Episodes
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In Jerry’s latest podcast, we meet Beth Gerritsen – mother to Charlie, who has cystic fibrosis, and Willie, who does not. From raising her boys in the Virgin Islands to moving back to the states, she shares some insight into CF care in the VI, how it impacted Charlie’s health, and more.
This video podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation. -
In his latest podcast, Jerry chatted with Charlie, 11 with CF, and his older brother Willie about the CF-sibling relationship. They talk about spending almost all of their time together, playing sports, their goals, and more.
To his fellow CF patients, Charlie says, “Stay strong. Never give up. And always do your treatments.”
This video podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. -
Episodes manquant?
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In the latest CF Podcast, we meet Griffin Taylor, a 15-year-old who loves lacrosse and squash, is on his school’s robotics team, and is his class’s treasurer. During quarantine, Griffin started The Salty Scholar, a tutoring service to assist with virtual learning. When he saw his mom – a teacher – go through the virtual learning process, he realized that it was a perfect opportunity to help other CF patients who may have to take long absences while in the hospital or sick.
Tune in to learn more about Griffin and The Salty Scholar!
This video podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. -
In the latest CF Podcast, Jerry speaks with Dwight Cheu, CEO of ZephyRx, a home-based respiratory diagnostic testing and therapy that allows patients to actively manage and improve their own lung health through telehealth, video games, and virtual reality.
Cheu describes the positives of the product: at-home testing capabilities, prevention of extended travel to clinic, PFT results automatically transmitted to appropriate physicians, and more.
Tune in to learn about ZephyRx and how it can encourage patients to manage their own health and proactively gain independence.
This video podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation. -
The You Cannot Fail Rare Disease podcast series was created so that the Boomer Esiason Foundation can shine a spotlight on other people and organizations in the rare disease community.
In the second episode, Swapna Kakani discusses dealing with post-transplant lymphoproliferative disorder after her small intestine organ transplant. In June 2014, after checking a few things off of her bucket list, Swapna decided that she was ready to have a small intestine transplant and to deal with the complications that often accompany an organ transplant.
Tune in to learn more about Swapna’s transplant journey.
This video podcast series was made possible through an unrestricted educational grant from Atara Bio to the Boomer Esiason Foundation. -
The You Cannot Fail Rare Disease podcast series was created so that the Boomer Esiason Foundation can shine a spotlight on other people and organizations in the rare disease community.
In the first episode, Swapna Kakani shares her story about being born with a rare disease, short bowel syndrome and later developing rare PTLD (Post-transplant lymphoproliferative disorder). Because of her experiences, she founded Alabama Rare, a grassroots coalition to unite the state around the rare disease population. The coalition acts to bring support to individuals and families, and advocate for necessary change.
Tune in to learn more about the rare disease community! This video podcast series was made possible through an unrestricted educational grant from Atara Bio to the Boomer Esiason Foundation. -
“I believe in enjoying life and living it to the fullest, having fun, and just enjoying time.”
Brayden Walsh, a 16-year-old living with CF, joins Jerry Cahill’s CF Podcast to share his experience as one of the 10% of patients without modulators available for treatment. Even though he deals with a number of other illnesses on top of CF, Brayden does not allow any of that to limit him. He plays sports, hikes, hunts, fishes, and loves being physically active in any way that is safe for his health.
Tune in to learn more about Brayden.
This video podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. -
In the latest CF Podcast, Anthony Esposito, aka Espo 2, shares why he loves fitness and nutrition. While he doesn’t have CF himself, he wants to inspire all people to improve their health with his Youtube channel – and to convince people that burpees are the best!
This video podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. -
“I love ice hockey because it really opens up my life and makes me stop thinking about cystic fibrosis and worrying about my health.”
Meet Reilly Hoagland! Reilly was diagnosed at 4-years-old with cystic fibrosis, but has never let it stop him from living life the way he wants. Reilly is an honor roll student who loves sports and travels up and down the east coast with his hockey team. And he has been running in the Boomer’s CF Run to Breathe every year with his team, Reilly’s Rockstars.
Tune in to hear more about Reilly.
This video podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation. -
“I’ve always felt gratitude for the hospital staff, but this was over and above. We all know how contagious this is, and they knew that pretty early on. And yet, their job is to care for people and they did it regardless of their own risk. They did it with such kindness and caring.”
Jerry caught up with Kay W. to talk about her experience of living through a COVID diagnosis while living with cystic fibrosis. She shared her initial symptoms, how they developed, her time in intensive care, and what positive thoughts helped her get through the toughest times.
Tune in to hear Kay’s story.
This video podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation. -
In Jerry Cahill’s latest podcast, he spoke with 30-year-old Enid Katz, who was diagnosed with CF when she was 3. Enid’s passion in life is horses – which motivates her to stay healthy, active, and fit, even when she isn’t feeling her best. She shares what it’s like for her when she has a pulmonary exacerbation, how it can feel defeating to have to go on IVs, and more.
Tune in to hear more of Enid’s story.
This video podcast was made possible through an unrestricted educational grant from Corbus Pharmaceuticals to the Boomer Esiason Foundation. -
Jerry Cahill spoke with Dr. Kelsey Finn about her book, “Having Cystic Fibrosis is a lot like being a Super Hero,” which relays information about CF so that kids and parents have a launching pad for more serious conversations. Dr. Finn’s goal is to support parents and give them the resources that they need to empower and educate their kids. She believes that parents can empower kids to become responsible adults by talking to them about CF and educating them about why their CF care is important, fostering independence and responsibility, while keeping the line of communication open.
This video podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. -
“I would tell a caregiver or a spouse of someone with CF that – all of those things you are feeling, the fatigue, the anger, the resentment, all of that is okay because we’ve all gone through that. It’s also really important for you, the caregiver, to take care of yourself.”
Jerry sat down with Tom Kaminski, his wife of 27 years, Lynn, and their son JT to learn more about how they’ve dealt with Lynn’s pulmonary exacerbations over the years. Tom shared his story as a husband and caretaker, discussed how he knew Lynn’s health was declining, and how he admires his wife’s resilience at the most difficult times.
Tune in to learn more.
This video podcast was made possible through an unrestricted education grant from Corbus to the Boomer Esiason Foundation. -
“I would recommend that anyone with CF who can physically get up and move, to get up and move. I have found that exercise has changed my life completely, and without it, I don’t know where I would be at this point.”
Meet Scott Marraffa, a 25-year-old who is living with cystic fibrosis AND competed on American Ninja Warrior! Scott’s parents kept him constantly informed about his CF growing up, and he realized early on that getting stronger meant staying healthier. So, he set a goal to compete on American Ninja Warrior with five years of training – but actually made it in three!
Tune in to hear his conversation with Jerry on the latest CF Podcast.
This video podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation. -
“Everyone deserves that same realistic hope for a deep breath and for a future. And the work of Emily’s Entourage is focused on achieving that for every single person so no one with CF is left behind.”
Jerry sat down – virtually – with Emily Kramer Golinkoff in his latest podcast to discuss the incredible work that she does with her 501(c)3, Emily’s Entourage. As a patient advocate and speaker, the 35-year-old works to bring awareness to the 10% of the CF population who live with nonsense mutations and don’t have highly effective therapies. Because she is a part of that population, she has unique insight into what it is like to see major treatments pass her by as her disease moves into advanced stages. Emily’s biggest fear is time, but she continues to work tirelessly to fight for her health and to advocate for those who, like her, are in the “10 percent.”
This video podcast was made possible through an unrestricted educational grant from Translate Bio to the Boomer Esiason Foundation. -
In part 2 of Managing Your Life as a Teenager, Jerry sits down with Sean Randles… 6 years after their first podcast. Today, Sean is 15-years-old, runs track, and played freshman basketball. He is also a positive social media influencer, spending most of his time recording Tik Tok dances and sharing his life on Instagram – always in a positive way!
Tune in to learn more about Sean.
This video podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. -
Jerry caught up with 17-year-old Colin Randles in his latest podcast. Colin, a Junior honors student, golfs, plays JV basketball, and rows crew. His brother Sean, who also has cystic fibrosis, is his biggest support system, and they do as much as they can together.
Tune in to hear more about Colin and to see a flashback to his original appearance on Jerry’s podcast six years ago.
This video podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation.
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“I can fight alone, but we can win together.”
Last week, we met Eric Schandel… and this week Jerry sat down with his wife, Ashley! In the latest CF Podcast, Ashley shares a little about herself and what it was like when her daughter Remi Monroe was diagnosed with cystic fibrosis. She also talks about charity runs, the silver lining of having a child diagnosed with CF, and more.
Tune in to learn about Ashley.
This video podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation. -
All parents worry about their children – but parents of kids with cystic fibrosis have additional stressors and concerns. In the latest CF podcast, Eric Schandel sat down with Jerry Cahill to share his experience of being a CF dad – to Remi, who is now almost two.
At the time of Remi’s diagnosis, Eric was alone at work when he got the news, and he did what so many do – turn to the internet, which took him down a dark rabbit hole. It wasn’t until they met with Remi’s CF team at Stony Brook that Eric felt a sense of relief and hope.
Tune in to learn more about Eric’s journey as a CF dad.
This video podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. -
In Jerry’s latest CF Unmasked podcast, he sits down with Greg Love for an uncensored look at what it’s like growing up with two brothers with cystic fibrosis. From witnessing countless pulmonary exacerbations to feeling guilty about being healthy, Greg shares his experiences openly and honestly. Within his own family, Greg saw two sides of CF – his brother Chris battles by staying physically fit and compliant, and his brother Patrick unfortunately faced the harsher side of the progressive disease, eventually passing away in 2014.
Tune in to learn more about Greg and his own journey as a CF brother.
This video podcast was made possible through an unrestricted educational grant from Corbus to the Boomer Esiason Foundation. - Montre plus