Episodes
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It may be the first time you've talked about your blood cancer, since your diagnosis, with anyone outside immediate family, or it may be after years of living with cancer... Either way, the LLSC community services lead in your region is ready to listen and support you in any way you need. Geoffrey Molle, one of those leads, talks about the confidential, safe space he creates for anyone impacted by a blood cancer, in this podcast episode.
Access one-on-one personalized support with the community service lead in your region; details at: https://www.bloodcancers.ca/i-have-blood-cancer/how-we-can-help/access-one-one-personalized-support -
Tziona Lugasi, clinical psychologist in the hemato-oncology department at CHU Sainte-Justine, talks about the impact of cancer on children, teens and their parents, and the transition from pediatric care to adult health care.
Are you a parent of a child with a blood cancer? Find more resources on the LLSC website at: https://www.bloodcancers.ca/i-care-someone-blood-cancer/blood-cancers-kids-teens-young-adults/childhood-blood-cancers#for-parents-and-caregivers
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Episodes manquant?
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Maura C. had recently returned to work after maternity leave when her daughter, then 15 months old, was diagnosed with acute myeloid leukemia (AML) and immediately admitted to the oncology ward. âThis is a nightmare Iâm not waking up from,â Maura thought over the 5 months her toddler was in the hospital. She says she and her husband moved from their initial âfight-or-flightâ mode, to chronic anxiety â both over the treatment period and afterwards when âwe felt anxiety about the cancer coming back.â
Maura acknowledges that support for mental health was important for her. "Our family doctor was an ally and a resource,â she says, âand I had an "amazing therapist" to deal with marriage strain challenges as well, and support from close friends and her parents.
Are you a parent of a child with blood cancer? Find resources and support here:
https://www.bloodcancers.ca/i-care-someone-blood-cancer/blood-cancers-kids-teens-young-adults/childhood-blood-cancers#for-parents-and-caregivers
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The emotional cost of caregiving when a loved one has a blood cancer is no small matter â as Saskatchewanâs Lori Galbraith can attest. The mother of four was the caregiver of her husband Jim, who was diagnosed with acute myeloid leukemia (AML) and underwent a stem cell transplant.
âThe hardest part was providing positive emotional support [to my husband] when I was worried and wondering if Iâd ever get back the husband I had prior to AML... Iâm trying to support him through it all â but what do I do with my thoughts?â Lori says in this podcast.
Are you caring for someone with a blood cancer? The Leukemia and Lymphoma Society of Canada has support, services, and resources for caregivers, including a peer-to-peer support program. Visit:â https://www.bloodcancers.ca/i-care-someone-blood-cancerâ
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The term, âpalliative approach to careâ refers to a person-centered, holistic approach including emotional, spiritual, social and psychological care, offered by a larger team of healthcare professionals (beyond doctors and nurses) and introduced earlier in a cancer experience for full integration into an individualâs care plan.
Valerie Fiset, director of the Champlain Hospice Palliative Care Program at the St-Vincent Hospital in Ottawa hopes individuals and their families shift their perspective on palliative care "from being afraid theyâre coming to the end of life, and start to feel that palliative care is going to support their well-being and quality of life."
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Researchers are focused on maintaining an excellent cure rate in diffuse large B-cell lymphoma (DLBCL) and minimizing some of the treatment individuals receive â reduce the number of cycles of chemotherapy or avoid radiation, and looking at new drugs to improve the cure rate for others with DLBCL.
Join us as we chat with Dr. John Kuruvilla, working as a hematologist-oncologist for 20 years (currently at the Princess Margaret Cancer Centre in Toronto) including as a researcher in DLBCL, which is the largest form on non-Hodgkin lymphoma.
Learn more about DLBCL at:
https://www.bloodcancers.ca/diffuse-large-b-cell-lymphoma-dlbcl
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Dr. Rena Buckstein from Odette Cancer Centre in Toronto shares the basics of myelodysplastic syndromes (MDS) diagnosis, treatment, and side effects.
In Canada, it is estimated that up to 5,900 new cases of MDS are diagnosed each year - most often in older adults.
There are two main types of MDS: primary (de novo) and secondary MDS. The treatment for MDS varies according to the type and stage of the disease with the goal of slowing or stopping the MDS from becoming acute myeloid leukemia (AML).
For more information about MDS, visit:
https://www.bloodcancers.ca/i-have-blood-cancer/myelodysplastic-syndromes
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Mayra Husic shares her experience with Follicular Lymphoma.
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Dr. Philip Kuruvilla, hematologist-oncologist at the William Osler Health Centre at the Brampton Civic Hospital in Brampton, Ontario talks about chronic lymphocytic leukemia (CLL): Current treatment options, potential side effects and how to manage those side effects.
CLL is the most common type of leukemia in adults. For more information about CLL, visit:
https://www.bloodcancers.ca/I-Have-a-blood-cancer/Leukemia/chronic-lymphocytic-leukemia
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Dr. Tobias Berg, an associate professor and researcher from McMaster University explains maintenance therapy as a treatment option for acute myeloid leukemia (AML) and the factors that influence the decision to start this type of treatment.
Maintenance therapy is treatment given after the first (primary) therapy used to manage your cancer, or to stop it from coming back. Some people may use maintenance therapy for a long time. This type of therapy can include drugs, vaccines, antibodies, or hormones.
Maintenance therapy can be used after a stem cell transplant for a blood cancer or after your first therapy if a stem cell transplant is not an option or not recommended for you. Maintenance therapy is often given at a low intensity, but over a long period of time. The goal is to help keep you in remission and to prevent relapse (also known as cancer recurrence).
Maintenance therapy has a role to play in some types of blood cancers such as multiple myeloma and acute myeloid leukemia (AML). Acute means the disease progresses quickly. AML is the most common acute leukemia in adults.
Learn more about AML at:
https://www.bloodcancers.ca/i-have-blood-cancer/leukemia/acute-myeloid-leukemia-aml
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What started as a normal trip to the cottage ended up leading Tom to take a trip to the hospital- where he was diagnosed with myelodysplastic syndrome. Tom shares his blood cancer experience and how learning about his diagnosis, staying positive, and staying active are what helped him through the difficult times of treatment.
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Rachel Sutherland is an Indigenous Patient Navigator at the London Regional Cancer Program and Dr. Samantha Boshart is a Family Physician who is also the Regional Indigenous Cancer Lead for the Southwest Regional Cancer Program. In this podcast, both experts discuss the unique challenges experienced by the Indigenous Community in Cancer Care and the efforts that our hospitals are taking to ensure that they receive equitable care in their cancer experience.
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Alyssa Brandone was 11 years old when she was diagnosed with Acute Myeloid Leukemia. In this podcast episode, Alyssa shares her experience with a pediatric blood cancer and how the support of her family and friends helped her overcome the challenges of integrating back into ânormalâ life after treatment.
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In this episode of our AYA podcast series, Sukant Sharma shares his experience balancing work, side effects, and his personal life after being diagnosed with Acute Lymphoblastic Leukemia.
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After being diagnosed with leukemia at 21 years old, Shae-Lynn Way shares her experience with shifting her mindset while preparing for a second stem cell transplant after her leukemia returned.
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Originally thought to be a locked muscle from exercise, Michelle Burleigh shockingly discovered that she had a rare form of Acute Leukemia. In this podcast, Michelle recounts her experience being diagnosed with APL, revealing how her sudden diagnosis taught her about finding perspective, slowing down, and making the most of each day despite living with uncertainty.
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Blood cancer survivor Meredith, 26, talks about her love life after stage 2 Hodgkin's lymphoma. She was diagnosed at age 18 and in university.
A love life can be positively or negatively affected if one of the partners is diagnosed with cancer. Meeting a new partner following the disease could also cause several concerns. How to discuss changes in the relationship with your partner? How to deal with possible sexuality and fertility problems? Should someone tell a new date that they had cancer? If so how and when?
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Eric Pesarchuk, 36, survivor of B-cell lymphoma diagnosed in 2021 who underwent 2 spinal surgeries, 11 rounds of radiation and 5 months of chemotherapy. He had to learn to walk again - and today is in remission. He lives with wife, their 5 year old daughter, in British Columbia.
Being affected by cancer at the beginning of the adult life often forces to put various projects on hold. The impacts of the disease are numerous, and they sometimes affect the identity of the person. Once the remission is pronounced, how is it possible to go back to a normal life?
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Jacqueline Galica an oncology-certified Registered Nurse with over 20 years of experience in oncology. She is currently an Assistant Professor at the Queenâs University School of Nursing, where her research program focuses on the psychosocial concerns â including fears of cancer recurrence - of post-treatment cancer survivors.
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It was a surgery for a rare congenital heart defect that lead Grace's doctors to shockingly discovered her stage II Hodgkin's Lymphoma. In this episode of the AYA podcast series, Grace discuss the realities of isolation and survivor's guilt that come with achieving remission after a blood cancer diagnosis as a young adult.
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