Эпизоды
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Getting through anxiety one day at a time, one step at a time, putting myself out there. Slogging through.
In the news
Paris Promised the Olympics Would Be Accessible. The Clock Is Ticking.
Article: Paris Promised The Olympics Would Be Accessible
The city, which put inclusivity at the center of its bid, has improved access for people with disabilities, but with the opening ceremony about 12 weeks away, obstacles remain.
Slogging through
Processing what's happening
One of the hardest things about Multiple sclerosis is wrapping your head around it. being cool with the things that are happening to you in the processes that you are part of accepting them is very difficult. maybe it doesn't have to be. in Buddhism they say that all life is suffering, but some of it is unnecessary.
Maybe it's important to accept myself and what's happening, that it is okay that you are okay it has been okay it is okay and it will continue to be okay.
I am thinking about that because I am going to start talk therapy again
I'm getting some relief from anxiety. taking it easy
Last night I made rice and beans and we had it with eggs and salad
Bailey, a female wrestler on smackdown from San Jose CA
It rained on free comic book day
anxious feelings are difficult to control
back pain creating a nerve tingle in my groin and knee
difficulty sleeping
I play an impartial judge in mayhem special. Jersey girl and max levels
I drove to the coffee shop and didn't give up until I got a cappuccino - twice
drove to Oakland and pumped my own gas
Mayhem
Max level picked me up at my house and drove me to kfjc where we broadcast the snap crackle pop special with Jersey Girl. shout outs to max level Jersey Girl circumference, Robert Emmett and the sandman
everybody played a role
radio helped anxiety - in the moment
New Therapist
New talk therapist began. we spoke about the bad anxiety i was feeling, the anxious thoughts and the need to tell the doctor that the medication was not relieving me. my therapist has worked with disabled people before, and some of them could not communicate, so they had a hard time advocating for themselves.
insomnia. anxiety. panic when I liey down. the numbness inside my head becomes my focus, and I obsess over it. eventually I calm myself enough to lie down, then the cycle begins anew
I drove my family to a baby shower in Dublin for one of my wife's coworkers
Selfie
00:00:00 - intro
00:00:47 - paris promised the Olympics would be accessible
00:03:59 - slogging through anxiety
00:07:41 - it is ok, it has been ok, it will be ok
00:09:06 - relief
00:09:54 - cracking crabs at market hall
00:12:53 - wrapping your head around MS
00:14:12 - new talk therapist
00:15:24 - back down the track
00:15:48 - boys time
00:16:13 - cooking to find noormalcy
00:17:06 - Bayley, wrestler from san jose
00:17:48 - rainy free comic book day
00:18:08 - anxiety thoughts
00:19:42 - snap crackle pop kfjc mmayhem special
00:20:49 - getting around on my own
00:21:48 - taking the kids to school
00:22:58 - shout outs
00:23:28 - broadcasting in the moment
00:24:21 - advocating at the doctor\'s office
00:25:20 - changes in sensation
00:26:11 - baby shower
00:27:55 - cirque du soleil
00:29:28 - outro -
In "Anxiety Medication Strategy Session," changing opinions on music, bouts of anxiety, recent publication in Identity Theory and Disturb the Universe, family life changes, increased mobility, and resumption of some duties.
Last Old Guy Or First New Guy?
Recently, I read a tweet by flea, and I was forced to reconsider:
https://twitter.com/flea333/status/1774601328502898936
https://youtu.be/QEgalcH_-b4?si=q7ZD6rdC4ZhfnwbY&t=1762
Pat Matheny on German jazz critics
Pat Matheny was a jazz guitarist that my stepfather really admired. For that reason, in my youth I stayed away from it. In general, I mind it less now that I am older, but I generally don't seek it out.
Sometimes, a random tweet by flea will turn decades of tradition on its head, and I'll be forced to reconsider. In an interview with Rick Beato, Pat Metheny had this to say about musical invention:
German jazz critics are great. They'll come right out and say the most direct thing. I had a guy say to me-- you know, not that long ago, maybe 10 years ago-- "Are you the last old guy, or are you the first new guy?" and the thing is, I bet you know what he means too, right? Yeah, of course.. I mean, for me, both.
Well, I don't know, I mean, you know, it's hard to be objective about your own thing, but what I will say is that, for me, there was no option other than trying to invent stuff, yeah.
Anxious feelings
I had a bout of anxious feelings and panic. I reached out to my care team and spoke over video and in-person at the office with my doctor the next day. We think it could be related to switching off of nerve-pain medication post-surgery.
Marinated Spicy Chicken Thighs Recipe
Over at Hoppin Hot Sauce, there's a new recipe for Marinated Spicy Chicken Thighs marinated in yogurt, salt, and Hoppin Hot Sauce.
"Vern" published in Identity Theory
I’m happy to announce the publication of “Vern” in Identity Theory, selected by Micro Editor Vic Nogay. Many thanks to the publisher Matt Borondy.
“Vern” is a 50-word story about the workplace injury sustained by my great grandfather, T. Vernon Smithson, at the cotton gin in Mount Juliet, Tennessee.
Identity Theory is an online magazine of literature and culture publishing interviews, prose, poetry, art, commentary, and other inventive explorations of humanity since 2000.
"Vern" published
https://twitter.com/IdentityTheory/status/1783167798942023891
Reading "Vern" for Identity Theory
"Hot Day" published in Disturb The Universe
I’m happy to announce the publication of my eco-disaster poem, “Hot Day” in Disturb The Universe Magazine, April 23, 2024. The poem takes place in a decomposing world in thrall to “inevitable circumstances/ That can’t be avoided.”
According to their website, “Disturb the Universe aims to share writing on the edge from writers strongly inhabiting their voice.” Many thanks to Editor in Chief Skaja Evens.
"Hot Day" published
Non-stop publication action
Is disguising the inevitable sinking feeling but it has to be in there, somewhere.
Domestic Emptiness
For the first time since 2020, my wife is back to the office four days a week. It's probably a big change for her. She comes home bursting with stories of her new gig. She seems very stimulated, and I think that's a good thing. Our home is empty during the day for the first time since we moved from San Jose.
More walking
I'm in my wheelchair less and less, and walking more. This week I went to the library on my own, walking in and out from the parking lot, trying to build stamina. I went to the doctor without the chair. I use it when we go to the market, any time when I'll have to do extended walking or to carry things.
Resuming Some Duties
Last week, I picked up the kids from school and picked up the vegetable box - something that I haven't done more than once or twice in the past year.
I made an appointment to get a hair cut in a couple weeks, -
Пропущенные эпизоды?
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Featuring updates on Hoppin Hot Sauce inventory, newly published writing, recuperation from surgery, the year's first barbecue, and a new family pet.
Sandman Knows Kale
Shout outs to the Sandman, who wrote in about kale and he knows more about kale than I ever will. He works with kale as a kaleologist.
Extra Hot Shortage
Buy Extra Hot Hoppin Hot Sauce from Amazon as we will be out of stock on Extra Hot in the near term, and once Amazon runs out, we're out.
Publication
Instant Noodles published my 50-word story "CYBERTRUCK DENTAL, S. DE R.L."
The link to the stuff that is published, along with what's upcoming is on the Publications page of my author site jwh.whatsthematterwithme.org
The sinking feeling you have after publication is the same one you have after you have an art opening. Everything returns to normal. Banal, mundane, normal.
But in fact, I did accomplish something. What I set out to do: become a published writer.
The thing rolls on, even: a second 50-word story will be published in a different publication next week. I recorded myself reading it in a video at the request of the editor.
Surgery Update
Looking at the calendar, it's been about 4 weeks since I had surgery. I've reduced my medication down to the pointt where I'm almost completely titrated off of the pain medications I've been taking for months.
New New Cat
We've got a new cat at the house. It's a two-month-old kitten that's part-lynx. It's in quarantine for the next 10 days, maybe more.
Barbecue
I lit the barbecue for the first time this year. Now that my meds are reduced, I feel like not as scary to grill. For the first go-around, I made skirt steak and eggplantLast night, I grilled a pork tenderloin with whole grain mustard, brown sugar and Shaoxing wine. We ate it with steamed new potatoes and boiled carrots.
Hollywood
We ordered a new juniper tree, a 'Hollywood Juniper' juniperus chinensis var. kaizuka.
Remodeling
After launching my writer's website, I'm remaking the whatsthematterwithme.org website with the same theme. If it all goes well, I could see myself redoing HoppinHotSauce.com the same way.
Gary in the press
Installation view of Gary Cannone’s Manet/Degas at Compound Yellow, Oak Park, Illinois (photo Jonas Müller-Ahlheim)
Past WTMWM? interview subject Gary Cannone got a great write-up by Lori Waxman in hyperallergic about his solo show at Compound Yellow in Oak Park, IL. Check out the Gary Cannone Interview Special here.
Gaining equilibrium
For the first time in months, I got up from the couch by myself. A couple of times
Selfie
Publication Barbecue selfie
00:00:00 - Intro
00:01:03 - Hoppin Hot Sauce Jingle
00:01:20 - Shout outs
00:02:01 - Instant Noodles Publishes \"CYBERTRUCK DENTAL, S. DE R.L.\"
00:02:34 - The feeling you have after publication is the same one you have after you have an art opening
00:03:17 - another story will publish next week
00:03:35 - Writing site at jwh.whatsthematterwithme.org
00:04:03 - RF Rhizotomy recovery update
00:06:05 - Tapering off habit-forming medications
00:07:08 - We have a new cat
00:09:03 - First barbecue this year
00:10:15 - The Way I Grill Charred Eggplant
00:12:42 - New Juniper Tree
00:13:43 - Remaking whatsthematterwithme.org
00:13:55 - gary cannone hyperallergic writeup by lri waxman
00:14:35 - getting up by myself
00:16:11 - Outro -
Period of Change
Undergoing a period of change: I had surgery, I got published and I went on vacation. Plenty of new music reviews in this episode.
A word
What's The Matter With Me? Podcast is sponsored by Hoppin Hot Sauce. Order it on Amazon.
JWH Live!
Writings By John Winfield Hoppin is live, because my editor said I needed a writer's website. I think it's pretty nifty..
Selfie Edict
Subscribers get the selfie for as long as we all live. It's a lifetime subscription
Shout outs
https://twitter.com/MarchandsPetRat/status/1779926937177358503
Shout outs to Marchandspetrat, hockey s-poster living with MS
Shout outs to Rocky, Cousin Eric
Gotta write up questions
Nerve Bumps (A Queer Divine Dissatisfaction) by Dax Pierson
Upcoming interview subject Dax Pierson
Shout outs to the Sandman who turned me on to James Wavey Snowy Beach, which was added recently at KFJC.
Psychedelic hip-hop from San Francisco
James Wavey Snowy Beach by James Wavey
Publication Dream Comes True
I was accepted on a piece of writing, and for the first time I made a signed agreement. Follow JWH Live! to hear more about the writing.
In the days before surgery
In the run-up to surgery, in a lot of trigeminal neuralgia pain, I increased my dosage and I felt like it was too much. Trying to even things out, I reduced by 25% overall, and it helped return me to the land of the living.
No coffee, no ibuprofen.
On a day when I would usually be recording, I went to the hospital to have surgery, my third RF Rhizotomy and fifth neurosurgery on my trigeminal nerve overall. I had two MVD (microvascular decompression) surgeries to begin with. Recovery is much easier with rhizotomy. MVD literally bores a hole in your skull, and it takes a lot of recuperation to heal. Hospital stay from rhizotomy can be as short as a few hours.
New tunes
In advance of surgery, maybe to take my mind off it, or to give myself something to look forward to, I bought some tunes.
Opera Glossolalia
Spontaneous Musical Invention by Thomas Buckner sings Robert Ashley
Robert Ashley is a composer of 1980s opera. There's a lot of talking in the libretto. The gatefold record comes with a cool book with photos. I really like the Recital label because they have interesting packaging. The record is one of 350.
Instructions?
Whiplash by Asha Sheshadri
This record is like sound art, but at the same time it's a record. I'Layered, specific, related to site. Like getting a bunch of jumbled-up instructions for a treasure hunt, cryptic. Edition of 200.
Chewing Gqom
The Gqom Trilogy by DJ Scriby // DJ Marillo // DJ Skothan //
Gqom is known for its beats which have a minimal, raw and repetitive sound with heavy bass. It is mainly described as having a dark and hypnotic club sound. The style of beats does not use the four-on-the-floor rhythm pattern which is often heard in other house music.
"Gqom" Wikipedia article
Digging this record - I'm new to Gqom, but I like it. The release is by three different DJs, a triple EP.
Drunk in Love by Elvin Brandhi & Lord Spikeheart
This is far out. File under extreme vocal performances. The feeling is metal, but the sound is electronic. Tense, spastic. Questionable in a good way, challenging material.
Numb
Now I'm back from surgery and my face feels different. Talking and eating and I'm sure other things that I'm not noticing are affected. Familiar disassociation after surgery.
It's a matter of deciding how I feel about the things that are different. First, I have to accept them.
Updating the map
After surgery, it takes time for my body to properly calculate changes in sensation, and adjust the body's size map accordingly.
In tune
The piano is tuned
Out on my own
Drove to Oakland by myself and went to a couple of friend's houses for about 3 and 1/2 hours. It was the first time in 16 months. -
In "Drugged Out," a short episode featuring wine delivery, toilet paper shortage and trigeminal neuralgia pain medication.
Long Time
Subscribers get the selfie for as long as we all shall live. It's a lifetime subscription
Green fluid
Cuts in my hands have been getting infected and filling with green goop
In Our Cups
We got the wine delivery, man, and the wine deliveryman was in his 20s, maybe his mid-20s, and he was really upset about global warming. "Things aren't l really pleasant anymore," he said.
I felt for him. "I feel for you," I said
Toilet Paper Shortage
We still have a case of Bulgarian toilet paper that has no perforations and ripping it feels like tearing up someone's college application, or well-qualified resume printed out on nice paper.
Remember back in 2020, when there wasn't toilet paper? We bought a case of Bulgarian toilet paper and it was like riving a sheet of Bristol board to rip a sheet off. There were no perforations, it was 80% normal size so it didn't fit on the roll,
Thing I Know
I watched the "Taylor Swift: Eras" movie with Koko, so I know about Taylor Swift now. Not sure what, but I know it. The movie is long, but not as long as "Killers of the Flower Moon." She gets into slang patterns thata made me uncomfortable. To get it going, I had to figure out my Disney Plus login credentials, and that, in itself, is a big bonus.
Electric Wire Buried In Flesh
I'm drugged out!
I experienced severe face pain once before bedtime, and then many times (a couple dozen?) after 4am. I cut out coffee, ibuprofen and started going up on my medicine that day, settling on twice of my usual dosage. That was too much, and I became extremely drowsy and experienced visual, balance and energy side affects. Eventually I settled around 175% of my usual dose, which. for the moment, is keeping the pain away and limiting the worst side effects.
Surgery is next week, my third RF rhizotomy. I knew this treatment could recur and that it was not necessarily permanent. Let's hope the third time's the charm.
00:00:00 - Intro
00:00:22 - Shout outs
00:01:08 - Jingle
00:02:00 - "Taylor Swift: Eras" movie review
00:02:13 - Bulgarian toilet paper
00:04:42 - Trigeminal neuralgia returns
00:07:45 - Outro
00:08:44 - Wine delivery -
In "Spring Concert," an incidental return to Dry Marchuary, a chapbook's worth of poetry and the school's Spring Concert.
From chaos comes order
One way to enjoy Hoppin Hot Sauce is "On Pasta".
In the midst of near-total chaos, small rituals ground us, nourishing both body and soul.
"On Pasta" at HoppinHotSauce.com
Shout outs
Shout outs to schwabino kickin fatal aikido kung fu karate they bout to find your body you better ask somebody mymedia designer.com tell a friend to tell a friend about my media designer
See for yourself
Spring Concert Selfie
My hair is long as it's been since 2009! See for yourself above. Subscribers get the selfie e-mailed to them, they don't even have to do anything, just lay there.
It's an NFT, it's collectible, it's a blockchain. Blockchain sounds like a necklace to me
Lost Weekend Here I Come
The wine delivery is coming tomorrow. In the meantime, we've been back to "One Or Two Beers Dry January-February-Marchuary" mode, just for the past few days. Long live one or two beers Dry January
To go in your chaps
Hippie chapbooks
A chapbook is a small publication of up to about 40 pages, sometimes bound with a saddle stitch.
"Chapbook," Wikipedia
I collected what poetry I have written since I moved here in 2021. It's over 45 pages, and Wikipedia says it's enough to make a chapbook.
Let my children play music
Once upon a time in the auditorium
I went to the San Leandro Unified School District Spring Concert in my wheelchair, to see my son play trumpet in the spring concert.
Once upon a time in the auditorium
Chapter List
00:00:00 - Intro
00:02:47 - From chaos comes order
00:03:21 - Shout outs
00:04:10 - Long Hair
00:05:23 - Wine delivery
00:05:58 - Poetry Collection
00:06:57 - Chapbook
00:09:04 - Writing in Google Keep
00:09:43 - Spring Concert
00:14:27 - Attending The Concert -
In “I Drove,” getting reacquainted with driving, where did kale come from and borscht out the wazoo.
Iconic trio
At Breakfast is a great time to have Hoppin Hot Sauce.
Just like the iconic trios of Larry, Curly, and Moe, or black, white, and grey, or even the Roman numerals I, II and III, eggs, English muffins and Hoppin Hot Sauce form an unforgettable trio that’s sure to become a favorite in your kitchen.
Shout outs
Shout out to Jersey Girl and Max LevelWe're going to broadcast a game show in MayI'll be the score
No matter what
Selfie
Selfie or no selfie the email is going out - grab it while you are still living, go to whatsthematterwithme.org and click subscribe
I drove
Two lane blacktop
I drove my van. First, around the block. Next, to the library, where I saw men with nowhere else to go walking around the library grounds in the rain an hour before opening. Finally, I drove to Oakland, up 580 and to Piedmont Avenue, to Cato's Ale House. I photographed it from my parking space and texted it to my buddy, lamenting that it was too early for beer. He replied, "It's never too early for beer." It's good to have friends. Shout out to Matt. Turning around, I drove back home.
Where did kale come from?
According to the "kale" page of Wikipedia\, Kale came to America in the 19th century from Croatia, brought by USDA botanist David Fairchild, who did not eat it, who detested cabbages of all sorts.
Borscht
We have a freezer full of borscht. Chock full of borscht, we have borscht coming out the wazoo. My aunt and uncle were in town and we had them over for lunch. We ate borscht.
Two lane blacktop
Chapter List
00:00:00 - Intro
00:00:42 - At Breakfast
00:01:55 - Shout outs
00:02:56 - Selfie or no selfie
00:03:20 - I drove my car
00:04:38 - Fear of driving
00:05:41 - Men with nowhere else to go
00:08:16 - Slash at the Oscars \"I\'m Just Ken\"
00:09:41 - Where did kale come from?
00:12:11 - Dax Pierson interview upcoming
00:13:07 - Borscht
00:13:35 - Aunt and Uncle ate borscht
00:14:09 - Losing
00:14:34 - Outro -
In "Buying A Used Wheelchair," breaking my wheelchair and buying a new one on Craigslist, more record shopping, cooking borscht and getting accepted for publication.
Every week we order pizza from the place in town. On the day after, for lunch I eat cold pizza with Hoppin Hot Sauce on it.(Hoppin Hot Sauce jingle)
Those who say don't know & who know don't say
Buying a used wheelchair selfie
Subscribers get the selfie and the show notes e mailed to them, and I don't know what they do with them
Record shopping
I went record shopping at Amoeba and it turned out to be a pretty good score:
Something Is Wrong (Vintage Recordings From East Africa)
Fiona Apple, "Tidal"
Black Top Blues-a-rama, Volume 2 Live at Tipitina's, New Orleans
J Dilla, "Donuts"
The record store person gave me "the nod"
Terminal Event
I broke the arm off of my wheelchair, with a bang. The manufacturer was out of stock, but I needed to find a replacement. I got on my computer and I searched eBay and sfbay.craigslist.org. craigslist came through for me
Cooking While Disabled
We made borscht. For the second year in a row, we used this Serious Eats recipe for Hot Ukrainian Borscht (With Beets, Beef, Pork, and More)
Accepted
After an uninterrupted months-long streak of many rejections, a few different editors wrote me to let me know that my writing was accepted. All in all, a piece of microfiction (in this case, a story of exactly 50 words) and two poems. It's very exciting to turn the corner on this project and move from submission to publication.
Chapter List
00:00:00 - Intro
00:05:04 - Subscribers get the selfie
00:06:01 - Record shopping
00:13:36 - Terminal event
00:21:08 - Borscht
00:27:58 - P.T.
00:29:30 - Outro -
In "Swift Correction," Taylor Swift wrote all the songs, hoping everything's okay, and a sprained knee. But first, I'm programming robots to do my bidding! I can feel it-- success is near at hand.Automaton II spent all day working on an automation to send posts created on the Hoppin Hot Sauce blog out to the mailing list automatically. Automations help multiply my actions which is important so I can conserve energy and avoid fatigue that comes with MS. Hopefully, I can stay in better touch with the hot sauce audience.Automaton IISwift Correction selfiePreviously, another automation I made sends new episodes to our What's The Matter With Me? Podcast mailing list. Subscribe today. Subscribers get the selfie along with show notes.Cool thingHoppin Hot Sauce is a disabled owned & operated businessShoppers at our Amazon store support disabled-owned businessHope everything's okayAbout the time when we were driving and we saw two fire trucks and an ambulance. My wife said. "I hope everything's okay." To which I replied, "Clearly, it isn't."Correction: Taylor Swift wrote all the songsCorrection: Taylor Swift wrote all the songsMy wife texted: "The standard edition of 1989 (Taylor's Version) comprises 21 tracks: re-recordings of the 13 songs from the standard edition of 1989, re-recordings of the three bonus tracks from the original deluxe edition, and five previously unreleased "From the Vault" songs that were written for the 2014 album but excluded from the final track list. https://en.wikipedia.org/wiki/1989_(album) I don't think the Taylor's version are covers."Of course, she was right. I tried to explain it in the episode, but it's really very complicated.Path of painThe path of pain began when I sprained my knee. Unfortunately, I fell in my bathroom, and bent it the wrong way. After that, I was leaning heavily on my cane, which caused soreness in my left pectoral area. The pain traveled from there down my arm, stopping in my bicep, forearm, wrist and hand.It was painful, like sitting cross-legged but the heel goes outward instead of inward. The bruise was on the inside of my knee. Recovery proceeds, slowly, haltingly; I'm trying to stay off of it as much as I can.Bueller... Bueller...I'm practicing for the CBEST California substitute teacher exam.Correction: Taylor Swift wrote all the songsChapter List00:00:00 - Intro00:01:43 - Subscribe to get the selfie00:02:27 - Taking the selfie00:03:18 - I created some automatons00:06:22 - Conserving energy00:07:06 - Hoppin Hot Sauce Jingle00:07:24 - Hope everything\'s OK00:08:49 - Taylor Swift Correction00:14:31 - It happens every night00:18:28 - The Path Of Pain00:19:26 - Substitute teacher exam00:21:43 - OutroTaylor SwiftAutomatonHoppin Hot SauceMS (Multiple Sclerosis)Trigeminal NeuralgiaPodcastAutomationPain ManagementDisabilitySubstitute Teacher Exam (CBEST)
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In "Wheelchair Dig," a dinner party, shout outs and a family trip to the record store.
Amidst discussions on music finds, including Eminem and Taylor Swift covers, touching on the disappearance of People's Park, radio's outreach to marginalized communities, and the place of 'inspirational' content in disability culture.
Canvas for hot sauce
We had our neighbors over for dinner last night and we made pulled pork sandwiches and coleslaw. The kind of thing just perfect for hot sauce.
All-KFJC Shouts
Shout out to the sandman who wrote in for a fresh fish recommendation in the South Bay. So I gave up all my spots to him?
Shout out to Jersey girl and Max level
There's only one way
Subscribe and get the selfie
Wheelchair dig
https://www.flickr.com/photos/caltex98/46968846481/
Amoeba Records Berkeley
Went record shopping at Amoeba in my wheelchair with the family
Finds
https://www.youtube.com/watch?v=X3_SPhBqG2w
I found a 3cd set of Codona on ECM used / don cherry nana vasconcelos and collin wallcott. It's proto-'world music'
https://www.youtube.com/watch?v=Z5KiSu1-2ko
my son got eminem's "Marshall Mathers 2". he is having emotional problems, so I see why he is connecting with this.
https://www.youtube.com/watch?v=2JgvVfOfoWI
My wife and my daughter went in on the taylor swift covers cd taylor's version - electropop, powerful music - the frequencies are on blast, it peels your eyelids back and curls your eyelashes. plenty rizz, more drip than expected, pretty obvious why she's a spectacular pop star
people's park is gone - three cops guarding the shipping containers blockading it - bad vibes
Inspiration to who?
https://www.youtube.com/watch?v=8K9Gg164Bsw
Is There A Healthy Place For ‘Inspirational’ In Disability Culture? Andrew Pulrang
Disabled people have complicated relationships with a lot of words. But the one word other than “disability” itself disabled people feel most intensely about may be the word “inspirational.”
Andrew Pulrang
Broadcast
Digging in the crates
The radio and other broadcast media is egalitarian in the way it approaches disabled people and unpopular people. The voice on the radio is the companion that they have. Homeless people, weirdos, prisoners, anyone who tunes in can listen
On that note, email me
Digging in the crates
Chapter List
00:00:00 - Intro
00:01:01 - We had our neighbors over
00:01:30 - Hoppin Hot Sauce Jingle
00:02:03 - Shout outs
00:02:10 - south bay fresh fish market recommendations
00:03:35 - Jersey girl and Max level
00:04:23 - subscribe and get the selfie
00:05:31 - record shopping at amoeba Berkeley with the family in my wheelchair
00:08:00 - i found codona trilogy on ecm 3cd set used
00:10:54 - my son got eminem
00:13:25 - taylor swift taylor\'s version cd
00:18:11 - people\'s park is gone
00:20:20 - being inspiring is a drag
00:24:25 - voice is on the radio
00:25:46 - outro
People's ParkBerkeleyDisability cultureInspirationalAndrew AngElla YoungRadio broadcastingAmoeba Berkeley (record store)Hoppin Hot SauceRecord shoppingMultiple sclerosisTrigeminal neuralgiaEminemTaylor SwiftJazzHip hop -
In "The Music Episode:" "Let's Paint TV," Ludacris color story meme, and keeping the kids in their rooms by tuning in to Day Of Noise on KZSU.
When life gives you shoes.. make shoeanade
The new shoes that I got in the last episode are working out. They're made by a company called Drew
I swear it's true
Semi-transparent guitarist playing a record store "in store" gig with red paint scrawled all over its face
This is the music episode
Spicy Roasted Pistachio Nuts
The Spicy Roasted Pistachios with Hoppin Hot Sauce Extra Hot came out but there was one problem - i couldn't stop eating them - we'll eat them at the Super Bowl, if they last that long
I'm writing an email blast about them, and I made some cool collages, like this one, of the guy who coined the term 'umami'
Umami means "delicious taste." in Japanese.
The Struggle Is Real
If Sisyphus was alive today, he could have a podcast about going up the hill and rolling the boulder over and AI would say it was a multi-faceted discourse.
Chairpiphany
It helps when I search for stuff using my wheelchair not walking around. BC then I actually look around, instead of focusing on walking, trying not to fall, as usual.
Berkeley Rock Stars
https://www.youtube.com/watch?v=CnQ8N1KacJc
I got a fragment of The time of your life Green Day song stuck in my head, but only the title, and even that I got wrong.
Not Like The Others
If you're like, "This certainly isn’t like another podcast," make sure to subscribe to get the selfie.
Here Be The River Of Pain
Changes in the weather: the atmospheric river pointed at California is screwing with my face a bit. Stinging me, stabbing me - out of nowhere.
Ultimately Very Listenable
https://www.youtube.com/watch?v=CFEY7Aw7S7s&t=1848s
Thiis is from "Let's Paint TV," hosted by the Los Angeles artist John Kilduff. Once the novelty of his multidisciplinary multitasking wore off, which, I admit, took a while, I found it soothing and ultimately very listenable. He has an etsy store, with lots of items for sale at a very reasonable prices considering the obvious talent involved. For real - I mean, could you do this? I couldn't, and I appreciate him for what he has done.
Appealing Color Story Hip Hop Rap Ludacris Meme
I created the Ludacris meme "Mauve birch"
My Children Were On Lockdown
It was the day of noise on KZSU. The 24-hour live marathon of noise and experimental sounds kept the kids out of the main room of the house, in their rooms with the doors firmly shut, pretty much all day.
Keeping It Going
On the day after Day Of Noise, my daughter had a playdate. While it was going on, I put on Escalo Frio by Otto Von Shirach which was more of the same. Escalo frio means shiver in Spanish. The record features an appearance by Matmos. Before putting it on I told my wife it was dance music and I admit, that was misleading.
No Test Drive
Abilities expo isn't happening in the bay area this year but it is happening in Los Angeles in mid March. I can get another of the same wheelchair that I already have, however I would like to have a chance to look at the options in a hands-on way.
The Music Episode Selfie
The Music Episode Selfie
One More Time
This is the music episode.
Semi-transparent guitarist playing a record store "in store" gig with red paint scrawled all over its face
Chapter List
00:00:00 - Funeral song
00:00:52 - ATMOSPhERIC RIVER TRIGEMINAL NEURALGIA
00:01:13 - New Drew Shoes
00:03:05 - This is the music episode
00:03:59 - Ikeda who coined the term \'umami\'
00:05:13 - HOPPIN HOT SAUCE jingle
00:05:14 - If Sisyphus was alive today
00:05:44 - Search by wheelchair
00:06:54 - \"Good Riddance\" Green Day
00:08:05 - Get the selfie
00:10:10 - John Kilduff / Let\'s Paint TV
00:13:44 - Ludacris meme \"Mauve birch\"
00:14:44 - KZSU Day Of Noise 2024 -
SEASON 8 EPISODE 4"NEW SHOES 2KXXIV"
In “NEW SHOES 2KXXIV,” I get new shoes for the first time in years, piece together a classy color scheme of colors with gross-sounding names and austerity in the UK impacts people with disabilities.
Through this episode, I invite you to join me in unraveling the complexities of this multifaceted experience.
Hoppin Hot Sauce Toasted Pistachios
1 cup pistachios, 2 teaspoon whole cumin seed, 1 teaspoon aji-no-moto, 1 Tablespoon Hoppin Hot Sauce, salt, olive oil. Stir together and lay out on a baking sheet lined with a silicone or parchment baking sheet.
Place in a 350 degree oven for 3 to 4 minutes. Stir, and return to the oven for 3 or 4 minutes, until the cumin is fragraant.
Let them cool for a few hours. Once I got going, I was unable to stop eating them even for a sip of beer.
Shout outs
Shout out to Matt who was into the blood episode - we watched the playoffs with our families
Geographical Shout outs
Shout outs to the cities, towns and countries that listen to this podcast
Green Kitchens Sicken Millions
Color scheme made up of Gross sounding colors like taupe and puce
Mauve birch get out the way
Don't Pull The Trigger On A Face Tattoo
Reminder to the listeners as an alternative to getting the facial tattoo is to subscribe to the newsletter
If I were ever to have an advertiser maybe a good one would be tattoo removal
Cursing For Kids
Swearing nursery rhymes like Little Miss muffet sat on her motherfucking tuppet eating her curds and way shit
Stompin' in my Drew Force V
I got new shoes -
at walk rite for life
who set me up with a custom fit, which I need to fit my AFO inside
Less than total teetotaling
"one or two beers half-january" is finally over
Putting us all together
Due to budget shortfalls, city councils in the United Kingdom are considering cutting assisted living programs and forcing disabled people to move into state-run facilities.
If you want a symbol of this country’s shredded safety net, look no further than Mark in Bristol.
For the past 30 years Mark, who has cerebral palsy, has lived in his accessible bungalow with the support of personal assistants. That care package has enabled the 58-year-old to build a life at the heart of his community: from being a governor at the local school and training as a social worker, to holding a season ticket for his beloved Bristol City football club, “It’s more despair than joy,” he smiles.
From next week, that life could start to disappear. As the latest local authority to strain under growing social care costs and dwindling resources – the city faces a budget hole of £17m next year, expected to rise to £32m in the years to come – Bristol council is proposing a “cost-effective” solution: if a disabled person’s in-home care is not considered “best value”, they could be told to live in a care home instead. It is the stuff of a domestic horror movie: a bureaucrat deems your life too expensive, and you’re forced to pack your bags and spend the rest of your days in an institution.
Frances Ryan, "Think of this: a plan to ‘warehouse’ disabled people. What kind of nation is Britain becoming?" Thu 25 Jan 2024
Laughing Fools
We had our friends over to watch the football game
I undercooked the beans again but it didn't matter, we had a good time
Afterwards, my wife and I laughed so much at bedtime, being goofy
"New Shoes 2KXXIV" Selfie
Chapter list
Chapter List
00:00:00 - Intro
00:00:48 - Subscribe to get the selfie
00:01:20 - Young Albert Einstein vs. old Albert Einstein
00:03:32 - Hoppin Hot Sauce Jingle
00:03:51 - Hoppin Hot Sauce toasted pistachios recipe
00:06:11 - Shout outs
00:07:06 - Geographical shout outs
00:09:44 - A gross-sounding color scheme
00:10:51 - Alternative to the facial tattoo
00:11:45 - If I had an advertiser -
In "Arte Povera," Aaron "Wheelz" Fotheringham hits the skatepark in his WCMX wheelchair, we learn how to pronounce 'arte povera' and MS plays third wheel.
Shout out
Shout out to Jersey Girl who wrote in to let me know she was a diggin' on the new theme song
@aaronwheelz WCMX GETTIN' RAD
https://www.youtube.com/watch?v=YEXsDdhgX-s
Aaron "Wheelz" Fotheringham WCMX disabled extreme wheelchair at the skate park. Watching his videos blew my mind and made me proud
Arte Povera Selfie
Put the selfie in and remind listeners to subscribe
When was the height of the sound effects- do you remember the sound effects? Contact me and I will give you an incredible shoutout that warps time and space due to its epicness
Famous Quotations: Edison & Rakim
When you have explored all possibilities, remember this - you haven't.
Thomas Edison
https://www.youtube.com/watch?v=6Y1Emb7Jyks
Don't sweat the technique
Cats are big
We can always make a social media profile for our pet cat. people love cats!
Video art, eh?
https://www.youtube.com/watch?v=PQddRHtt0Ts
The video that comes up when you search "Arte povera pronunciation" is like a work in itself
Door Update
The ancient giant door of opportunity is wide open, with light shining through
Stitches/Staple Update
I don't have any stitches or staples in my head or anywhere else in my body at the time of this recording
The stitches fell out in the shower. Just the end of them. They were brown
Three's Company
Everyone who is in a relationship with me is also in a relationship with multiple sclerosis, including my friends and family
#1: Ask before you help
United Spinal Association disability etiquette guide was a concise read that offers interesting perspective on how to treat disabled people respectfully
Acceptance
acceptance of gravity like acceptance last time - gravity is a constant force
Time's up
See you next week! Don't forget to contact me for a Shout Out in the next episode
While you're there, subscribe to get new episode emails
Chapter List
00:00:01 - Intro
00:00:46 - Shout outs
00:01:17 - disabled inspiration: Aaron Fotheringham WCMX rider
00:05:00 - selfie
00:05:28 - to get the full experience, you must subscribe to whats the matter with me?
00:05:39 - do you remember the sound effects?
00:06:24 - kid\'s baseball league debacles
00:08:23 - disabled inspiration: remembering pitcher Jim Abbott
00:09:12 - Quote: Thomas Edison
00:10:45 - Quote: Eric B. & Rakim
00:11:39 - People Love Cats
00:11:54 - arte povera Pronunciation Video
00:14:45 - Ancient Giant Door of Opportunity
00:15:34 - no stitches or staples
00:16:38 - Everyone who is in a relationship with me
00:19:09 - Disability Etiquette Guide
00:22:51 - Outro -
In "Ancient Cattle Herders," scientists solve a genetic mystery about multiple sclerosis, Christina Applegate goes on the Emmys, and we read about how acceptance is key.
Caused by people with horses
Surely a big deal with far-reaching implications
Scientists crack mystery of how MS gene spread
10th January 2024, 08:09 PSTShare
By Philippa RoxbyHealth reporter
An international team of scientists say they have unearthed the answer in the DNA of ancient teeth and bones.
The genes which protected our ancestors from animal diseases now raise the risk of multiple sclerosis (MS).
The researchers call their discovery "a quantum leap" in understanding the evolution of the disease.
And they say it could change opinions on what causes MS, and have an impact on the way it is treated.
https://bbc.com/news/health-67917294
Surely a big deal with far-reaching implications, but I'm not 100% sure what they are. Something to do with ancient cattle herders, beasts and DNA helixes like you see above.
Remember
Reminder to put the selfie in and don't forget it like last time, remind listeners to subscribe
ancient cattle herders selfie
90s are back: E-Mail
I sent an “it's good to start the season” email
Email is big bc the 90s are back
Emmy TV Moment
Christina Applegate on the Emmys was a huge moment that increased MS consciousness
Having That Falling Feeling Inside
Fell in the house Wednesday at 10:45am. my wife was here.
I bled a little from one of the stitches, but didn't open up and stopped pretty quick when I iced it so I didn't go to the ER but I think this still counts as a fall
If Christina Applegate did it, we would say, "she fell."
If it's the last thing I ever do
Fellow KFJC DJs reach out to me to take part in stuff, but I can barely make it around my house
Moving to San Leandro added 9 minutes and a bridge to what had been a straight shot from east san jose
I'm not walking very well
I would be there if I could be
I need to figure out my wheelchair transport situation
Like a helicopter
https://www.youtube.com/watch?v=0xdVXV8_yHE
The wall blew off on that 737 Max 9
Come up off that
We got permits for solar last year but we've kind of been dragging our feet with the sales people and this year they want to take our money and now I'm getting calls from the operations department
Not a word
No one agrees to publish my poetry and to an extent that shouldn't be a surprise
Acceptance is key
Blog post about disability and acceptance that I thought added valuable perspective to my situation
@johnhoppin
https://twitter.com/johnhoppin/status/1742292361139621970
Chapters
00:00:01 - Intro
00:01:11 - Hoppin Hot Sauce Jingle
00:01:25 - Ancient cattle herders brought MS genes
00:05:59 - Selfie
00:07:14 - “it\'s good to start a season” email
00:08:31 - Christina Applegate on the Emmys
00:14:29 - Fell in the house
00:15:34 - Stuck in the house
00:17:48 - The wall blew off on that 737 Max 9
00:18:58 - I\'m getting calls from the operations department
00:20:13 - Poetry publication
00:20:52 - Accepting disability blog post
00:24:09 - twitter bon jovi
00:24:38 - Outro -
Welcome to the Season 8 Premiere, "New Pie Cutter"
In this episode, "New Pie Cutter" which is a kind of smorgasbord episode, we celebrate the new year, the new season, the new theme song. People get ready, the new episode is here and ready for liftoff.
Shout outs
s
Shout out to the sandman
Contact me on the contact form to get a shout out
Maybe the best shout out you'll ever have, or that anyone'll ever have
New Pie Cutter
To avoid a repeat of this year's thanksgiving gorefest, I ordered a metal pie cutter on ebay, with a stainless steel blade and a silver handle -
it's here and it's beautiful and sturdy
Dinner a la GoGo
GoGo has limitations as a dating service
an awkward seating arrangement
at least they got a name change
TV burial
bought a big new tv bc mine crapped out after 15 years
What's causing it
Dad butt dialed me again and he was like well. what happens is,I keep my phone in my back pocket, i think i butt dialed you
Maxims
I will try to eat cheese no matter how old it is just to see
A pint is a pound the world around
Correct Technique
correct and incorrect swallowing techniques
Swallow while staring at your sternum
I learned it from Koko
Wheelchair Fake News
With my son
parts on my wheelchair broke in airline baggage
"jazzy passport is discontinued"
and other lies the wheelchair salesman told me
Notes
making memes
yogurt marinade
Mix 1 cup yogurt, 2 tsp Hoppin Hot Sauce, and 1.5 tsp salt
Pour over 8 boneless chicken thighs and rest for at least four and up to twentyfour hours
Grill and eat over rice with some white sauce and extra hot sauce to taste
AI Guy
I posted a picture of myself that was made by AI and I put it as my story and a lot of people haven't heard from in a long time contacted me and maybe didn't realize the picture was not of me but it was a hallucination by AI
Admission
the triage nurse at the hospital asked me if i used to be a wrestler
Chapters
00:02:37 - shoutouts
00:03:02 - I ordered a metal pie cutter on ebay
00:04:43 - GoGo has limitations as a dating service
00:07:55 - bought a tv bc mine crapped out after 15 yr
00:09:33 - Dad butt dialed me again and he was like well. what happens is,I keep my phone in my back pocket, i think i butt dialed you
00:10:01 - I will try to eat cheese no matter how old it is just to see
00:10:25 - A pint is a pound the world around
00:12:38 - Swallowing while staring at your sternum
00:15:53 - parts on my wheelchair broke in airline baggage
00:21:22 - jazzy passport is discontinued (and other lies the salesman told me)
00:21:58 - maxims
00:22:19 - Hoppin Hot Sauce Jingle
00:22:28 - cooking yogurt chicken (with recipe)
00:23:27 - I posted a picture of myself that was made by AI
00:24:35 - i\'ve been bleeding all from my head
00:25:43 - the triage nurse at the hospital asked me if i used to be a wrestler
00:28:57 - pus head experience / pus head the artist -
Welcome to "Can You Eat Blood?" the first episode after a break for a few weeks. I had trigeminal neuralgia face pain, so I took a a couple of weeks off. I think AI would say that these are bunch of unrelated thoughts.
Shout-outs
Shout out to the poet Joe Imwalle who called me to thank me for sending a link to his linktree while at the same time insinuating (correctly or not) that almost no one listens to my podcast.
Joe played guitar in my high school band and now he's a published poet
Shout out to Jeremiah Jahnson who gave us a shout out on KFJC, Saturday morning at 8:30
Shoutout to Hoppin Hot Sauce
Gray room
We went on a date at Yonsei Handrolls because the movie was too long to do otherwise
What To Do
When you have MS people are alwaays sending you scholarly articles like this one
Caramelized shallots
Chicken and pasta with caramelized shallots
Thanksgiving
Thanksgiving is for 14 this year
Thanksgiving menu
5% salt
I wrote the sauerkraut recipe for the school recipe book
I can breathe again
The espresso machine is back
No Swap
We're taking a break from the Booze-Only Yankee Swap this year
Face on the fritz
My face is bothering me due to the storms in the atmosphere
Unfortunately I couldn't eat dinner with my family
I had a scrambled egg on some rice so it's not like I'm dying
Turkey Brain
A week away and the Thanksgiving meal took over my mind
I hope that I will be in the clear and so I can enjoy eating the meal and not be in fear
I'm put in the meat order after trying to put it in back in October and they were like, "We'll do it next week." I'm either super early or coming in in the nick of time
Cool hipster shoes
The guy at the mobility shoe store asked me what kind of shoes I want and I said I was a hipster and I was cool and he said so you want dress shoes?
Too Much Blood
Jan hasn't been able to smell anything since he was 18
Nami drank Jan's blood
But at least she didn't drink her piss
Rejection
Uniform Rejection of All writing submissions
Disability studies
Disability major at UCLA, first at a CA public university
Mysterious note
"Not just the bad stuff but the stuff I thought was really good"
Washed up
In a discussion of popular music John John told us Lady Gaga is washed up -
Welcome to What's The Matter With Me? Podcast Season 7. Episode 31, "God Of Thunder"
The provided text seems to be a collection of various unrelated topics and updates, including shoutouts, a fundraiser for KFJC, an art acquisition by SFMOMA, the outcome of a baseball game, discussions about tucking in a t-shirt, an exploration of self-sufficiency, cooking, and conversations about toxic behavior with your son.
ChatGPT
Shout Outs
Shoutouts to Rocky who dug the face tattoo idea
Remember to use the drawer.
Repeat: do not get a face tattoo, just a drawer full of scraps of paper with tattoo ideas written on them
Shouts out to Max Level, standing at the edge of an inky black ocean holding a torch aloft
Fundraiser is done
2023 KFJC Artist Shirt by Abigail Mae
The KFJC fundraiser wrapped up bc we raised our operating budget for the coming year
I donated to fundraiser @ KFJC and got the artist shirt (pictured above)
Outsider Granted Entry
JOSEPH ALEF, UNTITLED (JA 072), 2018, WORK ON PAPER, 22 X 30 INCHES via Creative Growth
“SFMOMA’s investment marks a historic milestone in the contemporary art world,” said Ginger Shulick Porcella, Executive Director at Creative Growth Art Center. “It has been far too long that art institutions have ignored or underrecognized artists with disabilities. These talented creators can no longer be relegated to the category of ‘outsider artists’ as they firmly occupy the walls of museums worldwide.”
SFMOMA
SF MoMA makes histric acquisition of works from Creaative Growth/Creativity Explored/NIAD artists
Rangers In 5
https://www.youtube.com/watch?v=lVbOQzgQKNk
Diamondbacks lost the world series in five games to the Rangers
As promised, I now have an Adolis Garcia Rangers jersey on order for my son
Locked In With Deepak
https://twitter.com/DeepakChopra/status/1704637821493919867
https://twitter.com/johnhoppin/status/1704637997222920243
Art School Job Prospects
The person who named cymbals had a really cool job
Do you think the hiring manager had other well qualified candidates?
Keep your shoes on
Tucking in a t-shirt in doesn't make it look any more formal
If you are in my family, it makes you look like a pumpkin who thinks that a tucked in t-shirt is appropriate to wear to an event that it clearly is not
Otherwise, you wouldn't tuck it in your silly t-shirt.
Everybody needs directions
Even Jesus Christ was not perfect
God of Thunder
I was the drummer from Def Leppard for Halloween
Tight reviews: one reviewer was 5'9" 230 lbs "pretty sure my junk was showing"
The tights fit, and I don't think my junk was showing
Exploration in Self-sufficiency
I took the kids to school by myself, picked them up, fed them, bath, and bedtime
So my wife could go to San Diego on a work trip
Green sauce for steak and vegetables
What we're cooking now: grilled skirt steak with new potatoes & the real chimichurri
Get every last drop
https://www.youtube.com/watch?v=FBtu3zhSD40&t=3s
Judy woodruff & Dan Doctoroff on PBS Newshour Disability Reframed segment about squeezing every last bit out of life
https://www.youtube.com/watch?v=rXZUV2pX584
Washington Phillips on Dust-to-Digital
Toxic messaging
Talking to my son about the imagined bullies in middle school
Trying to introduce the concept that making fun of a adisabled person is a toxic behavior, and as he gets older it's going to be important to see that clearly
I am not at all sure that will help him -
In "What's Really Going On", John discusses the challenges he's been facing with his children, particularly their lack of cooperation
He shares the stress and difficulty he experiences in trying to handle this situation, about the frustration of dealing with his son's behavior and the impact it has on their daily routines. He expresses his hope for a resolution and mentions that it's the 30th episode of his podcast this year.
The episode discusses various topics, including John's family life, his children's behavior, his creative work with Hoppin Hot Sauce, and his experiences at a drum and bass show.
Forming a rock band
What I meant when I said that the fans of What's The Matter With Me? Podcast could change the course of history is that there's enough of them to form a rock band
Coffee Annual Deep Cleaning
We took the coffee machine in to get serviced
Pile of Sticks
All of my walking sticks are bent or otherwise unusable and I have them in a pile in the corner. I called in the warranty for one of them, and the replacement will come on Monday.
Drum and bass
I went to the drum and bass show at the Golden Gate Park Bandshell in my wheelchair
Submission
Kind of a milestone: I submitted poetry to ten publications. It's probably just the beginning.
Hot Sauce
Check Out Hoppin Hot Sauce On Amazon
Making a new production of Hoppin Hot Sauce, getting everything ready
What's really going on
My son is driving me wild, and my daughter is watching and learning
John discusses the challenges he's been facing with his children, their lack of cooperation in doing homework. He shares the stress and difficulty he experiences in trying to handle this situation, and the frustration of dealing with their behavior and the impact it has on their daily routines. He expresses his hope for resolution and a good night's sleep. -
In "Multifaceted Discourse" John discusses various topics and gives shout-outs. Here's a summary of the episode:The humorous and diverse "Multifaceted Discourse" delves into a smorgasbord of subjects, with the usual touch of self-deprecating charm. Being a jazz vocalist is a real thingWe saw Kurt Elling & Charlie Hunter at Yoshi's, where they always have a great accessible seating setupIt was cool to see a jazz vocalist headliner; they scat on every songBow DownJohn dishes out shout-outs, paying homage to a variety of individuals, and even reflects on reaching a milestone 201st episode. Shout out to slartibartfast who loves the productionShout out to Jersey girl, who ideated the blind musicians kfjc specialShout out to Nathan Mary tibby & butters who wrote in to Let me know, this is my 201st episodeShout out to the sandman who said "it’s good and reassuring that AI cannot describe your show. Your show is about a specific human experience. I am glad that AI does not understand that yet, it means we still have time"Onus Removed?This could be a moment to rethink the A.D.A.'s framework. The Justice Department could take a larger role in enforcing the law, and Congress could amend the statute to give businesses a window to correct violations.Evelyn ClarkWe nearly take a thought-provoking turn reading The New York Times' article, "It’s Time to Rethink the Americans With Disabilities Act," shedding light on disability-related discussions. Always Protect YourselfA viewing of the film "Million Dollar Baby"; delving into thoughts on body limitations and the pursuit of perfection. As Lennard Davis himself has written, "what is universal in life, if there are universals, is the experience of the limitations of the body". Yet in films like Million Dollar Baby, and seemingly in every other ideological corner, we confront what Davis calls a "fantasy…of the perfection of the body and its activities". We cannot step into this ring alone.Jay Dolmage &William DeGenaro, Ph.D.SubmissionThe episode then takes a poetic turn, inspired by Joe Imwalle. I've submitted my poetry around to some places and that's a lot of fun and disheartening, but I'm more having fun with it.Still need a liftWheelchair lift issues are ongoing. Book RundownBook reviews include "2021 Best Sports Writing" anthology, Brandon Taylor's "The Late Americans" and "Biography of a Phantom" by Mack McCormick. Letting AI sum up"Multifaceted Discourse" is a delightful blend of humor, insight, and intrigue.
-
A Range Of Subjects
We’re paid through the year
In this podcast episode, John shares personal anecdotes, music interests, and his challenges due to multiple sclerosis. He discusses social experiences, urban planning, wheelchair tennis, and efforts to improve mobility. The episode offers insights into his life and diverse interests.
My wife reminded me of the time I got nervous with her family and I said that jujubees give you "copious fecal matter"
Music Rundown
New adds:
https://www.youtube.com/watch?v=iAI_0ncyo3M
Gabor szabo bacchanal - 1969 psychedelic apocalypse world music guitar centric
Dad gave it to me
https://www.youtube.com/playlist?list=OLAK5uy_nZEvJap1jZ-Qr4n3iN6JyTHzJDIVcZerM
Zum Vol 1 & 5: indie experimental playlist from George Chen
https://www.youtube.com/watch?v=Ejrhm5hVzMY
sick thoughts on total punk records
This got me into the KBD scene - here is the Wikipedia page
https://www.youtube.com/watch?v=xSKR5Rpru7Q
from The Odd Man Who Sings About Poop, Puke and Pee
Tremor Control
I'm deep diving into olivia tremor control
https://www.youtube.com/watch?v=1yFaHBPOLJI
Will Cullen Hart has MS
The collected works book, mostly olivia tremor control covers and related ephemera
'Jazz' alone will do
Renaming jazz CD genres into just jazz from contemporary jazz, jazz fusion, hard bop, or whatever
Not always social
Being social is hard bc its hard to be social
Baby's in the corner
I went to my Mom's birthday and everyone stood around and it wasn't the right place to hang out
I got out of there and went to a table in the corner of the room
The party was crowded but nobody sat next to me and I received people like the pope. trying hard to recognize them after not seeing them for many years. It was ok. I chose a seat that was very close to the stage.
2.5 Ft/Sec
Read a piece in the times about urban planning for senior citizens
Stir Crazy
hard to get a round
trying not to go nuts
Burning Man attendees got to go home, when will I get to leave
Wheelchair Tennis
Watched the wheelchair us open tennis, Spaargaren NED v Fernandez ARG
Liberation
CALLED the mobility people TO GET THE LIFT GOING
We set an installation date for October 10
Choking on food
Had one of John's friends for dinner and they ate seconds and thirds, then everything was gone and it was gratifying. Ground beef tomato pasta
Then I coughed on some Watermelon covered with tajin. "This is normal", John told his friend. I guess it is. I felt bad for him.
AI Cooking School
AI Hoppin Hot Sauce food photographs are impressively strange
Challenging Juju
1919 market warehouse party spot is still for sale 20 years later
For the nth time - Показать больше