Episódios
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Season 9 has revealed interesting themes along with inspirational and educational stories. Our hosts with special guest Amber Ayers once again discuss which episodes surprised them, which ones they felt a connection with, and what they took away from the entire season. Don’t miss this special revisited episode to gain insight into what made this season so unique, and which surprises you will have to revisit for yourself.
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When Kathy Norris-Wilhelm's wife, Jean, was diagnosed with mild cognitive impairment, they knew how vital connecting with the dementia community would be for them to find their way. Kathy quickly became an Alzheimer’s ambassador and advocate, discovering the importance of building their own community of support and publicly sharing their story to raise awareness. Her inspirational story continues in her advocacy work as she honors Jean’s legacy.
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In the second part of our conversation with Richard Lui, a veteran journalist, filmmaker, author, and family caregiver, we untangle the challenges and joys of being a working professional while caregiving for someone with dementia. His unique perspective creates an amazing storytelling experience for listeners. His advice for caregivers, and emphasis on acknowledging your role as one, give invaluable insight for balancing and managing those responsibilities.
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In this two-part conversation with Richard Lui, a veteran journalist, filmmaker, author, and family caregiver, we first discuss his documentaries “Unconditional” and “Sky Blossom,” in which he explores real stories of caregiving and mental health. Focused on closing a cultural gap and finding joy despite difficulty, he takes us through his evolving journey to bring these stories to the world, all while exploring his own caregiving experience for his father.
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As we age, safety becomes a growing concern – not only at home, but also out in the world. Creating a safe environment while maintaining our independence can be challenging, but not impossible. We invited back Lori Nisson, a social worker for Banner Alzheimer’s Institute and Banner Sun Health Research Institute, to talk about how important considerations can be made for someone with dementia whose ability to assess risk and danger decreases as the disease progresses. She helps identify the top three possible scenarios to address first when making a plan with your loved one.
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Dementia is often referred to as a “family disease” because of the effect it has on not only the person living with it, but also the people who care for and about them. As the disease progresses, relationships and family dynamics can change. We connected with Dr. R. Amanda Cooper, a family communication researcher and an assistant professor at the University of Connecticut, to discuss this further. Through her research, she was able to identify four main stages of relational changes on the dementia journey and in turn, learn how to better manage them.
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The progression of dementia changes a lot in our day-to-day lives, but one of the most complicated affected areas is arguably how we communicate. We asked Dr. Michelle James, a licensed clinical psychologist at Banner Alzheimer’s Institute with specialized training in clinical neuropsychology, to help us untangle these changes and learn what we can do to be prepared for them. She explains how we formulate language in our brain and why the progression of dementia directly affects how we talk.
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Families supporting someone with younger-onset Alzheimer’s disease can sometimes feel isolated because of the lack of resources and support within their community. After her husband Lorenzo was diagnosed, our guest Diana Shula Cose, the founding executive director of Lorenzo’s House, wanted to change that for all families on this younger-onset dementia journey. She discusses how she was inspired by children impacted by this experience and uses the youth as a compass to guide the group’s mission. She works to use connecting stories to bring about healing, empathy, and fight isolation.
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As researchers push to find a cure for Alzheimer's disease, there are lots of new and exciting discoveries and drug approvals being made. We enlisted Dr. Parichita Choudhury, a cognitive neurologist at Banner Sun Health Research Institute, to answer some of our most-requested questions about what all of this means. She untangles the latest drug trial results, what the names of these drugs mean, and how healthcare systems implement the use of these breakthrough treatments.
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Inspired by his own experience with a movement disorder, Dr. David Shprecher, a neurologist and director of movement disorders at Banner Sun Health Research Institute, shares with us his passion for serving the dementia community and more specifically, those diagnosed with Parkinson’s disease dementia. With about 50% of people diagnosed with Parkinson’s developing dementia, concern is high for this population. Experts are working to determine what can be done to identify these changes early. Dr. Shprecher helps us untangle the unique aspects of this disease, as well as define characteristics that differentiate it from Alzheimer’s disease. We also discuss how to care for your loved one on this journey.
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Season 8 has been full of inspirational storytellers and advocates for the dementia community. Our hosts with special guest Amber Ayers once again discuss which episodes surprised them, which ones they felt a connection with, and what they took away from the entire season. Don’t miss this special revisited episode to gain insight into what made this season so unique, and which surprises you will have to revisit for yourself.
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The reactions of someone with dementia to certain situations may prove difficult for caregivers to appropriately respond. Psychologist and chief clinical officer of Taproot, Dr. Linda Buscemi, helps us untangle these situations of resistance and offers a technological solution that is like having a psychologist in your pocket. She explains her company’s app “Ella,” and how it uses artificial intelligence to deliver a person-centered approach to care with non-pharmacological solutions.
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With the majority of older Americans desiring to age in place, it becomes challenging as dementia progresses to remain at home – especially if you live alone. We wanted to find out more about successful independent living with dementia, so we turned to Harbhajan Khalsa, the Dementia Capable Southern Arizona Program director. We talk about the negative effects of social isolation, how to encourage your local community to become “dementia friendly,” and what supportive resources are available to people on the dementia journey.
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Men are less likely to participate in Alzheimer’s research and seek a diagnosis. This lack of representation extends more specifically to Black men. We enlisted Dr. Robert W. Turner II, an assistant professor at the George Washington University School of Medicine and Health Sciences, to help us answer questions about why these conversations are so important to have. We also discuss how to create a supportive community for men to talk about brain health and get involved in research.
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Managing the healthcare of older adults, especially those with dementia, requires a different approach. We connected with Dr. Nimit Agarwal, an associate professor and Chief of Geriatric Medicine at University of Arizona College of Medicine-Phoenix to talk to him about a “new philosophy” that physicians and healthcare workers are learning in age-friendly hospitals. The initiative is driven by focusing on treating the disease and connecting on what matters to the patient, focusing on the individual.
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Would you want to know if you have a higher risk of developing dementia? We asked Jamie Tyrone, an author, patient advocate, and research participant to share her personal journey of discovering her genetic status after being wrongly diagnosed with a life-altering disease. Her experience has driven her to not only become a research participant, but also to share her story in her book, “Fighting for My Life: How to Thrive in the Shadow of Alzheimer’s.” Her story is inspirational and informative for anyone interested in dementia research and personal advocacy.
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Mind/body awareness can be a very powerful approach to achieving a healthy lifestyle. It can even have a positive effect on our cognitive abilities, according to Dr. Helen Lavretsky, a professor of psychiatry at UCLA. She joins us to discuss the benefits of mindful practices like yoga for people with dementia and dementia caregivers, and the different types of yoga. She also shares info about her ongoing studies to better understand the positive role yoga plays in overall health.
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The term “caregiver” can be interpreted in so many ways, so it’s not always easy to accept the label. We wanted to dive deeper into the caregiver perspective, so we enlisted Licensed Clinical Social Worker Gerrie Jakobs from Banner Alzheimer’s Institute. She shares with us the importance of identifying your role(s) to better navigate the journey - and preserve your own health - by using practical strategies to ask for help and focus on self-care.
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Men’s and women’s health issues can be very different from one another, but does that apply to our brains? We untangle this complicated topic with Dr. Geidy Serrano, director of the Neuropathology Lab at the Brain & Body Donation Program at Banner Sun Health Research Institute. We explore how dementia affects our brains differently depending on our biological sex, and how recent studies have exposed new information about the effects of longevity and hormonal changes on our chances of developing dementia.
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Everyone’s dementia caregiving journey looks different, which means everyone has a unique story to tell. We explore Jacquelyn Revere’s story as a dementia caregiver influencer who created “Mom of my Mom,” a platform that has allowed her to share her story with over a million followers across social media. She takes us through her story as a millennial caregiver who found an outlet for her passion to share what it was like to care for her mom and grandmother, while finding another side of herself in the process.
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