Episodios
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Join us for an in-depth discussion on Stargardt disease, a rare inherited form of juvenile macular degeneration that affects about 1 in 10,000 children and young adults. Learn about the latest in diagnosis, genetic testing, and promising treatments, which researchers are also evaluating in geographic atrophy.
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Macular Degeneration Research, a BrightFocus Foundation program, is supporting 49 active research grants around the world. Join us as our Scientific Affairs team highlights a few of these groundbreaking research projects working toward earlier detection and prevention, treatments, and a cure for macular degeneration.
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This Macular Chat episode will explore how diet and nutrition influence the risk and progression of AMD and discuss the vital role that the gut microbiome plays in overall human health.
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Geographic atrophy is an advanced and severe form of dry age-related macular degeneration that can lead to permanent vision loss. Guest expert Dr. Philip Niles will share what you need to know about identifying, preventing, and treating geographic atrophy and delve into the landscape of available treatments.
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After a macular degeneration diagnosis, the best way to adapt to vision loss is to learn new ways of doing things. Ed Haines discusses the resources available from the organization Hadley, which provides practical, social, and emotional support to older adults adjusting to vision loss.
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Does cataract surgery increase your risk of developing macular degeneration? Learn more during a conversation with guest expert Emily Y. Chew, MD.
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Age-related macular degeneration is a leading cause of vision loss in Americans aged 60 and older. Guest speaker Gayatri S. Reilly, MD answers questions and shares all the facts you need to know about wet and dry macular degeneration.
#MacularDegeneration #Macular #Retina -
After a diagnosis of macular degeneration many individuals experience a range of emotions, including grief, anxiety, or depression. Our expert guest will define and discuss different emotions, as well as provide specialists and additional coping strategies and resources to consider.
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Dr. Kapil Bharti’s lab at the National Eye Institute recently started the first U.S. phase I/IIa trial to test autologous iPSC-derived RPE patch in AMD patients. Currently, he is co-developing a dual RPE/photoreceptor cell therapy with Opsis Therapeutics. He has given several keynote lectures and won several awards for his revolutionary work on developing ocular cell-therapies. He serves on the advisory board (pro bono) of several companies and patient-advocacy groups. His current work as a Senior Investigator at NEI involves understanding the mechanism of retinal degenerative diseases using induced pluripotent stem cell derived eye cells and tissues and developing cell-based and drug-based therapies for such diseases. He is the Director of the NEI Intramural Research Program where he oversees 21 research labs and 6 core facilities.
Dr. Bharti is also a Macular Degeneration Research grantee. Learn more about his funded work here: Engineered Eye Tissue Models to Analyze Mechanisms of Age-related Vision Loss.
#Macular #MacularDegeneration #Retina #LowVision -
Guest speaker W. Lloyd Clark, MD, discusses a new anti-VEGF treatment option that is available for wet AMD. Dr. Clark specializes in the treatment of vitreous and retinal diseases. He is also dedicated to the advancement of new treatments for retinal diseases through his involvement with clinical trials for the newest therapies for age-related macular degeneration, diabetic retinopathy, and retinal vein occlusions.
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Guest speaker Dr. Veeral Sheth, discusses geographic atrophy, an advanced and severe form of dry age-related macular degeneration, and the landscape of treatments that are currently available.
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Katherine Freund, Founder and President of Independent Transportation Network of America, discusses how aging impacts our driving skills, explores alternatives to driving, as well as what you can do if there are no currently driving resources in your area.
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This episode featured guest speaker Preeti Subramanian, PhD, who oversees the Macular Degeneration Research and National Glaucoma Research programs at BrightFocus Foundation. Dr. Subramanian highlighted some of the exciting research currently funded by BrightFocus.
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This episode featured Rob Howden and Diane Marshall, both currently living with geographic atrophy, the advanced form of dry macular degeneration. They give a firsthand account of daily living with geographic atrophy and discuss the importance of diagnosis.
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This episode featured Dr. Surendra Sharma, Senior VP of Medical Affairs at Outlook Therapeutics. Dr. Sharma discussed the difference between Wet AMD and Dry AMD, who is at risk for Wet AMD, and what treatment options are available.
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This episode featured Joshua Dunaief, MD, PhD, professor of ophthalmology at the Perelman School of Medicine at the University of Pennsylvania. Dr. Dunaief spoke about symptoms and treatments for macular degeneration, including a new study of zebra fish to understand how they regenerate eye cells. Participants asked questions regarding eye injections, the risk factors of drusen turning into geographic atrophy and how important a healthy diet is to help prevent macular degeneration.
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This episode featured guest speakers Maureen Foley and Sheila Klein, who are both currently living with age-related macular degeneration (AMD) and gave firsthand accounts of daily living with low vision. They also discussed the biggest challenges and the resources they find most helpful while living with AMD.
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This episode featured Jerry Feliz, Access Technology Director at Massachusetts Association for the Blind and Visually Impaired. He discussed how to use a screen reader and apps the blind can use to help with daily activities. Jerry also spoke about his YouTube channel and he let participants know that he does private consultations for anyone that might need extra help increasing their independence with assistive technology.
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BrightFocus Foundation hosted this monthly chat featuring Dr. Maria Richman, a Low Vision Rehabilitation Optometrist from Shore Family Eyecare in New Jersey. Dr. Richman discussed Advanced Macular Degeneration and provided an update on the investigational medical device called the SING Implantable Miniature Telescope. She discussed the improvements and benefits made to the new implantable telescope device as well as the criteria that is needed in order to join the clinical trial for the device.
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This event featured Dr. Sally Temple and Dr. Jeffrey Stern who are both co-discoverers of stem cells in the human retinal pigment epithelium at the Neural Stem Cell Institute, who addressed the role of stem cells in central nervous system development, maintenance, and repair. There was also discussion about cell transplants to replace retinal pigment epithelium (RPE) and clinical trials for stem cell therapy and AMD.
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