Episódios

  • This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin. The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers the impact of connective tissue disorders on various body systems and provides practical tips for modifying physical therapy approaches. The book emphasizes the importance of addressing primary issues and understanding the complexity of each individual's presentation. The chapters cover topics such as modifying movement for gentle exercise, addressing deconditioning and weakness, building confidence and safe strengthening programs, finding physical therapists open to working with EDS patients, expanding the toolkit for physical therapy, and more.

    Takeaways

    The book 'Taming the Zebra' fills a void in understanding and provides physical therapists with the knowledge to effectively work with patients with HSD and EDS.The book emphasizes the importance of addressing primary issues and understanding the individualized nature of each patient's presentation.A collaborative approach between therapists and patients is essential in managing overlapping problems and setbacks. Modifying movement can allow individuals with HSD and EDS to engage in gentle exercise and maintain movement despite physical limitations.Deconditioning and weakness are common issues for individuals with HSD and EDS, and addressing these problems requires a comprehensive approach that considers the underlying causes and individual goals.Physical therapists should approach treatment with intention, focusing on building confidence and creating safe strengthening programs tailored to the individual's needs.Expanding the toolkit of physical therapy techniques, such as neural rehabilitation and manual therapies, can improve outcomes for individuals with HSD and EDS.

    Chapters ➡

    00:00 Introduction and Background

    01:58 Motivation for Writing the Book

    03:28 Challenges in Managing EDS and HSD

    06:08 Different Types of Hypermobility and Connective Tissue Disorders

    07:35 Approaching Physical Therapy for EDS and HSD

    09:21 Primary Treatment Approach and Identifying Key Issues

    21:04 Approaching Physical Therapy with Overlapping Problems

    22:48 Non-Linear Path of Physical Therapy

    31:01 Modifying Movement for Gentle Exercise

    31:21 Addressing Deconditioning and Weakness

    35:13 Neural Rehabilitation and Muscle Firing

    36:09 Steps to Successful Strengthening

    40:18 Expanding the Toolkit for Physical Therapy

    43:13 Approaching Stabilization and Alignment

    56:32 Hypermobility Hacks

    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority! 🧬🔬🦓

    Resources:

    Virtual book event sign up

    https://www.tamingthezebra.org

    http://www.elevationwellness.co/

    www.goodhealthphysicaltherapy.com/clinic-staff/

    www.medbridge.com/heather-purdin-physical-therapy

    https://www.olagrimsby.com/courses-page/

    https://www.naiomt.com

    https://feldenkrais.com

    https://counterstrain.com

    https://frequencyspecific.com

    https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/where-in-the-world-is-shirley-sahrmann/

    #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast #TamingTheZebra

    #BendyBodiesPodcast #BendyBuddy #HypermobilityMD

  • In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized treatment. She addresses common misconceptions about physical therapy and highlights the importance of communication and realistic expectations. Dr. Linda Bluestein and Dr. Holm cover topics such as progress and setbacks, balancing stretching with strengthening, starting to walk again after severe limitations, physical therapy for scoliosis, and helpful resources and information. Dr. Holm also shares her favorite hypermobility hacks to help individuals stay motivated and achieve their goals.

    Takeaways

    Physical therapy can be highly beneficial for symptomatic joint hypermobility, providing pain relief and improving function.Finding a specialized physical therapist with expertise in hypermobility conditions is crucial for successful treatment.Misconceptions about physical therapy, such as the belief that it should be painful, can hinder progress.Individualized treatment plans and gradual progression are key to achieving the best outcomes in physical therapy.Open communication with the physical therapist and realistic expectations are essential for success.

    Chapters ➡

    00:00 Introduction to Dr. Lillian Holm

    01:15 What can physical therapy do for people with symptomatic joint hypermobility?

    04:19 Reasons why physical therapy may not lead to expected outcomes

    09:09 How to find the best possible physical therapist for EDS and HSD

    11:58 Misconceptions about physical therapy for joint hypermobility

    21:25 Approach for people who don't like to exercise

    25:41 Resetting the boom and bust cycle

    35:23 Metrics for measuring success in physical therapy

    50:18 Progress and Setbacks

    52:47 Balancing Stretching with Strengthening

    56:22 Starting to Walk Again

    58:12 Physical Therapy for Scoliosis

    01:01:04 Resources and Information

    01:02:23 Hypermobility Hacks

    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority! 🧬🔬🦓

    Resources:

    Learn more about guest, Dr. Lilian Holm:

    https://www.lilianholm.com/

    https://www.instagram.com/hypermobilitydoctor/

    https://www.facebook.com/HypermobilityD

    Read her guest blog post for the Hypermobility MD website:

    https://www.hypermobilitymd.com/post/hypermobile-five-principles-to-make-physical-therapy-work-for-you

    #RareDiseaseDay #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #HypermobilityDoctor #Podcast

    #BendyBodiesPodcast #BendyBuddy #HypermobilityMD

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  • In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries. This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain with writing, hand pain and numbness in sleep, thumb pain and De Quervain's tendonitis, cubital tunnel syndrome, TFCC tear, trigger finger and so much more.

    Takeaways

    Hand pain, weakness, and injuries are common in individuals with joint hypermobility.Hand pain in connective tissue disorders can be caused by hypermobility, subluxations, nerve impingement, and arthritis.TheraPutty is a useful tool for strengthening hands. Low profile hand support options include kinesio tape, silicone thumb supports, and the Push MetaGrip.Traditional therapies may not work for hand pain in hypermobility if the underlying hypermobility is not addressed.Ring splints can provide support and stability for hypermobile joints in the hands.Insurance coverage for ring splints may vary, and Silver Ring Splints is a US-based provider that offers insurance coverage options. Trigger finger occurs when the tissue surrounding a tendon becomes knotted, causing the tendon to catch and lock when the finger is flexed.Steroid injections combined with splinting can be effective in treating trigger finger, especially in acute cases.Trigger finger may be misdiagnosed in the hypermobile population, as it can be a result of subluxation rather than tissue accumulation.Hypermobility hacks include ergonomic hand movements, swimming, abdominal compression, and prioritizing daily movement.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Chapters

    00:00 Introduction and Overview

    01:38 Difference between Occupational and Physical Therapy

    04:44 Common Reasons for Hand Pain in Connective Tissue Disorders

    09:53 Approach to Hypermobility in Hands

    12:46 Strengthening Hands with TheraPutty

    20:55 Strengthening Hands without Overdoing It

    21:27 Reasons Traditional Therapies May Not Work for Hand Pain

    24:08 Low Profile Hand Support Options

    28:23 Ring Splints and Insurance Coverage

    38:34 Ring Splints and Plastic Splints

    40:33 Hand Exercises for Different Age Groups

    42:33 Avoiding Strain and Hyperextension

    45:21 Tips for Traveling with Hand Problems

    47:51 Challenges of the Medical System for Chronic Pain

    51:22 Hand Pain with Writing

    53:52 Hand Pain and Numbness in Sleep

    56:16 Thumb Pain and De Quervain's Tendonitis

    59:17 Cubital Tunnel Syndrome

    01:02:19 Torn Triangular Fibrocartilage Complex (TFCC)

    01:06:14 Decuervain's Tendonitis

    01:09:17 TFCC Tear

    01:13:32 Trigger Finger

    01:17:31 Differentiating Trigger Finger from Subluxation

    01:18:38 Pulley Injuries in Rock Climbers

    01:19:25 Hypermobility Misdiagnosis

    01:20:46 Hypermobility Hacks

    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority! 🧬🔬🦓

    Resources:

    Learn more about guest, Corinne McLees here:

    https://www.handcoachcorinne.com/

    Check out the items mentioned in episode 91 here:

    https://amzn.to/49FkaGY

    Check out the Bendy Bodies Amazon Shop here:

    https://www.amazon.com/shop/hypermobilitymd

    Links to other products:

    https://www.silverringsplint.com/

    https://www.evabellejewelry.com/

    https://bracelab.com/metagrip.html?utm_source=Affiliate+Partnership&utm_medium=Social&utm_campaign=Corinne

    #HandPain #HandProblems #HandWeakness #WristPain

    #BendyBodiesPodcast #BendyBuddy #HypermobilityMD

  • In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about causes of brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfunction and the importance of identifying underlying causes. Dr. Ruhoy emphasizes the need for a comprehensive evaluation and individualized treatment approach for patients experiencing brain fog. They delve into the role of nutrition in cognitive function, emphasizing the impact of food choices on inflammation. They highlight the importance of avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors. Dr. Ruhoy shares surprising findings on the MRI of mast cell activation syndrome (MCAS) patients.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Takeaways

    Brain fog is characterized by cognitive difficulties such as slow thinking, difficulty learning and recalling information, and trouble focusing and paying attention.Conditions such as mast cell activation syndrome (MCAS), craniocervical instability (CCI), dysautonomia, Ehlers-Danlos Syndromes, and CSF leaks can contribute to cognitive dysfunction and brain fog.Intracranial hypertension (high pressure), hypotension (low pressure), and Tarlov cysts can also contribute to brain fog. Identifying the underlying causes of brain fog is crucial for developing an effective treatment plan.A comprehensive evaluation, including medical history, imaging studies, and laboratory tests, can help determine the contributing factors and guide treatment decisions. Applying knowledge gained from podcasts and research in clinical practice can help healthcare professionals provide better care to their patients.Making a meaningful difference in patients' lives is a rewarding aspect of being a healthcare professional.Nutrition plays a crucial role in cognitive function, and food choices can either be anti-inflammatory or pro-inflammatory.Avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors can positively impact cognitive function.

    Chapters

    00:00 Introduction of Dr. Ilene Ruhoy

    01:57 Defining Brain Fog

    04:14 Risk Factors for Brain Fog

    09:42 Identifying Contributing Factors

    11:52 Cognitive Dysfunction and Mast Cell Activation Syndrome

    14:09 Cognitive Dysfunction and Craniocervical Instability

    18:18 Cognitive Dysfunction and CSF Leak

    22:59 Cognitive Dysfunction and Dysautonomia

    25:25 Cognitive Dysfunction and Upper Cervical Instability

    30:12 Cognitive Dysfunction and CSF Leak

    38:11 Applying Knowledge in Clinical Practice

    39:04 The Importance of Making a Meaningful Difference

    40:31 The Role of Nutrition in Cognitive Function

    42:38 The Impact of Food Choices on Inflammation

    43:44 Avoiding Processed Foods and Sugar

    44:38 The Role of Complex Carbohydrates and Dairy

    45:28 Increasing Vegetable Consumption

    46:44 Improving Lifestyle Factors

    47:09 Where to Find Dr. Ilene Ruhoy Online

    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority! 🧬🔬🦓

    Resources:

    https://www.bendybodiespodcast.com/13-healing-the-brain-holistically-with-ilene-ruhoy-md-phd/

    https://patreon.com/unraveledpod

    https://instagram.com/ileneruhoymdphd/

    https://twitter.com/RuhoyMD

    https://tiktok.com/ileneruhoymdphd

    #BrainFog #BrainFogAwareness #BrainHealth

    #FunctionalMedicine #NutritionForBrainHealth #InflammationAwareness

    #MastCellActivationSyndrome #MCAS #CSFLeakInsights #TarlovCystAwareness #TarlovCystWarrior

    #BendyBodiesPodcast #BendyBuddy #HypermobilityMD

  • In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility. Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics related to sleep, including the circadian rhythm, the impact of light on sleep, the effect of blue light on sleep, ideal bedtime, the impact of electronics on sleep, the role of melatonin, and the timing of eating and its effect on sleep. Other topics include challenges of working from home, sleep schedules and chronic illness, shifting sleep patterns, sleep apnea and its relationship with chronic illness, sleep medications, sleep watches and monitoring devices, sleep positions and joint instability, and the importance of sleep education in medical training. Dr. Seheult provides valuable insights and recommendations for improving sleep quality and managing sleep-related issues.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Takeaways:

    Sleep is crucial for people with chronic illness, chronic pain, and joint hypermobility.

    Understanding the circadian rhythm is important for optimizing sleep.

    Light, especially blue light, can significantly impact sleep quality.

    The suprachiasmatic nucleus plays a key role in regulating the sleep-wake cycle.

    Morning light exposure is important for setting the body's internal clock.

    The timing of eating can affect sleep quality.

    Establishing a consistent sleep schedule and avoiding late-night eating can improve sleep quality.

    Shifting sleep patterns can be challenging, especially for individuals with chronic illness.

    Sleep apnea is common in individuals with chronic illness and connective tissue disorders like Ehlers-Danlos Syndromes.

    Home sleep studies can be effective in detecting sleep apnea, but in-lab studies may be necessary for individuals at higher risk of central apnea.

    Sleep medications should be used cautiously due to potential side effects and dependency issues.

    Sleep watches and monitoring devices can provide valuable insights into sleep patterns and quality.

    Proper sleep positions, pillows, and mattresses can help alleviate joint instability and pain during sleep.

    Education on sleep disorders and their relationship with chronic illness should be improved in medical training.

    Patient advocacy and sharing information through podcasts can help raise awareness and improve access to sleep education.

    Chapters

    00:00 Introduction of Dr. Roger Seheult

    03:22 Understanding the Circadian Rhythm

    07:02 Impact of Light on Sleep

    09:20 The Suprachiasmatic Nucleus and its Role in Sleep

    09:49 The Importance of Light for People with Chronic Illness

    13:35 The Effect of Blue Light on Sleep

    15:28 Ideal Bedtime for Optimal Sleep

    17:25 The Impact of Electronics on Sleep

    19:26 The Role of Melatonin in Sleep

    20:05 The Importance of Morning Light

    23:29 The Timing of Eating and its Effect on Sleep

    24:00 Challenges of Working from Home and Small Meals

    25:20 Sleep Schedule and Chronic Illness

    28:57 Falling Asleep While Watching TV

    31:49 Sleep Apnea and Chronic Illness

    39:05 Sleep Apnea and Temporomandibular Dysfunction

    44:09 EDS and Central Sleep Apnea

    44:30 Elevating the Head of the Bed

    45:23 Alignment Problems and Breathing

    47:37 Sleep Medications and Side Effects

    1:00:15 Supplements for Sleep

    1:02:01 Sleep Watches and Monitoring Devices

    1:03:01 Sleep Positions and Joint Instability

    1:04:46 Paresthesias and Numbness in Sleep

    1:05:11 Pillow Recommendations for Cervical Instability

    1:07:35 Waking Up in Pain

    1:09:58 Sympathetic Nervous System Activation

    1:12:23 Safety of Melatonin

    1:14:49 Improving Education on EDS and HSD

    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority! 🧬🔬🦓

    Resources:

    www.medcram.com

    https://www.youtube.com/@Medcram

    https://www.optum.com/care/locations/california.html

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6175781/

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7052958/

    https://www.itamar-medical.com/professionals/watchpat-300/

    https://youtu.be/OIwHYaDyswA?si=xSOW5miP4otLEKR6

    #BendyBodiesPodcast

  • In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involved. The conversation covers topics such as disclosing disabilities to employers and universities, getting a service dog, dealing with unresponsive disability lawyers, appealing denied disability benefits, and correcting inaccuracies in medical records. The episode provides valuable insights and guidance for individuals with disabilities navigating legal and practical aspects of their rights and accommodations. Professor Lee wanted to clarify the following points from the discussion of Social Security disability. SSI places limits on assets ($2000 for an individual) and income. SSDI does not have an asset limit but requires the recipient not be able to engage in “substantial gainful activity,” which generally acts as an income limit. There is a “Ticket to Work” program called “Choose Work” available that provides some options similar to those in the earlier “Ticket to Work” program mentioned in this episode.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Key points discussed:

    **Americans with Disabilities Act (ADA):** The conversation explores the ADA, a crucial piece of legislation that prohibits discrimination against individuals with disabilities and mandates reasonable accommodations.

    **Disability Benefits:** The episode delves into disability benefits, including the process of applying, appealing denied benefits, and addressing inaccuracies in medical records.

    **Workplace and Education Accommodations:** Reasonable accommodations in both workplace and education settings are explored, shedding light on the challenges and advocacy involved.

    **Disclosure to Employers and Universities:** Professor Tiffany Lee provides insights into the considerations and potential challenges of disclosing disabilities to employers and universities.

    **Service Dogs:** The episode discusses obtaining a service dog and the associated considerations.

    **Dealing with Disability Lawyers:** Challenges related to unresponsive disability lawyers are addressed, offering guidance on how to navigate such situations.

    **Financial Impact of Disability:** The limitations and financial impact of applying for disability, including asset limits and restrictions on work and income, are discussed.

    **Flaws in the Disability System:** Issues within the disability system, such as the poverty threshold and its impact on marriage, are highlighted.

    **Emergency Response Accessibility:** Making disaster and emergency response accessible to people with disabilities is discussed.

    Overall, the episode provides an exploration of the legal, practical, and personal aspects of disability rights and accommodations, offering valuable insights and guidance for individuals with disabilities.

    Chapters

    00:00 Introduction and Overview

    01:14 Americans with Disabilities Act

    03:28 Reasonable Accommodations in the Workplace

    04:38 Determining Reasonable Accommodations

    09:07 Accommodations in High School and College

    11:22 Challenges with Disability Services in Education

    13:59 Advocating for Accommodations in Education

    16:36 Disclosing Disabilities to Employers and Universities

    19:03 Determining Job Compatibility with Accommodations

    21:03 Getting a Service Dog

    23:37 Regulations and Considerations for Service Dog Training

    36:33 Dealing with Unresponsive Disability Lawyers

    38:07 Appealing Denied Disability Benefits

    40:03 Legal Recourse for Undertreatment of Pain

    43:07 Accommodations for Productivity Standards

    43:45 Correcting Inaccuracies in Medical Records

    47:46 Knowing When to Get an Accommodation or Apply for Disability

    48:36 Considerations for Applying for Disability

    50:23 Assets and Poverty Threshold for Disability

    58:58 Making Disaster and Emergency Response Accessible

    01:02:44 Hypermobility Hack: Walking Desk

    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority! 🧬🔬🦓

    Resources:

    For disability rights in general: https://www.ada.gov and https://adata.org/

    For service dogs: https://www.ada.gov/resources/service-animals-2010-requirements/ and https://www.ada.gov/resources/service-animals-faqs/

    For disability rights in employment: https://www.dol.gov/general/topic/disability/ada and https://www.eeoc.gov/laws/guidance/your-employment-rights-individual-disability

    https://choosework.ssa.gov/

    #BendyBodiesPodcast #HealthAdvocacy #DisabilityRights #ADAInsights #AccommodationsTalk #LegalAdvocacy #ServiceDogJourney #DisabilityBenefits #WorkforceChallenges

  • In this episode, psychologist Josh Spell discusses disordered eating in dance. Josh shares insights into the coping mechanisms behind eating disorders and offers advice for directors, teachers, and friends who suspect someone may be struggling with an eating disorder.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    YOUR guest co-host is Jennifer Milner, former professional ballet and Broadway dancer and founder of Bodies In:Motion.

    Takeaways

    Dancers, especially those with hypermobility, are at a higher risk for developing eating disorders due to the pressure to achieve a certain body image and the overlap with other mental health issues.Eating disorders are often coping mechanisms that provide a sense of control or avoidance of difficult emotions and stressors.The dance world's emphasis on perfectionism and sacrifice can contribute to the development of eating disorders.It is important for dance studios and companies to have protocols in place for addressing eating disorders and to provide support and resources for dancers.If you suspect someone may be struggling with an eating disorder, reach out to a trusted adult or professional for guidance and support.

    Chapters

    00:00 Introduction and Welcome

    00:30 Introducing Josh Spell

    01:36 Prevalence of Eating Disorders in Dancers

    03:09 The Relationship Between Hypermobility and Eating Disorders

    05:08 Understanding Eating Disorders as Coping Mechanisms

    08:00 The Intersection of Eating Disorders and Other Mental Health Issues

    10:35 The Impact of Social Media and Diet Culture on Eating Disorders

    13:25 Self-Image and Body Standards in the Dance World

    16:19 The Influence of Social Media and Zoom on Body Image

    20:25 Balancing Sacrifice and Suffering in the Dance World

    23:00 The Role of Dance Studios and Companies in Supporting Dancers' Mental Health

    27:13 Steps for Directors and Teachers to Take When Suspecting an Eating Disorder

    32:47 Steps for Friends and Loved Ones to Take When Suspecting an Eating Disorder

    36:31 Steps to Take If You Suspect You Have an Eating Disorder

    42:18 Hypermobility Hack: Giving the Eating Disorder a Persona

    45:12 Where to Find Josh Spell Online

    This important conversation with Josh Spell about disordered eating in dance will leave you feeling more knowledgeable and better equipped to handle difficult situations.

    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority! 🧬🔬🦓

    Resources mentioned during the episode:

    Links for show notes:

    https://flexiblemindcounseling.org/

    https://www.instagram.com/spellbound20/

    https://www.linkedin.com/in/josh-spell-msw-licsw-07b17816/

    https://www.jennifer-milner.com/

    National Suicide Prevention Lifeline: 1.800.273.8255

    Crisis Text Line: Text HOME to 741741; Free crisis support, anywhere in US

    Eating Disorder Helpline: Call or text 1.800.931.2237

    NEDA – National Eating Disorders Association: www.nationaleatingdisorders.org

    NAMI – National Alliance on Mental Illness: www.nami.org

    Project Heal – https://www.theprojectheal.org/

    Find an Accredited Registered Dietitian (RDN) – www.eatright.org/find-an-expert

    Find a Therapist: www.psychologytoday.com/us/therapists

    #Hypermobility #JointHypermobility #BalletLife #HypermobilityAware #DanceWellness #BodyPositiveBallet #HealthyDancer #BalletBodyLove #DancerTips #NutritionForDancers #EmpoweredDancer #NourishYourPassion #MindBodyBallet #BalancedDancerLife #hEDS #EhlersDanlos #HSD

  • In this episode, psychologist Dr. Amanda Cassil discusses the unfair EDS journey (Ehlers-Danlos Syndromes) and provides strategies for effectively communicating with healthcare providers. Dr. Cassil provides valuable insights and tools for navigating the healthcare system and improving the quality of life for individuals with chronic illnesses. In this conversation, Dr. Amanda Cassil and Linda Bluestein, MD discuss the challenges faced by patients with hypermobility disorders (like Ehlers-Danlos Syndromes) and chronic illnesses.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Takeaways

    Approach advocacy from a place of compassion and understandingRegulate your nervous system and slow down to make more intentional and strategic decisionsAcknowledge and process grief as a natural part of living with chronic illnessConsult with trusted individuals and healthcare providers for guidance and support.Collaboration between patients and healthcare providers can be challenging due to the merging of different knowledge and experiences.Patients can advocate for themselves by asking doctors how to prioritize and address multiple symptoms and issues.Dialectical behavioral therapy (DBT) is an effective tool for nervous system and emotional regulation.Patients should remember that their medical journey is often unfair, but there are healthcare providers working to make systemic changes.

    Chapters

    00:00 Introduction

    01:04 Motivation for Giving the Talk at the EDS Society Global Conference

    04:14 Advocacy and the Challenges of the Healthcare System

    07:16 Approaching Advocacy without Blame

    10:27 Grief and Acceptance in Chronic Illness

    13:34 Key Takeaways from the Talk

    18:04 The Role of the Prefrontal Cortex in Chronic Illness

    19:12 Neurodiversity and Advocacy

    20:12 Presenting Research to Doctors

    23:02 Dealing with Suboptimal Experiences with Clinicians

    26:09 Processing Traumatic Experiences

    29:16 The Role of Grief in Chronic Illness

    36:09 Coping with Traumatic Experiences

    40:36 Presenting Research to Doctors (Continued)

    46:27 Navigating the Challenges of Collaboration

    48:07 Addressing Multiple Symptoms and Issues

    53:42 Dialectical Behavioral Therapy (DBT) for Nervous System and Emotional Regulation

    59:41 Finding Your Way Through an Unfair Journey

    This important conversation with Dr. Amanda Cassil about the unfair EDS journey will leave you feeling better equipped to handle difficult medical encounters.

    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Resources mentioned during the episode:

    https://www.STEMpsychology.com

    https://www.instagram.com/stempsychology/

    https://www.linkedin.com/in/drcassil

    https://drgabormate.com/book/the-myth-of-normal/

    https://www.resmaa.com/merch

    https://www.besselvanderkolk.com/

    #HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #MedicalGaslighting

    #BendyBuddy #HypermobilityMD #BendyBodies #HealthAdvocacy #SupportPatients #PatientEmpowerment #HealthcareStruggles #WomenInStem #DisabledInStem

  • In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed. Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, alongside dedicated patient advocate Jill Brook.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Key Highlights:

    1. The initiative incorporates both a documentary and an online educational library strategically designed to elevate awareness surrounding MCAS, Dysautonomia, and Hypermobility Spectrum Disorders.

    2. Renowned healthcare professionals, namely Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, in conjunction with patient advocate Jill Brook, are pivotal contributors to this initiative.

    3. The documentary aspires to elucidate the myriad challenges confronted by individuals navigating the complexities inherent in the triad of syndromes, emphasizing the imperative of heightened awareness among healthcare providers to facilitate more efficacious treatment modalities.

    4. Dr. Afrin underscores the prevalence of MCAS and advocates for its consideration in the differential diagnosis for patients with complex medical presentations.

    5. The term "dystrophism" is introduced within the discourse, signifying aberrations in growth and development propelled by dysfunctional mast cells.

    6. Participants candidly share their experiences during the documentary's filming process, underscoring the inherent difficulty of condensing intricate information into concise soundbites.

    7. The timely recognition of MCAS is underscored as a critical determinant for effective treatment interventions and an enhanced quality of life.

    8. The team is dedicated to elucidating the nuances of MCAS, POTS, and EDS through the medium of a documentary, with the aim of providing comprehensive knowledge about these medical conditions.

    9. Emphasis is placed on the significance of joint hypermobility. Should it give rise to complications, it may serve as a potential indicator for dysautonomia or MCAS.

    10. Dysautonomia serves as an encompassing term, inclusive of conditions such as POTS and Inappropriate Sinus Tachycardia.

    11. Identifying growing pains (quite literally!) associated with these conditions can be a challenging endeavor. The gradual development poses a considerable challenge for all involved.

    12. A fervent commitment is made towards establishing an educational repository, replete with in-depth explorations by experts, delving into the intricacies of these subjects.

    13. The team candidly discloses the necessity for financial support to conclude their documentary project. Their overarching objective is to disseminate awareness about MCAS, POTS, and EDS.

    14. The documentary, at its core, is designed to render this information easily accessible, ensuring that individuals – be they patients, families, or clinicians – can acquire a comprehensive understanding of coping with these conditions.

    Chapters

    00:00 Introduction
    00:37 Creating Awareness and Increasing Treatment Options
    03:09 The Birth of the Documentary Project
    05:20 Filming in New York
    07:19 Filming in St. Louis
    10:32 The Motivation to Work with Complex Patients
    15:49 The Journey of Recognizing MCAS
    17:34 The Impact of MCAS Treatment
    21:00 Personal Experiences and Incorporating MCAS Treatment
    22:42 The Need for an Educational Library
    25:29 The Challenge of Condensing Information
    26:21 Describing MCAS in Sound Bites
    31:10 The Importance of Raising Awareness
    34:42 Growth and Development Abnormalities in MCAS
    40:03 Main Points about Hypermobility Syndromes and Dysautonomia
    44:48 Partnership with LDN Research Trust
    51:47 Final Words and Call for Support
    54:26 Recognition and Treatment of Unrecognized Patients
    55:44 Importance of Learning and Trying
    56:13 Gratitude for Dedicated Doctors
    56:47 Closing Remarks and Resources


    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Products, organizations, and services mentioned in this episode:

    https://www.mcasfund.org/
    https://aimcenterpm.com/
    https://www.gidoctor.net/leonard-weinstock-md
    https://www.ssmhealth.com/find-a-doctor/doctor-details/laurence-j-kinsella-md
    https://www.hypermobilitymd.com/
    https://www.standinguptopots.org/

    #MCAS #film #documentary #HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #POTS #Dysautonomia #BendyBuddy #HypermobilityMD #BendyBodies #UnexplainedHealthIssues #POTSsyndrome #MastCells #PainManagement #PatientAdvocacy

  • In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS. Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients. Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermobility disorders.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Takeaways

    Slipping rib syndrome and other chest wall disorders are often related to skeletal hypermobility.Evaluation and diagnosis of chest wall problems require a thorough physical exam and imaging, such as CT scans.Symptoms of chest wall compression syndromes include pain, breathing difficulties, and organ dysfunction.Emerging areas of discovery include posterior joint disorders and bridging cartilage separation.Self-help strategies, such as improving posture and specific exercises, can help manage chest wall problems and potentially avoid surgery. Maintaining good posture and performing exercises that strengthen the back can help alleviate slipping rib syndrome.Taping strategies and lifestyle changes, such as using lumbar pillows and sit-to-stand desks, can provide relief and improve posture.Avoid high velocity manipulation, as it can exacerbate slipping rib syndrome.Candidates for surgery should have a strong core, realistic expectations, and should reduce or eliminate the use of pain medications before the procedure.The Hansen 3.0 technique is the preferred surgical procedure for slipping rib syndrome, offering better outcomes compared to previous techniques.The surgery has a low rate of complications, with the most common being collapsed lungs, hematomas, and wound infections.There is no significant difference in outcomes between patients with hypermobility spectrum disorder and those with Ehlers-Danlos syndrome.The likelihood of recurrence or additional slipped ribs after repair is low when the surgery is performed correctly.Physicians should be aware of slipping rib syndrome and other chest wall problems and stay updated on the latest techniques and treatments. Dr. Adam Hansen teaches other surgeons how to address slipping ribs and complex chest wall reconstruction.He has built a network of surgeons around the world to provide local treatment options for patients.There is a correlation between cervical instability and slipping ribs, and both are part of the broader issue of hypermobility and skeletal disorders.Focusing on key areas for stability, such as the core, can have a significant impact on overall care and muscle strength.


    Chapters

    00:00 Introduction and Warm-up
    01:03 Background and Expertise of Dr. Adam Hansen
    03:14 Understanding Slipping Rib Syndrome and Other Chest Wall Disorders
    09:32 Relationship Between Chest Wall Disorders and Skeletal Hypermobility
    14:01 Evaluation and Diagnosis of Chest Wall Problems
    21:16 Symptoms and Impact of Chest Wall Compression Syndromes
    24:49 Emerging Areas of Discovery in Slipping Rib Syndrome
    28:47 Evaluation of Chest Wall Problems: Physical Exam and Imaging
    36:37 Abdominal Compression Syndromes and Chest Wall Disorders
    41:19 Self-Help Strategies and Avoiding Surgery
    43:48 Posture and Exercise
    45:09 Taping Strategies and Lifestyle Changes
    46:23 Avoiding High Velocity Manipulation
    48:08 Qualifications for Surgery
    51:18 Preparing for Surgery
    53:21 Surgical Procedures
    58:08 The Hansen 3.0 Technique
    01:01:18 Outcomes and Complications
    01:20:06 Hypermobility Spectrum Disorder and EDS
    01:21:09 Male-Female Differences
    01:22:11 Recurrence and Additional Slipped Ribs
    01:23:49 Physician Awareness and Education
    01:24:58 Teaching Other Surgeons
    01:26:05 Building a Network of Surgeons
    01:26:50 Correlation Between Cervical Instability and Slipping Ribs
    01:28:38 Hypermobility and Skeletal Disorders
    01:29:59 Key Areas for Stability
    01:30:17 Hypermobility Hacks
    01:31:00 Finding Dr. Adam Hansen Online
    01:33:33 Closing Remarks

    This important conversation with Dr. Adam Hansen about surgery for slipping rib syndrome and other chest wall problems will leave you feeling more knowledgeable and with a better understanding of the key factors to consider when contemplating surgery for these painful conditions.

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Products, organizations, and services mentioned in this episode:

    http://www.youtube.com/@adamhansen6524

    Slipping Rib Syndrome Physical Examination SD 480p:
    https://www.youtube.com/watch?v=Na69xXUZGhg

  • In this episode, YOUR guest is Jill Miller, author of the book 'Body by Breath: The Science and Practice of Physical and Emotional Resilience.' Jill has 30 years of corrective movement expertise that forges links between the worlds of yoga, massage, athletics, and pain management. Her signature self-care fitness programs, Yoga Tune Up® and The Roll Model® are found at gyms, yoga studios, hospitals, athletic training facilities and corporations worldwide. Jill is the former anatomy columnist for Yoga Journal, has been featured in New York Times, Wall Street Journal, Shape, Women’s Health, O, the Today Show, and is a contributing expert on the Oprah Winfrey Network.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Takeaways

    Jill Miller's book 'Body by Breath' is a comprehensive guide to physical and emotional resilience.
    Bendy bodies should care about fascia because it is the organizing tissue of the entire body and affects mobility and stability.
    Self-mobilization and self-myofascial release are important for bendy bodies to address tension and enhance proprioception.
    The five P's of the parasympathetic nervous system (perspective, place, position, pace of breath, and palpation) can help induce relaxation and enhance body awareness.
    The low back decompression exercise using therapy balls can provide relief and improve proprioception for bendy bodies. Improving core strength and breathing is essential for hypermobile bodies.
    Understanding zone one, zone two, and zone three breathing can help manage pain, movement, and emotional states.
    Self-fascial treatments, such as deep gut and rib massage, can improve breathing and alleviate hypertonicity.
    Extracorporeal shockwave therapy is a non-invasive treatment that can reduce inflammation and alleviate pain.
    Community support and engagement are crucial for managing hypermobility.
    High-intensity interval training can improve aerobic capacity and overall well-being for hypermobile individuals. It is highly recommended to have individual guidance for this.

    Chapters

    00:00 Introduction and Background
    03:01 Inspiration for Writing the Book
    09:11 Organization of the Book
    13:30 Why Bendy Bodies Should Care About Fascia
    15:40 Starting with Limited Budget
    19:02 Helpful Exercises for Bendy Bodies
    23:27 Addressing Mixed Picture of Bendiness and Stiffness
    28:07 The Five P's of the Parasympathetic Nervous System
    36:14 Low Back Decompression Exercise
    46:07 Improving Core Strength and Breathing
    51:41 Understanding Zone One, Zone Two, and Zone Three Breathing
    57:29 Self-Fascial Treatments for Better Breathing
    01:00:10 Managing Hypermobility Symptoms
    01:03:35 Extracorporeal Shockwave Therapy for Acute Pain
    01:09:10 The Power of Community and High-Intensity Interval Training

    This important conversation with Jill Miller about using the breath to reduce pain will leave you feeling more knowledgeable and with a better understanding of the contributing factors to suboptimal pain control.

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Products, organizations, and services mentioned in this episode:

    www.tuneupfitness.com
    https://thereadystate.com/
    https://thereadystate.com/product/becoming-a-supple-leopard-2nd-edition/
    https://fasciaguide.com/experts/carla-stecco/

    https://jen.health/

    https://www.tuneupfitness.com/shop/online-course/roll-into-hiit

    https://patternpt.com/

    https://www.youtube.com/@TuneUpFitness

    https://www.amazon.com/Yoga-Bendy-People-Optimizing-Hypermobility/dp/B0B2TSN3W3/ref

  • In this episode, YOUR guest is Colin Halverson, PhD. He received his Ph.D. in linguistic and medical anthropology from the University of Chicago, where he studied communication issues in medical genetics, based on fieldwork at Mayo Clinic. At Chicago, he also completed a fellowship in clinical ethics, and then a postdoctoral fellowship in medical ethics at Vanderbilt. He is currently a professor at Indiana University School of Medicine, where his research focuses on ethical care for patients with rare disease, in particular Ehlers-Danlos Syndrome (EDS).

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Takeaways

    Patients with Ehlers-Danlos syndrome often face an antagonistic relationship with healthcare professionals, leading to mistrust and negative health outcomes.The diagnostic odyssey experienced by patients with EDS can be likened to a hero's journey, characterized by challenges, misdiagnoses, and a long path to diagnosis.The panoply of symptoms in EDS and the complexity of chronic pain make it difficult for patients to describe their experiences and receive appropriate care.Clinician-associated traumatization is a distinct construct that captures the negative experiences and trauma patients with EDS face in their interactions with healthcare professionals.Building a trustworthy team of clinicians and seeking support from the EDS community can help patients navigate the challenges of their condition and improve their healthcare experiences.

    Chapters

    00:00 Introduction

    00:29 Dr. Halverson's Background and Research Interest

    03:02 The Hero's Journey of Patients with Ehlers-Danlos Syndrome

    05:51 Challenges Faced by Patients with Ehlers-Danlos Syndrome

    07:02 Antagonistic Relationship with Healthcare Professionals

    08:29 Impact of Antagonistic Relationship on Patients

    09:47 Triggers for Transition into Unbearable Symptoms

    12:36 The Panoply of Symptoms in Ehlers-Danlos Syndrome

    13:44 Importance of Panoply of Symptoms in Diagnosis

    15:22 Challenges in Describing Multi-Systemic Symptoms

    16:26 Numeric Pain Scales and the Complexity of Chronic Pain

    19:40 Research on Hypermobile Ehlers-Danlos Syndrome

    20:39 Research on Other Forms of Ehlers-Danlos Syndrome

    23:56 Failure of Empathy in Patient-Provider Relationships

    27:24 Worse Health Outcomes and Trust Issues

    28:06 Impact of Failure of Empathy on Patients

    30:33 Dealing with Antagonistic Relationships

    31:45 The Isolation and Invisibility of Ehlers-Danlos Syndrome

    36:12 Clinician-Associated Traumatization and its Differences from Other Constructs

    39:21 Surprising Aspects of the Research

    42:01 Recommendations for Patients with Clinician-Associated Traumatization

    45:01 Future Directions of Research

    49:04 Closing Remarks

    This important conversation with Dr. Halverson about clinician-associated trauma in patients with Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorder (HSD) will leave you feeling better prepared to advocate for the care you need.

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Products, organizations, articles, and services mentioned in this episode:

    https://bioethics.iu.edu/people/colin-halverson.html

    https://pubmed.ncbi.nlm.nih.gov/34524722/

    https://doi.org/10.1016/j.ssmqr.2023.100237

    Dr. Halverson can be reached at [email protected].

    #InvisibleIllness #HealthJourney #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #BendyBuddy #HypermobilityMD #BendyBodies #EhlersDanlosResearch #MedicalGaslighting #PatientSupport #ResearchOpportunity #DiagnosticJourney

  • In this episode, YOUR guest is Lisa Ralston, a physical therapist with over 30 years of experience in orthopedics, joint hypermobility, foot pain, and sports medicine. Since 2009, she has traveled internationally treating Team USA Olympians and World level figure skaters. Lisa was the physical therapist for Team USA figure skating for the 2022 Winter Olympics in Beijing. Lisa is the owner and founder of Ralston Physical Therapy and Wellness in Arvada, CO.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Takeaways

    Posture and alignment play a crucial role in foot pain in people with joint hypermobility.Orthotics can be an effective intervention for managing foot pain in hypermobile patients.Assessing and addressing foot pain early in children can prevent the development of other pain problems.Proper shoe selection and tying techniques are important for managing foot pain. Failed physical therapy may be due to a lack of addressing all systems and factors contributing to the condition.Orthotics can fail if they are not properly assessed and customized to the individual's foot flexibility and posture.Over-the-counter orthotics can be a more affordable option, but it is important to choose ones that provide proper support and alignment.Self-mobilization exercises, such as using a foam ball to mobilize the foot joints, can help improve foot mobility and relieve pain.Addressing foot stability and proprioception is crucial for maintaining proper foot alignment and preventing issues related to hypermobility.Hypermobility in ice skaters is a specific topic that may be worth exploring in a future episode. Foot problems are common and can cause significant discomfort and pain.Proper lacing techniques can help alleviate foot pain and discomfort.Lisa Ralston provides valuable insights and tips for managing foot problems.

    Chapters

    00:00 Introduction and Guest Introduction

    02:05 Causes of Foot Pain in People with Joint Hypermobility

    06:12 Approach to Hypermobility Patients

    08:18 Common Causes of Foot Pain

    10:10 Pain Begets Pain

    11:36 Approach to Hypermobile Patients

    14:59 Orthotics for Children

    17:02 Different Approach for Hypermobile Patients

    19:06 Assessment and Treatment of Foot and Ankle

    21:00 Shoe Selection and Tying Techniques

    23:19 Different Foot Types and Shoe Recommendations

    26:31 Importance of Firm Heel Counter in Shoes

    27:45 Tying Shoes Properly

    31:40 Recommended Shoe Brands

    34:53 Orthotics and Failed PT

    39:51 Addressing Failed PT

    47:51 Orthotics and Failed Orthotics

    53:48 Over-the-Counter Orthotics

    56:06 Self-Mobilization of Feet

    01:08:46 Hypermobility in Ice Skaters

    01:09:16 Hypermobility Hacks

    01:09:26 Foot Problems and Solutions

    01:10:21 Lacing Techniques for Foot Comfort

    01:10:54 Finding More Information Online

    This important conversation about foot pain and orthotics in people with Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorder (HSD) and other hypermobility conditions will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the contributing factors to suboptimal foot function.

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Products, organizations, and services mentioned in this episode:

    https://lisaralstonpt.janeapp.com/

    https://www.bauerfeind.com/b2c/

    https://www.oofos.com/

    https://www.abeofootwear.com/

    https://www.humanlocomotion.com/

    https://www.brooksrunning.com/en_u

    https://www.hoka.com/en/us/

    https://www.aetrex.com/home

    https://yoursole.com/us

    https://www.vasylimedical.com/

    https://www.birkenstock.com/us

    https://www.nike.com/

    https://www.saucony.com/en/home

    https://naot.com/

    https://www.keenfootwear.com/

    https://www.merrell.com/US/en/home

    https://www.chacos.com/US/en/home

    https://www.mephisto.com/us/

    https://www.theballetblog.com/about-us/lisa-howell/

    https://nyulangone.org/locations/harkness-center-for-dance-injuries

    https://www.vasylimedical.com/products/easyfit

    https://www.humanlocomotion.com/product/peel-and-stick-balances-sesamoid-balance/

  • In this episode, YOUR guest is Dacre Knight, MD. Dr. Knight established a specialty clinic for treating patients with hypermobility syndromes including hypermobile Ehlers-Danlos Syndrome (hEDS) and hypermobility syndrome disorder (HSD) at Mayo Clinic Jacksonville, Florida in 2019.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Explored in this episode:

    · What specialty evaluations are most important for patients with hypermobility syndromes

    · What tests he feels are most helpful for patients with Ehlers-Danlos Syndromes (EDS) and HSD

    · How they determine when to perform genetic testing and the findings in this group of patients

    · How his approach has evolved since the clinic’s inception in 2019

    · The research that he has conducted and relevant findings

    · The role of autoimmunity in EDS and HSD

    · Findings in patients with orthostatic intolerance vs Postural Orthostatic Tachycardia Syndrome (POTS)

    · The role of the immune system in symptomatic joint hypermobility

    · The relationship with fibromyalgia

    · What percentage of patients are diagnosed with hEDS vs HSD

    · What he says to people who assume that HSD is a less serious condition

    This important conversation about Dr. Knight’s approach to the evaluation and treatment of hEDS and HSD will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the evaluation process.

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Products, organizations, and services mentioned in this episode:

    Ehlers-Danlos Syndrome Newsfeed | Mayo Clinic Connect

    Ehlers-Danlos Syndrome Clinic in Florida - Overview - Mayo Clinic

    https://www.mayoclinic.org/biographies/knight-dacre-m-d/bio-20477206

    https://x.com/knidac?s=21

    https://www.frontiersin.org/articles/10.3389/fmed.2023.1096180/full

    https://link.springer.com/content/pdf/10.1007/s42399-022-01218-w.pdf

    https://pubmed.ncbi.nlm.nih.gov/35687402/

    https://www.ehlers-danlos.com/

    https://www.ehlers-danlos.com/healthcare-professionals-directory/

    #BendyBuddy #HypermobilityMD #POTSawareness #HolisticHealth #MayoClinicJax

    #SpecialtyClinic #HealthInnovation #WholeBodyTreatment #MedicalCollaboration

    #InvisibleIllness #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility

  • In this episode, YOUR guest is gastroenterologist Leonard Weinstock, MD, author of over 150 peer-reviewed journal articles. His extensive research on MCAS (Mast Cell Activation Syndrome) and diseases of the esophagus, stomach, small intestine, and colon has been presented at national and international conferences. He is actively researching the connection of the gut and small intestinal bacterial overgrowth (SIBO) with several medical problems, including restless legs syndrome (RLS) and chronic pelvic pain syndromes. He presented several lectures in Oregon at the first SIBO symposium and in France at the international rosacea study group.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Explored in this episode:

    · What can cause abdominal pain in those with EDS (Ehlers-Danlos Syndromes), MCAS (Mast Cell Activation Syndrome) and/or dysautonomia (syndromes like POTS - Postural Orthostatic Tachycardia Syndrome)

    · How gastrointestinal tract symptoms and extraintestinal problems like RLS (restless leg syndrome), rosacea, and interstitial cystitis are related

    · What unique treatments are available for restless leg syndrome, rosacea, and interstitial cystitis

    · How Dr. Weinstock’s medical practice evolved after becoming “MCAS aware, POTS aware and EDS aware”

    · What correlations exist between Crohn's disease, irritable bowel disease and RLS

    · Why it is so crucially important to listen to AND believe our patients

    · How Mast Cell Activation Disease and MCAS differ from one another

    · Why the term “syndrome” can be problematic

    · What environmental factors can play a role in MCAS

    · When to suspect a compression syndrome (like Median Arcuate Ligament Syndrome or MALS, Nutcracker Syndrome, or pelvic congestion syndrome), visceroptosis (drooping of the intestines) or gastroparesis

    · What testing can be performed for MCAS and the significance of tryptase levels

    · How YOU can help support our nonprofit documentary film and free online educational library, Still Standing.

    The goal of our documentary film and free online educational library is to promote wider awareness and physician education about three complex chronic conditions, MCAS, dysautonomia and hypermobility syndromes. Better recognition will help patients get treatment and hope for a better quality of life.

    This important conversation about extraintestinal manifestations of gastrointestinal diseases will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the interaction of the gastrointestinal system with other bodily systems.

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Products, organizations, and services mentioned in this episode:

    https://www.gidoctor.net/provider/leonard-weinstock-md

    https://www.bendybodiespodcast.com/34-highlighting-gi-disorders-with-leonard-weinstock-md/

    https://www.mcasfund.org/

    https://www.nowleap.com/leap/

    https://www.ifm.org/

    https://ldnresearchtrust.org/

    https://www.ldnscience.org/

    https://www.genebygene.com/

    #BendyBuddy #HypermobilityMD #GITract #EDSInsights #EhlersDanlos #GastroHealth #ChronicIllness #MCAS #MCAD #PotsSyndrome #RestlessLegSyndrome #LowDoseNaltrexone #MALS #CrohnsDisease #GutHealth #HypermobilityPodcast

    #PodcastDiscoveries #EDSdoctor #CompressionSyndrome

  • In this episode, YOUR guest is Brianna Cardenas, DMSC, PA-C, ATC and the founder of Healed and Empowered. Brianna courageously shares her own personal journey with Ehlers-Danlos Syndrome (EDS), cervical instability, spinal CSF leak, and dysautonomia, shedding light on the mistreatments she endured - both as a patient and a healthcare professional.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Explored in this episode:

    · Inequality in healthcare and how we can best advocate for ourselves

    · Why we should prioritize diversity, equity, and inclusion in medical spaces

    · The need for personal responsibility when learning about sensitive topics

    · Discrimination and power dynamics in the healthcare setting

    · Handling microaggressions

    · Addressing internalized ableism

    · The importance of outward visible signs of safety for marginalized groups such as LGBTQ plus and BIPOC

    This important conversation about inequality in healthcare will leave you feeling more informed, better prepared to tackle that next step, and with a better understanding of the multitude of factors that can impact the healthcare you receive.

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Products, organizations, and services mentioned in this episode:

    https://www.healedandempowered.com/

    #Podcast #EDSPodcast #HealthcareInequality #LGBTQ #BIPOC #Hypermobility #HypermobilityPodcast #HypermobilityMD #BendyBuddy #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #EhlersDanlos #PainManagementJourney #EDSdoctor

  • In this episode, YOUR guest is neurosurgeon, Paolo Bolognese, MD, founder of the Chiari Neurosurgical Center in New York. Dr. Bolognese is also on the Board of Directors of the American Syringomyelia & Chiari Alliance Project, Inc. (ASAP), on the Scientific Education and Advisory Board of the Chiari Syringomyelia Foundation (CSF), and is a member of the International Consortium on EDS, HSD, and Related Disorders. The Chiari EDS Center is focused on the diagnosis and treatment of Chiari I Malformation, Syringomyelia, Craniocervical Instability, Tethered Cord, Eagle Syndrome, Idiopathic Intracranial Hypertension, and Intracranial Hypotension. Dr Bolognese’s surgical experience includes more than 1,600 Chiari Decompressions and 900 Craniocervical Fusions, 300 of which with condylar screws. He is on the Board of the main national and international organizations focused on Chiari and Syringomyelia and has also made contributions in the field of Intraoperative Ultrasound and Laser Doppler Flowmetry.

    YOUR guest co-host is Pradeep Chopra, MD, Harvard-trained anesthesiologist double Board Certified in Pain Management and Anesthesiology, Director of the Center for Complex Conditions and Assistant Professor, Brown Medical School with a special interest in chronic complex pain conditions and their associated co-existing conditions.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Explored in this episode:
    · How Dr Bolognese discovered the link between Ehlers-Danlos Syndromes (EDS) and Chiari I malformation
    · Why people with EDS are at increased risk of craniocervical instability
    · What type of imaging he prefers for the evaluation of Chiari I malformation and/or cervical instability
    · Why he started performing surgery for Eagle’s Syndrome
    · Why he feels invasive cervical traction is an essential part of the neurosurgical evaluation for upper cervical spine problems
    · Causes of elevated intracranial pressure


    This episode is really special as it is rare to get a neurosurgeon's point of view outside of a medical appointment. It may be easier for you to have the transcript in front of you while you are watching this episode of the Bendy Bodies Podcast on our YouTube channel or listening to this episode on your favorite podcast player. Dr. Bolognese uses his hands a lot for demonstration so you may find watching this episode on YouTube beneficial.


    This important conversation about neurosurgical problems will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact symptoms.

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Products, organizations, and services mentioned in this episode:

    https://chiariedscenter.com/

    Access Dr. Bolognese's intake forms here.

    https://www.dropbox.com/scl/fo/2vrapu5w2b0ara2pyke8l/h?rlkey=06e9q7pjhwhyypo0xjhn0jkgy&dl=0

    #Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor

  • In this episode, YOUR guest is Julie Robinson-Smith, DDS, diplomate of the American Board of Oral Medicine, a diplomate of the American Board of Orofacial Pain and an instructor of Orofacial Pain at the University of Colorado Anschutz School of Dental Medicine. Following dental school, she served in the US Air Force for five years as a general dentist. After her time in the Air Force, she completed a two-year residency in Orofacial Pain and Oral Medicine at the University of Southern California. Dr Smith is also Dr. Bluestein’s amazing TMD (jaw and facial pain) doctor!

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Explored in this episode:

    · Why the jaw is problematic so frequently in those with joint hypermobility

    · How ligamentous laxity contributes to jaw dysfunction

    · The influence of hormones and puberty on jaw pain and function

    · Open locking - what is it and how can you reduce the risk?

    · How you can make dental visits less traumatic

    This important conversation about orofacial pain will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact pain in the teeth, jaw pain, and open and closed locking.

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Products, organizations, and services mentioned in this episode:

    https://www.ofpcos.com/

    #Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor

  • In this episode, YOUR guest is Patricia Stott, DPT, physical therapist with expertise in Ehlers-Danlos Syndromes and related conditions. Dr Stott and Dr Bluestein presented together on integrative approaches to pain management at the EDS Society Global Learning Conference in August 2023 in Dublin, Ireland. Dr Stott is the founder of Elevation Wellness, and is also trained in visceral manipulation, neural manipulation, fascial Counterstrain, Craniosacral Therapy, and is certified in Reiki. She frequently addresses instability and neck pain in her patients and is currently enrolled in a PhD program for integrative medicine.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Explored in this episode:

    · Whether or not hypermobility spectrum disorder (HSD) and Ehlers-Danlos Syndrome (EDS) have different clinical presentations

    · Severity of presentation versus the severity of instability

    · How inflammation impacts cervical instability

    · How dysfunction in other bodily systems can impact cervical instability

    · Treatment options beyond “usual” physical therapy and surgery

    This important conversation about causes of cervical instability beyond the neck will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact instability of the neck.

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Products, organizations, and services mentioned in this episode:

    https://chalelapti.com/about-us/

    https://peterattiamd.com/outlive/

    https://www.posturalrestoration.com/

    https://www.uprightmrico.com/

    https://www.asha.org/practice-portal/clinical-topics/orofacial-myofunctional-disorders/

    https://www.tarlovcystfoundation.org/

    https://www.elevationwellness.co/

    https://www.frontiersin.org/articles/10.3389/fmed.2022.1072764/full

    #Hypermobility #EDSpodcast #HypermobilityPodcast #HypermobilityMD #BendyBuddy #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #PhysicalTherapists #EDSdoctor

  • In this episode, where we close out Season 3 of the podcast and kick off Season 4, YOUR guest (and host!) is Bendy Bodies founder, Dr. Linda Bluestein, the Hypermobility MD.

    YOUR guest co-host – serving up questions to Dr. Bluestein – is Kate Colbert, outspoken EDS advocate, world-renowned marketer, and award-winning healthcare and higher-education writer.

    Explored in this episode:

    How the Bendy Bodies Podcast has evolved since its founding in 2020 from a resource for hypermobile dancers to a resource for EVERYONE with hypermobility (and their medical providers too!). What it’s like for Dr. Bluestein to be a physician who treats hypermobile patients AND a podcaster and social media icon in the hypermobility community. Learn the truth about the challenge of educating hundreds of thousands of people vs. working one-on-one with someone in the clinic setting. The perfect Bendy Bodies episodes for “newbies” – where to start listening and why – if you’re new to a hypermobility disorder diagnosis or suspicion.Run-away BEST episodes in terms of listenership and the “buzz.”Dr. Bluestein’s favorite part of working with other professionals who care so much about hypermobile patients.What excitement YOU can look forward to in Season 4 of the Bendy Bodies Podcast!

    Chapters

    00:00 Introduction and Background

    03:01 Career Trajectory and Transition

    08:37 Specializing in Symptomatic Joint Hypermobility

    10:24 Challenges in Healthcare System

    20:33 Starting the Bendy Bodies Podcast

    30:59 Recommended Episodes for New Listeners

    35:33 Balancing Expectations and Realities

    39:35 The Importance of Patient-Provider Collaboration

    40:18 Teaching Healthcare Providers about Hypermobile Conditions

    41:37 The Role of Patients in Educating Doctors

    42:53 Continual Learning and Growth in Medical Practice

    45:08 Practical Tips for Living with Hypermobility

    48:28 Hypermobility Hacks and Their Importance

    55:41 Working with Professionals in Hypermobility Medicine

    01:00:39 The Evolution of the Bendy Bodies Podcast

    01:06:23 The Impact of the Bendy Bodies Podcast

    03:00 Benefits of Yoga for Flexibility and Strength

    09:30 Yoga for Stress Relief and Mental Health

    15:45 Yoga for Injury Prevention and Rehabilitation

    22:10 Yoga for Overall Well-being

    28:20 Different Types of Yoga and Finding the Right Practice

    34:50 Yoga for Different Age Groups

    40:15 Yoga for Pregnancy and Postpartum

    46:40 Yoga for Seniors

    52:55 Yoga for Children and Teens

    59:20 Yoga for Athletes

    01:05:10 Yoga for Chronic Pain Management

    01:11:25 Yoga for Specific Health Conditions

    01:16:17 Conclusion

    This important conversation about the beginnings (and the future) of the Bendy Bodies Podcast featuring the Hypermobility MD will leave you feeling inspired, prepared to get more from this community, and with a better understanding of how to use this platform to improve your health.

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    #EDSdoctor #DrBluestein #KateColbert #Hypermobility #EDSpodcast #HypermobilityPodcast #Podcast #HypermobilityMD #Bendy #BendyBuddy #EhlersDanlosSyndrome #EDS #EhlersDanlos