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Based in Columbia South Carolina, Abbey shares her passion of becoming a Schroth specialist.
Graduating from Medical University of Charleston South Carolina, she knew she wanted to specialize in something where she could make an impact. Expanding her medical knowledge working on the trauma team in Columbia South Carolina, she got a call from a friend who worked in outpatient pediatrics saying that they were hiring.
In 2016, she started the journey of working with kids. She had a few patients who she helped & others who she would refer for more specific treatment. This opened her eyes. She did her research finding that everything led to treating the spine from a three dimensional standpoint in the Schroth & BSPTS (Barcelona Scoliosis Physical Therapy School) methods.
Wanting to help patients, she signed up for an intro course in Boston.
During this time, she found out a colleague at another clinic also wanted to help people in the scoliosis community. They joined forces, getting certified in Levels 1 & 2 in BSPTS.
Our clinics open in 2021 & we are now blowing up with patients! However she started to question why some patients were being diagnosed in the late stages of Scoliosis. She found out there are 20+ states that no longer do screenings in schools.
Abby shares her wins & pains that keep her driven to continue working with the Scoliosis community.
Where can you find Abby:
Instagram: Abbyroad919
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In middle school around age 13 Kerry noticed she started to have pain. After doing a few toe touch tests, nothing was noticed, though she had a significant curve. In high school, she was playing a lot of sports, during which she was given a brace & told “wait & see.” Not understanding what was happening, she & her friends would make a joke out of it. She wore her brace at night though she was told to wear it 24/7.
While in college her pain became so significant that surgery became her only choice, though she wanted to put it off. She decided that Christmas break would be the best time to have surgery, thinking it was no big deal. Break was over & she flew back to school & was carrying her books living her every day college life.
She started to notice after being fused T1- T11, her pain patterns hadn’t changed. The continued when she was in grad school. The pains kept her frozen, including where she was fused. It was during this time that she learned about the nervous system & the things she could do to help her Scoliosis, Schroth Scoliosis Pilates just to name a few. When she started working on these, techniques, her pain started to “melt away.”
After talking with Erin Meyers, from Spiral Spine, hearing other peoples stories, Kerry started to learn about the ways to take control through her nervous system. She believes that taking some of the trauma out of Scoliosis will lesson the pain.
This is something that resinates with her. Take the darkness, fight or flight “Dorsal Vagal” out. Kelly started to notice that what she was sharing with her clients, she wasn’t applying to herself. She heard a repetitive voice that kept playing on a cassette player. This voice kept triggering her. As she explored, she discovered that her triggers came from doctors language.
She found Vivian DaywithViv on Instagram. Through Viv’s program, her world opened up.
Kerry learned how to change that language started got certified in neurological fitness-short somatic exercises that make you feel safe.
Through her own work, she created an 8 week program, Nerve to Sour. Master anxiety & heal your nervous system.
Where can you find Kerry:
Instagram Kerry Green
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Practicing for almost 4 decades as a Chiropractic Orthopedist and author of 'Healing The Human Machine.’
Dr. Hargis, a graduate from Palmer College, he wanted to specialize in Orthopedics because that was most germain to patient population he was seeing.
Once making the decision into Orthopedics, he went through an 3 1/2 year orthopedic program at NY chiropractic college.
Along the way, he started treating people with Scoliosis. During this time, he saw X-ray of patients, noticing leg length discrepancies. To his surprise, radiologists never commented on these.
Dr Hargis shares his a rational perspective. X-rays are taken from a standing position. This should be an easy observation to see as a leg length discrepancy. Dr. Hargis explains. The spine made up of 24 moveable vertebra sitting on a pelvis. If one leg is shorter, you’re going to have a pelvic tilt. In Dr. Hargis, opinion the leg length discrepancy is never discussed. If a lift were put in the show, while tracking the scoliotic patient,
“there would be no money to be made.”
Dr Hargis, questions “why Scoliosis isn’t evaluated properly.”He breaks this down.
Dr. Hargis dives deeper into the connection of body balance in his book, Healing the Human Machine along with equipment he has designed to help patients. There is a way to balance & correct the body if you understand how to do it.
He emphasize’s how important exercise is.
“Balance them from the ground up.” Good spinal mobility is important. One way to get them is through spinal manipulation.
“Doing the right therapy avoiding the wrong procedures.”
Where can you find Dr. Hargis:
https://www.facebook.com/DrCalHargis
https://www.youtube.com/@healingthehumanmachine8014
www:https://healingthehumanmachine.com
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This is a guest you don’t want to miss! Dr. Hagit started at Hospital for Special Surgery in NY after finishing her education in Physical therapy. There she met, one of the greatest spinal surgeons Dr. Boachie, lead Chair of Scoliosis Society. She asked to follow him to help in his foundation going to Ghana helping to rehabilitate children with complex spinal surgeries.
Dr Hachi, was a believer of not operating on children but instead conservatively doing research that could help. He would prefer to operate on 1 out of 10 children. It is the guidance & help of Dr. Boachie that Dr. Hagit was able to reach her education for conservative management.
Dr. Hagit found the Schroth Clinic in Germany & signed up for the 10 day course. Continuing her education, she studied the Barcelona method with Dr. Rigo.
With her education, Dr. Hagit has since opened her own school with her partner, of online learning Scoliosis and Spine Online Learning (SSOL)
How does Dr. Hagit work. She’s based out of NY & Israel but she has patients from all over the word. Dr. Hagit dives into what happens if you’ve have a spinal fusion & what you should do post surgery depending on what type of surgery you’ve had (tethering vs. rods). How far along are they post surgery.
Some of the techniques for curves & spinal fusions can be the same, breath expansion, lengthening. It’s similar but individual in many ways.
Dr Hagit shares a story of her 87 year old client. The devotion of her client has with her mat and mattress marked for alignment. She practices 7 days a week. “She will forever be my role model of compliance.”
"Compliance is number in success!”
Dr. Hagit shares another story, a teenager in NY with a 51 degrees. With 6 opinions she was told to have surgery. At the last orthopedic appointment, her surgeon suggested Schroth & bracing. “You’ve got nothing to lose”
With Dr. Hagit’s exercises, her curves went from a 51 to a 30 & NO SURGERY! Dr. Hagit emphasizes how important the family support is. It’s crucial for the success.
It was Dr. Hagit that brought Schroth to NY. She brakes down the process of why it took so long to come to the states. “When there is more experience, there will be more documents.
We are an adjunct to the patient. Deliver the hope through your voice, your hands & your education.
Where can you Dr. Hagit:
Instagram: SchrothNYC
https://www.schrothnyc.com
YouTube: https://www.youtube.com/@hagitberdishevsky6821
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Kay has lived with various conditions since his teens. One of those is Ulcerative Colitis. He had been consistent going to the gym. Noticing the progress he had made. One day he noticed, he stopped. It had been a month, then 2. He was weak that he had to use crutches. Kay, went to the hospital. He had a 50% blood loss. He stayed in the hospital for 3 weeks. Slowly he gained his strength. He started to train while in the hospital.
Sara’s story starts around Christmas when she was diagnosed with Breast Cancer. Starting with Chemotherapy, they installed a port under her skin. This was the first operation she had since her fusion. Not having flash backs but remembering what it felt like to have surgery the emotions felt familiar. While this is going on, she was also getting certified in Steel mace flow.
It took a while to get used to training with her mace while having the port under her skin.
They share how the mace has helped with recovery.
Sara shares the emotional space is huge. I’m the strongest I’ve ever been. The mace gives me a habit to move & think positively.
Kay the mental as well physical were huge. Once I discovered the rotational line of movement, I discovered it heals entire body.
His determination kept him motivated to revisit his training with the mace, no matter what the weight.
When we have to take baby steps, it’s an opportunity to self reflect.
To hear more of their stories with Scoliosis, you can her Sara’s here & Kay here.
Where can you find Sara & Kay?
Sara Instagram: Sarandipitous_life
Kay Instagram: Kayola885
3 Free tips for back stretches created by Teresa for Scoliosis back pain. Grab your free tips here
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Chris shares his focus on teaching how people can navigate health wellness, sports medicine, orthopedic injuries & orthopedic surgery. How they can stay fit so they can avoid seeing him. He uses social media platforms (primarily YouTube)
He takes every day occurrences & pulls out the injury aspects & discusses it in those contexts.
When he first started to practice, he made himself a promise- he was not going to be the physican who’s patients wouldn’t understand what he was talking about. He made a concerted effort to put it in a context in which people could understand. “I wanted to be a good teacher. I wanted to break it down, so it’s relatable, easily consumable, easily understandable as well as enjoyable. His goal is to make you smarter. So people are armed with information to make better health choices.
The goal is to educated better understand and make health choices.
He shares general content talking about the how, the what will happen & what to expect.
He strongly enforces that if you are in pain, no one is fixing the pain but you. You are the one who is taking control to educate & fix the problem. If you’re in pain, is there a way to modify what is causing the pain.
Chris is a straight shooter. His purpose is to help you whether with him or guide you in another direction.
Where can you find Chris:
Instagram: stablekneez
TikTok: Dr.chrisraynor
YouTube: ChrisraynorMD
LEAVE A REVIEW: if you enjoy this episode, we’d to hear what was your take away. Be sure to do over to Apple Podcasts & leave a review. If you know someone who this can help please share. Take a screen shot & share it with us on instagram @T3fitt.
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Heather Florio & Ingrid Harm-Ernandes co authors The Musculoskeletal Mystery: How to Solve Your Pelvic Floor Symptoms
Heather founder of Desert Harvest - Ingrid at PT Pelvic floor specialist share their knowledge & passion of the impact your pelvic floor can impact Scoliosis & how using exercises & tools strengthen your pelvic floor.
Ingrid dives into “Your body is your house. The pelvic floor is the foundation.” A simple explanation for everyone to benefit from & understand how important pelvic floor is & works.
With Scoliosis, the curves can cause the house to be ascue to one side leaving the body to adjust. Over time, it can be hard for the body to adjust. This can lead to a “breakdown.” With exercises of strengthening of the whole core & products, you can help to stabilize the pelvic floor. This along with products that can be used to strengthen tissue health.
In their book, they share specifically how to do a pelvic floor contraction floor exercise. Sometimes products are required to help with pelvic floor strengthening. This is where Heather’s products come in. Sometimes muscles can be so contracted that need to relax. One of Dessert Harvest products (the wand) helps to relax the pelvic floor muscle groups. To accompany the wand, Heather shares products that are naturally made to replicate the body.
With Scoliosis the pudendal nerve can be impacted causing pain. A CBD that Dessert Harvest offers showed that peoples pain was reduced by 54% within 24 hrs.
To find out more, listen to their episode.
Where can you find Heather & Ingrid:
Instagram: Harmernandes & DesertHarvestaloevera
www: DesertHarvest.com
Facebook: DesertHarvest & Ingrid Harm-Ernandes
Linkedin: Ingrid Harm-Ernandes
YouTube: Desert Harvest
LEAVE A REVIEW: if you enjoy this episode, we’d to hear what was your take away. Be sure to do over to Apple Podcasts & leave a review. If you know someone who this can help please share. Take a screen shot & share it with us on instagram @T3fitt.
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Surgery Pal, a mobile app & website created by researchers at Children’s Hospital to help teens who are undergoing spinal surgery. It’s a program that helps teens prepare for before & post surgery.
Jennifer is a pediatrician, anesthesiologist pain doctor. She & the team at Children’s hospital got started on this mission after hearing teens & the struggles they go through. “As health care providers, we could do a better job of supporting teens.”
Teen surgery doesn’t just impact teens, it trickles into the family. Because of this, Children’s Hospital understands the importance of this. That is why, they have 2 versions. One to help support teens, the second to help families move through the process at their own pace. Some of the tools that they teach are how to alleviate stress through breath.
The tools aren’t just to prepare for before or after surgery. The tools can be implemented into life. The feedback they have gotten from patients, it was easy to participate. It's very accessible.
A few of the tools for parents, what to bring to the hospital to getting support from other families who have already been through the process.
Currently they have 32 centers that are referring teen patients.
This is available to anyone who meets the criteria in the US. You can go to their Website & apply.
Where can you find them:
www.surgerypal.org
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The REAL MR. MACEMAN
Rik has always liked working out since his teen years. At the time there was a strong consciousness of body building. Everyone wanted to look like Arnold Schwarzennegger. I trained hard but I didn’t look like them. I got stronger but was frustrated.
It was during Y2K, kettlebells became popular in the states. The only place to get certified was in Minnesota. He got certified & went back home to California, having a few kettlebell clients. One of them wanted to to video Rik training with Kettlebell for an upcoming DVD. It was at the shoot that he was introduced to the mace.
He started training his private clients with the mace. In 2013, he decided to do a seminar. 18 people showed up! Rik got excited. If he could do with 18 people why not do it again. That’s exactly what he did. Rinse & repeat. He kept it close to home staying in the San Diego, LA area. Then he got a call from a gym in northern California asking him to come & couch. The ball kept rolling, in 2015 he got call from New Mexico. Rik has since taught in Ireland, England, Germany, Italy. To date Rik has taught 56 seminars ranging ages from 15-81!
I asked Rik, what has the mace given you? A creative feeling. Either I chose the mace or the mace chose me & I haven’t even scratched the surface.
Where can you find Rick Brown?
Instagram: therealmr.maceman
Facebook: Rik Brown
YouTube: Rik Brown
Resources: Adex
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In this episode, we’re going to across the pond! One day, while lifting her school bag onto her right shoulder, her mom asked, what’s that on your back? Noticing her ribcage being twisted. They went to a doctor who confirmed she had Scoliosis with a 30/35 degree curve. Her curves quickly increased. At that time, there was no pilates, no yoga. Everything was sports driven.
Living in a lot of pain & no exercises, it got worse. At age 15, she ended up having “full corrective surgery” of 12 + hours for her first surgery where she would have Harrington rods. Surgery was complicated, 4 ribs removed & 2 liters blood loss. She’s never forgotten that moment.
After surgery, with multiple scars, she found out she’s prone to Keyloid scars (when your body produces too much tissue).
Recovery took about a year. One of the hardest things was sitting up. It was at this time, her dad thought she should be moving better, living a more “normal” life. They went to get an X-ray just to “make sure everything was okay.” They found that 2 screws where lose in the lower region and that they were grating her spine. The only answer was to revisit surgery.
She went forward with the surgery. Recovery was again slow. Since surgery, has a lumbar curve forming. She is still living with Kyphosis.
She now lives with her scars looking at them as beautiful. This has helped her to find new therapies, & possibly revisiting surgery.
There are things you can do to help. If I could pick one thing, it’s the mindset, the affirmations, the repetitions. Keeping the balance.
I love who I am. I’m connected to my body. I’m concocted to my heart. I’m connected to my soul. I am safe. I am grounded in my body. I know I am enough.
If you focus on what you don’t want, then you’ll never get what you do want.
Where can you find Annabelle?
Instagram: Backtoback.scoliosis
Web: BacktoBack.scoliosis.uk
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With 23 years of professional experience, his dive into the field exceeds his career. Growing up with his father being in the field, he was exposed at a young age. I was always interested in anatomy, so the fit felt like a perfect match of wanting to help people. Upon his graduation, he had the opportunity to work with his father, who was one of the first to get into this field in the 70’s. Times have greatly changed. There’s good chiropractors & bad ones. Jason advocates, to do your research.
Chiro’s help stabilize the spine, slowing down the progression of the curves along with strengthening the muscles.
With congenital scoliosis, it’s difficult to reserve the curve. He keeps it real, “Be weary of chiropractors promising too much.” A chiropractor can help manage pain, range of motion & stabilizing the spine through exercise. While all of this is important, Jason admits it’s only going to be as affective if patients are willing to do the work & work with you that will lead to the best results.
If he has a patient that has more than a 30 degree curve, he sends them to an orthopedist. Determining the degree of the curve, Dr Cooney, goes through a series of assessments, “muscle testing,” check range of motion, get their baseline findings. From there, he develops an exercise program. He is a firm believer that strengthening & flexibility are equally important.
If also emphasizes that if treatment isn’t working that he will redirect the patient who will then be reassessed in 4-6 weeks. Generally this will last approximately 3 months. After that, the patient will be on as needed maintenance.
His patients range from young adolescent’s to adults in their 50’s. For some of the adults, it’s the first time, scoliosis has ever been addressed.
As a chiropractor, Jason is a firm believer that you can get the job done without being ruff. This is very different philosophy than the old school method. It’s about technique. If you have the proper technique, then you shouldn’t be scared of an adjustment. You can “Be gentle while still getting the job done.”
With spinal fusions there does come limitations. Some of those limitations are additional pressures that can be added to the spine where there is no fusion. This can cause those areas to work harder. He talks a variety of ways to help relieve muscle pain. Muscle stimulation, ultrasound, trigger point release, active release, just to name a few.
“Motion is lotion.”
Where can you find Dr. Cooney?
www.Dr.Jasoncooney.com
973-772-5254
241 Crooks Ave Clifton, NJ
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Rick a Sports Orthopedic Physical Therapist with 25 years experience quickly learned that his clients had chronic pain. When he opened his clinic he discovered that patients patterns were the same but the outcomes were different.
In medical school we were taught, "look at the damaged tissue, treat it & out you go!”
His unique perspective dives into WHY tissue is damaged. He shares his approach on Scoliosis a “systems method to solving pain.”
The back pain that people are having often isn’t from Scoliosis.
In medical terms, Scoliosis is defined as a lateral curve. It doesn’t talk about the WHY the curve is occurring. It could be genital, structural or functional curve.
Rick talks about gate patterns & how to help correct the “scoliotic forces.” One of the exercises, he refers to is the “butt pump.” He discuss’s the difference of bent knees vs locked knees & its impact.
Rick talks about the connection of Sciatica & Scoliosis. If you’ve got a right side bend, you’re going to have right side Sciatica. Sciatica is however not just due to shape of the spine. Other factors such as tightness of thigh muscles can pull on the pelvis. This can contribute to Scoliotic curve. He suggests that if you have an S curve, there could be an old injury in the Sciatic leg that is causing the Sciatic pain which needs to be addressed.
Rick shares any easy at home tip that can you try on. He talks about the connection between neck pain & headaches & how they can relate to Scoliotic curves. The cause of most chronic neck pain & headaches come from the shoulder girdle system. Rick goes into details on release methods in his home programs, which can be found on his website. One method he talks about is taping & how powerful it is for getting rid of chronic neck pain as well as headaches. He also mentions a downside to taping.
Rick has a philosophy about pain and how it is lodged into our bodies.
For more on his home programs of how to solve their pain, you can go to his website.
Amazon: Fixing You Series
At Home course: Fixing You
Listeners get 20% off their orders with code: FIXING YOU
Health Professionals: Fixing You
Use the code FIXING YOU to get 20% off
Instagram: Fixingyouclinic
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Paul Wolkowinski Master teacher & mentor to so many people in the Gada, (original form of the mace) Clubs & Meels community shares the history & personal journey of training. Originally he started with kettle bells & was attracted to the ballistic & circular movement of them.
In 2007 Paul researched what else there was to swing. Finding a book written about Indian Clubs, which is "still my bible to this day." he decided to try it out. Having a local wood turner create clubs for him. His first time holding them he thought to himself what do I do next. Continuing on this journey, he found steel clubs but didn’t like the coldness of them.
As Paul continued working with clubs, Gada he realized how essential breathing patterns were. Breathing sets a rhythm. He describes the movement of Heart shape circle, what they become & the components they integrate.
In 2017 Paul was diagnosed with prostate cancer. Part of his physical therapy required movement that he realized was already familiar to what he had been doing with the clubs & Gada. His recovery was expected to take 2 years but with his prior training, he was cleared at 6 months.
After going for a walk & having dry heaves, he came home & picked up a Gada. Swinging for a few mins, he felt Freedom of the chemo leaving his body. He continued swinging for 40 mins!
With patience & “letting his ego go” he started light & brought his movement & strength back.
Paul dives into the technical contributions of the Gada. Holding it upright, dropping it over your left/right shoulder, increases the weight as it falls behind, just to name a few. He shares how you can get creative in making a Gada when first starting out.
He shares the history of Gada, Clubs, Meels & the difference between countries. Training would take place post Sunday church with everyone participating, men, women & children!
"You have to become intimate, get used holding the weight. The closer it is to your body, the safer it’s going to be.”
When Paul trains, he looks at the WHY he did move with that swing or that direction.
Where can you find Paul:
Instagram: Paul Solkowinski
Web:https://www.indianclubs.com.au/
YouTube: https://www.youtube.com/c/PaulTarasWolkowinski
Books:
Indian Clubs authors Cobbett & Jenkin
Indian Clubs & How to use them author Ferdinard Lemaire
LEAVE A REVIEW: if you enjoy this episode, we’d to hear what was your take away. Be sure to do over to Apple Podcasts & leave a review. If you know someone who this can help please share. Take a screen shot & share it with us on instagram @T3fitt.
3 Free tips for back stretches created by Teresa for Scoliosis back pain. Grab your free tips here
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Diagnosed at age 11 with a 53 degree curve her orthopedic told her she was the quickest progression they had seen. Fused in 1997 with Harrington rods from T2-L2, Laura sustained a lot of trunk rotation. In 2012, she became a PT. During her education, she found out how little was discussed about Scoliosis. In 2017, she had her second child where she would have a lot of pain. This lead her to the importance of pelvic floor health & the connection it has with Scoliosis where she practices with clients.
Growing up, she was never in pain, always fit, but would have headaches. She attributed this to her body compensation.
As we continue the conversation, she shares that one the key focuses she starts conversation with her clients, we start with a strong back no matter where you are. Start with the mind set, your back is strong. It’s supporting you where you are.
Diving into the pelvic floor & its importance. It is the bottom of our pelvis, it’s “the pelvic floor is the floor of our core.” Pregnancy is an amplifier to whatever movement we are used to using.
Taking a holistic approach, she asks how can we better balance the muscles in your body? How can we support your body where you are.
Dr Laura, shares the importance of changing the Scoliosis language. Scoliosis is a 3-D condition. A struggle that looms over her.
Where can you find Dr. Glazebrook
Instagram: laura.g.dpt
Email: [email protected]
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3 Free tips for back stretches created by Teresa for Scoliosis back pain. Grab your free tips here
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To finish out scoliosis awareness month, we brought back Katelyn Carlson.
We dive into how to optimize our time of being productive of living with Scoliosis as a family unit. One of the most important things you can do is ground yourself. Look at where you’re at right now. Many decisions can be made out of desperation or fear. These decisions may not be in alignment with what you or your child needs.
How can I resource myself? How can I come to a place where I feel solid, stable? How can I trust myself? These are all questions she asks her clients, starting off with where are you at right now?
Get as much information as you can. Get your questions answered. This also comes to dealing with the using your internal resources.
Be aware of how it feels when you’re in a panic vs how it feels when you feel good. Honor the feeling, pull yourself back & take the steps.
How is different for parents vs children? Katelyn is a strong advocate of changing the language from pain to empowerment.
“You can’t do what you want until you know what you’re doing.”
Having a deeper sense of feeling worthy, in your body. If you struggle with that, “then looking at how worthiness shows up in your life is key.”
When the good feelings come up, let yourself have blue print of what that feels like.
One of the key components she checks with her clients, making sure their identity is not rooted around the diagnosis.
Where can you find Katelyn:
Instagram: Katelyn Carlson
Website: Katelyn Carlson
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Having a father who’s a chiropractor, Katelyn’s not sure when she was diagnosed. At 12, she knew her diagnosis was progressing requiring her to be fitted for a brace. Her life habits would also change, taking a bath with baking soda, seeing a chiropractor 3x a week, different exercises, eat a special diet, not allowed to participate in many sports.
Her lumbar curve was in the 30’s, leaning her towards surgery. For her first year, she followed her new lifestyle. After a year, things started to tapper off. She switched out her brace, wearing the brace until she was 18.
As time went on, she discovered the significance the brace took on. A girl who was confident running for class president, would be emotionally confined with the isolation of wearing her brace.
One thing that helped her take this on, her best friends mom had scoliosis. As an adult she was thriving, living life, giving Katelyn comfort.
Based on her experience, she was curious. The sensations, the emotional discoveries, the routine of wearing a brace & what life was like when that stopped.
She moved back home to dive further into her discoveries studying yoga, becoming a massage therapist, Hakomi training. A method of tuning into the body’s sensations a method she now offers to her clients & families.
What she discovered her scoliosis journey has become a spiritual journey & all the components that tie into it, self worth, relationship worth, financial value…..
What’s the long term impact of diagnosis.
Katelyn shares the importance of the vagus nerve, a nerve that runs through our body. When they light up, she translates that into how & where it is attacking. Using this method with clients units, gives empowerment.
During our conversation, she shares about joining SRS in Spain & what that was like. She had the opportunity to speak with Dr. Rigo, “the quality of life doesn’t have to do with the curvature of your spine but everything to do with how you deal with the diagnosis physilogically.”
Katelyn says to her younger self, you are doing a beautiful thing.
Where can you find Katelyn:
Instagram: Katelyn Carlson
Website: Katelyn Carlson
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Diagnosed in junior high school, with toe touch test. She went to children’s hospital in Salt Lake City, where she would meet with 6 doctors. She did her PT, she did whatever they told her. “Sometimes it just gets worse.” Alayne would be wearing a brace for 5 years. After , they gave her about 3 years until she would puncture a lung. At 27, she had surgery.
Prior to surgery, she had a passion for ballroom dancing. Her S curve was 12 lumbar & 83 thoracic. Her twin sister showed no signs of for Scoliosis. Years later, Alayne would look back at family films, seeing her rib hump.
Wearing her brace for 23 hours a day, taught her early on to be a positive & uplifting, not allowing her curves to define her.
“were you in pain? I don’t know the difference.” Managing books for school wasn’t easy. At the request of her school, they required her to take all her books home. She quickly found that if she had a smaller back pack, she didn’t have to.
Being a dancer & performing on dancing with the stars, in an open back dress, you could see her rib hump. 2 years later, she would need surgery. Her doctors told her, her career as a dancer was over. “I’m okay with that.” One last dance in the operating room with her surgeon.
Her life took a turn. While she was in the hospital, she turned to her dad. I’m okay. It was at that time that her thought process changed. She asked herself, what can I do to change my thought process? What do I get to do today?
On her first modeling shoot, people saw her scar. Their reaction shook her. What was her take away
“life is a recovery process.”
Where can you find Alayne:
Instagram: Iannie_lane
Youtube: Alayne Wadsworth
LEAVE A REVIEW: if you enjoy this episode, we’d to hear what was your take away. Be sure to do over to Apple Podcasts & leave a review. If you know someone who this can help please share. Take a screen shot & share it with us on instagram @T3fitt.
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Jan & Sarah are co founders of World Spine Outreach. A non for profit organization that has been a labor of love for 13 years. It started when Sarah, a physicians Orthopedic assistant & Jan, a head nurse of Neuro surgery in OR, traveled with hospital group.
After going on a trip of 14 days, with 7 days of surgery’s they felt the need to have to do more. In 2008, they streamlined this idea & applied for 501c3.
Searching for a group to partner with, they came across the Butterfly foundation. Butterfly foundation is a small group who’s focus was in Dominican Republic.
After teaming up the Butterfly foundation, they saw the lack of equipment as well as education in DR. Jan & Sarah started to focus on teaching. They along with the surgeons taught the residents to sterilize & how to sew, among other things.
Since then they along their team have performed 600-700 surgeries.
Butterly project loved what was happening, that they asked Sarah, Jan & team to come to Vietnam. They would travel to Vietnam for about 5 years. The came across the same challenges in Vietnam, with lack of education, funding…..
Word got around. They were asked to visit China. They went to Poland. During one of their trips, Jan met world renowned Dr. Lenke.
They have worked on a very tight budget. The volunteers have given time as well as & paid their way. Instrumentation companies have donated equipment .5 - 2 million dollars worth of instruments.
1 surgery will often taken at least 8 hours. Candidate’s are screened. This is limiting with how many patients the team can take on. Sometimes they will have 75 patients, 25 of which will only be seen.
These are often cases where they don’t have any prior screening, there is no care. Sometimes the girls are outcasts, with their families pushing them the side. They also more cases with males, unlike the states.
Sarah & Jan share a story of young boy who wasn’t in pain & yet he almost died from Scoliosis.
Other stories are of children they met with curves of 110 degrees. With 110 degree curve the children are smiling. “It’s like they won the lottery.”
During one their first trips, they realized they didn’t have any pain medication for the patients, not even Tylenol.
The patients are home after 2/3 days post surgery. Recently Sarah & Jan got to see the patients at a reunion. They track patients post surgery but with language & internet limits makes communication challenging.
In order to volunteer, you must have a purpose to serve. Example, they need help with interruptors.
The World Spine team is a team of passionate people who give the time from across the country.
For more on how to listen, listen to their story.
Where can you find them?
Instagram: WorldSpineOutreach
Web: World Spine Outreach
email: [email protected]
Song: Tina Parol I am a fighter
Orthopedic Surgeon: Dr. Lenke
LEAVE A REVIEW: if you enjoy this episode, we’d to hear what was your take away. Be sure to do over to Apple Podcasts & leave a review. If you know someone who this can help please share. Take a screen shot & share it with us on instagram @T3fitt.
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Dr. Mandy was brought on the scoliosis journey through her twin daughters & how they moved differently while playing on the swings. She would find out that her daughter was born with congenital Scoliosis.
During Dr Mandy’s schooling, there was training for Scoliosis but “not in the way it’s needed when managing this. They teach you the baseline.”
She has increased her training, allowing patients to have a very specific 3 dimensional over corrective brace.
She shares when she patients have scoliosis, they aren’t candidates for a brace, what are the next steps to be taken without having wait & see. Dr. Mandy’s method is delivered through what can be done at home. This can help to prevent progression increasing mobility in the spine helping to keep the nerves healthy.
Everyone’s cases are different, so it’s important to start with a provider & take it from there. She shares that with the proper implementation, she has corrected curves.
A few keys notes: early detection, using not just one implementation.
With utilizing her resources, Dr. Mandy’s was still limited. She flew to a chiropractic group based in Idaho where she & her daughter were introduced to the owner of Scolibrace. Using a Scolibrace for her daughter, she thought I don’t need this for my clinic. Word got out & her journey turned.
Families were coming as a last resort. Sometimes it was too late. Families would see orthopedics, some of who gave patients very black & white responses.
This is where Dr Mandy’s approach is different. Everyone is impacting by this diagnosis “so let’s deal with this as a whole, so that you can manage this.”
Her hope she wishes someone would never come to her & say, “I wish I would have known.”
Having one of her daughter’s be diagnosed, she never thought she would be on this journey 10 years later.
For more of her journey providing for the Scoliosis community listen to her episode.
Where can you find Dr. Mandy Dietz?
Instagram: Behindthebrace
website: Behindthebrace
LEAVE A REVIEW: if you enjoy this episode, we’d to hear what was your take away. Be sure to do over to Apple Podcasts & leave a review. If you know someone who this can help please share. Take a screen shot & share it with us on instagram @T3fitt.
3 Free tips for back stretches created by Teresa for Scoliosis back pain. Grab your free tips here
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Diagnosed at age 11 after shooting up in height. Tina grew up in Buffalo where winters were cold. Wearing baggy clothes kept her curves hidden until she was screened by the school nurse. From there, she went to an orthopedic where she would be fitted for a brace. Being a type A, she was very disciplined. Wearing the brace temporarily helped stop her progressions.
With this, she experienced the psychological aspects of wearing a brace.
Her curve continued to increase resulting in being fitted for multiple braces. At age 16, her orthopedic said she could take her brace off.
She moved, feeling a sense of new freedom. Her curve at this point was in the 50’s. Not being in pain, her curve wasn’t impacting her organs, her orthopedic did not recommend surgery.
Looking back, she shares that she pushed this under the rug, ignoring it.
At 18, she went to NYU. Focused on school & her passion for music. She put her Scoliosis in the back of her mind.
It wasn’t until she started going on tour at age 20 that her pain started. She practiced Schroth. Got her yearly x-ray’s, seeing that her curve had not increased. After a while, she found that therapy wasn’t enough. At 31, her curves increased.
With an 88 degree curve, she decided with the support of her husband that surgery was her next step. Doing her research, she found a surgeon that was the right fit. 5 weeks later, she would be scheduled for surgery. “I had to do something about it before it was too late to do something about.”
“I had to face reality at this point. In my early 20’s, I didn’t want to face it. In my mid 20’s, I accepted it, taking action, PT, Schroth, working out…. In my late 20’s, something didn’t feel right.”
Post surgery she gained 4 inches in height, literally giving her a new perspective. There were however some complications, one of her lungs had collapsed. Fluid had built along her spine. Recovery took longer than anticipated.
One thing she discovered - how much her lungs had expanded. “The act of singing isn’t as physically as intense.”
Given the changes & complications she endured, “I would do it all again today!” After a few months, she was reminded why she took on this journey. “I feel the inner strength. I feel strong! I can strengthen. I can have a body that I don’t remember having.”
“Everything is balanced”
As a result, she has written a song, I AM A FIGHTER, to be released June 3rd.
What is she looking forward to now?
Where can you find Tina:
Instagram: TinaParol
Do you follow Teresa on Instagram yet? Head over to T3Fitt on Instagram and follow her and her team for additional content.
LEAVE A REVIEW: if you enjoy this episode, we’d to hear what was your take away. Be sure to do over to Apple Podcasts & leave a review. If you know someone who this can help please share. Take a screen shot & share it with us on instagram @T3fitt.
3 Free tips for back stretches created by Teresa for Scoliosis back pain. Grab your free tips here
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