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This month on Talk About It, we are cooling off the summer heat with some refreshing and delicious lemonade! Greg hosts three different interviews with people who are taking the sourest of lemons that life hands them and squeezing out incredible creative initiatives that make the world a much, MUCH better place.
Up first is Landis Wiedner who developed epilepsy after a traumatic brain surgery to remove a tumor. She was disrupted by this sudden change in her adult life and realized there weren't enough resources to help her deal with the struggles of "adulting" with epilepsy. So, she started a podcast! The "What the EF" Podcast she started has now been on for five seasons and aims to be an outlet for those everyday conversations that aren't as accessible for adults in her situation. Way to go Landis!
Then, Greg has some very special guests to the studio - his son Jake’s girlfriend Morgan, and her incredible mom Karen and brother Kyle! Kyle was born with cerebral palsy, but Karen never let his condition affect his ability to play sports and enjoy recreational activities. In fact, she came on board the AYSO VIP Program for kids and helped to expand it to now host hundreds of special needs participants, from 4-year-olds to 40-year-olds! From basketball to soccer, Karen is leading the way to establish communities and provide a safe environment for individuals like Kyle to learn and grow through playing sports. Greg and Nick headed out to watch the basketball program in action, and we get a full recap of their incredible experience!
Finally, Greg talks with Sue Seserman, a writer and new author that harnesses her conditions and turns them into superpowers! Sue has epilepsy and type 1 diabetes, and has such a brilliant creative vision on how to use them for good. She has now released her new graphic novel Epilectra that centers around a woman who becomes a superhero by converting the electricity in her brain that causes seizures and uses them for super electric abilities! She is joined by a cast of characters - Team SEEZ - who all have a disability, but use them as “superabilities” to change the circumstances of their adversaries and save the day. She is a visionary, and we are so excited that this novel is finally here!
Plus, we recap Greg’s trip to the Epilepsy Walk at the Rose Bowl with some familiar faces and some new friends! Don’t miss this episode!
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals
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Some topics are so heavy they are difficult to discuss, but gun violence has become such a problem in America that it is vitally important for us to talk about it in order to bring change.
In this special episode of Talk About It, Greg is joined in studio by some great new friends -- Mark Barden, founder of Sandy Hook Promise and co-founder of Artist for Action, and Matthew Reich and Neal Saini, co-founders of Artist for Action. Mark Barden experienced the unimaginable when his 7-year-old son Daniel was killed in the Sandy Hook massacre of 2012, an event that sent shockwaves throughout the country.
Mark and his family continue to go through periodic episodes of depression, anger, hopelessness, and warding off bad actors who spread conspiracies. However, he has harnessed those emotions to start Sandy Hook Promise (SandyHookPromise.org) that works to educate communities and school districts about gun violence and notify law enforcement through a tip line when a student or school is in danger. The work he is doing is literally saving lives.
Mark also co-founded Arist for Action with Matthew and Neil, an organization that platforms causes for artists to easily promote to fans. Together, they put on major events to promote gun reform and are producing a documentary feature with major musical stars attached. This episode is heavy, but this is a conversation that needs to be had.
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.
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In this episode, Greg is joined by a fellow parent of a child with epilepsy, and that parent just so happens to be the incredibly talented and incredibly funny actress Lake Bell! Lake's daughter Nova was diagnosed with epilepsy at just five years old due to a genetic mutation commonly associated with Dravet Syndrome, a rare form of epilepsy. Greg and Lake talk about re-framing the condition to her daughter so that it is positive, taking away guilt or anxiety when she has a seizure. She has created a scenario in which after Nova has a seizure, she thinks of it as "sparkling" and is very brave and smart, like Joan of Arc who is featured in the Frozen movie that her daughter loves and who also had epilepsy.
Lake is currently working on two projects that center around epilepsy - a book about the brain that she is announcing on this episode, and the feature film "Under the Lights" expanded from the short film written and directed by guest of the show Miles Levin and starring Greg, himself! What a small world it is in this community!
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.
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Greg Grunberg (@greggrunberg) hosts Shawn Francis (@iamshawnfrancis) and Brian Altounian (@brianaltounian) of the Just Two Dads podcast about raising children with special needs. See Shawn and Brian every Wednesday @ 11AM PT Live on Facebook!
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.
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In this very special and star-filled episode of Talk About It, Greg sits down with David Anders, Todd Stashwick and Jerry O'Connell to share their personal stories of how cancer has impacted their lives. It will have you laughing, crying, and finding ways to come together to end this horrible disease once-and-for-all.
First up is David Anders, a delightfully eccentric and incredibly talented actor Greg worked with on Heroes and Alias. David opens up about his father's blood cancer diagnosis, and how his father dealt with his condition as a doctor who had massive impact on all of his patients. David still grapples with the major loss of his hero and friend.
Next, you'll hear from Todd Stashwick - also a brilliant actor and a self-described nerd enthusiast! Todd starred as Captain Liam Shaw on the critically aclaimed award-winning third season of Star Trek: Picard. Off screen he is an avid Dungeons and Dragons player who uses the hobby to raise money for the Pablove Foundation for pediatric cancer initiatives (PabLove.org). Todd's very good friends experienced the unthinkable when they lost their teenage daughter to cancer, so Todd laced up his running shoes and participates in half marathons in her memory. He also runs a charity livestream of DnD with audience participation to raise both awareness and money for Pablove.
Finally, after such heavy conversations, we lighten up a bit with the hilarious actor, gameshow and podcast host, and star of Star Trek: Lower Decks Jerry O'Connell. Jerry starts by lamenting about being the father of teenage daughters, but he ends up getting into how cancer has affected him through his dad's repeated battles. He inherited his family's tendency to only go to the doctor if you have to go, but after witnessing his father's multiple scares with skin cancer, he sees the importance of getting screened in advance to take a more preventative approach.
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.
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This month on Talk About It, Greg is joined by the CEO of Vesalius Therapeutics and former director of the National Center for Advancing Translational Sciences (NCATS), along with Phil Gattone, co-founder of Talk About It! This episode is all about collaboration, and how it’s possible to make giant strides in the world of medicine through various fields coming together. As Dr. Austin describes, there is often times resistance to share information across fields or specialties, but in the past decade and especially through Covid, the world of medical science, especially as it pertains to conditions like epilepsy, has seen developments that show the whole is truly greater than the sum of its parts. Plus, as a very special treat, don’t miss Dr. Austin showcasing the other side of his expansive brain as he performs opera in front of a live audience! Greg is accompanying, of course!
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals
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In this very special episode, we sit down with the founders of Talk About It to hear all about the past, present and future of this organization! Two of Greg's closest friends, Ken Lowenberg and Phil Gattone, are in the studio. The three co-founders tell the origin story of how Talk About It was born in a hotel ballroom. This organization is fueled by the passion for spreading awareness about epilepsy, but as we find out in this conversation, Talk About It is broadening its scope to include a variety of causes going into the future. Through the benefits of today's technology, Talk About It will now offer a mulititude of outreach channels to get people talking - talking about cancer awareness, talking about MS, talking about cerebral palsy, talking about depression, talking about the things in our lives that matter. No matter what you are going through, there is a community and an infrastructure of support ready to help, but the first step is to... you guessed it... Talk About It!
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals
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To celebrate Epilepsy Awareness Month, Greg sits down with mother, caregiver and author Kelley Coleman to talk about navigating through scary and uncharted waters after a difficult diagnosis. Kelley is the mother of two boys, and her youngest, Aaron, developed an undiagnosed genetic syndrome in addition to epilepsy, autism, cerebral palsy, cortical vision impairment, microcephaly, and motor/ sensory disabilities. Over the years of her preparation, planning and persistence, she developed systems, lists and how-to’s that she is now publishing as a practical guidebook for all parent caretakers to follow entitled Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services and Supports. They also discuss motherly instincts and persistence with medical professionals, how she manages her self-care as a caretaker of others, and of course… Venus fly traps! We also get a bonus visit from a few celebrity friends who have very special messages for all caretakers this month.
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals
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Brock and Bryson Thompson, brothers, began Helmets4Helmets.com at the ages of 8 and 6. They decided they wanted to start their own foundation to help kids around the world who have epilepsy, like Bryson does.
In this episode of Talk About It, Greg Grunberg talks with Bryson's and Brock's parents - Sarah and Aristotle. They share their story as two loving parents who are raising a family all about making a difference and talking about it.
Also, in this episode, a SPECIAL LIMITED TIME OFFER from GuardianHelmets.com for our viewers: You can get 10 percent off of helmets for people living with epilepsy and other neurological conditions. (Offer good through November 9, 2023).
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more.
For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.
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This episode is MEGA VIRAL! Tiktoker, Instagram star and actress Stanzi Potenza joins Greg in the studio to talk about her journey to millions of followers while dealing with unpredictable seizures. As a young star with epilepsy, she displays immense courage through her independence and self-reliance, however it doesn't come without a few scary moments that she shares on this episode. They discuss her growing up in theater and the similarities and differences with creating her own content, how she can sense a massive seizure before it happens and occasionally talk herself out of it, and the videos that broke her career to the masses on the internet during Covid. Enjoy this episode and, of course, like/ subscribe/ comment!
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.
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In this very special mini-Felicity-reunion episode of Talk About It, actress Amanda Foreman (Felicity, Star Trek) joins Greg to reminisce about their time on the show together and to give help, hope and advice to those living with Multiple Sclerosis. Mandy opens up about the dispirited emotions she went through when she received her diagnosis, and the journey she has been on, physically, emotionally and mentally, to now be at peace while living her best life alongside her condition. Plus, Greg and Mandy get into their characters from Felicity to open the show with a classic Meghan-and-Sean bickering about his latest invention idea… but this one might just work!
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.
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Land ho! On this nautical episode of Talk About It, Greg welcomes Dr. Philip Haydon to talk about how he merged his career in medicine with his passion for sailing to inspire people around the world. Dr. Haydon is an internationally recognized neuroscientist, and the Annetta and Gustav Grisard Professor and Chair of the Department of Neuroscience at Tufts University School of Medicine. Since his diagnosis of post-traumatic epilepsy as a teenager, Dr. Haydon has devoted his life to studying in medicine and researching neurological disorders. He channeled his love of sailing into starting Sail4Epilepsy, an organization aimed for raising awareness about epilepsy and helping people take One More Step towards living a fuller life by achieving goals, one step at a time. Greg is also joined by his friend and Heroes co-star, actor and sailing enthusiast Adrian Pasdar, to talk about the peace and tranquility that sailing brings. Batten down the hatches, this episode is quite a journey!
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.
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For the second in a series of interviews with innovators in advocacy and business, Greg sits down with two powerful women from TSC Alliance - Kari Luther Rosbeck, President and CEO, and Lisa Moss, Vice President of Donor Relations. Kari and Lisa have dedicated their lives to helping individuals and families living with TSC, and they have become heroes within the epilepsy community.
In 2002, Kari founded the annual Comedy for a Cure in Los Angeles, providing much needed laughter to help raise money for TSC research. The event has grown to a highly-anticipated tradition that now raises over $500,000 each year with major comedians performing, and even Greg takes part on stage!
This episode discusses the importance of caregivers, the need to sometimes laugh to get through difficult times, how they raised major funding through charity events, the medical breakthroughs that TSC Alliance is funding and facilitating, and so much more!
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.
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Legendary jazz saxophonist Wayne Shorter once said, "The word 'jazz' means to me 'I dare you. Let's jump into the unknown!'" On this episode, Greg sits down with chairperson and CEO of Jazz Pharmaceuticals, Bruce C. Cozadd as the first in a series of conversations with epilepsy innovators, including heads of pharmaceutical companies and charity organizations. Bruce, having a musical background as a master pianist, relates the improvisation, structure, and cooperation of jazz performance to the corporate development of new medication and therapies for patients in need.
They discuss taking risks, the transparency that is needed for a company in pharmaceuticals, and the importance of community and advocacy. Whether you have epilepsy or another condition, or you are a caregiver of somebody who does, it might feel like jumping into the unknown, but companies like Jazz will be there along the way.
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals
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In the third season premiere of "Talk About It," Greg flips the script and brings a friend of the show, internationally recognized DJ Hapa, to the studio to run the interview! This episode is very special, because not only is Hapa here to guide us, but Greg's son Jake is the one being interviewed. This is our first chance to hear Jake's story in his own words, the difficulties he has overcome, and the great unknowns he bravely ventures to solve.
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals
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In the Season 2 finale of “Talk About It!,” Greg turns to some friends who happen to be famous faces: YVETTE NICOLE BROWN, CHRIS GORHAM, and the one and only MEREDITH VIERRA! You know them from their work on television, but they’re also Caregivers in real life. Friends help support each other…. going through some of the same things we all face as caregivers. The many challenges of caregiving that do not discriminate. But talking, laughing, and crying about it sure makes it a lot easier…
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals
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Join Greg as he interviews Wendy Miller, a Dean at the Indiana University School of Nursing. Wendy talks about her experiences living with epilepsy and her exciting research to build a new “epilepsy library” to help people with epilepsy live their best lives.
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals
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Join Greg as he interviews two heroes of the epilepsy social sphere: @BrainAblaze and @TiffanyKairos. Plus, Greg shares his short list of epilepsy social must-follows. All this and more…
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals -
Greg gets in the ring with MMA Fighter Cody Brundage who has a daughter with a rare form of epilepsy. Greg and Cody go head-to-head with fatherly advice and recommendations for caregivers everywhere. The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.
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Greg talks about it with some of our amazing Twitter followers.
You will smile. You will cry. And you will laugh listening to these inspiring every day stories from our community about living - and thriving - with seizures.
We all learn from each other. Remember… You are not alone.
We will be hosting more Twitter Spaces soon for your chance to talk about it with Greg.
Talk About It – The Podcast is sponsored by SeizuresAreSigns.com.
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