in Human Milk Fortifiers and the remarkable health benefits witnessed in preemies on an exclusive human milk diet.
6. Equipping parents with valuable insights on advocating for their baby's needs in the NICU, even in hospitals without Human Milk Fortifiers.
7. Additional tips and advice for families navigating the complexities of the NICU journey, coming from a distinguished expert in the field.
Join us for an insightful and heartfelt conversation that illuminates the transformative work being done to provide premature infants with the best possible start in life. Whether you're a parent, a healthcare professional, or simply curious about the world of neonatology, this episode offers a unique opportunity to learn from Dr. Melinda Elliott's expertise and passion for neonatal care.
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Today, we have a special guest, Dr. Stefanie Lopacinski, a seasoned Licensed Clinical Social Worker with nearly two decades of experience in individual, couples, and group therapy. Dr. Lopacinski is the proud owner of Women's Wellness of Abington, a private practice that recently celebrated its second anniversary. Her specialty lies in providing support for female patients navigating the challenges of Reproductive, Perinatal, and Postpartum life changes.
On today’s episode:
Dr. Lopacinski sheds a light on the often daunting task of finding the right therapistDr. Lopacinski provides insight into the questions you should ask yourself before embarking on your therapist search, as well as the crucial questions to pose to potential therapistsUnderstanding the various credentials therapists hold is vital, and Dr. Lopacinski breaks down what these credentials meanDr. Lopacinski touches on different therapy modalities and which one she primarily uses in her practiceWe explore the timing of therapy and whether there's ever a "perfect" moment to begin your journey to improved mental healthDr. Lopacinski leaves you with some last-minute suggestions and tips for finding a therapist that suits your unique needs.Finding the right therapist is a crucial step in your mental health journey, and Dr. Lopacinski's expertise will help you make an informed choice.
Please subscribe to the NICU Today: A podcast by Today is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel.
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In this heartfelt and inspiring episode, we are joined by an extraordinary guest, Danielle Mundondo, who has faced remarkable challenges with unwavering strength. Her family's story is one of resilience, love, and the indomitable human spirit. Danielle shares her family's incredible journey towards starting a family, which led them to the NICU, CCNICU, and PICU with their three daughters.
On today’s episode:
Danielle discusses the distinct experiences in the NICU, CCNICU, and PICUHow Danielle advocated for her children in these different situationsDanielle talks through how she navigated having older children at home while constantly going back and forth to the hospitalDanielle shares the strategies and support that helped her make it through each dayWhat medical equipment Danielle had access to at homeDanielle opens up about her most significant piece of advice for families navigating the journey with medically-complex children, drawing from her own experiencesDanielle's family also has a genetic heart condition, and she opens up about how this has shaped their lives and influenced the relationship between her daughtersDanielle discusses losing her own mother to the same heart condition when she was a baby and how she manages the emotions she faces as she watches her own daughterWe get an update on how Danielle's daughters are doing today, showcasing the strength of their family and their remarkable bond.Join us as we listen to Danielle Mundondo's story, a tale of unwavering love, tenacity, and the power of family in the face of adversity.
Please subscribe to the NICU Today: A podcast by Today is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel.
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Welcome to the Today is a Good Day Podcast. In this episode, we explore the incredible power of finding strength through tragedy and using difficult experiences to drive philanthropy. When life takes unexpected turns, many of us yearn for ways to give back and help others in our communities. Whether you've experienced a traumatic event or are simply eager to make a difference in the world, this episode offers inspiration and insights into various paths for philanthropic endeavors.
We are joined by three remarkable individuals who have harnessed their personal journeys to make a positive impact: Paul Isenberg - Founder of Bringing Hope Home, Alexia Doumboya - Founder of Cocolife.black and Tracy Ashdale - Founder of Girls on the Run Montgomery County Chapter.
On today’s episode:
Each guest tells us a little about themselves and why they founded their organizationsAfter a personal tragedy, Paul dedicated himself to supporting a larger non-profit organization. He shares how he found purpose in this work and his transition to starting Bringing Hope Home.Alexia discusses how she recognized a gap in care for mothers and embarked on a mission to fill it. She tells us about the inception of her organization and how she developed its innovative programs.Tracy explains her motivation for founding the local chapter of Girls on the Run and highlights the opportunities to launch chapters for various non-profit organizations.These extraordinary individuals have all launched their own organizations, but they emphasize that there are numerous ways to get involved in philanthropy without starting a new non-profit. They share valuable advice for those who want to give back but don't know where to begin.
Don't miss this episode of the Today is a Good Day Podcast as we explore the transformative power of turning life's challenges into opportunities for positive change.
Please subscribe to NICU Today: A podcast by Today is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel.
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In this emotionally charged and deeply inspiring episode, we explore the transformative journey of Darren Sudman, a remarkable individual who, in the face of profound personal loss, channeled his grief into creating a national nonprofit that has touched countless lives. Join us as we sit down with Darren, founder of Simon’s Heart, a close friend and mentor, who has a unique and powerful story to share.
On today’s episode:
Darren reflects on those unforgettable moments in the NICU, the raw pain of loss, and the challenging days, weeks, and months that followed the tragic passing of his child, Simon. Darren shares how he and his wife, Phyllis, began the inception of their groundbreaking nonprofit, Simon's Heart.Join us as we explore the question that Darren is most frequently asked: what it's like to be a "loss dad" and how he has navigated this unique and challenging role. Hear his insights on communicating about their loss with their other living children, a topic that many families facing similar circumstances grapple with.With almost two decades passed since the loss of their son, Simon, Darren gives us a candid glimpse into where his grief stands today. Darren shares how he keeps Simon's memory alive and the world of "What ifs" he now resides in, as they didn't have the chance to create memories with their children.For those going through a similar journey, Darren offers heartfelt advice and guidance. His wisdom is rooted in his own experiences and his dedication to supporting others in their moments of heartbreak and hope.
Join us for an episode that is sure to touch your heart, inspire you to give back, and remind us all that even in the world of "What ifs," there is room for healing, hope, and making a positive impact on the lives of others.
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Navigating your baby’s health after discharge can be overwhelming. Our guest today will help us navigate the post-NICU experience with determining priorities and staying organized with post-NICU life. Dr. Kate Chappell is an Associate Professor with the University of South Carolina, College of Nursing and is a Pediatric Nurse Practitioner. She received her PhD in Nursing from the University of South Carolina and has been a nurse for nearly 20 years. She worked in the Pediatric Intensive Care setting and as a Nurse Practitioner in Pediatric Neurology and Forensics and Child Abuse. She has been part of the nursing faculty since 2007, teaching nurses and nurse practitioners. Her research and practice interests include family and healthcare provider vigilance for child abuse, creating equitable access to resources, integration of social determinants of health in nursing education, and resource support for children with specific healthcare needs. She serves as the Advocacy and Policy Chair for the Developmental, Behavioral, and Mental Health Special Interest Group in the National Association of Pediatric Nurse Practitioners. She is also the co-Program Director, alongside Dr. Victoria Davis, for two South Carolina based programs funded by US Dept. of Health and Human Services. One program, called Childcare Ready for All (or CRAwl), focuses on providing health need focused training and support for daycare and family care providers for children with a variety of health needs. The other program is BabyCoach, which focuses on providing nurse coaching support for families who have a baby leaving NICU or Special Care Nursery. Dr. Chappell is passionate about families feeling the emotional and material support they need to care for their child and feel secure in the care others are providing, to help families grow and stay strong and support the best outcomes for their children.
On this episode you we discuss the following topics:
• How Kate got into this line of work (in the Neonatal Intensive Care Unit);
• When families graduate from the NICU, it can be overwhelming to manage all of the follow-up appointments. How Kate determines priorities for care and follow-up appointments;
• Kate's advice for families on how to stay organized for their follow up appointments;
• If families need help with finding specialists, who they should contact for help after graduating from the NICU;
• Government and insurance funded programs available for families to look into;
• The role of non-profit health & development organizations and programs to facilitate referrals and services;
• The resources available to support mom and baby;
• The roles of a case manager, NICU nurse, post-NICU nursing support/visiting programs, and how families know what these different roles can offer to support them; and,
• The one piece of advice Kate gives to NICU families?
If you enjoyed this episode, please subscribe to NICU Today: A podcast by TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel, and share our podcast with someone who may need it.
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