Episodit
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Amy Behimer is a Doctor of Pharmacy and National Board Certified Health and Wellness Coach who helps people feel healthy amid autoimmune diagnoses. Living with MS, Amy has a unique understanding of the challenges such patients face, and her coaching emphasizes physical, mental, and emotional wellness.
Join them as they discuss Amy’s own diagnosis and her decision to become a life coach. She also touches on what inspired her to help the autoimmune disease community and how others can start to make the shift from simply managing their autoimmune disease to creating autoimmune health.
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Lindsay Kelly is a certified life coach and helps people navigate unexpected life transitions. She is also a social media influencer and caregiver for her husband, Rhead, who, because of the severity of his MS, resides in assisted living.
Join them as they discuss the difficult decision to choose assisted living for Rhead, why she uses social media to elevate understanding of MS, and how her family stays close despite their unique situation.
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Charisse Litchman, MD, is co-founder and chief medical officer of BeCare Link, an AI-driven platform that helps patients take charge of their neurological health. A practicing neurologist and a former faculty member at Yale School of Medicine, Dr. Litchman leverages her expertise in medicine and advances in technology to empower patients and improve outcomes.
Listen in as they discuss what inspired Dr. Litchman to become a neurologist, her motivation behind the creation of BeCare Link, and what future developments lie ahead.
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Since his own diagnosis in 2004, Michael Weiss has dedicated himself to advocating and fundraising on behalf of MS organizations and patients. His innumerable achievements and fundraising efforts have led him to his current position as a patient ambassador and advisory board member with the non-profit organization MS4MS.
Join them as they discuss the mental and physical challenges that can accompany MS, why it’s important to be comfortable with being “not OK,” and wisdom for newly diagnosed patients.
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On the latest episode, Jenn talks with Jeremiah Robison, founder of CIONIC and its FDA-cleared Neural Sleeve — the first product to combine sensing, analysis, and augmentation into a wearable garment for mobility.
Join them as they discuss the importance of practical application when it comes to mobility devices, what differentiates the CIONIC Neural Sleeve from other functional electrical stimulation devices, and why Jeremiah is just getting started on his mission to change the landscape of wearable technology.
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UCLA basketball player Blake Arnet lost his mom, Brigitte, to MS the summer before his junior year. This tragedy left Blake and his family inspired to help fight this disease in Brigitte’s honor. His background in basketball, sports coaching, and entrepreneurial talent helped him establish Dunk MS.
Join Jenn and Blake as they discuss the profound impact of losing a parent to MS at such a young age, how grief turned to inspiration, and what exciting things everyone can expect at Dunk MS 2024 on Saturday, May 18.
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Tim Coetzee, PhD, serves as the National MS Society’s Chief Advocacy, Services, and Science Officer. In this role, he leads the organization’s state and federal advocacy, educational, and support programs for people with MS and spearheads healthcare professional engagement and training and global research programs.
Join them as they discuss the society’s many services and programs, its search for new innovators to aid in groundbreaking research, and Tim’s own commitment to finding a cure for MS.
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Daniel Ontaneda, MD, PhD, FAAN, is a staff neurologist and Director of Research for the Mellen Center for Multiple Sclerosis, part of the Neurological Institute at Cleveland Clinic.
Join them as they discuss the misdiagnosis of MS, gaps in current diagnostic criteria, and how artificial intelligence could be used to aid diagnostic accuracy.
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In June 2018, Todd went from building start-ups in Silicon Valley to becoming the primary caregiver of and patient advocate for his mom and subsequently his dad. In looking for support and resources, Todd saw a significant unmet need.
Join Jenn and Todd as they discuss the importance of creating resources solely for caregivers. They touch on what caregivers need, how they can get those needs met, and what inspired Todd to create My Care Friends — a free, comprehensive, and growing resource for caregivers, advocates, and family members.
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Award-winning actress Jamie-Lynn Sigler talks openly about living with multiple sclerosis, including her diagnosis at age 20 and her decision to keep it a secret for 16 years. She also shares what surprised her most once her diagnosis became public.
Neuroimmunologist, Dr. Sharon Stoll is both a practicing neurologist and scientist, creating the first intrathecal baclofen pump for severe MS-related spasticity. Dr. Stoll discusses symptom management and healthy living with MS and reveals something of her own strategies for the first time.
Join them for a candid discussion about overcoming everyday challenges and celebrating oneself in the midst of living with a chronic illness.
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After her MS diagnosis, Julie Stamm made it her mission to educate, support, and advocate for others battling chronic illnesses. After the birth of her son in 2016, Julie shifted her focus to supporting the children of parents with a chronic illness. Her children’s book entitled “Some Days: A Tale of Love, Ice Cream, and My Mom’s Chronic Illness” was created to normalize differing abilities and amplify how each of us can thrive in spite of our challenges.
Join them as they discuss Julie’s inspiration to normalize disability for children, her follow-up to her children’s book, and how she lives well with MS.
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Dr. Boster is a board-certified neurologist specializing in MS at the Boster Center for MS in Columbus, Ohio. Dr. Boster made the decision to become an MS doctor at the age of 12, as he watched his uncle Mark suffer from the disease in an era before MS treatment was available.
Join Jenn and Dr. Boster as they discuss the passion behind his practice, how he translates MS care through his YouTube and social media channels, and takeaways for living your best life with MS.
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Michael Weiss’s 2004 diagnosis of MS propelled him to become an active advocate in the MS community. From leadership roles and speaking engagements to fundraising and his current role as a member of the NARCRMS Patient Advisory Board; Michael is a powerful advocate for all with MS.
Join them as they discuss his journey from diagnosis to advocate, how others can get involved in their communities, and the importance of advocating for one’s care.
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Kathy Chester is the host of the Move It or Lose It podcast and leads Women Who Disrupt MS, a support group facilitated through the Multiple Sclerosis Foundation. Diagnosed with MS more than 20 years ago, Kathy also established the Disrupt Fitness gym: a program combining circuit and interval training to create the most efficient workout
Join them as they discuss what inspired Kathy to create Disrupt Fitness, what differentiates her program from conventional workouts, and what the overarching benefits are of staying active with MS.
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MS News Today Podcast June 2023 by MS News Today
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Elizabeth Yarnell is a traditional naturopath focused on how chronic inflammation influences health. Her 1999 MS diagnosis inspired her to eat healthier and eventually patent Glorious One-Pot Meals, a cooking method to meet her need for healthy, quick, and easy dinners.
Join them as they discuss the connection between inflammation and diet and how Yarnell’s MS responded to healthy eating. She also shares the catalyst that led her to pursue a career as a traditional naturopath and bestselling author.
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Megan Evans used her background in dance and theater to create the MS Stage, a program that has helped cope with the challenges of living with MS. Megan uses movement, meditation, and mindfulness practices to help others move themselves onto a healing path.
Join Jenn and Megan them as they discuss her journey with the disease, what inspired her to start the MS Stage, and how believing in and loving her MS has helped her lead others to do the same.
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Diagnosed in 1994, Dominic went from patient to advocate, founding TheMSguide in 2021. He now hosts inspirational patient leaders and experts in the field of MS Neurology, making TheMSGuide a successful patient-to-patient YouTube channel where people across the world can share their experiences of MS.
Join Jeann and Dominic as they discuss what inspires him to educate and advocate for the MS community, the positive changes he has made for disabled Eurail passengers, and how his mindset helps him navigate life with a progressive disease.
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Jenn speaks with Vice President of Programs for CanDo MS, Kathy Costello. Can Do MS is a nonprofit organization that delivers health and wellness education programs on exercise, nutrition, symptom management, and motivation to support families living with MS.
Join them as they discuss Kathy’s role at Can Do MS, and the programs, webinars and community-based activities Can Do MS offers.
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Imagine living with MS with no nearby services and the closest medical care a 3-hour flight away. Melissa Cook spent 20 years managing her disease remotely and chronicling her daily experiences in her blog, MSSymptoms.me. After she could no longer teach, she went on medical disability.
Join Jenn and Melissa as they discuss how Melissa managed her MS and what inspired her to write “The Call of the Last Frontier: The True Story of a Woman’s Twenty-Year Alaska Adventure.”
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