Episodes
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Listen to this episode of People of Precision Health to learn about:
How to engage communities in health disparities research with underserved communities A shift in thinking about how researchers should address health disparities research How defining catchment areas can hold community hospitals accountable in their resourcing of cancer care and cancer researchLearn about the Chickahominy TRUTH research project
Watch a video about the Chickahominy TRUTH project
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Listen to this episode of People of Precision Health to learn about:
Community approaches to address cultural disparities and underrepresentation in research Understanding and addressing cultural challenges and other barriers to research participationHow to create and nurture partnerships with research participantsThe value of diversity in the medical research communityMany interesting use cases for technology in the research spaceWhere precision medicine is going and how we can get there -
Missing episodes?
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Watch this episode of People of Precision Health to find out what makes a good health research survey, and learn about:
Common missteps in health survey data collectionHow to ensure the validity and reliability of survey questionsAddressing survey fatigue / respondent burdenReasons for non-response and inaccurate answersManaging change to research surveysSelecting the right digital survey tools -
For our fourth episode of People of Precision Health, Dr. Jai Patel at Atrium Health Levine Cancer Institute describes their pharmacogenomics program and how it folds into their activities in comprehensive cancer care and research activity. Listen now to hear insights on:
Providing decentralized patient access to top-notch cancer care and researchIntegrating into cancer clinician workflows to enhance cancer patient experiencesHow distress screening and nurse navigators can improve outcomesIncreasing access for clinicians and their patients to cancer researchStandardizing cancer pharmacogenomics to support patients -
On this episode of People of Precision Health, we sat down with Dr. Sofiya Milman, Associate Professor of Endocrinology and Genetics at Albert Einstein College of Medicine to talk about the SuperAgers Family Study. She discussed how she and her collaborators have cultivated several strategies and digital tools to power their recruitment, data collection, cross-institutional collaboration, and participant engagement. Listen now to hear insights on:
Finding the right mix of recruitment strategiesHow recruiting family can help to engage elderly populationsWhy consent videos speed up the enrollment processHow digital tools can increase research team effectivenessCreating a community for study participants to foster engagementTo learn more or to enroll in the SuperAgers Family Study, visit: https://www.superagersstudy.org/
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In this episode of our People of Precision Health podcast series, guest Dr. Daniel Judge discusses the “In Our DNA SC” study, which focuses on sequencing the genes of South Carolina’s incredibly diverse patient population. Listen now to hear insights on:
The nuances of good genetic counselingNavigating ambiguity in genetic testingTranslating research discoveries into clinical practiceHow genetic testing could impact pharmacogenomicsPrioritizing diversity to unlock greater population health insightsLearn more about the In Our DNA SC community health research project by visiting the Medical
University of South Carolina (MUSC) website here: https://web.musc.edu/inourdnasc -
In the premiere episode of People of Precision Health, Howard McLeod of Intermountain Healthcare shares details from the HerediGene program, a study which seeks to sequence over 500,000 participants’ genes to better understand, predict, and prevent gene-related diseases. Listen now to hear insights on:
Building infrastructure for a population health sequencing study Marketing the study to potential participants How precision health and genomics research inform clinical care Lessons learned about informed consent How to best disseminate return of resultsLearn how the HerediGene program built a communications and patient data infrastructure to handle genetic sequencing and population health here: https://www.mdpi.com/2075-4426/12/11/1867
