Episodios
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Welcome back for the final episode of our summer book club with Jessica Fein. Today, we discuss writing. Jessica shares helpful advice for anyone looking to begin writing. The girls talk about the importance of sharing their stories in whichever medium is most relevant to them. They also talk about the importance of finding community in writing.
“When you say, ‘I’m writing a book,’ it changes everything.” -Jessica
Here’s what you don’t want to miss:
Advice for writing Mindset Writing to ourselves Met judging yourselfConnect with Jessica:
Jessica Fein
Buy her book
Summer is a new season with stress and relaxation together at the same time. We hope you can find a moment to relax with a good book, or whatever gives you a moment of peace. We are so grateful for Jessica taking the time to share her story for our summer reading series. Are you reading along with us? Do you have any good writing prompts you want to share? Let us know in the When Autumn Comes Society or send me a DM on Instagram! I'd love to hear from you!
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
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In today’s episode of Summer Reading with When Autumn Comes, Suz, Katrina, and Jessica discuss joy. We always discuss what gives us hope, but where is the joy in this life of medical complexity? Maybe moms of medically complex kids mope around in black and grey all day long. Maybe some do, but not these girls! The girls discuss how they create moment’s of joy, finding it in the every day, and intentionally seeking it out. They discuss the importance of finding joy, not only for their children, but also for themselves. Stay tuned for helpful tips they have discovered over the years.
“We can create corners of beauty in the midst of the chaos.” -Jessica
Here’s what you don’t want to miss:
Choosing to live in hope Creating moments of joy Skate parks Finding joy for ourselvesConnect with Jessica:
Jessica Fein
Buy her book
Summer is a new season with stress and relaxation together at the same time. We hope you can find a moment to relax with a good book, or whatever gives you a moment of peace. We are so grateful for Jessica taking the time to share her story for our summer reading series. Are you reading along with us? Let us know in the When Autumn Comes Society or send me a DM on Instagram! I'd love to hear from you!
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
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Welcome back to another episode of our summer book club. We hope you are reading along with us and joining in the conversation in the When Autumn Comes Society. This week we are discussing isolation in medical motherhood. We talk about the reasons why we feel isolated and how that impacts our families. We discuss ways in which we have found community both in person and online.
“Nobody can relate to you anymore” -Jessica
Here’s what you don’t want to miss:
Relating to others Finding people online Isolation for the other children The villageConnect with Jessica:
Jessica Fein
Buy her book
Summer is a new season with stress and relaxation together at the same time. We hope you can find a moment to relax with a good book, or whatever gives you a moment of peace. We are so grateful for Jessica taking the time to share her story for our summer reading series. Are you reading along with us? Let us know in the When Autumn Comes Society or send me a DM on Instagram! I'd love to hear from you!
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
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Thank you all for joining us for round 2 of our Summer Reading Series. We hope you are loving Jessica’s book! This week, she joins us again to talk about adjusting to the new normal. What we all know now is that the “new” normal is something that is ever changing. We are always adjusting. Adjusting to life after diagnosis, life after hospitalization. For some of us, life after they have left us.
“For all this time, they define our identity and what happens after?” -Jessica
Here’s what you don’t want to miss:
Welcome back Jessica Always new normal Checking the box The importance of sharingConnect with Jessica:
Jessica Fein
Buy her book
Summer is a new season with stress and relaxation together at the same time. We hope you can find a moment to relax with a good book, or whatever gives you a moment of peace. We are so grateful for Jessica taking the time to share her story for our summer reading series. Are you reading along with us? Let us know in the When Autumn Comes Society or send me a DM on Instagram! I'd love to hear from you!
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
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Happy summer friends! It is July in Virginia and the rainbows at the hideaway do not disappoint. So, we celebrate summer with a Summer Reading series. Please join us in welcoming back Jessica. Jessica last joined us in April of 2023, but today she returns, a newly published author! Throughout this series, we will discuss themes that run throughout Jessica’s book. In this episode, we chat about “the diagnosis”. Everyone’s journey to a diagnosis is unique. Let’s dive into Jessica’s journey.
“And that’s where the hammer came down, was in the genetic testing.” -Jessica
Here’s what you don’t want to miss:
Welcome back Jessica Dahlia Phases of the journey Diagnosis AdviceConnect with Jessica:
Jessica Fein
Buy her book
I don’t know how you do it
Summer is a new season with stress and relaxation together at the same time. We hope you can find a moment to relax with a good book, or whatever gives you a moment of peace. We are so grateful for Jessica taking the time to share her story for our summer reading series. What are you reading? Let me know in the When Autumn Comes Society or send me a DM on Instagram! I'd love to hear from you!
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
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4AM: Retreats and Thunderstorms
Today Christi joins us again to try to convince Katrina to come to America for a retreat in August. Stay tuned to see whether she was successful.
Links and resources:
Follow Suz: @suzgeoghegan Follow Katrina: @kattymac Join the conversation: www.facebook.com/WhenAutumnComesSociety Follow us on Facebook: www.facebook.com/WhenAutumnComesPodcast Follow us on Instagram: @WhenAutumnComesPodcastMake sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories of medical and special needs parenting from families like yours.
And, if you enjoyed this episode, please leave us a rating and a review? Thanks!
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Trigger Warning: Shaken Baby Syndrome
Some sources estimate that a parent makes 35,000 decisions per day for our child. Some of these are small, like what socks to wear. Others, more important, like who will care for them while we are away. We hope we make these decisions we make, both big and small, add up in ways that create a safe and healthy environment for our babies. But what if…What happens when the person we have trusted our baby does the un-thinkable?
Today we sit down with Christi. She bravely shares her story, of how her son was harmed by the very person she had trusted to care for him. She shares his medical journey, and the trauma her family has endured.
“Everyone knows not to do that to a baby.” - Christi
Here’s what you don’t want to miss:
Introducing Christi Shaken Baby syndrome The Incident The babysitter What if Decisions Mom gut Hindsight What gives Christi hopeMedical motherhood is challenging whether you are “born” into it, or through a tragic accident. In a world where life can feel isolating, please know you are not in this alone. Join us in the When Autumn Comes Society or send us a DM on Instagram! We'd love to hear from you!
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
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4AM: I see dead people
4AM is back! Today we are chatting about seeing things in our minds… or not. Welcome to the conversation!
Links and resources:
Follow Suz: @suzgeoghegan Follow Katrina: @kattymac Join the conversation: www.facebook.com/WhenAutumnComesSociety Follow us on Facebook: www.facebook.com/WhenAutumnComesPodcast Follow us on Instagram: @WhenAutumnComesPodcastMake sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories of medical and special needs parenting from families like yours.
And, if you enjoyed this episode, please leave us a rating and a review? Thanks!
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100 episodes. We have now officially recorded 100 episodes. When we started this podcast, we hoped to connect moms. Moms of children with complex needs, feeling alone in the day to day of raising children who depended upon them in ways typical parents may not understand. This podcast has given us the opportunity to share our stories, to create community, to share hope.
Thank you to our listeners for joining us along this ride, whether you have been with us from the beginning, or just now at episode 100. We are so grateful for this community that we get to share in. For sharing your joys, your tears, your hope. These stories, your comments, your likes give us that sense of the sun’s warmth during those cold winter days.
“Its gonna be beautiful in its own incredible way.” - Suz
Here’s what you don’t want to miss:
Why we started Priorities Anticipatory Grief Validation Who are you? Pure Magic HopeMedical motherhood should not be undertaken alone. We understand the importance of community, in the celebrations and in the heartaches. In a world where life can feel isolating, please know you are not in this alone. Join our community in the When Autumn Comes Society or send us a DM on Instagram! We'd love to hear from you!
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
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This week, we chat birthday parties during heat waves, the difference between a Canadian heat wave and an American heat wave, and who punched Suz. Welcome to the conversation!
Links and resources:
Follow Suz: @suzgeoghegan Follow Katrina: @kattymac Join the conversation: www.facebook.com/WhenAutumnComesSociety Follow us on Facebook: www.facebook.com/WhenAutumnComesPodcast Follow us on Instagram: @WhenAutumnComesPodcastMake sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories of medical and special needs parenting from families like yours.
And, if you enjoyed this episode, please leave us a rating and a review? Thanks!
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Five…Five feels like a milestone birthday, from when a little kid turns into, well…not a big kid, but a kid kid. Five is also creeping closer and closer to the age Benji’s sister, Lorelei, was when she gained her angel wings. Birthdays are bittersweet when your child has a terminal diagnosis. For Benji, for Mamma, this birthday is worthy of celebration. And celebrate we did! Stay tuned while we discuss Benji’s epic fifth birthday Dude Ranch Dressing celebration.
“So, they’re walking around with a pony and a kid on it in a ranch dressing costume.” - Suz
Here’s what you don’t want to miss:
Benji turning 5 Hidden Valley Bittersweet 5 Piggy Love Friends Worth it?Medical motherhood can feel overwhelming, questioning at times if the celebration is even noticed. We know how important it is to celebrate the milestones, inch stones, and make the memories. How do you make birthdays special? Let us know in the When Autumn Comes Society or send us a DM on Instagram! We'd love to hear from you!
When Autumn Comes:
The Lavender Farm Episode
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
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4AM: Celebration and Rage
4AM is back! Today we are chatting about celebrations, rage, and child proofing AirBnB’s. Welcome to the conversation!
Links and resources:
Follow Suz: @suzgeoghegan Follow Katrina: @kattymac Join the conversation: www.facebook.com/WhenAutumnComesSociety Follow us on Facebook: www.facebook.com/WhenAutumnComesPodcast Follow us on Instagram: @WhenAutumnComesPodcastMake sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories of medical and special needs parenting from families like yours.
And, if you enjoyed this episode, please leave us a rating and a review? Thanks!
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Medical motherhood can take its toll on you. The ups, the downs, the trauma, the lack of time for yourself…It is ok not to be ok. Even better, it is ok to ask for help. Today, Susan and Katrina sit down to discuss therapy. The hard, the good, their reasons for going. If you have ever been scared to ask for help, we hope this episode gives you the nudge to do it. As moms, we need to be our best to give our best to our children. Therapy is one of the tools that helps us to do that.
“Its not horrible because its so good and so rewarding.”-Katrina
Here’s what you don’t want to miss:
Finding a Therapist EMDR Therapy first date Do we enjoy therapy? Core of the onion Why we goMedical motherhood can feel isolating, leaving you searching for answers and resources. We want you to know that it is ok to ask for help. Do you have the resources you need? Do you enjoy therapy? Do you treat yourself when you go? Let us know in the When Autumn Comes Society or send us a DM on Instagram! We'd love to hear from you!
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
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As we approach Father’s Day, we welcome back Daniel for what has now become his annual holiday visit to the podcast. Daniel first spoke with us in 2022. Check out the link below to give the original interview a listen, I promise it’s a good one. Since we last spoke, Daniel has been busy sharing his own story and helping other parent’s to do the same. Today, we discuss the art and importance of storytelling. We see how the sharing of a story can bring together communities and help those who are isolated, feel less so. The stories we share are shared uniquely from our own perspective. When our children are unable to share their own stories, we are able, in a small way, to give a voice to the voiceless.
“For anyone who’s thinking of sharing their story there is a benefit to you personally, even if you just shove that story in your dresser drawer and never show anybody.”-Daniel
Here’s what you don’t want to miss:
Lucas’s trees Why we share Finding help and hope “For them” How to share What gives Daniel hopeMentioned in this Episode:
Daniel’s First interview with WAC
Daniel’s Second interview with WAC
Global Genes
The Disorder Channel
Courageous Parents Network
Medical parenthood can feel isolating, leaving you searching for answers and resources. Daniel has shown us how sharing our stories helps us to connect with our community. Are you interested in learning more? Let me know in the When Autumn Comes Society or send me a DM on Instagram! I'd love to hear from you!
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
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Most parents can relate to the sense of losing themselves at least a little bit to parenthood. We leave behind our hobbies and dedicate ourselves to caring for these tiny humans who have taken up residence in our lives. Medical and special needs parenthood takes that to a different level. How do we maintain ourselves in the midst of this defining title of medical parent?
This week, we meet Elena. Elena is not only a medical mom, but also a fierce advocate and founder of a nonprofit. She has dedicated her time and skills to education and advocacy for the disability community. Elena introduces us to the topic of codependency in caregiving. She shows us that even as our lives change, we can maintain our sense of self and purpose outside of and along with our title of medical parent.
“If you hear people talking about their journey publicly, it doesn’t mean we have this figured out. We’re just living this out loud.”-Elena
Here’s what you don’t want to miss:
About Elena Xiomara Little Lobbyists Codependency Cliff Notes Letting Go Staying In Check Really good year? What gives Elena HopeMedical motherhood can feel isolating, leaving you searching for answers and resources. We are so grateful for Elena and the work she has done to fill gaps in the community. Are you interested in learning more? Let me know in the When Autumn Comes Society or send me a DM on Instagram! I'd love to hear from you!
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
Catch up with Elena:
Little Lobbyists
On Instagram
On Facebook
Thank you so much for joining me on this journey. Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories from other members of our medical and disabled community.
If you enjoyed this episode, please leave us a 5-star rating and a review so we can reach more moms with medically complicated, rare, beautiful children.
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For those of you who listened in on Season 5, I know you have been at the edge of your seats waiting for Season 6 to start! Season 5 sure was a nail biter, filled with exciting content. Can you sense the sarcasm? I had wonderful guests and lofty plans, but the weight of medical motherhood, running a nonprofit, and life in general certainly kept me from those plans. Don’t lose hope though, the podcast is back and this time with backup!
Last season, we met Katrina. This season, we bring her back as co-host. Today, we get to hear more about the woman behind the microphone: her family, her hobbies, what makes Katrina, Katrina.
“It just made me feel less alone.” -Katrina
Here’s what you don’t want to miss:
Eliana
Teenagers
Relationships between children
The diagnosis
Just for fun
What gives Katrina hope?
Medical motherhood can feel so isolating. It is exciting to connect with another mom and share in this journey with you all. Do you have questions for Katrina? Let us know in the When Autumn Comes Society or send us a DM on Instagram! We would love to connect. Don’t forget to check out Katrina’s Season 5 episode.
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
Thank you so much for joining me on this journey. Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories from other members of our medical and disabled community.
If you enjoyed this episode, please leave us a 5-star rating and a review so we can reach more moms with medically complicated, rare, beautiful children.
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Amanda and Suz are talking about the latest encounter they have had with their amazing girls from Heaven.
Links and resources:
Follow Suz: @suzgeoghegan
Join the conversation: https://www.facebook.com/groups/245467847367923
Follow us on Facebook: www.facebook.com/WhenAutumnComesPodcast
Follow us on Instagram: @WhenAutumnComesPodcast
WAC is a program of the Apricity Hope Project - a nonprofit organization dedicated to caring for caregivers of medically complex and disabled children.
Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories of medical and special needs parenting from families like yours.
And, if you enjoyed this episode, please leave us a rating and a review? Thanks!
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The internet is an interesting place. A place of connections, for both good and bad. A place for sharing knowledge, and a place for following people you have never met. Every now and again a creepy internet stalker turns out to be an actual really wonderful person. Every now and again, that really wonderful person turns into a friend. Enter Amanda.
This episode, we get to hear Amanda’s story. Amanda is a fellow mito mom of a beautiful little girl who is now watching over her from heaven. She is also an expectant mother of a baby boy. Amanda shares with us her journey, from the grief of losing her daughter, to the celebration of learning she was having a son. We discuss how she manages the two opposing emotions and how she hopes to keep her daughter’s memory alive.
“To live in celebration, that’s unknown and foreign to me.” -Amanda
Here are the details from Amanda and Susan’s chat:
Introducing Amanda
Breaking all of the rules
Telling the world
Going in all directions
Grief and joy together
Impossible decisions
Letting the legacy live on
Medical motherhood is one filled with unique and challenging decisions, as well as unique and challenging emotions, sometimes in opposition and at the same time. Amanda has so graciously shared her story with us today, and I hope that it has been helpful for someone at home. Can you relate to Amanda’s story? Let me know in the When Autumn Comes Society or send me a DM on Instagram! I'd love to hear about how this helped you.
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
Thank you so much for joining me on this journey. Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories from other members of our medical and disabled community.
If you enjoyed this episode, please leave us a 5-star rating and a review so we can reach more moms with medically complicated, rare, beautiful children.
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When “they” say this journey is a rollercoaster, guys, whoever “they” are, they aren’t kidding. These past few months have brought struggles and hardship, along with moments of joy, and glimpses, twinklings, little birdies of hope. Suz is back for an update on life these days and why she has been radio silent on the podcast.
In this episode, we hear about how Suz took selfies with the president. More importantly, we get an update on Benji, and the state of the Apricity Hope Project. Suz talks about priorities and five year plans. Spoiler alert, nothing ever goes as planned. Sometimes you are surprised with how things turn out differently. Sometimes, you need to let go, just a little, in order to grow.
“I am not the only medical momma who is a control freak.” --Suz
Here is the what Suz gets into today:
Where are we now?
White House
Update on Benji
Where does that leave Suz?
For vs to
What’s going on with the podcast?
Five year plan
Medical motherhood is all consuming. How do we take care of ourselves in the process of caring for our children? Do you have tips to do “for” you, instead of “to” you? Let me know in the When Autumn Comes Society or send me a DM on Instagram! I'd love to re-connect.
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
Thank you so much for joining me on this journey. Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories from other members of our medical and disabled community.
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You’ve heard it before…medical parenting is not for the faint of heart, medical parenting is a roller coaster. With hospitalizations come tests, and fear, and pain. After discharge, the family processes everything that just happened, the “new normal”. For some, this happens frequently. How do you manage the in-between hospital time, waiting for the next medical change?
Today, we meet Katrina. Katrina is a mom of three children, one of whom has medical complexities. Katrina shares with us what it looks like to manage her youngest child’s medical complexities, while also parenting two teenagers. We discuss the ups and downs of repeat hospitalizations. We talk about how we all manage the trauma that comes from watching your child experience medical changes, tests, and treatments differently. While some struggle during the hospitalization, others crash once they are home, or in the anxiety of waiting for the other shoe to drop.
“Every time you come home, you have to adapt again, and adapt again, and adapt again.” -Katrina
Here are the details from Katrina and Susan’s chat:
Introducing Katrina
Connecting
Ellie
Hospital Milestones
Handling the re-admit
The crash
Recovery
Advice
Medical motherhood is often filled with hills and valleys, which are often unpredictable. I hope that Katrina has given you a glimmer of hope when you are deep in a valley. Do you have questions for Katrina or advice for navigating this journey? Let me know in the When Autumn Comes Society or send me a DM on Instagram! I'd love to hear about how this helped you.
Catch up with Suz:
Instagram
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
Thank you so much for joining me on this journey. Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories from other members of our medical and disabled community.
If you enjoyed this episode, please leave us a 5-star rating and a review so we can reach more moms with medically complicated, rare, beautiful children.
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