Episodit
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Neurodivergent children and their caregivers face unique challenges when a child needs to be brought into hospitals or similar medical settings. Unfortunately, many physicians working in emergency medicine and in hospital settings have little training in supporting children and families under the circumstances. Barry and Dave discuss these issues with Dr. Felix Kreier, an autistic physician working in Amsterdam, Netherlands, who has expertise and experience in working with neurodivergent children and supporting their caregivers, and who understands how critical the provision of compassionate and comprehensive care is, being neurodivergent himself.
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One of the most exciting areas of innovation over the past few decades for children and adults with communication challenges and their families is augmentative and alternative communication options. Barry and Dave discuss a wide range of issues related to AAC with Rachel Madel, a speech-language pathologist who focuses on AAC in her LA – based practice serving children and adult clients, and their families.
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Polyvagal theory has emerged over the past few decades as an important construct in psychology and neurophysiology to help explain human reactions, especially when a person is under stress. It addresses a deeper, neurological basis to for understanding fight, flight and freeze responses, that have been misunderstood for years when observed in neurodivergent individuals. Polyvagal theory also provides guidance for approaches to support individuals of all ages. Barry and Dave discuss polyvagal theory with Sean Inderbitzen, an autistic mental heah therapist who recently published a book on this topic, “Autism in Polyvagal Terms: New Possibilities and Interventions“.
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Emotional regulation is being embraced by parents, neurodivergent individuals educators and therapists as an important concept underlying respectful and developmentally informed practices for supporting autistic and neurodivergent individuals. As founder and Director of Children's Autism Services of Edmonton (Alberta, Canada), Terri Duncan, CCC-SLP has prioritized emotional regulation as foundational to services provided to children and families. From these experiences, she has recently published a book focused on implementing services with emotional regulation as a priority. Terri discusses with Barry and Dave how emotional regulation has become so central to her practice, and to her center.
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Neurodivergent children and their caregivers face a unique set of challenges in ensuring that they have access to appropriate services supporting dental and oral health. Unfortunately, due to some of these challenges, many children grow up without appropriate supports, and experience long-term negative physical and mental health repercussions. Barry and Dave do a deep dive into these issues with Dr. Rose-Marie Daly, who has a high level of expertise and experience in working with neurodivergent children and supporting their caregivers, and who understands how critical dental and oral health is for each child and the family.
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As a deeply reflective, and insightful individual, Becca Lory Hector has constructed a life and career of sharing what she has learned about growing up autistic, without a diagnosis until adulthood. With her engaging new autobiographical work, she once again demonstrates that lived experience is the best teacher, especially when shared generously with others who benefit from her wisdom. Becca, Dave and Barry have an engaging discussion that amplifies important issues of great interest for parents, professionals and autistic and neurodivergent individuals.
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One of the most important cutting-edge discoveries for autistic and neurodivergent individuals is that non-speakers, many of them previously thought to be intellectually disabled and non-communicative, are now able to demonstrate their knowledge and share their experiences through supported communication. With their guest, psychology professor Dr. Vikram Jaswal, Barry and Dave discuss recent research and our evolving understanding of non-speakers who were and still are so misunderstood.
Learn more about Vikram's work and find valuable resources on our website.
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Gestalt language Processing and Natural Language Acquisition: A Discussion with Marge Blanc, CCC-SLP, and Alex Zachos, CCC-SLP
Gestalt language processing and natural language acquisition are topics that have received a great deal of attention in recent years, grounded in research that goes back to the 1970s. These concepts have helped to explain and describe a process, often observed in autistic children and those with other neurodevelopmental conditions, in children move from the early use of echolalia to self-generated conversational use of language. Marge and Alex join Barry in a discussion of the history and current status in understanding children who demonstrate these patterns of language acquisition, in order to assist professionals and parents in supporting such children.
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Strategies for Successful Transitions Back to School for Parents and Professionals a conversation with Dave and Barry
Supporting successful transitions back to school is critical for maximizing success for the whole school year. Join us as we throw back to episode 31st, where Dave and Barry shared a lively discussion about challenges and creative strategies to help children of all ages to get off to a good start in this coming school year.
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A great deal of attention is given to different treatment approaches for supporting communication and relationships with children with social learning differences. However, how we actually speak to children in therapeutic and every day interactions, is given relatively less attention. Through her publications and presentations, Linda Murphy has devoted much of her recent work to supporting therapists, educators, and parents in providing more facilitative styles of language that have been shown to support language development and trusting relationships. In discussing the concept of “declarative language” with Barry and Dave, Linda provides specific guidelines and examples that will be helpful to both professionals and parents.
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Neuro-affirming care and the clinical profile of PDA (Pathological Demand Avoidance) are two critical issues that have risen to forefront of autism services and supports for individuals and families. In this lively and deeply informative discussion, Dr. Taylor Day speaks with Barry and Dave about how she understands and addresses these important areas in her clinical practice.
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A recognized significant challenge for autistic and neurodivergent families and individuals and families is maintaining a lifestyle that supports physical health and well-being. Belden Long and Kara Wilkinson, as professionals and with expertise in addressing physical health, report on findings of their research as well as their personal experience in supporting autistic individuals and families. From their work, they provide practical suggestions.
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Ellen Galinsky is a respected and renowned expert in child development, and in this episode, she discusses crucial issues she has researched and worked on directly in supporting healthy cognitive, social and emotional development in children and teens. Barry and Dave discuss a range of developmental issues with Ellen and their relevance in understanding and supporting autistic and neurodivergent individuals and their families.
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Creating Connection in Drumming and Rhythm-based Activities: A Discussion with "Master Teaching Artist" Bob Bloom.
As a “Master Teaching Artist”, Bob Bloom uses drumming, rhythm and singing to create fun and engaging experiences for children and their families, and adults. Specifically, he provides programs to help all children, neurotypical and neurodivergent, become connected to others and their own internal rhythms in activities in schools, community settings and in a variety of venues. In this episode, Bob, Barry and David, all of whom are drummers and musicians discuss the various uses of percussion and rhythm in supporting engagement and learning, with particular consideration for children and individuals who may need extra support.
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Siblings of children and family members with autism and other conditions live and grow up in a unique space in their relationships within the family. Their lived experience may present challenges, as well as unique opportunities for growth in supporting their autistic or neurodivergent sibling. Barry and Dave engage in a wide-ranging discussion with Emily Holl, who is both a sibling and a professional who has focused on sibling issues for much of her life.
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Ezra is a major motion picture that tells the story of a family, across generations, that has a deep love for a young autistic boy. The film authentically conveys the challenges that a family faces when confronted with societal expectations and insensitive professionals who has little understanding or respect for a child that sees the world through a different lens. It also beautifully portrays those rarefied times when other people, even strangers, see the beauty, the honesty, and the inspirational qualities of a young child who has a strong sense of self, and approaches life with eyes wide open. Barry and Dave explore themes of Ezra with Tony Goldwyn, its director, Tony Spiridakis, writer of the screenplay, and Elaine Hall who is a casting consultant for the film.
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The history of autism is replete with diametrically opposed representations of the autistic experience as either a blessing, or a tragedy. These varying beliefs may be held by professionals, family members, and even autistic individuals themselves. Of course, such extreme views do not accurately portray the complexities involved, which often fall somewhere between these two extreme representations. Barry and Dave discuss such complexities with a goal of honoring the experience of each individual, as well as family members.
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Shannon Rosa and Carol Ann Greenburg are parent-professionals and partners in developing and sharing their on-line resource, A Thinking Person’s Guide to Autism, one of the very first resources to provide valuable information to the autistic and neurodivergent communities. In their own words, the mission of TPGA is to be a a one-stop source for carefully curated, evidence-based, neurodiversity-steeped information from autistic people, parents, and autism professionals. They emphasize that autism acceptance is not merely noble but necessary—and are separate matters from the autistic and other autism communities’ never-ending fights for medical, legal, social, and educational accommodation. The goal of TPGA is “to help fast-forward past society’s rampant autism fabrications and negativity, by providing clear, thoughtfully presented, balanced, and referenced information”. Barry and Dave discuss TPGA in the context of Shannon and Carol’s experiences as parents, and as advocates for the autistic community.
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Episode 103 • Understanding Autism: A Discussion with Autistic Film Producer and Director, Scott Steindorff
Scott Steindorff, an accomplished autistic film producer and director travelled the world to make his new film, “Understanding Autism“. Barry and Dave discuss Scott’s personal experiences leading to his motivation and goals in creating this feature length documentary.
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Episode 102 - Insights into Neurodivergence Following Brain Surgery: A Discussion with Jacki Edry, Autism Advocate, Parent and Cancer Survivor.
Jacki Edry’s personal journey as a brain surgery survivor and parent of autistic and neurodivergent children provides unique insight into the neurodivergent experience. Additionally, her courage and persistence during her ongoing process of recovery, and her desire to help others based on her experience is an incredible story from which we all can learn. Jacki shares her journey with Barry and Dave, and all she has learned that may be of benefit to neurodivergent individuals and their families.
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