Episodes
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What is locked-in syndrome? How does it affect someone?
Locked-in syndrome might be a condition you have heard of - but may not know much about.
This episode will help you understand more about locked-in syndrome and what it is like to live with or support a family member with the condition.
To shed a light on the topic, Georgie Tyler-Collings joins Elizabeth and Julia to tell them about her inspiring dad, David Collings.
He was left with locked-in syndrome after suffering an ischemic brain stem stroke aged 59 while on holiday in France.
Although paralysed, David is fully cognitive and communicates using his eyes.
Alongside her wider family, Georgie talks about what happened, how they got him home to Sheffield from France and the impact it has had on her and other family members.
She says: "It's tough, but if my family can do it, then you can too".
Before his stroke, David would take part in various cycling and swimming challenges - and his motivation for a challenge has not waned.
In 2018, he used a special motorised bike to cycle two hours a day for 80 days from his care home and, using the same method, he is currently clocking up the miles to get to New Zealand.
This is a story of a family coming together in crisis for a special man, the ups and downs, the impact and loss. But it is also a story of plenty of laughs and support to help David live a happy life with locked-in syndrome.
Do leave a comment if this episode resonated and subscribe to ensure you don't miss future episodes.
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You can read a bit more about the family's fight to get David home from France when it covered by BBC news.
https://www.bbc.co.uk/news/uk-england-south-yorkshire-38557886
And more about his first cycling challenge post stroke in 2018.
https://www.bbc.co.uk/news/uk-england-south-yorkshire-44288944
On A Good Day
Thank you for listening to On A Good Day! Please go back and catch up on any missed episodes. For a full recap of Elizabeth and Julia's stories, listen to episode #1: How Brain Injury Came Into Our Lives - And Changed Them Forever.
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What's it like to be the partner of a brain injury survivor?
The truth is, some days are not so good. There are times which can be challenging, frustrating and upsetting.
In this episode, Elizabeth and Julia acknowledge the (not so) good days and share with honesty some of the challenges they face living with a brain injury survivor.
They share their own vulnerabilities and struggles in this bite-sized episode in the hope it will resonate with others and help people feel less alone.
Some of the topics discussed include:
The strain brain injury can put on marriages and relationships
Feeling overwhelmed and frustrated
Being the main decision maker
Dealing with mood changes and altered emotions
How little things can build up to dampen the good days
Why sharing and talking always helps
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In this episode, Elizabeth and Julia mentioned their conversation with Dr Fergus Gracey which you can listen to in episode 11. Hear more about Allison's story of parenting young children after stroke in episode 27
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On A Good Day
Thank you for listening to On A Good Day! Please share this podcast with others it will benefit and subscribe, rate and review to help make it more visible! We'd be so grateful!
Do go back and catch up on any missed episodes. For a full recap of Elizabeth and Julia's stories, listen to episode #1: How Brain Injury Came Into Our Lives - And Changed Them Forever.
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Episodes manquant?
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What part does mindset play in recovering from brain injury?
In this episode Elizabeth and Julia hear from entrepreneur Charlie Wells. He was running a 5km race dressed as Santa when he had subarachnoid haemorrhage, aged 30. He underwent ground-breaking surgery to keep him alive.
With sheer determination and a strong mindset, Charlie's recovery included doing daily jigsaw puzzles starting with simple children's jigsaws and progressing up.
This helped him get his 20/20 vision back and 16 months after his brain injury he ran the London marathon to raise money for the National Brain Appeal, something he told us was "terrifying".
Charlie shares his extraordinary story and how it has changed his outlook, given him added purpose and a renewed philosophy of life.
He has since gone on to set up his own therapy company HelloSelf to help others with their mental health challenges which has had high success rates in preventing relapses.
In this episode you will learn:
How Charlie set his own outcomes and worked consistently in his recovery to achieve his goals.
Strategies Charlie used to overcome pain and get him off medication
How family members helped Charlie recover and motivate him
Inspiration for turning brain injury into your superpower
The idea behind HelloSelf and how it is revolutionising the world of therapy.
Charlie Wells is the founder of HelloSelf, an online therapy service helping people to get tailored support and reduce the risk of relapse.
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If you liked this episode then you'll enjoy listening to Satinder Sanghera's story in episode 2 who went on to complete her medical studies after her stroke and Andy Tudor in episode 31 who is living a hugely fulfilled life after brain tumour.
There's also Joy and Ross's honest story of stroke, love and overcoming negativity towards disability in episode 12.
On A Good Day
Thank you for listening to On A Good Day! Please go back and catch up on any missed episodes. For a full recap of Elizabeth and Julia's stories, listen to episode #1: How Brain Injury Came Into Our Lives - And Changed Them Forever.
Please share this podcast with others it will benefit and subscribe, rate and review to help make it more visible! We'd be so grateful!
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Epilepsy is a common side effect following brain injury and a condition which affects 600,000 people in the UK.
In this episode, Elizabeth and Julia speak to Ley Sander, a Professor of Neurology and Clinical Epilepsy and Medical Officer with the Epilepsy Society.
Some of the questions we ask include: what is epilepsy? Why do some people get seizures after brain injury and how can you help someone when they have a fit?
Professor Sander also gives us some of the science around the condition, how to treat it and reveals insights into the research, including the role of genetics.
He also talks about some of the facts and myths around epilepsy including how safe it is to drink alcohol and the side effects of epilepsy medication.
Listen to this episode to discover more about epilepsy, its causes, treatment and, surprisingly to us, how our brain and skin are similar.
Visit the Epilepsy Society to find out more about its work including their vitally important campaigns, including changes in law and policy that mean positive changes for people living with epilepsy.
On A Good Day
Thank you for listening to On A Good Day! Elizabeth and Julia are partners of brain injury survivors bringing their lived experience to conversations with the aim to help others navigate this life-changing journey.
Please go back and catch up on any missed episodes. For a full recap of Elizabeth and Julia's stories, listen to episode #1: How Brain Injury Came Into Our Lives - And Changed Them Forever.
Please share this podcast with others it will benefit and subscribe, rate and review to help make it more visible! We'd be so grateful!
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And you can join our Facebook community too!
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Andy Tudor thought be might be getting early onset dementia or having a stroke when he was eventually admitted to hospital.
When he was told he had a huge 7cm tumour in his brain it was almost a relief, he tells Elizabeth and Julia in this episode released during Brain Tumour awareness month.
Seven years ago Andy had life-saving neurosurgery to remove the growth. He is beating the statistics which show just 12% of adults diagnosed with a brain tumour survive after five years.
Andy has since gone on to have an active role in raising awareness of brain tumours through volunteering and as the co-host of Let’s Talk about Brain Tumours - a podcast run by the Brain Tumour Charity.
Andy tells Elizabeth and Julia how his life feels more fulfilling now than before his brain injury but the worry of regrowth is always there and two years ago he had to have radiation when some was found on a routine scan.
Andy talks about some of the symptoms he experienced and reveals some of his strategies for dealing with fatigue, one of which includes a can of baked beans! Listen to find out more.
In this episode you will learn:
Some of the key symptoms of a brain tumour in adults and children
How humour can help in tough times
Finding new purpose in life after brain injury
Ways to deal with the process of grieving your old self and embracing new after brain trauma.
Strategies for dealing with neuro-fatigue.
Why a supportive family can help life you up and give you hope.
Andy is the co-host of Let's Talk About Brain Tumours - run with the Brain Tumour Charity
Connect with Andy on X @Meningioma_host
You can listen to the episode we did with Andy and Sarah for Let's Talk About Brain Tumours, Life After Brain Injury
On A Good Day
Thank you for listening to On A Good Day! Please go back and catch up on any missed episodes. For a full recap of Elizabeth and Julia's stories, listen to episode #1: How Brain Injury Came Into Our Lives - And Changed Them Forever.
Please share this podcast with others it will benefit and subscribe, rate and review to help make it more visible! We'd be so grateful!
Connect with Us
On Instagram @onagood.day and X (formally Twitter) @onagood_day
And you can join our Facebook community too!
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Getting legal advice is not usually your first priority after a traumatic brain injury but, as Elizabeth and Julia discover, making that call could help hugely with a person's recovery - and an initial call costs nothing.
In this episode, Elizabeth and Julia look at the importance of getting specialist legal advice and the difference it can make to people's lives.
Joining them to dispel some of the myths and give the facts are Richard Biggs and Adam Shelverton from Irwin Mitchell Solicitors in Manchester.
Some of the questions discussed include: what costs are included in a compensation claim? How does 'no win no fee' work? How long do you have to make a claim and what length of time will it take to get a settlement?
This episode sees them cut through some of the legal jargon and bring a human face to a process which can be overwhelming.
It also explains why getting a financial settlement isn’t just about the money.
About Richard and Adam
Richard is a partner at Irwin & Mitchell, the Manchester branch, and is a solicitor who specialises in brain and spinal injury cases.
Adam is a physiotherapist by background and a team manager for Irwin Mitchell’s Support and Rehabilitation services in Manchester.
Look for a specialist solicitor at the Law Society or Headway.
On A Good Day
Thank you for listening to On A Good Day! Elizabeth and Julia are partners of brain injury survivors bringing their lived experience to conversations with the aim to help others navigate this life-changing journey.
Please go back and catch up on any missed episodes. For a full recap of Elizabeth and Julia's stories, listen to episode #1: How Brain Injury Came Into Our Lives - And Changed Them Forever.
Please share this podcast with others it will benefit and subscribe, rate and review to help make it more visible! We'd be so grateful!
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And you can join our Facebook community too!
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When someone has a brain injury, families need more support than ever with friends rallying to help at a very difficult time.
But what are the best ways friends can help when someone has a brain injury?
In this episode, Elizabeth and Julia are joined by their close friends Emma and Helen as they discuss how the friendships helped them in dark days - and continue to support them - following brain injury.
They go back to the moments of crisis they experienced when their husbands were in hospital and talk about the support they received, including a lively debate on how best to communicate information to wider groups of friends.
They also reflect on some of the positives and how it has ultimately brought them closer together.
On A Good Day
Thank you for listening to On A Good Day! Please go back and catch up on any missed episodes. For a full recap of Elizabeth and Julia's stories, listen to episode #1: How Brain Injury Came Into Our Lives - And Changed Them Forever.
Please share this podcast with others it will benefit and subscribe, rate and review to help make it more visible! We'd be so grateful!
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The impact of brain injury on the family is at the centre of this podcast and one of the reasons Elizabeth and Julia started On A Good Day, so they knew the next guest would be a good match.
In this episode, they are joined by Susie Hayden, a neuro speech and language therapist with 23 years experience working in the NHS.
Specialising in aphasia, Susie saw there was a need to work with the whole family system so retrained as a family therapist to get better outcomes for the whole family.
She has set up her own practice helping people who have speech and language difficulties, using an holistic approach to therapy.
Elizabeth and Julia talk to Susie about the dynamics of family relationships, how they can change after brain injury and some strategies to implement to help them heal.
Susie Hayden
You can find out more about Susie and the work she does by visiting her website.
On A Good Day
Thank you for listening to On A Good Day! Please go back and catch up on any missed episodes. For a full recap of Elizabeth and Julia's stories, listen to episode #1: How Brain Injury Came Into Our Lives - And Changed Them Forever.
Some related aphasia episodes include Strengthening Recovery After Aphasia with Professor Leff and How to Improve Communication After Stroke with Speech and Language Therapist Bindi Patel.
Please share this podcast with others it will benefit and subscribe, rate and review to help make it more visible! We'd be so grateful!
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Navigating parenthood with young children can be a huge challenge for all parents but even more so when you are living with the affects of brain injury.
In this episode, Julia and Elizabeth talk to Allison and Rob Allan. The couple had been together for just two years when Allison had a stroke, aged 25, leaving her with some physical and cognitive impairments.
Now they have two young girls aged six and three, Allison is finding her cognitive abilities are being significant tested with the demands of family life.
She talks candidly about her struggles: navigating noise, toddler demands and entering a new social community at the school gates.
Rob, who is a physiotherapist, talks about how his job has helped Allison and the couple explain some of the strategies they are implementing to help with overwhelm and fatigue.
Allison has a degree in fashion design and learning to sew again was a huge part of her rehabilitation. She is using her skills and passion to make accessible clothing for disabled people, you can read more on her blog My Accessible Wardrobe.
On A Good Day
Thank you for listening to On A Good Day! Please go back and catch up on any missed episodes. For a full recap of Elizabeth and Julia's stories, listen to episode #1: How Brain Injury Came Into Our Lives - And Changed Them Forever.
Please share this podcast with others it will benefit and subscribe, rate and review to help make it more visible! We'd be so grateful!
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Elizabeth and Julia talk about their journey with brain injury as guests of the Brain Tumour Charity's podcast, Let's talk about Brain Tumours.
In the episode, they open up about their experiences as partners of brain injury survivors, detailing some of the challenges they have faced along the way and the progress made.
Co-host of Let's Talk About Brain Tumours, Andy Tudor, talks about his life following his brain tumour aged 52 and some of the strategies he uses in his everyday life as well as the difficult conversations he's had with his family.
It's also hosted by Sarah Gubbins who works as a support worker for young adults at the brain tumour charity.
Listen and subscribe to its podcast Let's talk About Brain Tumours and visit the Brain Tumour Charity website.
On A Good Day
Thank you for listening to On A Good Day! Please go back and catch up on any missed episodes. For a full recap of Elizabeth and Julia's stories, listen to episode #1: How Brain Injury Came Into Our Lives - And Changed Them Forever.
Please share this podcast with others it will benefit and subscribe, rate and review to help make it more visible! We'd be so grateful!
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Chevaun Greenhill was still in primary school when her father had his first stroke. Over the years, she helped care for her beloved dad.
In this episode, she talks fondly of Barry's persistence to live his life as he had done before - sometimes with hilarious results.
As well as the humour, she also tells Elizabeth and Julia about the pain and struggles she - and her family- experienced which were compounded when she lost her brother when he was only 13 years old.
The West End actress, entrepreneur and mother of three reveals some of lessons she has learned and how, in the face of tragedy, she has gone on to live a life of appreciation and gratitude.
In this episode, prepare to laugh and cry but also be inspired.
Thank you for listening! Please do help us grow the podcast by leaving a review on Apple podcasts, share it, subscribe and follow us on social media. Thank you!
On A Good Day
Thank you for listening to On A Good Day! Please go back and catch up on any missed episodes. For a full recap of Elizabeth and Julia's stories, listen to episode #1: How Brain Injury Came Into Our Lives - And Changed Them Forever.
Please share this podcast with others it will benefit and subscribe, rate and review to help make it more visible! We'd be so grateful!
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Christmas can be a very stressful time of year for everyone but for someone with a brain injury and their family it can cause additional pressures.
In this episode, Elizabeth and Julia give On A Good Day's 12 days of Christmas with brain injury. They look at aspects of the festive season, sharing their experiences and strategies on how to deal with them.
This Christmas, Julia and Elizabeth will have celebrated a combined total of 21 Christmases with a brain injury survivor.
Some of the topics they cover include dealing with fatigue at this time of year, planning, financial pressures, cooking, shopping and alcohol.
So sit back with a mulled wine (or cup of tea) and mince pie and enjoy this festive episode. As ever, please do help us grow the podcast by leaving a review on Apple podcasts, share it, subscribe and follow us on social media. Thank you!
On A Good Day
Thank you for listening to On A Good Day! Please go back and catch up on any missed episodes. For a full recap of Elizabeth and Julia's stories, listen to episode #1: How Brain Injury Came Into Our Lives - And Changed Them Forever.
Please share this podcast with others it will benefit and subscribe, rate and review to help make it more visible! We'd be so grateful!
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SameYou co-founder Jenny Clarke talks to On A Good Day about the day she found out her actress daughter, Emilia Clarke, suffered a brain injury in her early 20s and the family's "disbelief".
Emilia had just finished filming the first season of Game of Thrones, with a starring role as Daenerys Targaryen, when she had her first brain aneurysm. She later had life-saving surgery to treat a second.
Jenny speaks to Elizabeth and Julia about the "catastrophic" impact it had on the family, how it still affects her today and the role she played in supporting Emilia as she went back to film Game of Thrones after her first brain aneursym.
The life-changing event opened their eyes to the lack of rehabilitation provision and aftercare for people living with an acquired brain injury, inspiring them to set up the charity SameYou.
It is helping to raise awareness of acquired brain injury, challenging the stigma around it and helping to train and education health professionals.
Jenny explains more about the charity's vision, the challenges they face and how it is looking at improving mental health care which can have a long-term impact on survivors and creating more community connections.
SameYou is inviting anyone impacted in some way by brain injury to fill out a questionnaire to better understand the recovery experience for a new project it is working on.
SameYou
SameYou launched as Emilia publicly shared her story, inspiring other brain injury survivors to do the same. The website has a section to share your story to be read in its survivor stories.
You can follow on Instagram, Twitter, Facebook and YouTube.
On A Good Day
Thank you for listening to On A Good Day! Please go back and catch up on any missed episodes. For a full recap of Elizabeth and Julia's stories, listen to episode #1: How Brain Injury Came Into Our Lives - And Changed Them Forever.
To help us grow, please share this podcast with others it will benefit and subscribe, rate and review to help make it more visible! We'd be so grateful!
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Joe Borges tells Elizabeth and Julia how his brain injury gave him a new appreciation for life and why he believes it was a 'blessing' allowing him to have a life "reset".
The NeuroNerds co-host divulges his feelings of being lost and 'surviving' rather than living prior to having a brain injury but how he is now able to live a purposeful life.
He reveals the highs and lows following his brain injury and why mindset plays such a key role in recovery.
Joe is one half of the successful The NeuroNerds podcast and is committed to connecting with other brain injury survivors and has built a global community which he says has become his purpose in life.
He talks about the importance of connecting with other brain injury survivors and how it continues to help him in his journey.
Despite his positive outlook, Joe acknowledges he has dark days and talks about how he navigates them as well as overcoming ‘toxic positivity.’
Joe is constantly giving back and next month has organised a ground-breaking virtual event, called Brain, Body, Soul festival, raising funds for The Aneurysm and AVM Foundation (TAAF) to help support other brain injury survivors.
It will take place on December 9 in the Metaverse, visit the Brain, Body, Soul Festival website to register for free.
Joe Borges
You can follow Joe on Instagram, Twitter, Facebook and visit his Joe So Rocks and NeuroNerds website.
Go listen and subscribe to The NeuroNerds podcast
On A Good Day
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Elizabeth and Julia return with a second season of On A Good Day raising more questions around brain injury and continuing to seek answers.
In this new series, they'll be hearing more about the lived experiences of guests to help them with their mission to raise awareness of the impact of brain injury on all involved.
In this episode, they reflect on some of the themes they will be tackling and what is resonating for them right now.
Julia and her husband Hector are navigating a new stage of their journey as they now have an empty nest while Elizabeth talks about Paul adapting to his new identity following his brain injury and how to help with wellness and mindset.
They talk about some episodes and guests featuring in upcoming episodes and reflect on the importance of connecting with others in a similar situation.
Julia reveals she is taking part in a challenge run by the charity SameYou. The 'Walk for Brain Injury' fundraiser is to raise money to develop better mental health recovery treatments for survivors. If you want to join in, sign up on the website and start walking. It begins on November 1st and involves walking 6,000 steps every day throughout the month.
Thank you for listening to On A Good Day! Please go back and catch up on any missed episodes. For a full recap of Elizabeth and Julia's stories, listen to episode #1: How Brain Injury Came Into Our Lives - And Changed Them Forever.
To help us grow, please share this podcast with others it will benefit and subscribe, rate and review to help make it more visible! We'd be so grateful!
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As season one of On A Good Day comes to a close, Elizabeth and Julia look back at some of their highlights and how the podcast has positively impacted them.
Julia reveals how listening to episode 3 on positive risk helped shape her decision to take a family trip to Tanzania and Zanzibar.
While Elizabeth reflects on the episode when she spoke about the five year anniversary of Paul's brain injury and how she is beginning to feel a level of acceptance for this new life.
In this episode, the hosts talk about how sharing their story has helped them and the impact left by the guests they have interviewed to give knowledge, perspective and inspiration.
Thank you for listening! Please go back and catch up on any missed episodes.
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Conor Madden was playing his dream role of Hamlet when a sword fight went wrong and he suffered a brain injury on stage.
In this episode, the Irish actor, who was 24 when it happened, tells Elizabeth and Julia his honest story of living with brain injury for the past 12 years .
With humour and ease, Conor opens up about the challenges he has faced and how he has learned to love himself again after struggling with his identity.
He talks about how therapy played a pivotal role in helping him manage the new behaviours such as anger and other effects a brain injury can bring.
Recently a father, Conor says his daughter has had a huge impact on his life and recovery and he is eternally grateful to his wife Zara and the support she has given him over the years.
In the episode Conor mentions the incredible therapy and support he received from Headway Ireland and ABI Ireland.
Conor would like to thank: Zara, Aurora, my parents and the rest of my family, the staff at Cork University Hospital, The St Camiluses rehab team, ABI Ireland and, especially, Headway Ireland.
On A Good Day
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"With the right help, at the right time, there can be life after brain injury," says Luke Griggs, the Chief Executive of Headway, the UK's leading brain injury charity.
In this episode, he speaks to Julia and Elizabeth about his vision for Headway which provides much needed support and information for all affected by brain injury.
The charity helps survivors, carers and wider family members for, as Luke recognises, the ripple affect of brain injury goes "far and wide".
Luke has worked at Headway for the last 16 years but only recently took on the top leadership role.
He reveals his own personal experience of brain injury, realising after he joined Headway that his grandmother had lived with the impact of a brain injury for the majority of her life without help or knowledge.
Luke also talks about how he and Headway are lobbying government for more help and funding for brain injury survivors, asking for people affected by brain injury, to get in touch with their local MP and tell their story.
Headway
Visit the main Headway website. Luke spoke about the personal testimonies which people may find useful from its A New Me campaign.
On A Good Day
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On Carers Week, Elizabeth and Julia pay tribute to the incredible work unpaid carers do and speak about their own personal experiences of caring for someone.
There are 5 million carers in England and Wales who contribute a staggering £162bn to the economy but as Elizabeth and Julia discuss, the true number is likely to be far higher.
New research from Carers Week show 73% of people providing care to others do not identify as a carer ( Elizabeth being one of them as she discusses) and therefore could be missing out on additional support and information.
The hosts also look at some of the challenges facing carers as they juggle many other responsibilities and talk about some of the help available to them.
Carers Week
Carers Week is an annual campaign to raise awareness of caring, highlighting the challenges unpaid carers face and recognise the contribution they make to families and communities throughout the UK.
For more information, visit Carers Week
We spoke to Sara Challice on episode 7, author of Who Cares, about being a carer and ways to manage self-care. Listen to the episode with Sara Challice on Spotify and click here to purchase her book
Other useful links:
Carers UK
On A Good Day
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Volunteering has a huge range of benefits which Elizabeth and Julia explore in this episode of On A Good Day with their guests.
They discuss how taking on a volunteer position, especially after brain injury can give survivors purpose, boost confidence, help improve communication and can positively impact the people they are in contact with.
Elizabeth's husband, Paul Callaghan, and Julia's husband, Hector Ajayi, talk about their experiences of volunteering. Paul in the hospital where he underwent his neurorehabilitation and Hector at the Museum of Archaeology and Anthropology in Cambridge.
Elizabeth and Julia are also joined by Kate Phizaclea who works with Hector at the museum as the Visitor Services Manager. She gives her take on the benefits of volunteering and why they are needed. Kate also reads a very touching feedback message from a visitor about Hector.
For more information on volunteering visit: https://www.royalvoluntaryservice.org.uk/
On A Good Day
On A Good Day is the podcast which delves into brain injury and its impact on all involved.
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