Episódios
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Beth was born in a small town in the upper Hunter Valley in NSW, the third of 4 children. Her family lived on a property along with her beloved grandparents.
After finishing her schooling at a Sydney boarding school Beth had a number of career changes before serendipitously landing a not-for-profit community based aged-care position, where she remains today.
Diagnosed with MS at age 41, Beth focused on researching ways to reduce the impact and slow the progression. In the two decades since diagnosis her main issues have been a decline in her mobility, severe heat intolerance and some cognitive challenges.
2023 sees Beth still employed full-time in a challenging and rewarding role with aged and disability provider Annecto.
Beth lives in Canberra, has 2 adult sons, a wonderful husband and 2 lovely mini dachshunds. Beth has an optimistic outlook on life in general and her future in particular. She loves to read, travel and spend time with friends and family.
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John Van De Putt's life has been a rollercoaster of highs and lows. Born to Dutch immigrant parents, he had a great childhood with many siblings. He achieved success in sports and business, but his life took a turn when diagnosed with multiple sclerosis (MS).
Ignoring the early symptoms, he faced numerous relapses and hospitalisations. His marriage struggled due to his health, but he found love again and embraced fatherhood. MS changed him physically and emotionally, leading to self-discovery and humility. The introduction of NDIS improved his life, allowing him to work as a support coordinator.
Despite challenges, he cherishes each day and encourages others to embrace their dreams.
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Lachlan Terry led a vibrant, active life until the unsettling prospect of being confined to a wheelchair emerged. In his 42 years, he had avoided debilitating injuries, relying on a mix of good luck and management. The gradual and unexpected onset of his condition hindered job opportunities and even mundane tasks like picking up a coin.
The question "Why me?" lingered, but Lachlan learned to accept life's unpredictable nature during 13 years of uncertainty, misdiagnoses, and hurdles. His upbringing on an outback station instilled a pragmatic outlook, and he embraced the idea of playing the hand he was dealt.
Despite his undiagnosed condition, Lachlan remained mobile, using a walking frame or electric mobility scooter, covering an impressive 5,500 kilometers in a year. He remained devoted to various roles as a Scouts Australia leader, radio DJ, home barber, traveler, photographer, and Art Leasing business entrepreneur. Grateful for opportunities, he eagerly shared his story, embracing the power of politeness and gratitude that had always guided him. Determined and resilient, Lachlan Terry showed the world the strength to seize every chance life offers.
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Kerrie was born in the South Eastern suburbs of Melbourne, Victoria, Australia in 1975. She is a disability advocate and uses her lived experience of disability to help perform her role as a community member of her local council Access and Inclusion Committee.
Kerrie writes short poems and is a chin cup painter and will be publishing her first book soon. She is passionate about arts and uses this as not only a therapy for herself but a way to give back to others.
Kerrie excelled in her education years and was on her way to fulfil a career in corporate banking until the progression of Multiple Sclerosis changed her pathway. Through Kerrie’s perseverance, strength and courage she continues to share her life experience with others including this MS chapter.
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Tanya was born and raised in Brisbane, Queensland. She still lives in Brisbane with her husband, son and fluffy puppy. She actively attends physio weekly and enjoys (sometimes) hydro fortnightly.
She is currently volunteering for a wonderful start up called Enabled.vip. Enabled.vip was created and is run by people with a disability for people living with a disability.
It is an online platform dedicated to engaging with disabled Australians to become their own entrepreneur! Tanya feels strongly about Enabled.
VIP and believes it is the way forward for disabled Australians for employment in Australia.
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Clare Reilly (she/her) was diagnosed with Multiple Sclerosis (MS) in April 2017. With a background in outdoor education, Clare loves spending time outdoors.
Clare lives on the Bellarine Peninsula, near Geelong, with her husband and son. Clare explores various arts and crafts, is passionate about environmental sustainability and enjoys sharing good food with loved ones.
She is an advocate for those with MS and chronic illnesses, sharing thought-provoking posts on social media and hosting the podcast MS Understood.
Clare's podcast has nearly 100 episodes, providing hope and understanding to newly diagnosed individuals and their families.
Notable guests include Tim Ferguson of Doug Anthony All-Starts, Chantelle Otten sexologist and Emily Padfield from Netflix’s Win The Wilderness, along with individuals sharing their MS stories.
Clare has received awards for her business excellence and has now contributed to three published anthologies.
With a Bachelor's degree in Psychological Science in progress, she aspires to provide therapy and counseling for people with new disabilities or chronic illness diagnoses, and dreams of writing her own novel. Find the MS Understood podcast on all major platforms.
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Kristi Paschalidis is an accomplished senior internal recruiter with over 11 years of experience across multiple industries. She holds a B. Social Science degree, majoring in Human Resource Management from UNSW. Additionally, Kristi is a qualified Diversity and Inclusion specialist.
In 2015, Kristi married her husband and they have been blessed with two beautiful children who bring immense joy to her life.
At the age of 13, Kristi was diagnosed with Multiple Sclerosis (MS) and has since faced the challenges of living with this "invisible disease." Despite the obstacles, she successfully completed high school and university while actively maintaining a social life and travelling.
Over time, as her symptoms progressed, Kristi learned to adapt, and remains hopeful for a cure. Initially, she kept her diagnosis private, however, she has now embraced her role as an MS Ambassador, speaking at various MS community functions to educate others and raise awareness of MS. Kristi also provides support to individuals who have been diagnosed with MS, understanding firsthand how overwhelming the journey can be.
Her mantra for others has always been, "We can't be a superhero every day. There are days when being human is more than enough."
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Elizabeth Neal, a woman of unwavering strength and optimism, has faced life's challenges with determination and a sense of humor. Diagnosed with MS in 1991, she endured misdiagnosis and hostility in the RAAF. Despite constant fatigue, dizziness, and falls, she found joy in her marriage, motherhood and pursuit of higher education.
Through it all, Elizabeth's resilience continues to shine exploring various treatments and exercise routines to manage her condition. She discovered the empowering benefits of pole dancing and even ventured into stand-up comedy to embrace life fully.
Tragedy struck in 2020 when her beloved son Valentine passed away unexpectedly. Amidst the grief, Elizabeth remains hopeful, seeking a cure for MS while cherishing her son's memories.
With an unwavering spirit, Elizabeth faces each day with optimism, refusing to let MS define her. Her determination, support from friends and family, and love for life inspire those around her.
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Stacey Metcalf's personal perspective is a powerful journey of resilience and self-discovery. Diagnosed with multiple sclerosis (MS) at a young age, she faced uncertainty and fear, but she refused to let the disease define her. Stacey navigated through numerous relapses and challenges, refusing to let MS dictate her life.
Stacey Metcalf's remarkable journey of resilience and self-discovery unfolds as she faces the challenges of being diagnosed with multiple sclerosis (MS) at a young age. Confronting uncertainty and fear, she refused to let the disease define her, navigating through numerous relapses with determination. Stacey steadfastly refuses to let MS dictate her life!
Despite the setbacks, she found strength in her relationships, especially with her supportive partner and four beautiful children. Through the years, she battled depression, doubt and health struggles but persevered, eventually pursuing her dreams. Stacey became a carer, drawing from her own experiences to empathise with and support others.
Though she continues to face relapses and new medications, Stacey remains determined to move forward. She has learned not to let MS hold her back, embracing life's opportunities and pursuing her dreams of becoming a nurse.
Stacey's story is a testament to her resilience, strength and unwavering spirit, inspiring others to face their challenges with courage and hope.
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Justine Martin is the visionary behind this extraordinary anthology MS Book “Whispers of Resilience; Our MS Stories”. She is the Founder/CEO of the Justine Martin Corporation (JMC), a conglomerate comprising six successful businesses: Juzt art, Resilience Mindset, Van-Go Decals, Morpheus Publishing, Team Fingerprint, and Geelong Residential Cleaners.
An accomplished and award-winning artist, keynote speaker, resilience coach, author, and podcast host, Justine embarked on her entrepreneurial journey a decade ago with the establishment of Juzt art.
Despite facing significant health challenges, including a diagnosis of Multiple Sclerosis twelve years ago, as well as three heart surgeries and battling three primary cancers, Justine's unwavering spirit and resolve kept her focused on building her businesses. Doctors told her she would never work again, but she proved them wrong by crafting a purposeful and driven life.
Using her art as therapy, Justine's passion for painting grew, resulting in numerous awards and recognition. She channeled her own journey of resilience into the birth of Resilience Mindset, where she coaches, hosts a resilience podcast series, has co-authored a number of books and delivers inspirational keynotes on resilience.
Expanding her literary endeavors, Justine launched Morpheus Publishing in July 2022, facilitating her dream of writing and publishing resilience and self-help books, including her first children's book, "Same Same But Different." Additionally, Morpheus Publishing has proudly brought to life this book - the anthology "MS Book, Our Stories" a collaborative effort with 26 authors living with MS.
As a finalist in the 2023 Australian Small Business Champion Awards and continuously being recognised as a woman to watch, Justine's impact on her industries and the lives she touches remains an inspiration to all.
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Justine's dedication and outstanding performance across her businesses have garnered national recognition with seven prestigious awards in 2021 and 2022. Her contributions to coaching and creativity were acknowledged at the national AusMumpreneur Awards and Roar Awards, among others. As a finalist in the Australian Small Business Champion Awards and continuously being recognized as a woman to watch, Justine's impact on her industries and the lives she touches remains an inspiration to all.
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Robyn Hart has led a full life with many achievements throughout her many overlapping careers and industries.
Robyn has been involved in the entertainment industry since she was born and founded her career over 35 years ago. Being heavily involved as a general manager and hands on technician of a renowned Australian company, Robyn’s career covered all facets of the industry from theatre, concert, film, television, festivals, circus and performer flying, events, and opening and closing ceremonies within Australia and across the world.
Prior to her career in the entertainment industry, Robyn was an Award-winning florist, which she has now turned her skills back to as a hobby filling her days.
Robyn also founded other businesses in lifestyle, home and living, homewares, and interior design.
Robyn is a current board member and 2IC for Operation Angel, a humanitarian relief organisation that brings practical relief and self-sustaining assistance to individuals and families affected by natural disaster or large-scale human tragedy in Australia.
Robyn is passionate about mental health and wellbeing for crew in the entertainment industry and was also a board member for Entertainment Assist and Roadie for Roadies. Robyn supports many other charities and organisations including Crew Care, Support Act, Backpacks 4 Vic Kids, MS Australia and MS Research. Robyn’s Philanthropy extends to other areas of giving back to groups, organisations and ventures within the entertainment industry.
Robyn Lives in Victoria with her husband and 13-year-old Keeshound and now focuses on living her best life with MS
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Candice is married and has three children; twins aged 10, and a seven-year-old. Her hands are full with three girls, three dogs, and five cats. Not to mention 2 fish tanks.
Candice is a clinical psychologist and works in a private hospital, plus runs a successful private practice. She has been a Clinical Director there for five years and enjoys treating clients with complex trauma, personality disorders and chronic mental illness.
Candice enjoys spending her free time cooking and baking for the family, being creative and listening to music. She always dreamt of publishing her writing, and now she has taken her first step. She is not going to let MS stop her!
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Penel (aka Penelope) was diagnosed with RRMS 22 years ago. She has slowly, but surely, progressed to SPMS. Penel worked in the health care sector for approximately 30 years. Nine years ago, she made the difficult decision to retire. These days she is busier than ever with volunteer work, yoga, exercise sessions and learning new skills (not always related to MS) with the aim of staying happy, safe, and well. Penel sometimes wonders where she found time to work. She currently lives in North Queensland with a variety of animals, MS and the NDIS and is a strong believer in the ‘use it, or lose it’, theory.
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Jayne is a self-employed businesswoman, married and a busy mother of two teenagers.
She trained and worked in the beauty industry for many years.
Jayne was diagnosed with relapsing remitting MS in November 2009. She was 27 years of age at the time of her diagnosis, her children were aged just four and 18 months old at the time.
Since her diagnosis, Jayne has held roles with Multiple Sclerosis (MS) in Tasmania, been involved with the Tasmanian MS Community Engagement Council, including roles as Chair and Deputy Chair. She is a member of the consumer and community reference committee for the MS Research Flagship at the Menzies Institute for Medical Research. Jayne is an active fundraiser and advocate for those living with MS.
Jayne has also tried and failed many MS disease modifying medications - and most recently undergone a Stem Cell Transplant with fantastic results.
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Kim has dedicated her chapter to her cherished truest friends; especially SWALK, Hugs, Rex Roarrrs to Blaze and sends Spanks to Lover.
Kim Eagle's childhood was marked by a struggle to accept her name, Kimberly, as she preferred being called the "Yil girl." Growing up in Australia's countryside, she was shy yet affectionate, earning the family nickname "Kimberly Koala." Comedy brought joy and laughter to her life.
In 2007, after giving birth to her son Blaze, Kim received a life-changing diagnosis of Multiple Sclerosis. Blaze became her purpose and brought unconditional love.
Kim is known for her strong work ethic and diverse interests, including music, art, sports, fitness, nutrition, writing, and cooking, all adding excitement to her life.
Supported by friends from Country Victoria and a loving partner, Kim finds solace and encouragement. She's working on writing projects and maintaining her strength and fitness.
As a true foodie, Kim enjoys exploring the culinary world and participating in various activities. She contemplates study options for personal growth.
Kim's journey exemplifies resilience, determination, and love for her son Blaze. With a positive outlook, she continues to inspire those around her.
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Laura is the owner of an all abilities gym called Dash Gym & Wellbeing, is a former secondary/ESL and Italian teacher, artist, cook and supermum to 2 incredible kids!
She has lived with Multiple Sclerosis for 39 years in its current stage of secondary progressive. Laura refuses to allow the condition to dictate the terms of her life and through support of family and professional/allied health supports, she achieves whatever she sets her mind to!
Laura is from Melbourne, currently living in Geelong, and from an incredibly vibrant and energetic Italian family who are located throughout the Melbourne suburbs.
https://www.facebook.com/DashGymWellbeing
https://www.dashgw.com.au
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Determined to help others living with Multiple Sclerosis, Colleen leads an MS support group who have inspired and supported her focus on raising awareness of the disease.
Awarded community recognition by a local MP after organising her first MS event, Colleen’s determination continues to be evident in the effort, time, commitment and initiative she shows by bringing about local community events to assist those living with MS, as well as to build awareness and raise funds for research.
Colleen has been invited to speak at various community groups meetings and is gratified when people speak with her afterwards to hear that they have learned of, or learned more about MS.
Raised in Sydney’s western suburbs, going straight from school to work after learning shorthand and typing, Colleen worked through secretarial to executive assistant roles - and now enjoys retirement on the NSW Central Coast where she and her husband enjoy fishing, time with friends, and visits to and from their family and growing number of adorable grandchildren.
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A bit about me, I was born in Lima, Peru. Been living in Australia since 1994 and was diagnosed in 2016. I enjoy photography, collecting beach glass, reading, listening to music—especially Nick Cave and The Pogues—reading and photography. My Instagram is pukasonqo—that is a “q” and not a “g”.
I have two adult children and live with my partner, Carl, and two cats in Sydney. In my previous incarnations, I have been a graphic designer, photographer and barmaid, sales assistant, mature-age student and Spanish interpreter in Australia.
I completed a degree in nursing, which eventually led me to my current job, which is challenging and rewarding at the same time. Best of all, it keeps my mind active and makes me feel useful and productive.
Apart from photography—see the pictures attached—I enjoy music very much. I have two songs I call my MS songs, Chumbawamba’s “I get knocked down” and Blur’s “Song No 2”. Please don’t start me talking about Nick Cave because it is likely I won’t stop.
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Nina Crumpton's life journey has been one of immense resilience and determination. Growing up in a challenging environment, she faced poverty, family dysfunction and loneliness. Despite the odds stacked against her, she pursued education and dreamt of a better life. However, her life took a new turn when she was diagnosed with Multiple Sclerosis (MS) and later with Bipolar 1 Disorder.
With great courage, Nina embraced her new reality, adapting to her disabilities and using her experiences to support others. Becoming an NDIS participant provided her with much-needed assistance and support, allowing her to return to work and regain some stability in her life.
Her journey has been filled with ups and downs, including experiencing rare symptoms like foreign accent syndrome. Through it all, she has learned to live in the moment, finding gratitude and purpose in her life. Today she works passionately to advocate for people with disabilities and ensure they receive the support and opportunities they deserve.
Despite the uncertainties of living with a degenerative disease, Nina faces the future with hope and anticipation, knowing that each day is a new beginning filled with possibilities. Her story is a testament to the strength of the human spirit and the power of resilience.
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Angharad is in her 50s and despite having MS for about 40 years, was only formally diagnosed 5 years ago in 2018. She is however no stranger to MS as her mother was diagnosed with it during Angharad’s childhood. Angharad was born in the US and raised in the north of England but is Welsh through and through. She migrated to Australia to join her family when she was 23 and continues to live in Sydney.
Angharad is a Registered Psychologist and Board Authorised Supervisor. She worked in the community sector for over 30 years and was an Adjunct Supervisor with Macquarie University’s Masters of Professional Psychology for many years. Angharad is the lead author of two externally evaluated and internationally recognised parenting programs; Keeping Kids in Mind and My Kids and Me (which won an award for Most Innovative New Program). She is currently working on a book examining the impact of grief and loss.
Angharad is regularly requested to speak to the media and at conferences and events. Whilst she speaks about complex and challenging issues, she is down-to-earth and has a wicked sense of humour. Angharad rails against injustice and is a fierce advocate particularly around issues relating to parenting, trauma, disability, child protection and domestic violence. She is accurately described as compassionate, caring and sparky.
Angharad made the decision to medically retire from permanent work in early 2023 due to the dual impact of MS and Psoriatic Arthritis. Typically though, she sees this as an opportunity not a disappointment. She is about to finally embark on her PhD, continues to mentor, support and train practitioners and is planning on travelling wherever her brand new Omeo - her personal mobility device - takes her, starting with Europe. She is always available to speak at events; where she loves nothing more than sharing her passion for building a resilient community in whatever way is possible.
Angharad can be reached via LinkedIn https://www.linkedin.com/in/angharad-candlin-056222171/
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