Episodes

  • Welcome to the latest episode of the Tonya Winders Podcast, where innovation meets accessibility in the world of clinical trials. Join us as we dive into these topics and much more in our newest episode.

    This episode features the insightful Dr. Ruth Talsinger, Chief Scientific Officer at the Global Allergy and Airways Patient Platform (GAAPP), alongside our host, Tonya Winders. Dr. Talsinger brings her vast experience in drug development and patient advocacy to the table, highlighting how digital evolution is reshaping clinical trials.

    Episode Highlights:

    * Bridging the Gap Between Approval and Access: Discover the importance of aligning clinical outcomes with stakeholder priorities to ensure that once a medical product is approved, it remains accessible to patients.

    * Revolutionizing Participation: Explore how digital tools like biosensors, adherence monitors, and electronic diaries are transforming trials, making it easier for participants to engage from the comfort of their homes.

    * Understanding Patient-Centric Outcomes: Learn about the critical role of patient-reported outcomes and how they advance personalized medicine by providing insights into patients' health conditions and treatment impacts directly from their perspectives.

    * Navigating Clinical Trial Processes: Dr. Talsinger highlights key elements of clinical trials, including ethical considerations, volunteer experiences, and the importance of comprehensive research.

    * Future Discussions: Get a sneak peek into future episodes where we'll explore the integration of AI in clinical research.

    For further resources and to explore current opportunities in clinical trials, visit gaapp.org.

    Join us in understanding how clinical trial innovations not only enhance the drug development process but also strive for precision medicine—tailoring treatments to individual patient needs for optimal outcomes.

    Listen now and become part of the evolving conversation on patient-centered research and healthcare advancements.

    P.S. Stay tuned for Part 2 of our engaging discussion with Dr. Ruth Talsinger, where we will continue to explore the future of clinical research and patient advocacy.

  • Welcome to another insightful episode of the Passion For Patients podcast. I'm your host, Tonya Winders, president and CEO of the Global Allergy Airways Patient Platform (GAAPP). Today, we continue our deep dive into the essential topic of strategic planning with our esteemed guest and VP of Education, Kristin Willard. In this episode, we tackle the challenges and opportunities involved in crafting and executing effective strategic plans for patient organizations.

    From balancing conflicting priorities to navigating team changes, we share best practices and real-life anecdotes to guide your approach. Join us as we explore how to set the foundation for success and ensure your organization remains aligned with its mission and vision. Don't forget to tune in to part one if you haven't already, and let's continue building strategies that empower our global community to live and breathe better. Stay passionate!

    Here are three key takeaways:

    * Embrace Challenges: It's normal to encounter conflicting priorities during the strategic planning process. Engage with diverse, innovative thinkers and understand that challenges are part of reaching good outcomes.

    * Measure and Adjust: Regularly revisit your strategic plan. Use tools like KPIs and the stoplight model to assess your progress and make necessary adjustments to stay on track.

    * Balance and Prioritize: While exploring new opportunities is exciting, maintain a balance with your core objectives. Remember that saying yes to new projects might require saying no to others.

    Catch the full episode for more valuable insights and practical tips! Don't forget to subscribe and check out the downloadable resources at gaapp.org.

    #PatientAdvocacy #HealthcareInnovation #PassionForPatients

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  • Welcome to the latest edition of the Passion for Patients podcast!

    In this episode we delve into the critical topic of strategic planning with our VP of Education, Kristen Willard. We are excited to share key insights and expertise that will benefit nonprofit organizations and patient advocacy groups.

    In this episode, our host, Tonya Winders, and Kristen Willard provide valuable discussions on the significance of strategic planning and the essential steps for creating an effective plan. They touch on the SWOT analysis, SMART goals, and the importance of aligning objectives with the overall strategy.

    Additionally, they emphasize the role of engaging the board, staff, and the community in this vital process.

    Strategic planning is a fundamental element for driving positive change and progress in our mission to ensure better lives for patients living with allergic, atopic, and airways diseases. With the right tools and resources, your organization can chart a clear path forward and make a substantial impact.

    To further support your strategic planning endeavors, we encourage you to visit our website, gap.org, where you can access the GAP-specific SWOT analysis template and the SMART goals worksheet tailored for member organizations. Additionally, don't miss out on the GAP Academy resources to gain comprehensive insights into strategic planning.

    Stay tuned for Part 2 of our in-depth exploration of strategic planning in the upcoming episode, where we will continue to provide practical guidance to enhance your strategic planning efforts.

    Don't forget to share the podcast with your colleagues and subscribe to stay updated with our latest episodes.

    Thank you for your dedication to patient advocacy and for being a part of our global community at GAP.

  • Patient Advocacy in Action: Insights from Victor on GAAPP's Global Reach and Awareness Strategies

    https://gaapp.org/

    Welcome to another episode of "Passion For Patients," where we dive deep into the world of patient advocacy and awareness. I'm your host, Tonya Winders, President and CEO of the Global Allergy and Airways Patient Platform, fondly known as GAP. Today, we're excited to welcome Victor Gascon Morino, the Vice President of Awareness and Operations at GAP. Victor, a seasoned professional with extensive experience in NGOs across the globe, is joining us for his first-ever podcast appearance and his first visit to the United States.

    In this episode, we explore the remarkable growth of GAAPP from 40 to over 130 patient advocacy organizations, highlighting the key factors behind this expansion. Victor shares his insights on the importance of awareness, his innovative pyramid model for maximizing community reach, and the power of consistent, long-term planning.

    Victor Gascon Morino, a passionate advocate for health awareness, is dedicated to educating patients and caregivers about the importance of knowledge and early diagnosis in healthcare. He believes that awareness is the first crucial step in empowering individuals to address their healthcare needs effectively. Victor emphasizes the significance of understanding the symptoms of diseases and the initial measures to take in managing them. Through his work, he highlights the concept of an inverted pyramid, representing the foundational role that awareness plays in the overall health and well-being of individuals. Together with his team, Victor promotes the four essential pillars of health awareness, striving to create a more informed and proactive community.

    We'll also delve into effective strategies for engaging local communities, leveraging social media channels, and the significance of addressing multiple related conditions in awareness campaigns. Whether you're a patient, caregiver, policymaker, or part of the healthcare community, this conversation is packed with valuable insights to empower and educate.

    So, stay tuned, and let's dive deep into a world of passion, dedication, and tireless efforts to make a difference in patients' lives. And don't forget to share this podcast and subscribe on your preferred platform. "Stay passionate."

  • Welcome to Passion For Patients podcast!

    https://gaapp.org/

    I'm Tonya Winders, your host and the president and CEO of GAAPP, the Global Allergy and Airways Patient Platform. I'm thrilled to introduce you to our new podcast channel designed for passionate patient advocates worldwide. We'll cover the basics of:- Who we are- What we aim to achieve, and - Why we believe this podcast is crucial for our community. Join us every first and third Thursday of the month as we delve into topics that empower patient advocacy—sharing best practices, overcoming challenges, and building capacity to improve healthcare systems globally.Follow, share, and engage with us to stay updated on upcoming episodes and exciting content.#PassionForPatients #PatientAdvocacy #HealthcareLeadership #PodcastLaunch #GlobalHealth