エピソード
-
Welcome to season 2 episode 2 of A Friend for the Long Haul - A Long Covid Podcast! Thank you for being here! Join me as I chat with Joe Glasgow, who you may know from his Instagram or TikTok. You may also be subscribed to his Substack, Chronically Creating. If you're not, you should be. Each week, Joe offers a prompt and a quote to those of us who may feel we've lost our creative spark due to chronic illness. Joe and I discuss his Covid "journey," his history in comedy, travel, and podcasting, and how that led to him creating such relatable reels and content about long Covid. I also have a huge MCAS reaction in the middle of recording, which is always fun. I had a great time talking with Joe, and and I'm going to admit that I was nervous about recording because I don't always feel like my brain can keep up and he's so funny and quick, but I managed to make him laugh which left me feeling very pleased with myself lol. Usually, I have a hard time listening back to episodes but I genuinely enjoyed hearing this one, so I hope you enjoy it. Don't forget to like, subscribe, follow, and share if you can. And if you're feeling extra generous, leave a review. Your support helps get this in front of more earballs and helps me bring more episodes.
Update for season 2! From this episode, the end of pod questions change! But not question 2, which will always remain, and you can listen to the A Friend for the Long Haul Long Covid Theme Songs playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=7948dbf2222c4392
If you'd like to support this low budget/high love podcast, you can check out my Bonfire shirt for silly long covid apparel where I'm raising money for a pro license of Zoom (as of right now, I can only record 30-40 minutes at a time and then we have to hang up and come back. Not great for conversational flow!): https://www.bonfire.com/store/a-friend-for-the-long-haul/ or my amazon wishlist: https://www.amazon.com/hz/wishlist/ls/3MYBB5G0P7YUD?ref_=wl_share As always, thanks for listening!
-
Welcome to season two of A Friend for the Long Haul - A Long Covid Podcast! Thank you for being here! For episode one, join me as I sit down with Katrina and Corey, the founders of Covid Safe Colorado. Covid Safe Colorado is a grassroots organization dedicated to providing high-quality masks to vulnerable communities in the state. Learn about their journey from starting a mask bloc to building a supportive network of volunteers.
In this episode, we delve into the challenges and triumphs of pandemic activism, the importance of community-led initiatives, and the personal impact of long Covid. Katrina and I also share our experiences as "pacing buddies," exploring how mutual support can help navigate the complexities of chronic illness. If you're considering starting a mask bloc on your own, Corey and Katrina share their lessons learned and offer advice and resources to help you get started. Don't miss this conversation about compassion and the power of collective community care. We hope you enjoyed it as much as we did. Don't forget to like, subscribe, and share for more episodes. And if you're feeling extra generous, leave a review. Your support helps me keep bringing you episodes.
Resources mentioned in this episode:
How to Start a Mask Bloc, a collaborative zine by Fight COVID NOLA, Mask Up Pittsburgh, Mask Bloc ATX, World Wide Mask Map, Masks for London, Mask Block UCD, Mask Bloc LA, and Charlotte Mask Bloc, found at Worldwide Mask Bloc Directory – Find your local Mask BlocCovid Safe Colorado's website and Instagram
Care Work: Dreaming Disability Justice by Leah Lakshmi Piepzna-SamarasinhaKatrina's podcast, Dreaming Back to the Earth
Don't forget to check out the podcast's playlist. Each guest is asked to share their long covid theme song: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=7399eb50bf8a4a9d
-
エピソードを見逃しましたか？
-
Season 1 Episode 17
In this final episode of the podcast for season 1, I got to chat with Sophie, the founder and Creative Director of Berlin Buyers Club. From their website: "Berlin Buyers Club was born in March 2023 with three goals:
1. To spread awareness of Long Covid and adjacent diseases in a way that is relatable and accessible to younger people, as well as anyone else who feels drawn to the vibe.
2. To encourage people to get involved in advocating for Long Covid & ME/CFS research, treatments, preventatives, and cures.
3. To offer a safe space for people with Long Covid, ME/CFS, and PSSD and their allies.
If you can relate to any of this, if you'd like to help us spread the message, if you're interested in normalizing discussion about Long Covid and the need for treatments and preventatives, if you want clean air... Then you're a part of the Club too! Welcome."Sophie and I discussed her experience with long covid, how she came to start BBC, how it has impacted her, and yes, we talk about how cool it was to see Violet Affleck wearing some of the Berlin Buyer's Club merch! We talk about what healthcare has looked for each of us in our respective countries of residence, ways to channel our anger, and advocacy efforts. I hope you'll tune in!
Hit subscribe and leave us a rating to let us know what you think! We're here for you, friends. And thanks again to Sophie for joining me!
Be sure to follow me on Instagram at https://www.instagram.com/afriendforthelonghaul for updates and unhinged content.
My website is: https://sites.google.com/view/friendforthelonghaul
Sophie's Instagram is: https://www.instagram.com/sophsoph.psd/
And the Insta for Berlin Buyer's Club is: https://www.instagram.com/berlin_buyers_club/
Don't forget to check out the pod playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=c5c70f678a7d4d4d
-
Season 1 Episode 16: Damn it, Amy!
Join me as I chat with Amy, a writer, social worker, long covid & ME/CFS advocate, and the brilliant mind behind The Tonic (https://amythetonic.substack.com/) – a refreshing blend of wellness resources and stories for those battling chronic illness.
In this episode, we discuss:
How to break free from the achievement trap and find validation on your terms. Amy's personal journey with long covid, including her fight for long-term disability. The inspiring story behind The Tonic, and how it injects laughter and hope into chronic illness journeys.Whether you're a long hauler yourself, or supporting someone who is, this episode is for you.
#LongCovid #Hope #ChronicIllness #TheTonic
P.S. Looking for more resources on long covid and ME/CFS? Check out Amy's blog, The Tonic!
Mentioned in this episode:
Amy's HealthRising piece on Long Covid and Disability: https://www.healthrising.org/blog/2023/03/02/my-long-covid-disability-journey/
Pain Free You on YouTube with Dan Buglio: https://www.youtube.com/@PainFreeYou
Amy Hamilton at Core Connections Counseling: https://www.coreconnectionscounselling.com/
Hit subscribe and leave us a rating to let us know what you think! We're here for you, friends. And thanks again to Dr. Laurie Nadel for joining me!
Be sure to follow me on Instagram at https://www.instagram.com/afriendforthelonghaul for updates and unhinged content.
My website is: https://sites.google.com/view/friendforthelonghaul
Don't forget to check out the pod playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=c5c70f678a7d4d4d
-
Episode 15: The Five Gifts - Discovering Hope, Healing and Strength When Disaster Strikes
This week on A Friend for the Long Haul, I welcome a fellow traveler on the path of chronic illness! Dr. Laurie Nadel, a renowned journalist and therapist, joins us to share her incredible journey.
Dr. Nadel has battled chronic fatigue syndrome (CFS) and COPD, and understands the physical and emotional toll of long-term illness. We'll delve into her amazing career, her own struggles with chronic illness, trauma, and loss - and her dedication to helping Long Haulers. Some history from Dr. Nadel's website that I think you'll just eat up:
"After an internship with the London Daily Mirror, she worked at Reuters Television in London where she became the first woman news writer. Returning to New York, she became the first woman news writer-producer at ABC News, working with correspondents and cameramen around the world. A member of the Writers Guild of America, Nadel produced news about the Vietnam war and the anti-war movement, Watergate and the Nixon-McGovern presidential election when President Nixon won a second term."
"In 1988, after a long battle with chronic fatigue syndrome, Nadel was laid off while she was medically disabled. As she started to improve with the help of meditation, hypnotherapy and Chinese medicine, she rebooted her journalism career by writing for airline magazines and Men’s Fitness. Around this time, she returned to graduate school to earn two doctorates in psychology and clinical hypnotherapy. These credentials opened the way for her to focus on behavioral health topics and led to her writing several psychology books."
In this episode, you'll learn:
How Dr. Nadel's experience with CFS shaped her work as a therapist. Her unique approach to healing, incorporating elements of psychology, hypnotherapy, and indigenous wisdom. The "Five Gifts" from her book, explained as they relate to Long Haulers (she's committed to offering long-term support for women who endure permanent chronic health difficulties since the first wave of COVID in 2020. With Dr. Noah Greenspan’s Pulmonary Wellness Foundation, she helped launch the longest ongoing support program for Long Covid patients. Practical tools and strategies for building resilience and finding hope amidst chronic illnessDr. Laurie also takes us through some ways to trust our bodies and our guts in an effort to find our inner wisdom and inner healer, and shares some of her favorite meditation techniques.
Whether you're a Long Hauler, someone with ME/CFS, or facing any chronic health battle, this episode is a beacon of strength and support.
Don't miss Dr. Laurie Nadel's inspiring story and advice!
P.S. Check out Dr. Laurie Nadel's book, "The Five Gifts," for an "emergency Go-Kit" for your heart and mind. You can find it on Amazon here but she's also written 7 other books!
You can find Dr. Laurie's website at: https://www.laurienadel.com/
On the Services page, you can find a video meditation journey she speaks of in this episode: https://www.laurienadel.com/services-events.html
Dr. Laurie's Reiki and energy healing for animals and their human companions page is: https://animalreikiplanet.com/
Find out more about the Pulmonary Wellness Foundation here (btw, this isn't an ad, they're just good folks!)
This episode also has a special message from Lior Ocean, my friend and guest from episode 5, who is looking to expand their services to long haulers by offering a sliding scale and even free sessions.
Hit subscribe and leave us a rating to let us know what you think! We're here for you, friends. And thanks again to Dr. Laurie Nadel for joining me!
Be sure to follow me on Instagram at https://www.instagram.com/afriendforthelonghaul for updates and unhinged content.
My website is: https://sites.google.com/view/friendforthelonghaul
Don't forget to check out the pod playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K
-
Episode 14: I Got Bit by the Zombie and I'm not Telling You
This week's episode of A Friend for the Long Haul - a Podcast for Long Covid Friends features Jacob. Listening to the very beginning, I realized that I refer to Jacob as "him." Their pronouns are they/them, and I'd like to acknowledge that and apologize for making assumptions. YOU KNOW WHAT YOU DO WHEN YOU ASSUME.
I'm just gonna add a list of where you can find them now, because they are lovely and I am an old lady and if my three sons grow up with even half of Jacob's empathy and ability to show compassion to others as well as himself I will have done a good a pretty fine job. They've actually made it really easy: https://jacjack.carrd.co/ has all platforms linked and I'm probably about to copy them.
You'll see their content first on TikTok: https://www.tiktok.com/@midwestsidegunn
I started following Jacob when a few of their videos started making the rounds in the long covid community. Jacob does not have long covid, but received a zine from a friend who does and that zine started making them think about how messed up it sounds. They started learning (imagine, a person not affected by your condition starting to listen and learn about it to protect themself and to protect their community!) and then started becoming more vocal about being covid conscious on social media.
In this episode, we discuss:
what led them to becoming more vocal about covid their pandemic experience integrity in the chronic illness and disability space tone policing and being Black in the covid conscious community the intersection of covid justice/activism & disability justice with all of the other major sociopolitical things happening right now (Palestine, Sudan, Congo, etc) Disco and the importance of Donna Summerand so much more <3
In addition, Jacob made us a disco playlist that I've been bopping around to for about a week and you'll love it. Links below:
Apple Music: https://music.apple.com/us/playlist/disco-innit/pl.u-JPAZZK2IX0ygP4
Spotify: https://open.spotify.com/playlist/0efn9oT1r09C72k7j0yoog?si=854d1adbb0214201
THAT'S RIGHT JACOB IS SO CONSIDERATE THEY TOOK THE TIME TO MAKE THE PLAYLIST ON TWO PLATFORMS BECAUSE YOU MIGHT HAVE PREFERENCES AND THEY UNDERSTAND THAT
Hit subscribe and leave us a rating to let us know what you think! We're here for you, friends.
Be sure to follow me on Instagram at https://www.instagram.com/afriendforthelonghaul for updates and unhinged content.
My website is: https://sites.google.com/view/friendforthelonghaul
Don't forget to check out the pod playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K
-
Mark Your Calendars! The Teal Reveal is Almost Here! ✨
Calling all #chronic illness and #longcovid warriors! Join me and Chimere on this bonus episode of A Friend for the Long Haul as we chat about her upcoming virtual prom, The Teal Reveal, happening in just TWO WEEKS!
The Teal Reveal is more than just a party – it's a celebration of resilience and community. This inclusive event supports a fantastic cause:
Your ticket purchase helps fund the important documentary, Black and (un)Believed. It also provides food, medicine, or supplies to two amazing community members in need.Here's what you need to know:
Tickets are on sale now! Get yours at https://www.blackandunbelievedfilm.com/ (don't forget to check your spam folder for your ticket!). Kids under 10 are FREE! Bring your whole crew – partners, pets, and all! There will be music, prizes, and of course, FUN!Plus, Chimere shares an update on her powerful film, Black and (un)Believed, and how it's evolved as she's navigated filmmaking. The episode ends with a heartwarming moment as my 6-year-old (who met Chimere when he was only 2!) gets to say hi!
Find Chimmy on Instagram at https://www.instagram.com/chimereladawn/
-
Episode 13: An Emotion Soup
Ever feel like you get the "you look great!" when you definitely don't feel great? Join me and Amy (https://www.instagram.com/longcovidrockstar/) on this episode of A Friend for the Long Haul as we tackle the frustrating things people say to those with chronic illness and long covid. We get real about the pressure to perform and the emotional toll of "have you tried X?"
But this episode isn't all venting! Amy's a total rockstar when it comes to mindset and pacing, and she shares how she reclaimed enjoyment in her life. We even dive into how she negotiated a return to work on her terms (because boundaries are essential!)
Feeling lost in the shuffle of illness? We talk about the impact of social conditioning and the patriarchy on our self-worth, especially for chronically ill and disabled folks. Amy will leave you with some actionable tips for starting a gratitude practice and reconnecting with the parts of yourself that might feel hidden.
This episode is a must-listen if you struggle with
Feeling invisible in your illness Saying good things about yourself Dealing with unsolicited advice Reclaiming joy and purposeHit subscribe and leave us a rating to let us know what you think! We're here for you, friends.
Be sure to follow me on Instagram at https://www.instagram.com/afriendforthelonghaul for updates and unhinged content.
My website is: https://sites.google.com/view/friendforthelonghaulDon't forget to check out the pod playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K
-
Episode 12: Born to be Horizontal, Forced to be Vertical
Navigating Long Covid in Your Early 20s on A Friend for the Long Haul
This week on A Friend for the Long Haul, I'm joined by Ally, who got hit with covid right before her college graduation, which developed into long covid. We explore the unique challenges of starting a new chapter in your twenties after acquiring a chronic illness.
In this episode, you'll hear:
How Ally navigates friendships and relationships What it was like starting her first job after college with long covid Ally's journey with pacing and the importance of mobility aidss The emotions of meeting another long hauler for the first time (Chef Taryn of episode 4!)Plus, we chat about TurnTo, a brand new app designed specifically for people with long covid and ME/CFS!
TurnTo leverages AI to curate personalized daily content, from the latest research breakthroughs to inspiring user stories. Ally shares her experience with working on the development of the app and how it's helped her on her long haul journey. By the way - this is not an ad, the app is free and so useful.
Feeling lost and alone with long covid in your twenties? This episode is for you! Join us for a supportive conversation and discover some tools and resources you may find useful.
#AFriendForTheLongHaul #LongCovidCommunity #ChronicIllnessWarriors
Tune in, and let’s navigate this long haul together.
Don’t forget to subscribe, leave a review, and share this episode with anyone who might benefit from hearing Ally's story.
You can find Ally on Instagram at https://www.instagram.com/livinglongcovid/
Be sure to follow me on Instagram at https://www.instagram.com/afriendforthelonghaul for updates and unhinged content.
My website is: https://sites.google.com/view/friendforthelonghaulDon't forget to check out the pod playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K
-
Episode 11: “It is no measure of health to be well-adjusted to a profoundly sick society.” - Jiddu Krishnamurti
Hello everyone, and welcome back to another episode of A Friend for the Long Haul. I’m incredibly excited about this week's guest, Steph Fowler, the fantastic brain behind Misfit Mental Health. Steph is a therapist with a unique and powerful story that will resonate deeply with the many of us who have felt like we just don’t fit in.
In this episode, Steph and I discuss:
Steph’s "Misfit" Experience: We start with Steph’s personal story, where she shares the challenges of facing burnout, and the path to rebuilding her life.
Career Shifts and Finding Her Path: Steph opens up about her career changes and how the search for a better fit eventually led her to work for herself, creating a space where she could be her authentic self.
Living with Chronic Illness and Dynamic Disabilities: We discuss Steph’s experience with chronic illness, dynamic disabilities, and the ongoing challenges of navigating life in a world that often overlooks the realities of living with Long Covid.
The Misfit Mental Health Philosophy: Steph explains how living as a misfit can be both liberating and isolating, and the importance of acknowledging and processing past harms to move toward healing.
Self-Assurance: Steph and I discuss acceptance and self-assurance, and how validating one’s own needs, strengths, and values is crucial in navigating a world that doesn’t always support uniqueness.
Rediscovering and Celebrating Your True Self: We delve into the journey of rediscovering and celebrating the person you are beneath decades of social conditioning.
Join us for a conversation filled with authenticity that I thoroughly enjoyed! Steph also provides us with some tips for what to ask and what to look for when you are seeking a new therapist. Whether you’ve felt like a misfit all your life or are simply looking for inspiration to embrace your true self, this episode is a must-listen.
Tune in, and let’s navigate this long haul together.
Don’t forget to subscribe, leave a review, and share this episode with anyone who might benefit from Steph’s story and wisdom.
You can find Steph at https://misfitmentalhealth.com and on Instagram at https://www.instagram.com/misfit.mental.health.
Be sure to follow me on Instagram at https://www.instagram.com/afriendforthelonghaul for updates and unhinged content.
My website is: https://sites.google.com/view/friendforthelonghaul
Don't forget to check out the pod playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K -
Episode 10: The 11th Recording and 10th Release
Welcome back to another episode of A Friend for the Long Haul! I’m happy to have Wanda Belisle join me for this episode. Wanda is a Registered Health Coach who’s aim is to help people with ME/CFS and Long Covid.
In this episode, Wanda and I dive deep into her story and the work she’s doing:
Wanda's Prior History with Post-Viral Illness and ME/CFS: We kick things off by exploring Wanda’s own battle with post-viral illness and ME/CFS, which started in her teens, giving us a glimpse into her resilience and strength.
The Possibility of Contracting Covid-19 in February 2020: Wanda shares her story of possibly having Covid-19 early in the pandemic and how it contributed to a severe flare.
Finding an Improved Baseline: Through her work with practitioners and her own efforts, Wanda has managed to find a better baseline. She opens up about the strategies and treatments that have made a difference in her life.
Starting Her Health Coaching Business: Wanda’s passion for helping others led her to start a business as a health coach years before the pandemic. We discuss how her business has evolved since the pandemic began.
Challenging Ableist and Ill-Informed Notions: Both of us reflect on the ableist and ill-informed pre-conceived notions we had about post-viral illness before experiencing it ourselves, and how our perspectives have shifted. This portion may be a bit difficult for some listeners as we confront and name how ignorant we were in the past about these matters.
Tips for the Newly Diagnosed: Wanda offers advice for those newly diagnosed with ME/CFS or Long Covid, providing practical tips for navigating this challenging journey.
Future Plans for Her Coaching Business: Finally, Wanda shares exciting plans she has for her coaching business and her vision for the future.
Join us for an inspiring conversation filled with insights, personal stories, and practical advice. Whether you’re dealing with ME/CFS, Long Covid, or simply looking for a story of resilience and hope, this episode is for you.
Tune in, and let’s get through this long haul together.
PS I am not a client of Wanda's and this is not an ad or promotion. I'm highly selective about any wellness or health professionals I have on this podcast because I am very protective of this community. I have a lot of time for Wanda because of her transparency and openness.
Make sure to subscribe, leave a review, and share this episode with anyone who might benefit from Wanda’s story. You can find her at https://www.wandabelisle.com/ and on Instagram at https://www.instagram.com/wandabelisle
Don’t forget to follow me on Instagram at https://www.instagram.com/afriendforthelonghaul/
And check out my website at https://sites.google.com/view/friendforthelonghaul - check out the Providers link to find a living Google doc full of long hauler submitted and approved healthcare providers!
Resources mentioned in this episode:
Byron Katie: https://thework.com/
Jarred Younger's YouTube channel: https://www.youtube.com/@youngerlab
Solve M.E. Videos featuring Jarred Younger:
https://www.youtube.com/watch?v=wJB95m4FLa0
https://www.youtube.com/watch?v=rxdzaWD5wfU
https://www.youtube.com/watch?v=DU0UgWGyi0A
Ally Boothroyd's YouTube Channel for Yoga Nidra: https://www.youtube.com/@SarovaraYoga
Jennifer Piercy's Insight Timer page: https://insighttimer.com/jenniferpiercy
Don't forget to check out the podcast playlist on Spotify using this link: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=e67cfc837de84b5d
-
Welcome back to A Friend for the Long Haul with me, your host, Beth. This week, I am joined by Alysia Dagrosa, a board-certified patient advocate, full-spectrum doula, certified lactation counselor, Endometriosis advocate, and first wave long hauler.
In this deeply personal episode, Alysia recounts the early days of the pandemic, contracting COVID-19 in March 2020, and the challenges she faced living with and caring for her family during lockdown. From her father’s cabin fever-induced escapades THAT WILL INFURIATE YOU to the severe health complications that followed, Alysia's story is both harrowing and heartfelt. She opens up about the multi-system failures she experienced, her own struggles with long Covid, and the emotional toll of dealing with a family in denial. While Alysia and I were talking, I was so wrapped up in her story that I couldn't quite process what I was hearing. While editing this episode, I felt all the emotions and you'll go from curious to incredulous to feeling deep empathy to being simply wowed by Alysia as a human.
In addition, you'll learn SO MUCH about Endometriosis in this episode. If you're struggling with endo, please give this episode a listen. We mostly get into Alysia's endo advocacy work in the second half and she provides so much education here.
Content Warning: This episode discusses serious difficult family dynamics, COVID-19 infection, hospital trips, strokes, and food and body issues which may be difficult for some listeners.
This episode is longer than usual, so feel free to take breaks as needed. Join us for an honest conversation filled with vulnerability, resilience, and even moments of humor. Plus Alysia's amazing singing at the end!
Don’t forget to subscribe, rate, and share the podcast with your friends. Your support helps us reach more listeners who can benefit from these stories. Tune in every Monday for new episodes!
You can find Alysia on Instagram at: https://www.instagram.com/tantielys/
Find out more about A Friend for the Long Haul here: https://sites.google.com/view/afriendforthelonghaul
Or on Instagram at: https://www.instagram.com/afriendforthelonghaul/
Don't miss this show's playlist, which you can find on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=665f477ed2b647a0
Disclaimer: While this podcast discusses medical topics, none of the content is intended as medical advice. Please consult your medical professional with any questions or concerns you may have.
For more information about the PASC care package fundraiser mentioned at the beginning of this episode, check out https://www.instagram.com/chillusions/
Keywords: Long COVID, patient advocacy, pandemic stories, COVID-19 recovery, endometriosis, endo, advocacy, stroke, personal journey, family struggles, COVID-19 impact
-
Season 1 Episode 8: We Really Went off ScriptJoin me, Beth, on this week’s episode of A Friend for the Long Haul, as I have a heartfelt conversation with my dear friend Katy. Katy (a first wave Covid long hauler from Canada) and I have known each other online since 2020. When I announced that Katy was going to be on the podcast, I said that I couldn't remember my Covid life without her. Our experience through the trials of long covid has brought us closer together and we’re sharing our stories with you.In this episode, we reflect on the early days of the pandemic when the uncertainty of prolonged symptoms left us feeling isolated and misunderstood - and that part never really went away. Katy and I discuss our shared experiences with conditions like postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS), including harrowing episodes of anaphylaxis triggered by food and medications.We discuss our advocacy efforts to raise awareness and support for long Covid sufferers, discussing how we attempt to preserve our energy and find joy in the small details of life. Don’t miss this episode filled with lols, strength, and hope.
By the way, 10kms is equal to 6.21371, I was close!!
Remember to subscribe to A Friend for the Long Haul and rate the pod on your favorite platform. Your support means the world to me and my listeners, and we’re grateful to have your ears.Thank you for listening!Katy was a speaker at the following event, hosted by Ed Yong: https://youtu.be/BjNy1rn0yPk?si=cYV37I8vgST3YVjJ and she will be back on another podcast to talk more about that - hopefully with other speakers from that event. Ed, I'd love to chat with you too! :D Here's Ed's website: https://edyong.me/ You can find Katy on on Instagram at: https://www.instagram.com/suddendeparture/ Keywords: Long Covid, chronic illness, postural orthostatic tachycardia syndrome, mast cell activation syndrome, anaphylaxis, advocacy, covid long hauler, Ed Yong, pandemic, health journey, energy preservation, spoons, spoonie life, pasc, me/cfs, mcas, pots, asthmaLand acknowledgement: Katy and I would like to take a moment to acknowledge the traditional territories on which we are situated. Katy was speaking to you from the unceded traditional territories of the xʷməθkʷəy̓əm (Musqueam), Sḵwx̱wú7mesh (Squamish), and səlilwətaɬ (Tsleil-Waututh) Nations. Beth joined from the traditional territory of the Núu-agha-tʉvʉ-pʉ̱ (Ute), hinono’eino’ biito’owu’ (Arapaho), Tséstho’e (Cheyenne), Ndé Kónitsąąíí Gokíyaa (Lipan Apache), and Očhéthi Šakówiŋ communities.We honor and respect the Indigenous peoples who have lived on and cared for these lands for generations. It is important for us to recognize the histories and cultures of these nations as we continue our conversation today. Thank you.
-
Episode 6: Rest is Medicine
Join us in our latest episode of A Friend for the Long Haul, where we dive deep into the world of chronic illness and movement with the incredible Julie Hunter!
Julie is an endurance athlete and health & fitness coach with over a decade of experience. After battling her own health problems, including ME/CFS, Fibromyalgia, MCAS, POTS, and multiple TBIs, Julie turned her journey into a beacon of hope for others facing similar struggles and used her experience not only to help herself cope with Long Covid, but to help others with her coaching business, Movement with ME.
In this episode, Julie opens up about:
Top Trends with Long Covid Clients: Discover the latest insights and trends Julie has observed while working with Long Covid sufferers.
Julie's Personal Journey: Get inspired by Julie's courageous battle against chronic illness and how it fueled her passion to help others reclaim their lives.
Personalized Movement Plans vs. Graded Exercise Therapy: Ever wondered about the difference? Julie breaks it down for us.
Whether you're looking for personalized strategies to incorporate movement into your routine or seeking solace in shared experiences, this episode is a must-listen! 🎧
Tune in Monday, May 6th on Spotify, Apple Podcasts, and Amazon Music. #PodcastHealing #WellnessJourney #COVIDRecovery #EmpowermentPodcast #LongCovid #ChronicIllness #PainManagement #HealthCoaching #FitnessJourney #MECFS #Fibromyalgia #MCAS #POTS #TBIs #EnduranceCoaching #InvisibleIllness
You can find out more about Julie's approach to coaching on her website: www.movementwithme.com
or, find Julie on Instagram: https://www.instagram.com/movement_with_me
Don't forget to check out the podcast playlist on Spotify!
https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=867eb9ca16b94ac4
-
Episode 5: Memes are Tiny Prayers
In this episode, I'm joined by the incredible Lior Ocean, an intuitive medium, fine artist, and beacon of light. Lior shares their story of navigating long covid, chronic illness, and disability while finding solace in art and spirituality. Lior speaks from a very unique perspective - they worked on the Ebola outbreak in West Africa in 2016 and 2017. Just before the start of the SARS-CoV-2 pandemic, they obtained a Master's Degree in Infectious Diseases.
We delve into the philosophy of non-duality, and Lior shares insights on its intersection with chronic illness and how spirituality influences their approach to life's challenges. Recording this episode was honestly very healing for me, as Lior and I discuss how to start learning to trust your intuition when you feel like you can't trust your body. I cried about 4 times editing this conversation!You can find Lior at https://www.liorocean.com/ and on Instagram at https://www.instagram.com/liorocean/
Books mentioned in this episode:
Burnout: The Secret to Unlocking the Stress Cycle by Emily Nagoski and Amelia Nagoski When Things Fall Apart: Heart Advice for Difficult Times by Pema Chodron Loving Our Own Bones: Disability Wisdom and the Spiritual Subversiveness of Knowing Ourselves Whole by Julia Watts Belser -
Episode 4: Oat-my-goodness, Chef!
In this episode of "A Friend for the Long Haul," I invite you to pull up a chair and join a warm, inviting conversation with Chef Taryn Marquez.
Through her incredible journey battling severe COVID-19, Taryn emerged not only as a survivor but as a beacon for many. Join us as we delve into her courageous story, sharing laughs, tears, and a delicious recipes along the way.
On the Menu: Vegan Chocolate Peanut Butter Protein Balls
Get ready to tantalize your tastebuds as we whip up one of Chef Taryn's signature treats! These delectable snacks aren't just about flavor – they're full of nutrition.
1/2 cup maple syrup 1/4 cup + 2 tablespoons peanut butter 3/4 cup GF rolled oats 3 tablespoons mini vegan chocolate chips 1 tablespoon Zivolife functional food powder (or chia or flax seeds) 3 tablespoons cocoa powderMix all ingredients thoroughly, form into balls or any shape that suits you on parchment and refrigerate overnight.
In our friendly kitchen chat, we'll explore:
Taryn's COVID Experience: From her challenging stay in the hospital to her remarkable road to recovery, hear firsthand how she overcame the odds with unwavering determination and a sprinkle of culinary magic.
Bloom-19: Spreading Awareness and Deliciousness: Discover the story behind Taryn's initiative, Bloom-19, and how she's using her platform to share recipes tailored for fellow long Covid sufferers.
Looking Forward with Hope: Taryn has big dreams for the future and we discuss the silver linings she's discovered amidst the storm. Through her optimism, we're reminded of the importance of savoring (food pun!) each moment.
The Importance of Family: At the heart of Taryn's journey lies a profound appreciation for the love and support of family. We'll explore the role of connection, compassion, and community in navigating life's toughest challenges, including caring for her father with the help of her sister, Cindy.
So grab your apron, pour yourself a cup of comfort, and join us for an episode filled with warmth, wisdom, and of course, a sprinkle of culinary delight. Oh, and there are some bloopers in there, too.
Taryn's website and store can be found at https://www.bloom-19.com/
and you can find her on Instagram at https://www.instagram.com/bloom19official/
Thanks for listening! If you enjoyed this episode, please follow and give me and the guest some stars. :)
-
Episode 3: A Developing Friendship
In this episode of A Friend for the Long Haul, I chat with John Zeising about his career as an EMT and firefighter, his passion for photography, and the unexpected turn his life took after getting COVID-19 on his Christmas Eve shift in 2020. Discover the profound impact of disability advocacy on his life and how he remains committed to serving his community.
This episode was recorded later in the day on a Friday, during a week when I had traveled out of town for the first time in a long time. I was dealing with post-exertional malaise as a result. You may find that I'm a little slower than usual to compute and there may be some rambling, but it's real life with long Covid, so I'm just going to roll with it.
You can find out more about John by going to his website, 4th Dimension Photography LLC (johnzeising.com)
John's podcast is called Long Covid - Sharing the Journey and you can find it on Spotify.
Follow the A Friend for the Long Haul podcast playlist on Spotify! Each guest shares a song that relates to their experience with Long Covid.
John is also on Instagram at https://www.instagram.com/colorado_sky/
Thanks for listening! If you enjoyed this episode, please follow and give me and the guest some stars. :)
-
Episode 2: That Time Megan Bit into an Onion
In the second episode of A Friend for the Long Haul, join host Beth and her darling friend Megan as they delve into the depths of online girl friendship. Remember in the intro episode of this podcast, when Beth said that her brand is dark humor as a coping mechanism? If you thought the intro was relatable, wait until she starts chatting with Megan. Despite a significant age gap and never having met face-to-face, Beth and Megan share a bond that transcends time and distance. Megan is the powerhouse behind Fancy Free Nursery in Tampa, Florida (we'll give some credit to her husband Robby, too) and she opens up about her battle with long Covid since November 2020.
Tune in as Megan chats about her pre-illness dedication to fitness, the challenges of running a small business while chronically ill, covid-conscious family dynamics, and raising awareness of Covid's impact on children. Plus, don't miss Megan's ingenious STEM project idea for school kids.
Important Links:
Megan's business website, Fancy Free Nursery: https://www.fancyfreenursery.com/
Fancy Free's Instagram: https://www.instagram.com/fancyfreenursery/
Follow the A Friend for the Long Haul podcast playlist on Spotify! Each guest shares a song that relates to their experience with Long Covid.
Thanks for listening! If you enjoyed this episode, please follow and give me and the guest some stars.
-
Episode 1: True Friendship is like Oxygen with LesaJoin in for the inaugural episode of A Friend for the Long Haul, where we dive deep into the world of friendship and overcoming whatever the heck the last four years have been with our host, Beth, and her dear friend Lesa. Lesa, a business development strategist, a devoted godmother, and long hauler, shares her story with us. In this heartfelt conversation, Beth and Lesa open up about Lesa's move to Nashville that did not go as planned, the realities of living with long Covid, the use of home oxygen therapy, as well as the importance of community. Discover the little things that make a big difference, from the humble sticky note to the healing magic of puppies. tldr: Listen in as Beth and Lesa tell each other how much they love each other for about 55 minutes.
Important Links! None of these are ads, but are mentioned in this episode:
Lesa's Substack: https://lesaschultz.substack.com/
Ally Boothroyd's YouTube channel for Yoga Nidra: https://www.youtube.com/@SarovaraYoga/
Information on the Pulmonary Wellness Foundation https://pulmonarywellness.org/
Follow the A Friend for the Long Haul podcast playlist on Spotify! Each guest shares a song that relates to their experience with Long Covid.
Thanks for listening! If you enjoyed this episode, please follow and give me and the guest some stars. :)
-
A whopping two-minute episode to give you an idea of the A Friend for the Long Haul podcast, coming to your earballs on April 1, 2024!
