Episodios
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Join us for this episode of "Growing the Gift." where we replay "How to effectively transition from pediatric to adult care" from the 2022 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring Dr. Bradley Warady, Pediatric Nephrologist at Children's Mercy Hospital Kansas CityDr. Nicolas Herrera, Nephrologist at the University of Kansas Health SystemJacob Carter, Pediatric Kidney Transplant Recipient.You may be frightened to think that your child will one day be expected to manage his or her own post-transplant care as an adult. This session will focus on the topic of transition to adult healthcare as a transplant patient ages out of pediatric care. This session is applicable to all hospitals and solid organ transplant types and will be used as an example. The distinction between the terms “transfer” and “transition” will be explained. The core elements of transition will also be identified. Drs. Warady and Herrera will then describe the components of their transition program, highlighting key aspects of the program at Children’s Mercy Hospital and how they correspond to the adult transplant program at the University of Kansas Medical Center, Finally, Jacob Carter will describe the challenges he faced prior to transition to adult care and how he overcame those challenges.Intro/Outro music: "Parasail" by Moby. Used with permission.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for this episode of "Growing the Gift." where we replay "Donor story - Maddog Strong Foundation" from the 2024 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring Cyndi & Frank Grobmeier, donor parents, and more.Be inspired as you hear two loving parents share Maddie's story with us. And learn about the ways that a potential donor can begin to live a healthier lifestyle now in preparation for a future transplant for a loved one or friend.Intro/Outro music: "Parasail" by Moby. Used with permission.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for this episode of "Growing the Gift." where we replay "Keeping Your Current Kidney(s) Longer, Alternatives to Deceased Donation, Controversies in Post-Transplant Testing and Helpful Resources for All Patients" from the 2024 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring Paul Grimm, MD, Professor of Pediatrics and Medical Director of the Stanford Children's Health Pediatric Kidney Transplant Program.Hear about what's new in the world of kidney transplant, such as how to keep your current kidney(s) longer, understanding alternatives to deceased donation, and hear about controversies in post-transplant testing. Also learn about patient-and-caregiver-generated resources to help with blood pressure control, understanding rejection and transition to adult care for pediatric kidney transplant patients. Intro/Outro music: "Parasail" by Moby. Used with permission.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for this episode of "Growing the Gift." where we replay "Keeping Your Current Kidney(s) Longer, Alternatives to Deceased Donation, Controversies in Post-Transplant Testing and Helpful Resources for All Patients" from the 2024 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring Paul Grimm, MD, Professor of Pediatrics and Medical Director of the Stanford Children's Health Pediatric Kidney Transplant Program.Hear about what's new in the world of kidney transplant, such as how to keep your current kidney(s) longer, understanding alternatives to deceased donation, and hear about controversies in post-transplant testing. Also learn about patient-and-caregiver-generated resources to help with blood pressure control, understanding rejection and transition to adult care for pediatric kidney transplant patients.Intro/Outro music: "Parasail" by Moby. Used with permission.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for this episode of "Growing the Gift." where we replay "The Importance of Nutrition, Feeding Tubes and Transplant" from the 2024 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring Sarah Hahn, MA, CCC-SLP, Speech-Language Therapist at Ann & Robert H. Lurie Children's Hospital of Chicago.
Gastric tubes are often needed by many transplant recipients because they can have digestive problems after the surgery. Caregivers should also ask questions about why their child might need a gastric tube after all the other procedures they've been through. These tubes help them get the nutrition and medication they need, especially when they can't eat or drink normally right after the transplant. As a caregiver or recipient, it's important to learn how to take care of the tube properly. This means knowing how to feed, give medication, and keep the tube clean to avoid infections. It's also important to talk openly with the healthcare team about any concerns or problems. And when it's time, caregivers can advocate for their child by discussing with the healthcare team if and when the gastric tube can be removed. With the right knowledge and support, caregivers and recipients can handle the gastric tube well and help with a smooth recovery after the transplant.Intro/Outro music: "Parasail" by Moby. Used with permission.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for this episode of "Growing the Gift." where we replay "The Value of Play Therapy for Younger Children" from the 2024 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring Kelsey Rogers, MS, LPC, LMFT, RPT, Licensed Professional Counselor and Registered Play Therapist and Marriage and Family Therapist at Children's Medical Center of Dallas.Learn effective strategies for supporting younger children in expressing their feelings during hospitalization and after a transplant through the use of play therapy. Children can relate to the emotions and challenges portrayed in the stories. This approach not only facilitates communication but also fosters empathy, resilience, and a sense of empowerment in young transplant recipients as they navigate their unique experiences and emotions.Intro/Outro music: "Parasail" by Moby. Used with permission.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for this episode of "Growing the Gift." where we replay "What to do if you think your transplant teen is struggling" from the 2024 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring Kristine McKenna, PhD, Pediatric psychologist at Seattle Children’s Hospital.How do parents and caregivers know if transplant teens are having suicidal thoughts that can be accomplished by just stopping meds? It's crucial to provide a supportive and understanding environment for both the teen and their caregivers. If there are concerns about a transplant teen's well-being, it's essential to approach the situation with empathy and openness. Caregivers should actively listen to the teen's feelings and experiences, validating their emotions and providing reassurance that they are not alone in facing challenges. Seeking professional help from mental health professionals and transplant specialists is imperative in addressing any signs of suicidal ideation. Caregivers should be prepared to discuss treatment options and strategies for managing mental health concerns while also ensuring that the teen continues to adhere to their transplant medication regimen. Open communication, empathy, and seeking appropriate support are essential steps in helping transplant teens navigate difficult emotions and ensuring their overall well-being.Intro/Outro music: "Parasail" by Moby. Used with permission.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for this episode of "Growing the Gift." where we replay "Updates in Pediatric Liver Transplant: Three Things to Know About Liver Transplant " from the 2024 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring George Mazareigos, MD, FACS, Chief of Pediatric Transplantation at UPMC-Children's Hospital of Pittsburgh.This presentation is about different options for pediatric liver patients and their families when thinking about their transplant plan. Dr. Mazareigos talks about split livers, living donors, and much more.
Intro/Outro music: "Parasail" by Moby. Used with permission.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for this episode of "Growing the Gift." where we replay "Infectious Disease update: How to stay healthy " from the 2024 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring Taylor Heald-Sargent, MD, PhD, Attending Physician, Infectious Disease, Assistant Instructor of Pediatrics, Northwestern University Feinberg School of Medicine.Four years after the COVID pandemic, people are tired of talking about vaccinations. Transplant recipients and their families remain concerned about viruses that continue to spread in our communities. Hear about the newest viruses of concern for transplant patients and what we can do to stay healthy.Intro/Outro music: "Parasail" by Moby. Used with permission.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will provide information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for this episode of "Growing the Gift." where we replay "Hope Matters: The Evolution of Cystic Fibrosis Care" from the 2024 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring Albert Faro, MD, Vice President of Clinical Affairs at the Cystic Fibrosis Foundation.This presentation is about the evolution of cystic fibrosis care and its impact on the need for lung transplantationIntro/Outro music: "Parasail" by Moby. Used with permission.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for this episode of "Growing the Gift." where we replay "Understanding Basic Lab Values" from the 2024 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring Sara Winn Dong, MD, Assistant Professor of Medicine, Division of Infectious Diseases, Emory University School of Medicine and Children's Hospital of Atlanta.This presentation is about basic lab values with an emphasis on why they are drawn, what they mean and what they might indicate for the patient. Also, learn when the recipient should reach out to the transplant team.Stay tuned-for organ-specific lab value sessions in the future. Lab values discussed:CBC (White blood count, hemoglobin, hemotocrit, platelets, differential)BMP (BUN, creatinine, electrolytes - sodium/potassium/bicarbonate/chloride/calcum, glucose)CMP (BMP + protein, albumin, bilirubin, ALT, AST, ALP)GGTCystatin CMagnesiumPhosphorousImmunosuppressants (Tacrolimus, mycophenolate)Viral (EBV, CMV, BK)Intro/Outro music: "Parasail" by Moby. Used with permission.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for episode nine of "Growing the Gift." where we replay the second half of Doctors with Transplants from the 2023 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring a panel discussion with pediatric transplant physicians who received organ transplants as children.Presenters:Manu Varma, MD received a kidney transplant as a young adult at Children's Hospital of Pittsburgh and is a pediatric heart failure/transplant fellow at Columbia University.Ken Sutha, MD received a kidney transplant as a young adult at Emory University and a second kidney transplant at the University of Washington and is now a pediatric nephrologist at Stanford University. Julie Olson, MD received a liver transplant as a preteen at Cincinnati Children's Hospital and is now a pediatric hepatologist at Cincinnati Children's Hospital.Moderator:Gianna Paniagua received a first heart transplant at Columbia University in 1992, a second heart transplant at Vanderbilt University in 2021, and is now a postbaccalaureate premedical student at Columbia University (she will serve as moderator).
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for episode eight of "Growing the Gift." where we replay the first half of Doctors with Transplants from the 2023 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring a panel discussion with pediatric transplant physicians who received organ transplants as children.Presenters:Manu Varma, MD received a kidney transplant as a young adult at Children's Hospital of Pittsburgh and is a pediatric heart failure/transplant fellow at Columbia University.Ken Sutha, MD received a kidney transplant as a young adult at Emory University and a second kidney transplant at the University of Washington and is now a pediatric nephrologist at Stanford University. Julie Olson, MD received a liver transplant as a preteen at Cincinnati Children's Hospital and is now a pediatric hepatologist at Cincinnati Children's Hospital.Moderator:Gianna Paniagua received a first heart transplant at Columbia University in 1992, a second heart transplant at Vanderbilt University in 2021, and is now a postbaccalaureate premedical student at Columbia University (she will serve as moderator).
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for episode seven of "Growing the Gift." where Leslie and Kylie Wyers will join us. We will discuss what it's like to be a living donor mom and recipient daughter.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for episode six of "Growing the Gift." where community support Children's Cardiomyopathy Foundation Executive Director Gina Peattie will join us. We will discuss some of the pretransplant supports that are available to those with or supporting children with heart failure and in particular cardiomyopathy.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for episode five of "Growing the Gift." where heart transplant mom, and founder of Hearts for Emma, Nancie Rothman will join us. We will discuss how to handle the challenges of being a transplant mom of successful author Emma Rothman, and founder of the organization Hearts for Emma.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
Hearts for Emma has helped countless other transplant families in the New York area. We encourage you to visit them at https://www.heartsforemma.org/ and to purchase Emma's book:
Emmarothman.com | Purchase my Book!
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for episode four of "Growing the Gift." where heart transplant recipient and Author of Things My Therapist Doesn't Want Me to Say: Ten Years Post Heart Transplant Emma Rothman will join us. We will discuss how to handle the challenges of being a transplant recipient as a child and an adult have been.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
Emma Rothman grew up in Cranford, NJ. In 2011 Emma received a life-saving heart transplant and was forced to surrender to the messiness of her life. Before her transplant, Emma was an active athlete and student and after her transplant; Emma was still a student and athlete; but, she discovered a newfound energy to pursue a life that centered around not taking her health for granted and advocating for adolescent and young adult patients' needs. One month after her ten-year heart transplant anniversary, Emma had the privilege of graduating from Syracuse University and plans to continue holding space for her community to share their hospital experiences.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
Purchase Emma's Book:
Emmarothman.com | Purchase my Book!
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Join us for episode three of "Growing the Gift." where kidney transplant mom Jill will join us. We will discuss how to handle the challenges of being a transplant parent.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Join us for episode two of "Growing the Gift." where heart transplant mom Stacy will join us. We will discuss how to handle the challenges of being a transplant parent.
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
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Today is International Podcast Day, and we are thrilled to introduce our new podcast, "Growing the Gift."
The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community.
We know that being a transplant family comes with its own unique set of challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours.
We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening!
Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.
