Episodit
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Dr. Ma advises people with rheumatoid arthritis to start small, listen to their body, and use her "START" guide to gradually build an active routine that feels right for you. She also explains how the START guide is a useful tool for clinicians like physiotherapists and occupational therapists to support patients in developing sustainable strength training routines.
Dr. Ma also shares her favorite mantra, "control the controllables and enjoy the enjoyables," which is a great reminder to focus on what you can manage and find joy in the little things. Plus, Cheryl and Dr. Ma dive into how having a supportive community—whether it’s big or just a few people—can make a huge difference in thriving with RA!
Episode Themes:
Physical Activity with RA: Dr. Ma shares how you should listen to your body’s needs and pace yourself to avoid overexertion. Physical activity is more than exercise; it’s about reducing sedentary time and increasing daily activity.
Kinesiologist’s Approach to Movement: Using the 24-Hour Movement Guidelines, Dr. Ma talks about the balance of physical activity, sleep, and reducing sedentary behavior, all while accounting for the challenges posed by RA.
The Importance of Community: Cheryl and Dr. Ma discuss how community is key for thriving with RA, but it looks different for everyone. Whether it’s a large group, one-on-one support, or reaching out to a healthcare professional, connection makes a difference.
Inspirational Mantra: Dr. Ma shares her favorite saying: "Control the controllables and enjoy the enjoyables." Focus on what you can manage and find joy in the present moment.
Empowering Mindset: Cheryl and Dr. Ma discuss how RA management is about becoming your own scientist and finding what works best for you.
Mental Shift on Exercise: Cheryl and Dr. Ma explore the idea of reframing exercise as something empowering, rather than just a necessity, and how staying active can contribute to feeling more in control of your health.
Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
For full episode details include a transcript and video:Go to the episode page on the Arthritis Life Website.
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Through his experiences, Dr. Kaleb offers practical advice on navigating life with rheumatoid arthritis, focusing on self-management strategies like getting enough rest and using ergonomic tools.
He and Cheryl also dive into pain management, discussing evolving research on the potential benefits of cannabis. Dr. Kaleb’s personal insights into balancing work and life offer hope for finding purpose and joy despite the challenges of living with arthritis. Together, they emphasize the importance of living meaningfully through activities like board games, time with family, and staying connected to a supportive community.
Episode Themes:Personal Experiences and Resilience: Dr. Kaleb’s shares his personal journey with juvenile idiopathic arthritis, from diagnosis at age 3 to today. Self-Management & Lifestyle: Cheryl & Dr. Kaleb discuss strategies for managing physical pain through ergonomic tools, proper footwear, and weight management.Importance of Sleep: The critical role of good sleep in managing chronic illness, including the impact of sleep apnea and the benefits of CPAP therapy.Managing a dual role of patient and researcher: Dr. Kaleb reflects on his decision to “go public” with his diagnosis of JIA after being known as an arthritis researcher, and discusses the pros and cons of sharing your story publiclyCannabis and Pain Management: The evolving research and patient experiences with cannabis as a tool for managing chronic pain, despite its legal and research limitations.Misinformation and Evidence-Based Care: The challenge of navigating biased or incomplete information about treatments and the importance of relying on evidence-based medicine.Arthritis Research and the Role of Learning from the Patient’s lived experience: Dr Kaleb explains the importance of the FORWARD databank.com for ongoing research to improve patient outcomes. Entertainment and Personal Interests: The role of hobbies, such as board games and movies, in providing enjoyment and coping with chronic illness.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
For full episode details include a transcript and video:Go to the episode page on the Arthritis Life Website.
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Sonia talks about how daily gratitude, yoga, medications, and the support of groups like Rheum to THRIVE have helped her pursue joy amidst the challenges of rheumatoid arthritis (RA), Graves’ disease and other chronic conditions.
Sonia shares how the Rheum to THRIVE support group provided her with the courage to be vulnerable and set boundaries. Cheryl and Sonia reflect on how these groups become sacred spaces where individuals can fully engage with their emotions, be witnessed without judgment, and sometimes find unexpected moments of humor and joy amidst the challenges.
The discussion offers valuable tips and relatable moments for anyone living with RA, with gentle reminders to take things one day at a time. Overall, Cheryl and Sonia encourage you to embrace acceptance and community so you can live a more empowered and fulfilling life with chronic illness.
Themes of the EpisodeSelf-Acceptance and Grace: Sonia emphasizes the importance of self-compassion, practicing grace, and ease with oneself, especially in dealing with the uncertainties and challenges of life with RA.The Power of Social Media and Community Support: Cheryl talks about using social media as a tool for patient education and support, while Sonia highlights the significance of connecting with others, particularly through the Rheum to THRIVE support group, to share experiences and support one another.Yoga, Mindfulness and Embracing the Present: Sonia shares the pivotal role yoga had in transforming her relationship to her body and helping her embrace th represent moment.Coping with Rheumatoid Arthritis (RA) Through Humor: Both Cheryl and Sonia discuss the role of humor in coping with the challenges of RA, acknowledging that while it may not resonate with everyone, it provides them with a sense of normalcy and relief.Daily Tools and Adaptations for Living with RA: The conversation touches on practical tools like ring splints, compression gloves, and supportive pillows that help manage the physical challenges of RA.Sharing Personal Mantras and Wisdom: Both Cheryl and Sonia share how gratitude practices and self-forgiveness help them live more peacefully with rheumatoid arthritis.The Impact of RA on Daily Life and Relationships: The conversation also explores how RA affects daily activities, relationships, and the emotional aspects of living with a chronic illness.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
For full episode details include a transcript and video:Go to the episode page on the Arthritis Life Website.
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In this episode, Cheryl Crow and Dr. Liana Fraenkel dive into the crucial concept of "Shared Decision Making" (SDM) in rheumatoid arthritis care. SDM is a collaborative approach where patients and doctors work together to develop a treatment plan. It empowers patients to express their preferences and values, while doctors listen actively and consider these when recommending treatments.
The discussion also touches on the role of education in SDM, especially when it comes to understanding the pros and cons of different medications. Cheryl and Dr. Fraenkel address medication hesitancy, highlighting research that shows how patients benefit from hearing not only from their doctors but also from others who have firsthand experience with rheumatic disease medications.
Finally, Dr. Fraenkel and Cheryl emphasize the importance of ongoing research in rheumatology and the need to strengthen the rheumatology workforce, given the current shortage. They explore the efforts of the Rheumatology Research Foundation and discuss ways for patients to get involved in supporting these vital initiatives.
Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
For full episode details including a video and transcript:Go to the episode page on the Arthritis Life Website.
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In this episode, Maggie shares valuable insights from life with axial spondyloarthritis, sjogren’s, osteoarthritis, hypermobility, migraine, and POTS. She also shares her treatment journey which she divides into a “discovery phase, treatment phase, and tinkering phase.”
Maggie and Cheryl discuss practical advice for managing multiple chronic illnesses, including the importance of social support and finding joy in daily experiences. They also discuss their best coping skills for times when managing your health feels like “orchestrating a circus.” Ultimately, Maggie and Cheryl discuss the importance of savoring life's moments and adapting to new ways of living, rather than trying solely to return to a pre-illness lifestyle.
Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
For full episode details including a video and transcript:Go to the episode page on the Arthritis Life Website.
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Back in January 2021, I shared the eight most important things that loved ones should know, so they can best support people with autoimmune arthritis. This episode includes messages and insights from twenty-eight other patients!
Today, I’m re-releasing this episode with some additional insights I’ve gained after leading patient support and self-management groups over the last 4 years. Did I miss anything? Let me know in the comments!
Episode at a glance:One – We want you to learn what the disease is and isn’t.Two – The fatigue can be just as bad as the pain.Three – It doesn’t just affect the body – it also affects the mind and emotions.Four – It affects EACH person differently.Five – Daily symptoms are often unpredictable.Six – We want credit for how hard we’re fighting, even when we seem “normal.”Seven – Sometimes we need problem solving, other times we need empathy.Eight – Managing the disease itself is a job that takes time and energy.Bonus point: Take care of YOUR needs as the caregiver/friendConcluding thoughtsMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
For full episode details:For a full transcript of this episode and detailed show notes, go to the episode page on the Arthritis Life website.
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Cheryl and Jen share exciting trends in rheumatology research that will help improve quality of life and develop better targeted treatments for rheumatic disease. They also discuss the importance of involving patients at all levels of research, and shared simple ways that listeners can get involved. Additionally, Cheryl and Jen reflected on the importance of social support in their personal journeys living with rheumatoid arthritis, and the importance of support groups in navigating life with chronic conditions.
Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
For full episode details including a video and transcript:Go to the episode page on the Arthritis Life Website.
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In this episode, Stasha shares her diagnosis journey for rheumatoid arthritis and reflects on what it was like being a parent to small children while learning how to adapt to rheumatoid arthritis.
Stasha also shares how her quest to merge science-based and natural methods led her to starting a blog. Cheryl and Stasha reflect on the role “obstinance” or stubbornness has played, and reflect on the therapeutic benefits of humor.They also discuss how they view assistive devices in a positive light, and discuss how their identities have been affected by chronic illness.
Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
For full episode details including a video and transcript:Go to the episode page on the Arthritis Life Website.
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Have you ever read a love story that features someone with chronic illness? In this episode, author Marissa Eller shares how living with RA led her to write her debut young adult (YA) romantic comedy book "Joined at the Joints." She and Cheryl discuss the importance of authentic representation in books and media, particularly for those with invisible disabilities.
Marissa also shares what it’s like to be an author with RA, including strategies to accommodate her needs and how writing can be a therapeutic form of expression. The conversation concludes with a discussion about the best advice for the newly diagnosed.
Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
For full episode details including a video and transcript:Go to the episode page on the Arthritis Life website.
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What’s it like to suddenly go bald at age 22? In this episode, Cheryl interviews Colleen Kydd, who speaks candidly about living with autoimmune alopecia. She shares how she went from covering her baldness with wigs to confidently, unapologetically embracing her identity as a “bald girl in a big world!” Colleen shares how she managed her alopecia in the corporate world, dating life, world travels and new role as an entrepreneur.
Throughout the episode, Cheryl and Colleen discuss acceptance, self compassion, and the crucial importance of connecting with others when we’re struggling. Cheryl and Colleen reflect on the transformative power of storytelling, and the importance of pursuing a meaningful life amidst the challenges of chronic illness.
Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
For full episode details:Go to the episode page on the Arthritis Life website for full show notes plus a full transcript, video and more!
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In this episode, Katie reflects on the crucial role that parental and patient advocacy played in her her journey to a diagnosis of juvenile idiopathic arthritis (JIA). She also shares her college experience, and discusses the roles that comedy and humor have played in helping her cope. Cheryl and Katie express the importance of accepting the need for assistive devices, setting boundaries, believing in oneself, prioritizing needs, and having a support system to thrive with chronic illness.
Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Episode at a glance:Kate’s Diagnosis Story at age 15: Katie shares her journey of being an active child and being diagnosed juvenile rheumatoid arthritis (juvenile idiopathic arthritis) at age 15 after experiencing symptoms for an extended period of time that were initially dismissed as “growing pains”.Advocacy: Katie emphasizes the crucial role her mother played in advocating for her during medical appointments, highlighting the importance of having a supportive network. Katie shares advice on self-advocacy, encouraging patients to set firm boundaries and prioritize their needs, even if it means challenging expectations.Support: The conversation emphasizes community and connection, and the benefit of having someone in your corner to help advocate with you.Coping Strategies: Practical tips are shared, including the use of specialized tools and gadgets designed to make daily tasks easier for individuals with arthritis. Katie also shares her experience with medical marijuana.Comedy: Katie shares the importance of comedy in her life, and how it helps her cope with her diagnosis and spread awareness of it.Accommodations: Katie and Cheryl discuss access to accommodations, particularly in educational settings, such as extended test time and speech-to-text tools for students with chronic illnesses.Living Authentically: Katie advocates for a balanced approach of embracing realism while maintaining a positive outlook, acknowledging both the challenges and opportunities for growth that come with chronic illness.Advice to Newly Diagnosed Patients: Carry on, stick up for yourself, and believe in yourself. Write down three things that made you proud each day.For full episode details:Go to the episode page on the Arthritis Life website for full show notes plus a full transcript, video and more!
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Cheryl, Dr. Yu and Dr. Feldman share their patient experiences and exploring problems with current healthcare systems. They then share how these problems led them to form creative patient programs and services. Cheryl shares the origin story for her Rheum to THRIVE program, and Dr. Yu and Dr. Feldman share how they created Rheumission, a virtual first integrative Rheumatology and Lifestyle clinic for people living with autoimmune disease.
Overall, our passion for reimagining autoimmune care shines through as we highlight gaps in current treatment paradigms, and outline visions for a more inclusive, holistic and effective healthcare model that is proactive versus reactive.
The discussion concludes with an exploration of cutting-edge advancements in telemedicine and personalized medicine, and all speakers share their best advice for newly diagnosed patients.
Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Episode at a Glance:Importance of personalized care: we discuss the importance of personalized treatment plans tailored to individual needs, rather than one size fits all solutions.Revolutionizing autoimmune care: we explore the potential positive impact of integrating biotech, digital health, and virtual-first approaches to enhance research, diagnostics, and treatment, with Rheumission as an example.Multidisciplinary approach: we highlight the importance of team-based care in rheumatology and autoimmune care, where you can see not only a rheumatologist and rheumatology nurse but also get care from a multidisciplinary team (including registered dietitians, mental health therapists, physical and occupational therapists, etc).Taking a holistic approach: we explore the interconnectedness of physical and mental health, addressing lifestyle factors, stress management, and environmental influences.Exploring Mental Health: The conversation highlights the well-documented correlation between autoimmune diseases and mental health issues like anxiety and depression.Why is accessibility important: we discuss the problem of long waiting times for rheumatology appointments and possible solutions.Advocacy for patient involvement: Dr. Bonnie emphasizes the importance of empowering patients to take charge of their health and actively participate in decision-making processes.For full episode details:Go to the episode page on the Arthritis Life website for full show notes plus a full transcript, video and more!
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After facing skepticism from some medical professionals who doubted her ability to run, Gretchen defied expectations and has completed over 100 half marathons, all while raising money and awareness for autoimmune causes.
She and Cheryl also discuss the importance of self compassion in their journeys with chronic autoimmune disease. Gretchen shares why she resonates with progress over perfection and encourages others to be gentle with themselves while navigating life with autoimmune diseases.
Gretchen shares how she found creative ways to raise awareness about autoimmune diseases, such as running two half-marathons on two coasts in two days to raise funds for autoimmune research at the Benaroya Research Institute. Through her experiences, Gretchen emphasizes the importance of perseverance, self-advocacy, and building a supportive community. By sharing her story and promoting resilience, Gretchen aims to inspire hope and empower individuals to find purpose and joy in their own health journeys.
Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
For full episode details including a transcript and video:Go to the episode page on the Arthritis Life Website
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On episode 125, Paulina Buryzynska shares how self-compassion and mindfulness help her thrive with rheumatoid arthritis. She also highlights the importance of reconnecting with her body after experiencing a period of dissociation as a coping mechanism for pain.
Cheryl and Paulina discuss the power of non-judgmental awareness and loving curiosity in navigating emotions and thoughts, as well as acceptance. They also emphasize seeking support while navigating the challenges of chronic illness.
Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
For full episode details plus a full transcript and video:See the episode page on the Arthritis Life website.
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Dr Dave & Dr Campbell answer Cheryl’s burning questions about long COVID, vaccine efficacy and safety for people with autoimmune conditions, and potential links between autoimmunity and long COVID. They also talk about cutting edge research and new therapies including CAR T-cell therapy.
Dr. Campbell encourages participation in research studies to better understand these complex issues. Dr. Dave emphasizes the need for precision medicine approaches in treating autoimmune diseases like RA, where individualized treatment plans can be tailored to each patient's unique needs. Despite the challenges posed by autoimmune diseases and COVID-19, they express optimism about the future of treatment options and the ongoing medical advancements.
Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
For full episode details including a transcript & videoGo to the episode post on the Arthritis Life Website (page coming soon)!
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Through sharing her own story publicly, Catherine learned the importance of disability representation and advocacy for young people. She also delves into why it is crucial to include the voices of young adults in the research and advocacy process.
Cheryl and Catherine explore the process of dismantling their own internalized ableism and challenging societal norms around what constitutes a "normal" life. They also challenge the idea that disability is necessarily a “bad” word. They emphasize the importance of self-care and finding joy in everyday activities, even if they require accommodation. For Catherine, participating in activities like surfing, albeit in an accommodated manner, brings fulfillment and contributes to her definition of living a good life with chronic illness. Throughout the conversation, Cheryl and Catherine underscore the values of self-advocacy, self-acceptance, and finding happiness on one's own terms.
Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
For full episode detailsFor full episode details including hyperlinks to things discussed on this episode, go to the episode page on the Arthritis Life website.
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Trigger warning: orthorexia / eating disorders; fear of foods
In Episode 122, Ray shares the shock and emotional turmoil he experienced upon receiving his diagnoses of rheumatoid arthritis (RA), ankylosing spondylitis (AS), and osteoarthritis (OA). He described the initial denial he felt and the process of coming to terms with his diagnoses, acknowledging the emotional toll it took on him and his family.
Cheryl and Ray discuss coping strategies, the role of social media, and finding a supportive community online. He also explains the importance of advocating for oneself and seeking out reliable information and resources, taking a proactive approach to managing his conditions, and finding the right balance between pushing through pain and listening to his body's needs.
Episode at a glance:Diagnosis Story: Ray describes his diagnoses and experience living with rheumatoid arthritis (RA), ankylosing spondylitis (AS), and osteoarthritis (OA).Navigating Multiple Conditions: Ray explains the complexities of living with multiple chronic illnesses, including challenges related to symptom management, accessing healthcare, and adjusting to lifestyle changes.Social Support and Connection: Cheryl and Ray discuss the significance of social support networks, in providing connection and understanding for individuals living with rheumatic diseases.Self-Advocacy and Empowerment: Ray emphasizes the importance of self-advocacy and seeking out reliable information and resources to empower oneself in managing chronic illnessesAcceptance and Resilience: Ray shares insights into his journey from feelings of denial to acceptance and living a fulfilling life despite health challenges.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
For full episode details including a transcript & video:Go to the episode page (coming soon) on the Arthritis Life website.
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Christine highlights the importance of lifestyle methods to manage chronic conditions including sleep hygiene, stress management, anti inflammatory nutrition, exercise and more. They discuss the importance of focusing on what brings joy and meaning to one's life while managing chronic illness.
Overall, the conversation underscores the importance of a comprehensive approach to chronic pain management that addresses both the physical and emotional aspects of the patient's well-being.
Episode at a glance:Chronic pain explained: Christine explains the 3 types of pain: nociceptive (as seen in active inflammation / tissue damage in RA), nociplastic (central sensitization, as in fibromyalgia) and neuropathic pain (nerve pain)Lifestyle: The best lifestyle adjustments to manage rheumatic disease, fibromyalgia and long covid: sleep, stress management, exercise, nutrition and moreMental health: The significance of addressing both the physical and emotional aspects of a patient's well-being in chronic pain management.Acceptance: Utilizing Acceptance and Commitment Therapy (ACT) as a valuable tool for managing chronic pain and navigating uncertainty.Joy: Focusing on finding joy and meaning in life while accepting the changes that come with chronic illness.Patient-provider relationship: Tips for building a trusting relationship with your health providerLong Covid and Fibromyalgia tips: Christine shares her best tips from her long covid and fibromyalgia clinicMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now.
For full details including a video and transcript:Go to the episode page on the Arthritis Life Website (episode page coming soon).
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Cheryl and Rebecca also share misconceptions and talk about the variability and fluctuations of symptoms, as well as reframing limitations and embracing flexibility. They explore the idea of living a "good life" with rheumatic diseases, acknowledging the challenges while emphasizing the possibility of thriving and pursuing one's dreams despite the condition.
Episode at a glance:Advocacy and Awareness: Cheryl and Rebecca emphasize the importance of advocating for individuals with juvenile idiopathic arthritis (JIA) and raising awareness about the condition to combat misconceptions and promote understanding in various settings.What happens when kids with JIA become adults? Rebecca clarifies common misconceptions such as that kids “outgrow” JIA. As an adult living with JIA, she explains how the diagnosis follows you to adulthood because it’s a different disease than adult rheumatoid arthritis.Education and Work Accommodations: Cheryl & Rebecca discuss the need for accommodations, highlighting the importance of communication with employers, teachers, and peers.Thriving with JIA: The conversation delves into the idea of living a fulfilling life despite the challenges of rheumatic diseases, emphasizing the importance of reframing limitations, embracing flexibility, and celebrating achievements and everyday joys.Coping tools: Cheryl and Rebecca discuss the challenges faced by individuals and families dealing with JIA, as well as strategies for navigating life with chronic illness, including seeking support, staying informed, and fostering a positive mindset.Favorite mantras: “It’s never too late to be who you might have been”, and it “always seems impossible until it’s done”.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
For full episode show notes including a video & transcriptComing soon on the Arthritis Life Website.
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Episode Summary
****Please see the episode trigger warning below. On episode 119 of the Arthritis Life Podcast, Christine Troyano shares her journey of living, traveling the world and dancing with rheumatoid arthritis. She also opens up about pressures she experienced as a young person to treat her arthritis without medication, and then shares her experiences navigating different treatments to manage her RA over the past 32 years.
Christine shares stories of her travels through South Korea and Indonesia, and her passion for dancing. She shares how she developed resilience during challenging situations, from insurance barriers and navigating healthcare disparities between countries, to adversity in relationships.
Christine explains how dance became a transformative force in her life, where she found a space for self-expression and physical release. Christine and Cheryl emphasize the importance of self-advocacy in managing chronic illness, building a supportive community, and finding joy through the challenges.
*Trigger warning for this episode*: Between minute 29:00-34:00 there is a discussion of emotional abuse, sexual assault, rape, and abortion.
Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode SponsorsRheum to THRIVE, an online empowerment program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
For full episode details including a video & transcript:See the episode page on the Arthritis Life Website.
- Näytä enemmän
