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Jessie Meier is a social worker at The ALS Association Recognized Treatment Center at Lehigh Valley Health Network. Through her years of working for people with ALS, she has come across many amazing stories, but she wanted a special way to highlight them.
Lenny Rafalko is a person with ALS who attends the ALS Treatment Center at LVHN. He was looking for an uplifting project, especially as the global pandemic turned the world upside down for everyone. Jessie and Lenny collaborated and created their own special podcast called Roots Radio to showcase some of these personal ALS stories.
In this Talk to Defeat ALS Podcast, Lenny and Jessie talk about the creation of Roots Radio, what they hope to accomplish, how ALS has affected them personally, the work of the Philadelphia Phillies to Strike Out ALS, and more.
Listen and share and find their podcast online at: https://rootsradioals.captivate.fm/
Join the LVHN team for the Lehigh Valley Walk to Defeat ALS at www.lehighvalleywalktodefeatals.org
Learn more about ALS, our services, and how to get involved at www.alsphiladelphia.org
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The ALS Association continues to find new ways to listen to all parts of the ALS community to better deliver its mission. In this Talk to Defeat ALS Podcast, Sarah Parvanta discusses the new ALS Focus survey project.
Topics include:
Developing the right surveys using expert inputWhat The ALS Association has already learned from surveysHow people can participate and what voices are neededCreating the next round of surveysListen and share and learn more about ALS Focus at https://www.als.org/als-focus
Follow The ALS Association on Twitter @alsassociation and follow our Chapter on Twitter @alsphiladelphia and online at www.alsphiladelphia.org
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Jim Doyle has long been known as the voice of Berwick Bulldogs football. In this Talk to Defeat ALS podcast, Jim talks about the life of Bulldogs Coach George Curry and Coach Curry's battle with ALS, the disease that ultimately took his life in 2016. Jim discusses how the community rallied around Coach Curry and created the Berwick Walk to Defeat ALS.
This year, the Walk to Defeat ALS is using the Walk Your Way concept so that everyone can participate! Register for a walk now at www.walk2defeatals.org
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A new season of the Talk to Defeat ALS Podcast starts with Steve Spaulding, Director of Care Services at The ALS Association Greater Philadelphia Chapter as he discusses how The ALS Association has adapted to the challenges surrounding COVID-19.
In this episode, we discuss:
Transitioning to TelehealthHow Care professionals are helping more ALS families than everSteps you can take to stay safe and keep others with ALS safeWhy people with ALS are more at risk from COVID-19Listen and share this discussion on whatever program you use for podcasts and support the fight against ALS at www.alsphiladelphia.org
Thank you to our sponsor First Keystone Community Bank for making this episode possible. If you have a topic or guest suggestion for the Talk to Defeat ALS, email [email protected]
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The ALS Association Greater Philadelphia Chapter is proud to have many exceptional nurses on staff to provide needed quality care for people with ALS and their families. For Nurses Week 2019, Erica Smith joins the Talk to Defeat ALS Podcast to discuss why she became a nurse, the challenges of being a nurse for The ALS Association, what makes her job so rewarding, and why more people should choose nursing. Erica also talks about her support of the Berwick Walk to Defeat ALS. You can support Walk to Defeat ALS teams, learn about the Chapter's care services programs, and donate to the ALS cause all at www.alsphiladelphia.org
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March is National Social Work Month and our own MaryBeth Tomczak is joining the Talk to Defeat ALS Podcast to talk about her role as a social worker with The ALS Association Greater Philadelphia Chapter. She also talks about why she joined the social work field, the challenges of being a social work provider for ALS families, and what she hopes to accomplish this year for the ALS cause. MaryBeth works mostly in North East Pennsylvania, which brings its own unique challenges to providing care with a large geography, different county departments, and different understanding of ALS. Listen, share, subscribe and join MaryBeth and others in the fight against ALS at www.alsphiladelphia.org
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March is National Social Work Month and our own Wendy Barnes is coming back to the Talk to Defeat ALS Podcast to talk about her role as a social worker with The ALS Association Greater Philadelphia Chapter. She also talks about why she joined the social work field, the challenges of being a social work provider for ALS families, and what she hopes to accomplish this year for the ALS cause. Listen, share, subscribe and join Wendy and others in the fight against ALS at www.alsphiladelphia.org
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March is National Social Work Month and we continue to highlight some of the amazing social workers who are so important to The ALS Association Mission. In this episode, Maryann Jones talks about how she became a social worker and joined The ALS Association Greater Philadelphia Chapter, what it is like working with the team at Hershey Medical Center, the challenges of caring for people with ALS, and why social work is so valuable and necessary.
Listen, subscribe, share, and get involved in the fight against ALS at www.alsphiladelphia.org
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March is National Professional Social Work Month and our Chapter is proud to be home to many compassionate and accomplished social workers who go above and beyond to support people with ALS and their families. This month, the Talk to Defeat ALS Podcast will feature interviews with Chapter social workers to learn why they became social workers, what their job entails, the challenges of being a social worker for The ALS Association, and why social work is so valuable. Listen to this special episode with Melissa Coll, Anne Cooney, and Jayne Etskovitz, share, subscribe, and learn more about The ALS Association Greater Philadelphia Chapter and how you can get involved at www.alsphiladelphia.org
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The Howard I. Abrams In-Home Care Program is a hallmark of The ALS Association Greater Philadelphia Chapter and a key part of the Chapter's mission for ALS families. In this podcast, Frank Esterle of Home Helpers talks about his organization's history of providing care for people with ALS, the stories that have impacted him personally and helped grow the relationship, and how Home Helpers is sponsoring upcoming events like the Help and Hope Research and Care Forum in March, 2019.
Listen, Share, and Subscribe on iTunes and then join the fight against ALS at www.alsphiladelphia.org
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In part two of our two part series on the 2018 Clinical Conference, Chapter Social Workers Anne Cooney and Melissa Coll talk about what they learned at the conference and what they presented as well. Melissa and Anne talk about caregiving and how caregivers can take care of themselves as well.
Listen, subscribe, share, and then learn more about ALS services and how you can get involved at www.alsphiladelphia.org
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The ALS Association Greater Philadelphia Chapter's Care Services team recently participated in the 2018 Clinical Conference in Dallas, Texas. Many members of the Chapter team presented ideas and studies they worked on and everyone learned from experts from across the country. In Part 1 of our two part podcast series, Care Services Director Steve Spaulding; Gail Houseman, RN; and Alisa Brownlee, ATP discuss what they presented and learned.
Listen, subscribe, share, and then join us in the fight against ALS at www.alsphiladelphia.org
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Scott Smith has produced dazzling visual effects on major Hollywood films for nearly two decades and currently works for Brick Simple to create groundbreaking virtual reality and augmented reality projects. On Wednesday, November 28, Scott will bring his experience and ideas to The ALS Association Greater Philadelphia Chapter's Annual Dinner to talk about how Virtual Reality can be used to create a powerful empathy experience for ALS. This technology can be used for ALS awareness, education, caregiving and more.
Listen, subscribe, share, and then make sure to join us for the Annual Dinner by signing up at www.alsphiladelphia.org/annualdinner
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In the latest Five Minute Tip on the Talk to Defeat ALS Podcast, Alisa Brownlee talks about how people with ALS can use a scooter for mobility and answers some questions about their usefulness. Listen, share, subscribe and then get involved in the fight against ALS at www.alsphiladelphia.org
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The Talk to Defeat ALS continues with another 5 Minute Tip with Alisa Brownlee. In this episode, Alisa talks about the value of Tech and Support groups and how they can make life better for a person with ALS and their family and caregivers. She explains how to find one near you and how you should be prepared to listen and learn from others.
Listen, subscribe, and do more in the fight against ALS online now at www.alsphiladelphia.org
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In this 5 Minute Tip, Alisa Brownlee discusses how a person with ALS could use a Trilogy device and answers some quick questions that people may have. Listen, share, subscribe and then learn more at www.alsphiladelphia.org and follow Alisa on Twitter @ALSAssistiveTec and follow the Chapter @alsphiladelphia
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In this latest 5 Minute Tip on the Talk to Defeat ALS Podcast, Alisa Brownlee gives advice for how a person with ALS can call for help from a loved one outside of their home. Tune in and subscribe to our podcast on iTunes for more 5 Minute Tips and support the fight against ALS at www.alsphiladelphia.org
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Alisa Brownlee is back with another 5 Minute Tip on our Talk to Defeat ALS Podcast, this time to discuss how a person with ALS can use a cell phone even if they have difficulties using their hands and fingers. Listen, share, subscribe on iTunes, and then visit www.alsphiladelphia.org to learn more about resources for people with ALS and how you can donate and volunteer today.
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Social Meida is a valuable tool for everybody in the 21st Century, but it can be even more vital for people with ALS who have challenges with communication and connecting with others. In this Talk to Defeat ALS podcast, Alisa Brownlee and Tony Heyl discuss the benefits and pitfalls of Facebook, Twitter, Instagram, YouTube and even Pinterest. This is also a reminder to follow The ALS Association Greater Philadelphia Chapter on social media @alsphiladelphia
Listen, Share, subscribe, and donate today at www.alsphiladelphia.org
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In this latest 5 Minute Tip edition of the Talk to Defeat ALS Podcast, Alisa Brownlee discusses the importance of using the words Yes, No, and Maybe when communicating with a person with ALS. Many people with ALS struggle with speech and developing a Yes, No, Maybe approach to communicating can be vital to their quality of life.
Listen, share, and then get involved by donating or volunteering in the fight against ALS at www.alsphiladelphia.org
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