Episodios
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Living with the unpredictability of MS sometimes feels like riding a rollercoaster. As you experience the twists and turns of life with MS, you can sometimes feel unmoored from the person you thought you were. You can sense your priorities, motivations, and values shifting. And, in those moments, it becomes easy to lose your sense of purpose.
Clinical assistant professor and rehabilitation psychologist at the University of Michigan, Dr. Evan Smith, joins me to discuss how to identify and reconnect with your core values and live a more purposeful and satisfying life.
We'll also tell you about Creating Order, an art exhibit featuring 12 artists living with MS. (Don't miss our conversation with the co-curators and lead artist in this unique exhibit!)
And we're sharing the details of MS Stand Up, a night of comedy and cocktails at the Gotham Comedy Club.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Greetings from ECTRIMS! :22
Our 7th anniversary is one week away! 2:00
Coming Up: The importance of staying connected to your core values 2:30
Creating Order art exhibit features 12 artists living with MS 3:35
My conversation with Creating Order co-curators Pam Schoenberg and Ted Meyer, and lead artist, Susan Trachman 4:27
MS Stand Up is happening September 30 at the Gotham Comedy Club 15:24
Dr. Evan Smith discusses how to lead a purposeful life while living with MS 16:54
Share this episode 33:17
Have you downloaded the free RealTalk MS app? 33:38
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/368
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Creating Order exhibit at the DNJ Gallery
https://dnjgallery.netMS Stand Up
https://msstandup.orgJoin the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 368
Guests: Pam Schoenberg, Ted Meyer, Susan Trachman, Dr. Evan SmithPrivacy Policy
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Living with MS is expensive. A recent study funded by the National MS Society found the average cost of living with MS in the United States is $88,487 a year. Even with insurance, that can turn out to be a heavy lift.
One thing you don't need is to be worrying about money while you're already worrying about MS. So, when I think about discussing budgeting and managing your personal finances when you're living with MS, I think we're really talking about preserving your quality of life.
Joining me with strategies for budgeting and managing debt when you're living with MS is the Senior Vice President of Membership and Media Relations at the National Foundation for Credit Counseling, Bruce McClary.
We'll also tell you about the updated Pathways to Cures Research Roadmap and the first ever global landscape analysis of MS research funding.
We're sharing very encouraging results from the Phase 2 open-label extension study of Fenebrutinib, an experimental BTK inhibitor.
We'll give you the details of a pilot study that demonstrated what may be a successful treatment for sexual dysfunction among men and women living with MS.
We'll tell you why middle-aged people with MS may want to consider resistance training.
And we'll tell you how to register for the National MS Society's Voting Without Barriers webinar.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Budgeting for Living with MS :22
The Pathways to Cures Research Roadmap has been updated and refined 1:25
There's very encouraging news from the Phase 2 open-lable extension study of Fenebrutinib 5;31
Results from a pilot study point to successful treatment for sexual dysfunction among men and women living with MS 6:35
Study results show that resistance training is beneficial for middle-aged people with MS 9:52
We're 8 weeks away from election day in the U.S. and the National MS Society is hosting a webinar about access to polling places 11:36
Senior Vice President of Membership and Media Relations at the National Foundation for Credit Counseling, Bruce McClary, shares tips and strategies for taming your household budget and budgeting for living with MS 15:49
Share this episode 33:16
Have you downloaded the free RealTalk MS app? 33:36
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/367
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
RealTalk MS Episode 297: From the Pathways To Cures Global Summit (Part 1)
https://realtalkms.com/297RealTalk MS Episode 298: From the Pathways to Cures Global Summit (Part 2)
https://realtalkms.com/298The Refined Pathways To Cures Research Roadmap
https://journals.sagepub.com/doi/10.1177/13524585241266483The First Global Landscape Analysis of Multiple Sclerosis Research Funding
https://journals.sagepub.com/doi/full/10.1177/13524585241265961STUDY: Tibial Nerve Stimulation in the Management of Primary Sexual Dysfunction in Patients with Multiple Sclerosis: A Pilot Randomized Control Trial
https://link.springer.com/article/10.1007/s10072-024-07687-2STUDY: Is Resistance Training an Option to Improve Functionality and Muscle Strength In Middle-Aged People with Multiple Sclerosis? A Systematic Review and Meta-Analysis
https://www.mdpi.com/2077-0383/13/5/1378REGISTER for the Voting Without Barriers Webinar
https://p2a.co/Dqy1XpkJoin the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 367
Guest: Bruce McClaryPrivacy Policy
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¿Faltan episodios?
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Most of us know Medicare as health insurance for Americans who are 65 or older, but when they qualify for Social Security disability benefits, people younger than 65 automatically qualify for Medicare. Today, between 25 and 30% of the people living with MS are Medicare beneficiaries.
Whether you already have Medicare or you'll be signing up for Medicare in the future, getting the right coverage requires making some important choices.
Licensed Medicare Advisor Laquel Thomas joins me with tips, strategies, and explanations for successfully navigating Medicare and getting the coverage you need.
We’re explaining the good news in the results from a Phase 3 clinical trial for Tolebrutinib, Sanofi’s experimental oral BTK inhibitor. The trial showed that, compared to placebo, Tolebrutinib met the primary endpoint, delaying the onset of confirmed disability progression in people with non-relapsing secondary progressive MS.
Take My Hand is an Australian film based on the true story of Claire Jensz, a mother of three living in London who is diagnosed with MS at the peak of her high-powered career. Be sure to catch my conversation with Claire, Radha Mitchell, the film's star, and John Raftopoulos, the film's director.
We're sharing the details of a study that may have uncovered an underlying cause of MS and, perhaps, all autoimmune diseases.
We'll tell you about the results of a stem cell study that show MS may involve more than just immune cells.
And we'll give you what may be surprising details of a study that focused on how MS impacts the quality of life of fully ambulatory people living with mild MS symptoms.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Making the right Medicare choices :22
There's good news about the results of the Phase 3 clinical trial for Tolebrutinib 1:41
My conversation with the director, star, and woman whose story about living with MS is the real-life basis for the new film, Take My Hand 4:28
Have researchers at Yale discovered an underlying cause of MS? 14:11
Newly published results of a stem cell study show that MS may also be driven by brain cells 17:19
Study results show how MS impacts the quality of life among fully ambulatory people with mild MS symptoms 19:15
Licensed Medicare Advisor, Laquel Thomas, explains all the variables you want to consider in making choices about your Medicare coverage 22:12
Share this episode 33:40
Have you downloaded the free RealTalk MS app? 34:01
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/366
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
TRAILER: Take My Hand
https://youtu.be/PdNMb7-AeEsSTUDY: An Autoimmune Transcriptional Circuit Drives FOXP3+ Regulatory T-Cell Dysfunction
https://www.science.org/doi/10.1126/scitranslmed.adp1720STUDY: Patient iPSC Models Reveal Glia-Intrinsic Phenotypes in Multiple Sclerosis
https://www.sciencedirect.com/science/article/abs/pii/S1934590924002881STUDY: Determinants of Self-Perceived Quality of Life in Mildly Disabled Multiple Sclerosis Patients: A Cross-Sectional Study
https://pubmed.ncbi.nlm.nih.gov/38526763Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 366
Guest: Claire Jensz, John Raftopolous, Radha Mitchell, Laquel ThomasPrivacy Policy
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If you're a regular listener, you know that I rely on the RealTalk MS listener community to let me know which topics you'd like to hear about on this podcast. A few years ago, in episode 264, listener Dawnia Baynes did a podcast takeover, and interviewed me. Since then, I've heard from a bunch of you who, for some reason, want to hear more about me. So, when listener Kyra Millich asked if she could interview me, it felt like it was time.
In today's episode, you'll find out what I like to do when I'm not doing this podcast, I'll share some of the most memorable moments in my life, you'll hear how and why I started RealTalk MS, and I hope you'll get to know me a little better.
You'll also hear about results from a study that show people with MS are far less likely to be diagnosed with Alzheimer's disease compared to people who don't have MS.
We'll tell you about a Phase 1 clinical trial for a CAR-T cell therapy for MS.
And you'll learn the details of a different Phase 1 clinical trial for a different CAR-T cell therapy for MS.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Jon gets interviewed :22
Study results show people with MS are less likely to get Alzheimer's disease than people who don't have MS 1:23
TG Therapeutics announces Phase 1 clinical trial of CAR-T cell therapy for MS 3:44
FDA clears Immpact Bio for Phase 1 clinical trial of CAR-T cell therapy for hard-to-treat MS 7:13
Listener Kyra Millich interviews Jon 8:48
Share this episode 40:03
Have you downloaded the free RealTalk MS app? 40:23
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/365
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
STUDY: Unexpected Low Rate of Amyloid-β Pathology in Multiple Sclerosis Patients
https://onlinelibrary.wiley.com/doi/10.1002/ana.27027
Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 365
Privacy Policy
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Getting an MS diagnosis is not always the quick, straightforward process we'd like it to be. For some people, the process can drag on for years. But getting that diagnosis only happens when you and your primary care physician recognize that something's going on.
It might be a sudden vision issue. Maybe it's unexplained tingling in an arm or leg. Or maybe it's something more acute that gets your attention. A wide variety of signs could point to MS, but they could also point to other health conditions.
Dr. Leorah Freeman, Director of the Multiple Sclerosis and Neuroimmunology Center at Dell Medical School at the University of Texas at Austin, joins me this week to help us better understand the signs and symptoms of multiple sclerosis.
Just as COVID-19 viral activity is increasing across the United States, we're sharing the results of a study that should put your mind at ease and motivate you to get that COVID-19 booster vaccination when it becomes available next month.
We'll tell you about a Phase 1 clinical trial that's getting underway for a novel cell therapy that may be effective in stopping MS.
You'll hear about a grant from the National Institutes of Health that will fund a study on the fear of falling among people with MS.
The 16th annual Burgers to Beat MS fundraising event is taking place on August 22nd at A&W locations across Canada. We'll give you the details on how you can participate -- whether you happen to be in Canada or not!
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Understanding the signs and symptoms of MS :22
Study results show no increase in the risk of an MS relapse after COVID-19 vaccination booster 1:43
Phase 1 clinical trial of a novel cell-based therapy for MS is underway 4:12
NIH grant to investigate the fear of falling among people with MS 7:13
Burgers to Beat MS is happening at A&W locations across Canada on August 22nd! 9:28
Dr. Leorah Freeman discusses the sometimes confusing signs and symptoms of MS 11:09
Share this episode 28:36
Have you downloaded the free RealTalk MS app? 28:56
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/364
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
STUDY: Risk of Relapse After COVID-19 Vaccination Among Patients with Multiple Sclerosis in France
https://www.neurology.org/doi/10.1212/WNL.0000000000209662
Burgers to Beat MS
https://burgerstobeatms.caJoin the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 364
Guest: Dr. Leorah FreemanPrivacy Policy
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For some people, getting in their car and heading for, well, anywhere represents freedom and independence. For others, it's a way to get to their jobs, get to their medical appointments, get the kids to school, and run necessary errands. MS can change all of that.
Occupational Therapist and Certified Driver Rehabilitation Specialist Jenny Nordine joins me to discuss how to preserve your independence while protecting yourself and the people around you when you're driving with MS.
You'll also meet Dr. Susan Seizer, a true difference-maker and one of the founders of the Mobility Aids Lending Library.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Maintaining your independence and keeping yourself and others around you safe when you're driving with MS :22
Dr. Susan Seizer discusses the Mobility Aids Lending Library and the stigma of disability 1:26
Occupational Therapist and Certified Driver Rehabilitation Specialist, Jenny Nordine, discusses how to preserve your independence while protecting yourself and the people around you when you're driving with MS 20:35
Share this episode 31:25
Have you downloaded the free RealTalk MS app? 31:45
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/363
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Mobility Aids Lending Library
https://mcpl.info/commorg/mobility-aids-lending-library-mall
Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 363
Guest: Dr. Susan Seizer, Jenny Nordine OT/L, CDRSPrivacy Policy
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Integrative medicine brings conventional and complementary treatments together in a coordinated way. This approach to health and wellness represents a growing trend across the United States, especially among people who live with a chronic disease like MS.
Dr. Lynne Shinto joins me to explain what integrative medicine is and how to safely incorporate complementary treatments into your MS care plan.
We'll also tell you about study results that show how the common cold, flu, or a urinary tract infection can all contribute to MS worsening.
We'll tell you about the research team that has successfully used an artificial intelligence algorithm to predict future MS disability progression.
We'll share the details behind the work of another research team that successfully used an artificial intelligence algorithm to reliably diagnose MS.
The European Union's AI Act went into effect last week. We're explaining all the ways this new law will impact healthcare.
We have a lot to talk about! Are you ready for RealTalk MS??!
Remembering June Halper :22
This Week: Decoding Integrative Medicine 1:58
STUDY: Infections outside the central nervous system contribute to MS worsening 2:42
STUDY: Artificial intelligence model reliably predicts future MS disability progression 5:33
STUDY: Artificial intelligence model uses retinal imaging to reliably diagnose MS 7:51
How the European AI Act will impact healthcare 10:33
Dr. Lynne Shinto discusses the role of Integrative Medicine in treating MS 14:55
Share this episode 28:49
Have you downloaded the free RealTalk MS app? 29:09
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/362
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
STUDY: Systematic Inflammation Associates With and Precedes Cord Atrophy in Progressive Multiple Sclerosis
https://academic.oup.com/braincomms/article/6/3/fcae143/7655554STUDY: Longitudinal Machine Learning Modeling of MS Patient Trajectories Improves Predictions of Disability Progression
https://pubmed.ncbi.nlm.nih.gov/34146771STUDY: SLO-NET: Enhancing Multiple Sclerosis Diagnosis Beyond Optical Coherence Tomography Using Infrared Laser Reflectance Scanning Ophthalmoscopy Images
https://tvst.arvojournals.org/article.aspx?articleid=2800432Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 362
Guests: Dr. Lynne ShintoPrivacy Policy
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Less than two weeks ago, the National MS Society announced the appointment of Dr. Tim Coetzee as its new President and CEO. The MS Society's board chair, Peter Porrino, commented, "Tim is a trusted voice of the global MS community, a highly respected scientist, and we are excited for him to bring his transformative leadership to drive us into our next era to achieve a world free of MS."
I thought it was important for everyone in the RealTalk MS listener community to hear from Tim and learn firsthand what his vision and priorities are for the MS Society. So, I'm dedicating this entire episode to my conversation with the new President and CEO of the National MS Society, Dr. Tim Coetzee.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: A conversation with the new President and CEO of the National MS Society, Dr. Tim Coetzee :22
Share this episode 28:32
Have you downloaded the free RealTalk MS app? 28:52
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/361
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 361
Guest: Dr. Tim CoetzeePrivacy Policy
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It's hard to imagine any area of our lives that hasn't been transformed by digital technology. That's certainly true for healthcare in general and MS diagnosis and treatment in particular.
Dr. Riley Bove joins me to discuss the role that digital technology already plays in the diagnosis and treatment of MS and to share a preview of what's coming next.
The National MS Society has named its new President and CEO. We're sharing the details!
We'll tell you about some of the benefits that are being observed in the Phase 2 clinical trial and extension study of Frexalimab, an experimental antibody that may be on the path to becoming a highly effective disease-modifying therapy.
We'll share the details behind the FTC's planned lawsuit against the three largest Pharmacy Benefit Managers (and we'll tell you why that matters to anyone taking a prescription medication).
Stressing out about an upcoming MRI exam? We're sharing info about Happy MRI, a website that's been designed to relieve MRI-related anxiety.
And we're reminding you that Crush MS, the Napa Valley wine-tasting fundraising event, is happening this Saturday, July 27th. We'll let you know where to get your ticket!
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: The impact of digital technology :22
Dr. Tim Coetzee named the President and CEO of the National MS Society 1:50
Frexalimab shows significant benefits in Phase 2 clinical trial 4:08
FTC to file suit against three largest Pharmacy Benefit Managers 6:08
Happy MRI is designed to relieve MRI-related anxiety 8:03
We're just days away from Crush MS 9:47
Dr. Riley Bove discusses how digital technology is changing MS diagnosis and treatment 11:21
Share this episode 28:54
Next week: Newly named President and CEO of the National MS Society, Dr. Tim Coetzee, talks about his vision for the MS Society and shares his immediate priorities 29:14
Have you downloaded the free RealTalk MS app? 29:32
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/360
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
RealTalk MS Episode 359: The Unraveling with Dr. Nara Michaelson
https://realtalkms.com/359Happy MRI
https://happymri.comCRUSH MS
https://crushms.orgJoin the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 360
Guests: Dr. Riley BovePrivacy Policy
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As Harvard Fellow Dr. Nara Michaelson treated women who had been recently diagnosed with MS, she recognized they shared characteristics that she had observed in victims of violent domestic abuse. Dr. Michaelson's observation led her to write The Unraveling, an essay that highlights the fear that can accompany the uncertainty of living with MS.
Dr. Michaelson joins me to discuss the experiences that led to her award-winning essay and to share resources that can help maintain your emotional health and well-being in a good place when you're living with MS.
We're also sharing the details about BEAT-MS, a clinical trial that will compare autologous hematopoietic stem cell transplantation (AHSCT) with high-efficacy disease-modifying therapies when it comes to reducing or eliminating MS relapse activity. And we'll let you know how to find out if you could be a potential participant in this important clinical trial.
We'll tell you about the FDA approval granted to Abata Therapeutics to conduct a Phase 1 clinical trial of ABA-101, their experimental therapy for progressive MS.
We're sharing news about the Federal Trade Commission's newly released report on Pharmacy Benefit Managers. (And we'll tell you why this matters to every person in the United States who takes a prescription medication)
And we'll tell you about Take Charge, a new virtual program from Can Do MS that you can participate in at no cost!
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: The Unraveling :22
BEAT-MS clinical trial compares AHSCT with high-efficacy DMTs 1:58
FDA clears ABA-101 for Phase 1 clinical trial 5:17
FTC is turning its focus to Pharmacy Benefit Managers 6:55
Can Do MS offers new Take Charge virtual program 11:47
Dr. Nara Michaelson discusses her award-winning essay, The Unraveling 13:23
Share this episode 29:15
Next week: Dr. Riley Bove discusses how digital technology has become a game-changer in diagnosing, treating, and managing MS 29:35
Have you downloaded the free RealTalk MS app? 29:55
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Just copy this link & paste it into your text or email: https://realtalkms.com/359
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
The Unraveling
https://neurology.org/doi/10.1212/WNL.0000000000209492BEAT-MS Clinical Trial
https://beat-ms.orgRealTalk MS Episode 205: A Potentially Transformational Therapy for Progressive MS with Samantha Singer and Dr. Richard Ransohoff
https://realtalkms.com/205FTC Report -- Pharmacy Benefit Managers: The Powerful Middlemen Inflating Drug Costs and Squeezing Main Street Pharmacies
https://ftc.gov/system/files/ftc_gov/pdf/pharmacy-benefit-managers-staff-report.pdfREGISTER for Take Charge
https://cando-ms.org/event/take-charge-young-and-newly-diagnosedJoin the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 359
Guests: Dr. Nara MichaelsonPrivacy Policy
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The inequities associated with gaining access to quality healthcare are often discussed, and my guest this week has taken steps to address them. Dr. Jaime Imitola and his team at UCONN Health have created a tool called VISIBL-MS, a bilingual framework designed to increase doctors' and patients' awareness of the early signs of MS.
We'll also share the results of a study that clearly illustrate progression independent of relapse activity (PIRA).
We'll tell you about a small study that showed a positive outcome for people with progressive MS who received neural stem cell therapy.
We'll share details of a study that identified a panel of 20 blood-based proteins that have been shown to be predictive of MS disease activity. (And we'll tell you why that's a good thing for patients and researchers!)
And we're reminding you that we're just over 2 weeks away from CRUSH MS!
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: VISIBL-MS :22
Study results provide evidence of PIRA 1:41
Stem cell therapy for progressive MS? 4:28
Researchers identify a panel of 20 proteins that are predictive of MS disease activity 7:19
We're just over 2 weeks away from CRUSH MS! 10:07
Dr. Jaime Imitola discusses how VISIBL-MS will increase doctors' and patients' awareness of the early signs of MS. 11:35
Share this episode 31:33
Have you downloaded the free RealTalk MS app? 31:53
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/358
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
VISIBL-MS: A Bilingual Educational Framework To Increase Awareness of Early Multiple Sclerosis
https://journals.sagepub.com/doi/10.1177/13524585241228739STUDY: Acute Clinical Events Identified as Relapses with Stable Magnetic Resonance Imaging in Multiple Sclerosis
https://pubmed.ncbi.nlm.nih.gov/38949816STUDY: Phase I Clinical Trial of Intracerebroventricular Transplantation of Allogeneic Neural Stem Cells in People with Progressive Multiple Sclerosis
https://www.sciencedirect.com/science/article/pii/S1934590923003934STUDY: Inflammatory and Neurodegenerative Serum Protein Biomarkers Increase Sensitivity to Detect Clinical and Radiographic Disease Activity in Multiple Sclerosis
https://nature.com/articles/s41467-024-48602-9CRUSH MS: Tickets and Info
https://crushms.orgJoin the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 358
Guests: Dr. Jaime ImitolaPrivacy Policy
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When it comes to living your best life when you're living with MS, the first step is to make smart lifestyle choices. Maintaining a healthy lifestyle doesn't require pills, injections, or infusions. And making smart lifestyle choices can make a real, measurable difference in your quality of life.
Joining me to talk about the benefits of maintaining a healthy lifestyle and share some tips and strategies for living your best life when you're living with MS is Dr. Lisa Doggett, a family and lifestyle medicine physician at the MS and Neuroimmunology Center at Dell Medical School at the University of Texas at Austin.
Dr. Doggett was diagnosed with MS in 2009, and she’s the author of the memoir, ‘Up the Down Escalator: Medicine, Motherhood, and Multiple Sclerosis’.
We'll also tell you about a research team that's looking to improve the way that stem cells are transplanted -- and why that's a good thing for people with MS.
We'll share the details behind the European Union's approval of a new Ocrevus formulation that makes the DMT much more patient-friendly.
You'll hear about the blood test for measuring a biomarker that can predict future MS disease worsening that has just gained approval in the European Union.
And we'll tell you where to find the video replay of Mobility Challenges in Progressive MS, the most recent webcast hosted by the International Progressive MS Alliance.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Lifestyle changes that will improve your quality of life :22
Researchers receive a grant to develop a better way to transplant stem cells 1:30
Subcutaneous Ocrevus has been approved in the European Union 3:50
Blood test to measure a biomarker that can predict future MS disease worsening receives approval in the European Union 5:35
Catch the video replay of the latest Progressive MS Alliance webcast 7:13
Dr. Lisa Doggett offers strategies for making lifestyle choices that will make a difference in your quality of life 8:20
Share this episode 26:50
Next Week: Dr. Jaime Imitola introduces us to VISIBL-MS 27:10
Have you downloaded the free RealTalk MS app? 27:39
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/357
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
VIDEO REPLAY of the International Progressive MS Alliance Global Webcast: Mobility Challenges in Progressive MS
https://youtube.com/watch?v=YGA-2k9JCLg&t=14sJoin the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 357
Guests: Dr. Lisa DoggettPrivacy Policy
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Over the course of her 39-year career with the National MS Society, including the past 13 years as its President and CEO, Cyndi Zagieboylo has been a driving force behind major initiatives that have fundamentally changed the MS treatment and research landscape. Creating a world where cures for MS are now within reach, Cyndi has led the work to make living with MS better today than it's ever been.
On July 1, Cyndi is retiring from her remarkable career at the National MS Society. I had an opportunity to talk with Cyndi about the progress she's witnessed and the progress she has driven in leading the MS Society. It's been a career filled with so many moments that are worthy of celebration, I am devoting this entire episode of RealTalk MS to one last conversation with Cyndi Zagieboylo.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: A final conversation with the National MS Society's President and CEO, Cyndi Zagieboylo :22
A look back at some of the most impactful initiatives that were led by Cyndi 1:43
Share this episode 30:39
Next Week: Lifestyle medicine physician Dr. Linda Doggett shares tips and strategies for making healthy lifestyle choices that will improve your quality of life 31:00
Have you downloaded the free RealTalk MS app? 31:50
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/356
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 356
Guest: Cyndi ZagieboyloPrivacy Policy
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Research is the engine that drives the future. And participating in MS research is not only vital to improving scientists' understanding of multiple sclerosis, it's also empowering. And the really good news is that you can participate in MS research from the comfort of your own home.
My guest this week is the Managing Director of the North American Research Committee on Multiple Sclerosis, Dr. Robert Fox. And we're taking a deep dive into the NARCOMS patient registry.
We'll also tell you about the latest version of AlphaFold, a highly advanced artificial intelligence model designed to help scientists design new drugs and target disease more effectively.
Evidence shows that the Epstein-Barr Virus (EBV) triggers MS. We're reviewing the results of a study that may help scientists better understand the relationship between EBV and MS.
The International Progressive MS Alliance upcoming webcast, Mobility Challenges in Progressive MS, takes place this Thursday, June 20th. Find out where you can register and why you won't want to miss this!
And we're just 6 weeks away from Crush MS, a fundraising event in Napa Valley, California that raises money to support MS research. I'll be there, and I hope you can join me! We're sharing all the details.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: The NARCOMS Patient Registry :22
The most advanced AI on earth is focused on discovering new medications 1:40
Researchers learn that Epstein-Barr Virus re-activates and drives inflammation during an MS relapse 4:00
The Progressive MS Alliance hosts a live global webcast this Thursday, June 20th! 7:17
Crush MS is just 6 weeks away 8:39
Dr. Robert Fox takes us on a deep dive into the NARCOMS patient registry 10:08
Share this episode 26:12
Next Week: A special conversation with National MS Society President and CEO, Cyndi Zagieboylo 26:33
Have you downloaded the free RealTalk MS app? 27:17
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/355
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
The NARCOMS Patient Registry
https://www.narcoms.orgSTUDY: Multiple Sclerosis Patient-Derived Spontaneous B Cells Have Distinct EBV and Host Gene Expression Profiles In Active Disease
https://nature.com/articles/s41564-024-01699-6
REGISTER for the International Progressive MS Alliance Global Webcast: Mobility Challenges in Progressive MS
https://msif.org/webcast-mobilityGet Tickets for Crush MS
https://www.crushms.orgJoin the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 355
Guests: Dr. Robert FoxPrivacy Policy
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Two weeks ago, thousands of clinicians, nurses, physician's assistants, rehabilitation experts, and others traveled to Nashville to attend the Consortium of Multiple Sclerosis Centers 38th Annual Meeting. This is Part 2 of our coverage from that meeting.
In this episode, we're sharing our conversations with some of the experts who were at the meeting to present their research.
You'll hear the National MS Society's Executive Vice President for Advocacy and Healthcare Access, Bari Talente, share her thoughts on why getting early support when you've been diagnosed with MS can make a difference in how you begin your MS journey.
Dr. Nancy Sicotte talks about why early diagnosis and treatment are important in ensuring the best long-term patient outcomes.
Dr. Brian Sandroff asks and answers the question, "Does exercise improve cognitive function in MS?"
And Dr. Anthony Feinstein shares what he and his team have learned about how cannabis impacts people with MS.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Part 2 of our coverage of the CMSC Annual Meeting :22
National MS Society Executive Vice President for Advocacy and Healthcare Access, Bari Talente, discusses the importance of finding early support when you've been diagnosed with MS 1:18
Dr. Nancy Sicotte explains why early diagnosis and treatment make a difference in MS 8:57
Dr. Brian Sandroff poses (and answers) the question, "Doe exercise improve cognitive functioning in MS?" 17:11
Dr. Anthony Feinstein shares evidence gathered from his team's research into how cannabis impacts MS 23:58
Share this episode 38:13
Next Week: The North American Research Committe on Multiple Sclerosis (NARCOMS) with Managing Director, Dr. Robert Fox 38:34
Have you downloaded the free RealTalk MS app? 38:54
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/354
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
RealTalk MS Episode 353: From the Consortium of MS Centers 38th Annual Meeting with Dr. Kathy Zackowski and Dr. Stephen Krieger
https://realtalkms.com/353Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
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RealTalk MS Episode 354
Guests: Bari Talente, Dr. Nancy Sicotte, Dr. Brian Sandroff, Dr. Anthony FeinsteinPrivacy Policy
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Last week, thousands of clinicians, nurses, physician's assistants, rehabilitation experts, and others traveled to Nashville to attend the Consortium of Multiple Sclerosis Centers 38th Annual Meeting. Welcome to Part 1 of our coverage from that meeting.
In this episode, I'm talking with Dr. Kathy Zackowski, Associate Vice-President for Research at the National MS Society, and Dr. Zackowski is sharing some of the presentations that caught her attention.
Next, you'll hear my conversation with Dr. Stephen Krieger, a neurologist at the Corinne Goldsmith Dickinson Center for Multiple Sclerosis. Dr. Krieger explains the hidden side of MS, why, when it comes to treating MS, "detecting only what we measure" isn't enough, and why an EDSS of 0 is not normal.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: We're reporting from the CMSC Annual Meeting :22
Dr. Kathy Zackowski shares some of the presentations that caught her attention 1:14
Dr. Stephen Krieger discusses the hidden side of MS, why, when it comes to treating MS, "detecting only what we measure" isn't enough, and why an EDSS of 0 is not normal 18:56
Share this episode 33:36
Next Week: Part 2 of our coverage from the CMSC Annual Meeting 33:56
Have you downloaded the free RealTalk MS app? 34:30
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/353
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 353
Guests: Dr. Kathy Zackowski and Dr. Stephen KriegerPrivacy Policy
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May 30th is World MS Day, and we're taking this opportunity to look at some of the challenges faced by people with MS around the world. Global economics and the peculiarities of different healthcare systems make fundamental issues like access to quality healthcare and affordable MS medications difficult for many and impossible for some.
U.K. journalist and MS activist Rachel Horne joins me for a freewheeling conversation focused on the broad range of challenges that people with MS face every day.
We're also sharing details about the National MS Society's Black MS Experience Summit, which gets underway June 12th and 13th. Find out why you'll want to be part of this free virtual event.
We have a lot to talk about! Are you ready for RealTalk MS??!
The National MS Society's Black MS Experience Summit is happening June 12th and 13 :24
This Week: World MS Day is May 30th 2:07
Rachel Horne talks about some of the issues confronting people with MS around the world 8:10
Share this episode 26:51
Have you downloaded the free RealTalk MS app? 27:11
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/352
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Register for the Black MS Experience Summit
https://www.nationalmssociety.org/resources/get-support/education-programs-and-library/black-ms-experience
World MS Day
https://worldmsday.orgJoin the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 352
Guests: Rachel HornePrivacy Policy
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We've reached a moment in time when it seems impossible to avoid at least some level of stress in our lives. We also know that stress has been shown to make MS symptoms worse and even trigger relapses. We can't eliminate all the stress in our lives, so learning how to manage and minimize stress is an important part of living well with MS.
This week, Dr. Grace Tworek, a Clinical Health Psychologist at the Mellen Center for Multiple Sclerosis at the Cleveland Clinic, joins me to talk about best practices when it comes to managing stress when you're living with MS.
We're also sharing details about the $649,000 grant made by the National MS Society to support the development of an experimental remyelination treatment.
If MS is detected early -- before an individual experiences even a single symptom -- and that individual is treated aggressively with a high-efficacy disease-modifying therapy, could that individual lead a life without experiencing any symptoms of MS? We'll tell you how that scenario is playing out right now.
We'll tell you about research that revealed differences in the connections between nerve cells in the brain based upon biological sex.
And we'll share survey results that show people with MS may be so embarrassed about some of their symptoms that they aren't discussing them with their care team.
We have a lot to talk about! Are you ready for RealTalk MS??!
The complexity of the human brain :22
This Week: Managing stress when you're living with MS 2:08
National MS Society invests $649,000 in experimental remyelination treatment 2:57
Stopping MS before symptoms start 4:32
Study shows that connections between nerve cells vary by biological sex 6:30
Are people with MS too embarrassed to discuss some of their symptoms with their care team? 8:31
Dr. Grace Tworek discusses strategies to manage stress when you're affected by MS 11:44
Share this episode 27:27
Have you downloaded the free RealTalk MS app? 27:47
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/351
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
A Browsable Petascale Reconstruction of Human Cortex
https://h01-release.storage.googleapis.com/landing.html
STUDY: Deep Learning with Diffusion MRI as In Vivo Microscope Reveals Sex-Related Differences in Human White Matter Microstructure
https://www.nature.com/articles/s41598-024-60340-y
Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 351
Guests: Dr. Grace TworekPrivacy Policy
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There are more than 20 disease-modifying therapies available to treat MS today. Some are considered high-efficacy, some are considered moderately effective, and each has its own risk profile and side effects to consider. So, how do you choose?
How much homework should someone living with MS do? Where should you look for reliable information? And what if you and your neurologist don't necessarily agree?
Joining me to talk about your role when it comes to choosing the right DMT through shared decision-making with your neurologist is Dr. Barbara Giesser. Dr. Giesser is an internationally recognized clinician and award-winning educator who has specialized in the care of people with multiple sclerosis since 1982, a full decade before there was even a single disease-modifying therapy available to treat MS.
Dunk MS takes place This Saturday, May 18th on the UCLA campus, at iconic Pauley Pavilion. And if you're in or around Southern California, you won't want to miss this unique event. We're sharing all the details, so don't miss my conversation with Dunk MS founder, Blake Arnet.
Since we're talking about shared decision-making this week, we're sharing details of a study that asked the question, "How much do people living with MS know about MS?"
And if you've found yourself worried about smoldering MS, you'll be pleased to learn that a recent study showed that sophisticated PET imaging is able to identify this hidden, persistent inflammation in MS.
We have a lot to talk about! Are you ready for RealTalk MS??!
350 Episodes! :22
This Week: Finding the right DMT through shared decision-making 1:04
Dunk MS is just days away! My conversation with Blake Arnet 2:31
How much do people living with MS know about MS? 10:57
PET imaging reveals persistent hidden inflammation in MS 15:37
Dr. Barbara Giesser discusses choosing the right disease-modifying therapy through shared decision-making with your neurologist 20:04
Share this episode 33:13
Have you downloaded the free RealTalk MS app? 33:33
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/350
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Get Your Tickets for Dunk MS
https://dunkms.comSTUDY: A Systematic Review to Explore Patients' MS Knowledge and MS Risk Knowledge
https://link.springer.com/article/10.1007/s10072-024-07541-5
STUDY: Glial Activity Load on PET Reveals Persistent "Smoldering" Inflammation in MS Despite Disease-Modifying Treatment
https://journals.lww.com/nuclearmed/fulltext/2024/06000/glial_activity_load_on_pet_reveals_persistent.1.aspx
Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkmsDownload the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalkGive RealTalk MS a rating and review
http://www.realtalkms.com/reviewFollow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 350
Guests: Blake Arnet and Dr. Barbara GiesserPrivacy Policy
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As we age, our bodies undergo biological changes. Our immune system changes. Our brain changes with age. Our cognitive abilities change, as do our physical abilities. These changes impact everyone. But these biological processes may impact people with MS differently. And MS may impact these biological processes differently.
Just a couple of weeks ago, the International Advisory Committee on Clinical Trials in MS brought together 100 top experts for a 3-day workshop dedicated to exploring how these many and varied changes can impact MS care.
In Part 2 of our coverage, we're taking you back inside this workshop, where you'll hear from some of the top MS researchers and clinicians who participated in this important meeting.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: We continue our coverage of the Aging and MS Workshop :22
Dr. Sarah Morrow and Dr. Yinan Zhang discuss survey results which showed what neurologists and other members of the MS care team see as "gaps" in delivering treatment to patients as they age with MS 1:45
Dr. Giuseppe Portillo describes how artificial intelligence can be used to analyze "brain gap" and predict future MS disease progression 13:03
Dr. John Corboy shares results from two studies that focused on discontinuation of disease-modifying therapy for patients over the age of 60 20:31
Kathy Smith talks about the importance of including older people living with MS in clinical research 31:00
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RealTalk MS Episode 348: From the International Advisory Committee on Clinical Trials in Multiple Sclerosis Aging and MS Workshop (Part 1)
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RealTalk MS Episode 349
Guests: Dr. Sarah Morrow, Dr. Yinan Zhang, Dr. Giuseppe Portillo, Dr. John Corboy, and Kathy SmithPrivacy Policy
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