Episódios
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Welcome to the PeDRA Monday update! This is a quick way to get caught up on all the exciting things happening within PeDRA that you might have missed! Links referenced in this recording are as follows:
PeDRA Conference Registration
Consensus Grant Program and Q&A Sign-Up
Conversations with Collaborators Podcast
Dash for Discovery Fun Run
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In this interview, PeDRA and Sanofi discuss how they are working together to advance pediatric dermatology research, combining their expertise and resources to drive innovation and improve care for children affected by skin diseases. Through this collaboration, they aim to support groundbreaking studies, foster new treatments, and provide greater opportunities for researchers to address unmet needs in pediatric dermatology.
Please follow these links to access the website resources shared in this interview. For clinical trials and medical information for investigators, please click here. ORIGINS grant program, please click here. For patient and caregiver information, please click here.
This interview includes information on a therapy currently under clinical investigation. Thus, no conclusions on its efficacy and safety can be drawn.
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In episode seven, PeDRA Pub Club host Hannah Chang, and guest panelists, Holly Neale, MD, and Emily Croce, PhD, APRN, CPNP-PC discuss a recent PeDRA publication, Trends in Health Care Utilization Among United States Children With Eczema by Age, Sex, Race, and Hispanic Ethnicity: National Health Interview Survey 2006-2018 published in Pediatric Dermatology in 2023.
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We're thrilled to kick off our inaugural episode with Dr. Chudy Nduaka, the Therapeutic Area Head of Dermatology at AbbVie's U.S. Medical Affairs. Dr. Nduaka's journey into medicine was inspired by his childhood in Nigeria, driving his passion to develop therapies for those in need. Tune in to hear about his remarkable work and discover the exciting opportunities for PeDRA investigators to collaborate with AbbVie.
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In episode seven of Getting to Know Your Research, Dr. Dawn Eichenfield and Dr. Jennifer Sui discuss their 2022 PeDRA Research Fellowship project titled Characterization of non-coding genetic loci and transcription factors that drive the development of linear morphea. Listen to learn about the many collaborations needed to propel a study like this.
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In episode six, PeDRA Pub Club host Donglin Zhang, MD, and guest panelists, Stephen Humphrey, MD, Mary Larijani, MD, and Milie Fang, DO, discuss a recent PeDRA publication, Presenting Characteristics and Progression of Pediatric On-Set Morphea published in Pediatric Dermatology in 2023. Whether you’re a longtime pediatric dermatologist, currently in training, or a patient or advocate who wants to learn more about the latest research in pediatric dermatology this podcast is for you. Through a structured roundtable discussion, listeners will gain valuable insight into publications relating to pediatric dermatology and understand what this research means for both patients and providers.
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PeDRA is thrilled to welcome our new 2024-2025 PeDRA Fellow, Hannah Chang! Hannah is a third-year medical student at the University of Texas, Southwestern. As the PeDRA Fellow, she will support PeDRA educational initiatives and the PeDRA Board of Directors and looks forward to playing a key role in the upcoming PeDRA Annual Conference. Listen to Hannah’s inspiring journey from studying economics at the University of Pennsylvania to pursuing medical school and pediatric dermatology research. Plus, discover her many hidden talents along the way!
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In episode three, the group discusses the challenges around researching this topic, and what kind of studies are still needed to address this question.
Disclosures:
Lisa Arkin, MD - no relevant disclosures
Lawrence Eichenfield, MD - no relevant disclosures
Denise Metry, MD - Receives author royalties for three hemangioma chapters in UpToDate
Maria G. Buethe, MD - no relevant disclosures
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In episode two, Dr. Lawrence Eichenfield discusses the reasons laser therapy isn't used more often and the benefits of propranolol.
Disclosures:
Lisa Arkin, MD - no relevant disclosures
Lawrence Eichenfield, MD - no relevant disclosures
Denise Metry, MD - Receives author royalties for three hemangioma chapters in UpToDate
Maria G. Buethe, MD - no relevant disclosures
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In the first episode of this three-part series, Dr. Denise Metry provides an overview of infantile hemangiomas and Dr. Arkin discusses the benefits of laser therapy.
Disclosures:
Lisa Arkin, MD - no relevant disclosures
Lawrence Eichenfield, MD - no relevant disclosures
Denise Metry, MD - Receives author royalties for three hemangioma chapters in UpToDate
Maria G. Buethe, MD - no relevant disclosures
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Andrea Zaenglein, MD, and colleagues Sarah Horvath, MD, and Sara Gold, MD provide important information about how and why to counsel patients taking isotretinoin on the use of emergency contraception. This podcast reviews data gleaned from a 2022 PeDRA survey about the comfort level of pediatric dermatologists counseling patients taking isotretinoin about emergency contraception and the counseling and provision practices of those pediatric dermatologists. Listen to learn more. Click here to read the recent article Emergency Contraception for Patients Taking Isotretinoin published in JAMA Dermatology. For the survey results publication, please click here. Listeners can also learn more about the iPledge program by listening to a 2021 PeDRA Points of Discussion Podcast: Is iPledge Working? A Conversation on Isotretinoin.
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In episode five, PeDRA Pub Club host Donglin Zhang, MD, and guest panelists, Stephen Humphrey, MD, Mary Larijani, MD, and Milie Fang, DO, discuss a recent PeDRA publication, Efficacy of a lay community health worker (promotoras de salud) program to improve adherence to emollients in Spanish-speaking Latin American pediatric patients in the United States with atopic dermatitis: A randomized, controlled, evaluator-blinded study. This study was published in Pediatric Dermatology in 2022. Whether you’re a longtime pediatric dermatologist, currently in training, or a patient or advocate who wants to learn more about the latest research in pediatric dermatology this podcast is for you. Through a structured roundtable discussion, listeners will gain valuable insight into publications relating to pediatric dermatology and understand what this research means for both patients and providers.
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In episode five of Getting to Know Your Research, Dr. Amy Paller discusses the history and significance of the recently published article in JAMA Dermatology titled, Stigmatization and Mental Health Impact of Chronic Pediatric Skin Disorders. Tune in to learn more about the origins of PeDRA's first major study, referred to as The “Big” Study, and discover how it has paved the way for future large-scale research within the organization.
To listen to Dr. Paller's interview on the JAMA Dermatology Author Interviews podcast, please click here.
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We’re thrilled to bring you a brand-new episode of Community Spotlight, highlighting the vibrant Dermatology Nurses Association (DNA). This remarkable organization supports dermatology nurses and nurse practitioners through a robust educational program and shares an inspiring origin story similar to PeDRA’s own humble beginnings.
Dermatology nurses are essential in the research community, making critical observations on the front lines of patient care that often lead to significant research projects. To honor and recognize the invaluable role nurses play in organizations like PeDRA, we're excited to offer a special PeDRA membership rate for DNA members now through July 31, 2024. Becoming a member of PeDRA opens doors to collaboration and participation in groundbreaking research. Connect with clinicians, investigators, patients, families, advocates, and partners with a shared vision of changing lives and healing children with skin disease through collaboration and discovery. Plus, members gain access to exclusive resources to conduct research and receive special rates to attend the PeDRA Annual Conference, taking place October 24-26, 2024, in Phoenix, AZ. We hope you will take advantage of this special opportunity for a discounted membership and join our community today! Click here to learn more about membership and mention the DNA Podcast in the “How did you hear about PeDRA?” on your application form to receive a special code.
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In case you missed the annual Society for Investigative Dermatology meeting in May 2024 in Dallas, TX, PeDRA's Executive Director, Mike Siegel, PhD, and Carrie Coughlin, MD, MPHS are here with a recap of the meeting as well as the PeDRA session.
Dr. Coughlin is a pediatric dermatologist, and Associate Professor of Dermatology at Washington University School of Medicine in St. Louis. She also serves as the chair of PeDRA's outcomes committee.
For information about SID, please click here.
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In episode four, PeDRA Pub Club host, Donglin Zhang and guest panelists, Stephen Humphrey, MD, Mary Larijani, MD, and Milie Fang, DO, discuss a recent PeDRA publication, Survey of Pediatric Dermatologist Views on Treatment for Alopecia Areata. This survey was published in JAAD International in December of 2023. Whether you’re a longtime pediatric dermatologist, currently in training, or a patient or advocate who wants to learn more about the latest research in pediatric dermatology this podcast is for you. In an approached roundtable discussion, listeners will gain insight into publications relating to pediatric dermatology and learn what the research means for patients and providers.
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In episode four of Getting to Know Your Research, Dr. Lucinda Kohn and fourth-year medical student Micah Pascual discuss their 2022 PeDRA Research Fellowship project titled Daxpe: Native Skin Health Survey. Listen to learn more about how to design and implement a survey that aims to understand the needs of an underserved community.
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