Episodes
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“It stops my daily life as I know it.” Patient advocate with CSU Kristen Willard joins Professor Torsten Zuberbier to reflect on navigating life with CSU, including the impact on quality of life, potential triggers and the uncertainty around the disease.
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Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
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This episode was recorded before 31 July 2024. Professor Marcus Maurer, Dr Carolina Vera Ayala, and Associate Professor Jonny Peter discuss how new therapeutics progress through the development pipeline, noting the “huge amount of data” required on safety before a molecule enters clinical trials. They also shed light on drug repurposing and why children are a “critical group” for inclusion in trials.
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Additional resources for this episode: Chronic urticaria: unmet needs, emerging drugs, and new perspectives on personalised treatment
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
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Episodes manquant?
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[This episode was recorded before 31 July 2024.] "Every chronic urticaria starts as acute urticaria, but not every acute urticaria becomes chronic." Associate Professor Dr Andaç Salman and Professor Marcus Maurer discuss causes of acute urticaria, how diagnosis and management can be improved, and UCARE’s research into drivers of “chronification”.
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Additional resources for this episode: Acute and chronic urticaria diagnosis and management taking into account their differences; Acute urticaria – GA2LEN UCARE 2023 conference presentation and Project: CHAPEAU – GA2LEN UCARE Network
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
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This episode was recorded before July 31, 2024. Professor Marcus Maurer and Dr Sigurd Broesby-Olsen discuss similarities and differences between urticaria and mastocytosis, two mast cell diseases. They then turn their attention to treatment, sharing their thoughts on ‘killing’ mast cells and the development of more targeted and less toxic therapies.
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Additional resources for this episode: Mast cell silencing: A novel therapeutic approach for urticaria and other mast cell-mediated diseases; Mast cell–targeting therapies in mast cell activation syndromes; and Tyrosine kinase inhibitors for the treatment of indolent systemic mastocytosis: Are we there yet?
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
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"We will only be able to cure this disease and treat it well if we know how it works." Back by popular demand, Dr Jörg Scheffel rejoins Professor Marcus Maurer to discuss the importance and intricacies of mast cell research in urticaria.”
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Additional resources for this episode: A novel approach for studying mast cell-driven disorders: Mast cells derived from induced pluripotent stem cells; and Isolation and Culture of Human Skin Mast Cells.
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
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Dr Maryam Ali Al-Nesf joins Professor Marcus Maurer to discuss one of the big burdens of chronic urticaria: the "use, or should we say abuse, of cortisone" in chronic spontaneous urticaria.
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Additional resources for this episode: Efficacy and safety of systemic corticosteroids for urticaria: A systematic review and meta-analysis of randomized clinical trials; and A patient charter for chronic urticaria.
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
Episode 100 will be held live on UDAY (1 October 2024, 14:30 CEST). Submit your questions in advance to [email protected].
Follow UCARE on Instagram to be notified of more information https://www.instagram.com/ga2len_acare_ucare/.
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Professor Christian Vestergaard and Professor Marcus Maurer discuss the link between obesity and urticaria, including how obesity contributes to chronic inflammation and the importance of P4 medicine (preventive, predictive, personalised, participatory) in urticaria treatment.
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Additional resources for this episode: High waist circumference rather than high body mass index may be a predictive risk factor for the longer disease duration of chronic spontaneous urticaria; and Risk of comorbidities in patients diagnosed with chronic urticaria: A nationwide registry-study.
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
Episode 100 will be held live on UDAY (1 October 2024, 14:30 CEST). Submit your questions in advance to [email protected].
Follow UCARE on Instagram to be notified of more information https://www.instagram.com/ga2len_acare_ucare/.
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Professor Marcus Maurer and Professor Martin Metz reflect on the European Academy of Allergy and Clinical Immunology (EAACI) congress 2024, including novel treatments on the horizon, key takeaways and expectations for future meetings.
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Additional resources for this episode: Remibrutinib demonstrates favourable safety profile and sustained efficacy in chronic spontaneous urticaria over 52 weeks; andEuropean Medicines Agency approved indications for omalizumab biosimilar.
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
Episode 100 will be held live on UDAY (1 October 2024, 14:30 CEST). Submit your questions in advance to [email protected].
Follow UCARE on Instagram to be notified of more information https://www.instagram.com/ga2len_acare_ucare/.
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Professor Marcus Maurer welcomes Dr Jörg Scheffel to discuss urticaria, including techniques used to interrogate mast cells and examine interstitial fluid, and a technique used to identify autoimmune-mediated forms of urticaria.
Do you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
Additional resources for this episode: Chronic urticaria and the pathogenic role of mast cells;A novel approach for studying mast cell-driven disorders: Mast cells derived from induced pluripotent stem cells; Autoreactive IgE: Pathogenic role and therapeutic target in autoimmune diseases.
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
Episode 100 will be held live on UDAY (1 October 2024, 14:30 CEST). Submit your questions in advance to [email protected].
Follow UCARE on Instagram to be notified of more information https://www.instagram.com/ga2len_acare_ucare/.
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Professor Elias Toubi joins Professor Marcus Maurer to discuss remission in urticaria, including its definition and possible risk factors for long disease duration.
Do you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
Additional resources for this episode: Clinical and laboratory parameters in predicting chronic urticaria duration: A prospective study of 139 patients.
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
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Associate Professor Elena Borzova joins Professor Marcus Maurer to discuss exercise as a trigger for urticaria in some athletes, including the paradoxical protective effect of exercise in people with urticaria.
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Additional resources for this episode: Exercise-induced urticaria: A rare case report; and Physical activity and mental health among patients with atopic dermatitis or chronic spontaneous urticaria: A cross-sectional study.
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
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Professor Marcus Maurer welcomes Dr Carolina Vera Ayala and Associate Professor Jonny Peter to discuss participation in clinical trials for urticaria, including patient concerns around placebo treatment.
Do you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
Additional resources for this episode: What is clinical research and why is it done?
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
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Professor Marcus Maurer welcomes Professor Philip Li to discuss the management of urticaria in Hong Kong, including access to effective treatments and socioeconomic and cultural factors.
Do you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
Additional resources for this episode: Hong Kong–Macau severe hives and angioedema referral pathway, Disparities in chronic spontaneous urticaria: Eligibility for drug reimbursement associated with clinical outcomes, Chronic spontaneous urticaria in Hong Kong: Clinical characteristics, real-world practice and implications for COVID-19 vaccination
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
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Dr Jason Hawkes joins Professor Marcus Maurer to discuss dermatologists’ lack of urticaria knowledge, including tips on encouraging the US dermatology community to use resources such as the CRUSE app.
Do you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
Additional resources for this episode: Key messages: Urticaria guidelines; Urticaria: A comprehensive review and Hives: Diagnosis and treatment.
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
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“This is a global problem that requires global solutions, but I think they do come from what we learn in our settings.” Professor Marcus Maurer welcomes Dr Clive Grattan to discuss the differences in the treatment and management of urticaria across the UK and Germany, including guideline recommendations and new treatments on the horizon.
Do you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
Utilise the following external links and access additional resources relating to the topics discussed in this episode: British Association of Dermatologists guidelines for the management of people with chronic urticaria 2021 and The international EAACI/GA²LEN/EuroGuiDerm/APAAACI guideline for the definition, classification, diagnosis, and management of urticaria.
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
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“I think CARE will grow and grow.” Dr Thomas Buttgereit joins Professor Marcus Maurer to discuss the recently launched Chronic Angioedema Registry (CARE), including benefits for patients, current capabilities and how to get involved.
Do you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
Utilise the following external links and access additional resources relating to the topics discussed in this episode: Chronic Angioedema Registry.
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
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“There’s still so much we need to learn.” Dr João Marcelino joins Professor Marcus Maurer to discuss autoimmune chronic spontaneous urticaria, including indicative test results and hopes for the future.
Do you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
Utilise the following external links and access additional resources relating to the topics discussed in this episode: What basophil testing tells us about CSU patients – results of the CORSA study, Autologous serum skin test reactions in chronic spontaneous urticaria differ from heterologous cell reactions and Omalizumab in chronic spontaneous and inducible urticaria: A 9-year retrospective study in Portugal.
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
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“It’s really a catalyst to what the network does.” Professor Marcus Maurer asks Dr Luis Felipe Ensina to reflect on the UCARE Conference 2023, covering personal highlights and expectations for future meetings.
Do you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
Utilise the following external links and access additional resources relating to the topics discussed in this episode: UCARE Conference 2023.
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
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“It doesn’t just affect one part of your life.” Arzoo Ahmed joins Professor Marcus Maurer to discuss the patient perspective, covering the reality and challenges of living with chronic spontaneous urticaria.
Do you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
Utilise the following external links and access additional resources relating to the topics discussed in this episode: Our Future Health.
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
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“This is only the beginning of making use of this technology.” Professor Marcus Maurer is joined by asthma and allergic rhinitis expert Professor Jean Bousquet to discuss the collaboration that produced the MASK-Air and CRUSE apps, how they are helping Ukrainian refugees and the possibilities for future development.
Do you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
Utilise the following external links and access additional resources relating to the topics discussed in this episode: Digitally enabled, patient‐centred care in rhinitis and asthma multimorbidity: The ARIA‐MASK‐air® approach; MASK-Air app and UCRAID (Ukrainian Citizens and Refugees help in respiratory, Allergy, Immunology, and Dermatology).
Access additional resources by signing up to Medthority and to be notified for future ‘All Things Urticaria’ podcast episodes!
For more information about the UCARE/ACARE network and its activities, please visit: UCARE Website, UCARE LevelUp Program, ACARE Website, UCARE 4U Website, UDAY Website, CRUSE Control App and CURE Registry.
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