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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Alan Hakim, a world-renowned rheumatologist and expert in Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). Dr. Hakim reveals for the first time something about his own health. Listen in to find out what Dr. Hakim really thinks about the Beighton Score and the 2017 hEDS Classification Criteria. He also shares when he feels genetic testing is indicated and how to interpret variants of uncertain significance (VUSs).
Takeaways:
Difference Between Connective Tissue Disorders: Dr. Hakim clarifies the difference between hereditary connective tissue disorders like EDS and autoimmune connective tissue disorders such as lupus and rheumatoid arthritis.
Evolving EDS Criteria: The 2017 classification of EDS has improved the understanding of conditions like hypermobile EDS, but there’s still ongoing research and work being done to refine the criteria. Dr. Hakim shares his thoughts on the criteria and the process.
Comorbidities in EDS and HSD: Conditions such as POTS (Postural Orthostatic Tachycardia Syndrome) and GI disorders often accompany hypermobility-related disorders, though more research is needed to establish how these comorbidities are connected.
The Importance of Instability: Joint instability, rather than just hypermobility, may play a more significant role in patient symptoms, making proper diagnosis and treatment plans essential.
Future of Genetic Testing: While genetic markers for hypermobile EDS have not yet been identified, significant research is underway to find biomarkers and better understand the genetic components of these disorders. Dr. Hakim shares his thoughts on when genetic testing should be performed and covers red flags for more rare types of EDS and other hereditary connective tissue disorders.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority!
Learn about Dr. Alan Hakim:
Instagram: @ehlers.danlos
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
LinkedIn: linkedin.com/in/hypermobilitymd
Facebook: facebook.com/BendyBodiesPodcast
Blog: hypermobilitymd.com/blog
Part of the Human Content Podcast Network
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Tina Wang, a leading expert in physical medicine, rehabilitation, and fascia research. Dr. Wang delves into the complexities of fascia, particularly its role in Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD). She explains how fascial dysfunction contributes to myofascial pain, joint instability, and other challenges faced by individuals with hypermobility. Dr. Wang also discusses innovative diagnostic techniques and treatment approaches, including the use of ultrasound and manual therapy. This episode is a must-listen for anyone who wants to better understand their pain, or is interested in the cutting-edge research and clinical insights on fascia and connective tissue disorders.
Takeaways:
Fascia’s Role in EDS: Fascia plays a crucial role in connective tissue disorders like EDS and HSD, impacting everything from joint stability to chronic pain.
Myofascial Pain: Myofascial pain, often misunderstood, can be a significant source of discomfort in hypermobility conditions due to fascial dysfunction.
Ultrasound for Diagnosis: Advanced ultrasound techniques are improving the ability to diagnose fascial changes and guide treatment in EDS patients.
Manual Therapy Benefits: Proper manual therapy can help alleviate fascial dysfunction, but it must be approached cautiously, especially in hypermobile patients.
Holistic Management: Managing hypermobility-related pain requires a holistic approach, including movement therapy, manual therapy, and collaboration with healthcare professionals.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority!
Learn about Dr. Tina Wang:
Linkedin: @tupelopointe
Tiktok: @tupelopointe
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
LinkedIn: linkedin.com/in/hypermobilitymd
Facebook: facebook.com/BendyBodiesPodcast
Blog: hypermobilitymd.com/blog
Part of the Human Content Podcast Network
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Each week, join Dr. Linda Bluestein (AKA The Hypermobility MD) on her quest to demystify the wide world of symptomatic joint hypermobility. Get ready to better understand your own bendy body in our newest season – available now!
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, chats with Katie and Andrew Dettelbach, founders of Whealth, a program dedicated to helping people with hypermobility and chronic pain. Both Katie and Andrew have hypermobile Ehlers-Danlos Syndrome (hEDS) and have turned their personal struggles into a platform that empowers others to manage their pain and regain strength. Katie, a critical care nurse, and Andrew, a kinesiologist, discuss their journeys, challenges with hypermobility, and the innovative methods they’ve developed to help thousands worldwide overcome chronic pain. Learn how movement, strength, and understanding your body can transform your life.
Takeaways:
Movement and Hypermobility: Finding the right type of movement is crucial for managing hypermobility and chronic pain, though it may take trial and error.
Strength Training and Pain Relief: Tailored strength training can significantly reduce pain and improve function in hypermobile bodies.
Listening to the Body: It’s essential to distinguish between good and bad pain, adjusting your activities accordingly.
Holistic Approach: Programs like Whealth emphasize not just movement but also nutrition, stress management, and environment for better overall health.
Self-Compassion: Managing chronic conditions requires patience and self-compassion, recognizing that healing and strength-building is a journey.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority!
Learn about Whealth Founders Katie & Andrew Dettelbach:
X / Twitter: @spreadwhealth
Instagram: @whealth
Facebook: @spreadwhealth
Youtube: @whealth
Tiktok: @whealth_
Andrew IG: @the.shirtlessdude
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
LinkedIn: linkedin.com/in/hypermobilitymd
Facebook: facebook.com/BendyBodiesPodcast
Blog: hypermobilitymd.com/blog
Part of the Human Content Podcast Network
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In this insightful episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with Dr. Natasha Trujillo, a licensed sports psychologist specializing in grief, loss, and chronic illness. Dr. Trujillo and Dr. Bluestien both work with the Colorado Ballet. Dr. Trujillo discusses the complex emotional landscape of grieving when faced with chronic pain, disability, and the loss of identity. She shares valuable strategies for processing grief, moving towards acceptance, and navigating self-compassion. Whether you’ve experienced grief from illness, injury, or significant life changes, this episode provides tools and approaches to living a fuller, more resilient life.
Takeaways:
Grief Beyond Death: Grief can occur after any significant loss, not just death, especially when living with chronic illness and disability.
Acceptance and Resilience: Acceptance is not about giving up; it’s about acknowledging reality while continuing to strive for personal growth and well-being.
Grief is Nonlinear: The stages of grief do not always follow a predictable order and can vary widely from person to person.
Processing Emotions: Identifying, expressing, and working through emotions are key steps in moving through grief and loss.
Self-Compassion: Developing self-compassion is crucial when dealing with grief and loss, as it helps counteract self-blame and fosters emotional healing.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority! 🧬🔬🦓
Learn about Dr. Natasha Trujillo:
Instagram: @npttherapy
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
LinkedIn: linkedin.com/in/hypermobilitymd
Facebook: facebook.com/BendyBodiesPodcast
Blog: hypermobilitymd.com/blog
Part of the Human Content Podcast Network
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a patient with hypermobile EDS and POTS, shares her insights on how occupational therapy can help individuals regain control over their daily lives. From adaptive tools to fatigue management strategies, Emily provides practical advice and discusses her groundbreaking research on group rehabilitation programs for POTS. Tune in to learn how to manage symptoms and improve your quality of life with expert guidance.
Takeaways:
Occupational Therapy for POTS: Occupational therapy can play a crucial role in helping POTS patients manage daily tasks and improve their quality of life through adaptive tools and strategies.
Group Rehabilitation Programs: Emily Rich has developed a group-based rehabilitation program that combines occupational therapy, physical therapy, and mindfulness to help POTS patients manage symptoms effectively.
Managing Fatigue: Fatigue is a significant challenge for individuals with POTS and EDS. Techniques like pacing, energy conservation, and strategic rest breaks can help manage energy levels.
The Role of Compression: Proper use of compression garments, including abdominal binders, can significantly help manage POTS symptoms by improving blood circulation and reducing symptoms like dizziness and fainting.
Holistic Approaches: Emily emphasizes the importance of a holistic approach to managing POTS and EDS, incorporating lifestyle changes, movement, and psychological support to enhance overall well-being.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority! 🧬🔬🦓
Learn about Emily Rich:
Instagram / YouTube: @emilyrichot
Linkedin: @emilymrich
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
LinkedIn: linkedin.com/in/hypermobilitymd
Facebook: facebook.com/BendyBodiesPodcast
Blog: hypermobilitymd.com/blog
Part of the Human Content Podcast Network
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, engages in an enlightening conversation with Dr. Kaitlin Touza, a renowned pain psychologist. Dr. Touza delves into the complexities of chronic pain, explaining how the nervous system, brain processes, and psychological factors contribute to pain experiences. She discusses multiple different pain management techniques while emphasizing the benefits of understanding pain neuroscience. Dr. Touza also highlights the value of self-compassion and psychological flexibility in improving quality of life for those with chronic pain.
Takeaways:
Psychological Factors and Pain: Psychological factors such as stress, anxiety, and fear can significantly influence the perception of chronic pain and its severity.
Pain as a Danger Signal: Pain is often a response to perceived danger, not just physical injury. The brain’s interpretation of pain involves complex neural circuits.
Cognitive and Behavioral Therapy: CBT and ACT are effective therapies for managing chronic pain by addressing thought patterns and behaviors that influence pain perception.
Importance of Self-Compassion: Developing self-compassion and psychological flexibility can improve resilience and coping strategies for individuals with chronic pain.
Understanding Pain Neuroscience: Educating patients and healthcare providers about pain neuroscience can empower individuals to better manage their pain and improve their quality of life.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority! 🧬🔬🦓
Learn about Kaitlin Touza:
Linkedin: https://www.linkedin.com/in/kaitlin-touza-phd-9117148a/
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
LinkedIn: linkedin.com/in/hypermobilitymd
Facebook: facebook.com/BendyBodiesPodcast
Blog: hypermobilitymd.com/blog
Part of the Human Content Podcast Network
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, hosts an enlightening discussion with Dr. Karen Herbst, a leading expert on lipedema and other adipose connective tissue diseases. Dr. Herbst shares her extensive knowledge on the complexities of lipedema, Dercum's disease, and their connection to connective tissue disorders, inflammation, and hormonal factors. Learn about the latest research, diagnostic challenges, and effective treatments, including diet, supplements, and surgery. Don't miss the valuable insights and practical advice shared in this episode.
Takeaways:
Lipedema Misdiagnosis: Lipedema is often misdiagnosed as regular obesity or confused with lymphedema, highlighting the need for better awareness and diagnostic criteria.
Connection to Hormones: Hormonal changes, such as those during puberty, pregnancy, and menopause, can trigger or worsen lipedema due to increased fat and hormonal fluctuations.
Inflammation and Fibrosis: Inflammation in lipedema leads to fibrosis, making the tissue nodular and tender, and potentially contributing to the chronic pain experienced by patients.
Diet and Supplements: Anti-inflammatory diets, intermittent fasting, and certain supplements like berberine and CoQ10 can help manage lipedema symptoms by reducing inflammation and supporting metabolic health.
Surgical and Non-Surgical Treatments: While liposuction can significantly improve symptoms, non-surgical treatments such as compression therapy, manual lymphatic drainage, and whole-body vibration are also beneficial in managing lipedema.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority! 🧬🔬🦓
Learn about Dr. Karen Herbst:
Instagram: @advancedlipedematreatment
Tik Tok: @alt.program
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
LinkedIn: linkedin.com/in/hypermobilitymd
Facebook: facebook.com/BendyBodiesPodcast
Blog: hypermobilitymd.com/blog
Part of the Human Content Podcast Network
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In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, autoimmunity, and the role of inflammation. Discover holistic approaches to managing these conditions and gain valuable insights into the latest research and treatments. Don't miss the special hypermobility hacks at the end!
Takeaways:
Interplay Between Immune System and EDS: The immune system plays a significant role in hypermobility disorders, with conditions like mast cell activation syndrome and autoimmunity frequently seen in patients with EDS.
Differences in Allergy and Mast Cell Activation: Allergy involves the immune system's memory of proteins, whereas mast cell activation syndrome can be triggered by various factors, often without the presence of traditional allergies.
Inflammation's Role in Chronic Conditions: Chronic inflammation is a core issue in many modern diseases, including EDS and autoimmune disorders. It's the body's prolonged response to injury or infection that can lead to various health issues.
Impact of Hormones: Hormones, particularly estrogen and progesterone, significantly influence immune system functioning and can affect conditions like POTS, often seen in EDS patients.
Holistic and Lifestyle Approaches: Managing EDS and related conditions can benefit from holistic approaches, including anti-inflammatory diets, regular movement, adequate sleep, and stress management techniques such as meditation and journaling.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority! 🧬🔬🦓
Learn about Kara Wada:
Website: https://www.drkarawada.com/
Instagram: @immuneconfidentmd
Youtube: @drkarawada
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
LinkedIn: linkedin.com/in/hypermobilitymd
Facebook: facebook.com/BendyBodiesPodcast
Blog: hypermobilitymd.com/blog
Part of the Human Content Podcast Network
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In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic criteria. Tune in to learn about the challenges, successes, and future directions in EDS research and patient care.
Takeaways:
Global Progress: The Ehlers-Danlos Society has significantly advanced global awareness and research on EDS and HSD.
Diagnosis Challenges: Misdiagnosis and lack of understanding among doctors persist; re-education efforts are ongoing.
Bloom's Journey: Lara Bloom's path from volunteer to CEO highlights the impact of lived experience in advocacy.
Diagnostic Criteria Update: The 2017 criteria for hypermobile EDS will be revisited by 2026, involving extensive research and collaboration.
Movement and Self-Care: Regular physical activity is crucial for managing EDS and HSD symptoms, as emphasized by both Bloom and Bluestein.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority! 🧬🔬🦓
Learn about Lara Bloom:
Website: https://www.larabloom.com/
Twitter: @larabloom
Instagram: @lara.bloom
Youtube: @LaraBloom
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
LinkedIn: linkedin.com/in/hypermobilitymd
Facebook: facebook.com/BendyBodiesPodcast
Blog: hypermobilitymd.com/blog
Part of the Human Content Podcast Network
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Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics. Listen in for gratitude-filled shoutouts from our wonderful listeners as I read their heartwarming reviews! See you soon for Season 5!
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority! 🧬🔬🦓
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In this conversation, Dr. Linda Bluestein interviews Ashok Gupta about his experience breaking the vicious cycle of chronic illness when he had ME-CFS. They discuss the impact of chronic conditions, the brain's priority of survival, and the vicious cycle of symptoms. Ashok explains the Gupta Program, which aims to make patients aware of subtle danger signals in the brain and retrain the brain's response. They also explore the concept of neuroimmune conditioned syndromes and address common myths about brain retraining. With a focus on hypermobility, they discuss the time commitment required to see results, different ways to engage with the program, the importance of somatic retraining and its impact on brain structures, and how clinicians can recommend brain retraining to their patients without sounding like gaslighting. They also explore the duration of the program, potential worsening during the program, and the accessibility and cost of the program. The conversation ends with a discussion on the power of neuroplasticity and a hypermobility hack to make friends with your body.
Takeaways
Chronic conditions often accompany joint hypermobility and can have a significant impact on individuals and the global economy.
Brain retraining involves making patients aware of subtle danger signals in the brain and retraining the brain's response.
The brain's priority is survival, which can lead to maladaptive responses and chronic illness.
The Gupta program has shown promising results in improving symptoms and overall health in various conditions. Brain retraining requires a time commitment of at least 20 to 30 minutes a day, along with short exercises throughout the day.
An independent audit looked at 16 different conditions for three months. They found improvement of 84% with Long COVID, 116% with Lyme disease, 67% with mold illness, and 85% with chemical sensitivities
Clinicians can recommend brain retraining by emphasizing that it is not in the mind but in the brain, and that the brain is triggering the immune and nervous systems.
The program is a minimum six-month commitment, but some people may continue for longer to maintain their progress and manage stress levels.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority! 🧬🔬🦓
Resources:
Neuroplasticity Intervention, Amygdala and Insula Retraining (AIR), Significantly Improves Overall Health and Functioning Across Various Chronic Conditions
https://pubmed.ncbi.nlm.nih.gov/38404605/
Mindfulness-Based Program Plus Amygdala and Insula Retraining (MAIR) for the Treatment of Women with Fibromyalgia: A Pilot Randomized Controlled Trial
Mindfulness-Based Program Plus Amygdala and Insula Retraining (MAIR) for the Treatment of Women with Fibromyalgia: A Pilot
https://www.guptaprogram.com/
https://www.youtube.com/@GuptaProgram
#MECSF #GuptaProgram #BrainRetraining #ChronicIllness #Hypermobility #ZebraStrong #ZebraWarriors #Neuroplasticity #ChemicalSensitivity #LongCOVID #LymeDisease #MoldIllness #MindBodyConnection #HypermobilityHacks #Podcast #BendyBodiesPodcast #BendyBodies #MedicalPodcast #BendyBuddy #HypermobilityMD
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Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions. Dr. Bluestein discusses the symptom burden experienced by individuals with EDS and the challenges they face in getting their symptoms understood and validated by healthcare professionals. She shares her approach to treatment as well as the top three concerns among EDS patients. Dr. Linda Bluestein and guest host Kate Colbert discuss the importance of effective communication between doctors and patients, and the need for healthcare professionals to understand the patient's perspective. Dr. Bluestein shares her goals for the Bendy Bodies podcast and they end with a hypermobility hack for traveling with EDS.
Takeaways
Healthcare professionals should strive to understand and empathize with the struggles of patients with hypermobility conditions and recognize their heroic efforts in managing their symptoms.
Offering the correct dose of hope is difficult, as it is important to be responsible and not oversimplify the complexities of hypermobility conditions.
Individuals with EDS often experience a high symptom burden, including pain, fatigue, and gastrointestinal symptoms.
Getting symptoms understood and validated by healthcare professionals can be challenging for EDS patients.
Empathy and understanding from both patients and doctors are crucial in managing EDS symptoms.
Treatment approaches for EDS are discussed.
Effective communication between doctors and patients is essential for better care. Patients can learn how to communicate better and doctors can understand how patients think.
The Bendy Bodies podcast aims to improve care for people with symptomatic joint hypermobility, educate healthcare professionals, and support nonprofit organizations.
Patients, caregivers, advocates, and medical professionals can contribute to the EDS community by representing it well, sharing their stories, and spreading awareness about the podcast.
Chapters ➡
00:00 Introduction and Celebration of 100 Episodes
25:52 Understanding and Empathizing with Patients' Struggles
36:40 The Top Three Concerns Among EDS Patients
41:20 The Most Effective Treatment Approaches for EDS
44:23 The Role of Mast Cell Activation Syndrome (MCAS)
52:12 How an EDS Doctor can Facilitate a Patient's Healthcare Team
01:03:16 The Future and Goals of the Bendy Bodies Podcast: Improving Care and Spreading Awareness
1:05:21 Improving Quality of Care for Everyone
01:14:05 Hypermobility Hack: Packing Heavy and Lightening the Burden on Your Body
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority! 🧬🔬🦓
Resources:
https://journals.lww.com/topicsinpainmanagement/citation/2023/04000/hope_for_hypermobility__part_2_an_integrative.1.aspx
https://www.sciencedirect.com/science/article/abs/pii/S0161589014000546
https://www.edsguardians.org/
#MedicalPodcast #PatientAdvocacy #EDSAwarenessMonth #EDSAwareness #DoctorPatientCommunication #HSD #MCAS #ChronicIllness #EmpathyInMedicine #HealthcareInsights #Hypermobility #ZebraStrong #ZebraWarriors #hEDS #HypermobileEhlersDanlosSyndrome #Podcast #BendyBodiesPodcast #BendyBodies #BendyBuddy #HypermobilityMD #100thEpisode
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Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) and EDS (Ehlers-Danlos Syndrome). #dysautonomia #ChronicIllness #POTSAwareness
Takeaways
Getting a POTS diagnosis can be challenging, and it often takes multiple visits to different doctors before receiving a proper diagnosis.
Awareness about POTS among doctors has improved over the years, but there is still a need for more education and understanding.
Finding supportive coworkers and a job that accommodates your symptoms is crucial for managing a chronic illness in the workplace.
Open and honest communication is key when asking for accommodations, and providing informed reasoning behind the request can help employers understand the need.
Remote work has opened up opportunities for individuals with chronic illnesses, allowing them to work in a way that suits their symptoms and abilities.
Managing the unpredictability of POTS requires self-compassion and finding strategies that work for you, even if it may not always feel graceful. Know your limits and make decisions based on your boundaries to remain reliable in work and personal life.
Accepting a lifelong condition can be challenging, but it allows for a more realistic approach to treatment.
Genetic research and advancements in technology provide hope for future awareness, treatment, and potentially a cure.
It's important to be honest and transparent about the realities of chronic illnesses to better prepare patients for their journey. Technology played a crucial role in Summer's car accident, with her Apple Watch automatically calling 911 and alerting her emergency contacts.
The support and care from family, friends, and coworkers were instrumental in helping Summer through the aftermath of the accident.
Summer's experience highlights the importance of valuing oneself and advocating for accommodations in the workplace and she shares her favorite hypermobility hack.
Chapters ➡
00:00 Introduction and Background
08:01 Supportive Coworkers and Accommodations
16:01 Benefits of Remote Work
32:09 The Impact of Ehlers-Danlos Syndrome on Treatment Approach
42:25 Hope for the Future: Advances in Awareness, Treatment, and Cure
49:39 The Role of Technology in a Car Accident
56:11 The Support System: Family, Friends, and Coworkers
01:06:31 Valuing Oneself and Advocating in the Workplace
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority! 🧬🔬🦓
Resources:
Learn more about Summer Dashe
https://www.summerdashe.com/
#SummerDashe #dysautonomia #ChronicIllness #POTsie #POTSAwareness #ZebraWarriors #ZebraStrong #POTS #EhlersDanlos #Podcast
#BendyBodiesPodcast #BendyBuddy #HypermobilityMD
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Summary
Dr. Tania Dempsey discusses mast cell activation syndrome (MCAS) with a focus on environmental triggers of mast cell disease.
Takeaways
Infections can trigger mast cell reactions and people with MCAS may react differently than those without.
Identifying and addressing environmental triggers, such as mold and plastics, is important in managing MCAS.
Immunotherapy for allergies and asthma may impact MCAS symptoms.
Treatment options like Xolair (Omalizumab), ketotifen, cromolyn, and low dose naltrexone (LDN) are discussed.
Nutrition, particularly protein intake, supports overall health and affects MCAS symptoms.
Fish can be a good source of protein, but it is important to be aware of mercury levels and choose smaller fish.
Testing mercury levels can help identify potential toxicity and guide treatment.
Antihistamines can be beneficial for managing MCAS symptoms and should not be feared.
Individuals with MCAS may have sensitivities to scents, environmental triggers, and EMFs.
Finding healthcare providers who understand and can effectively treat MCAS is crucial.
Chapters ➡
00:00 Introduction to MCAS and Dr. Tanya Dempsey
02:28 Infections and MCAS
14:31 Immune Deficiency and Infections
28:37 Environmental Triggers
37:00 Air Purification and Food Quality
42:01 Quality of Meat vs. Pesticide-Free Vegetables
43:11 Fish as an Alternative to Meat
44:32 Toxins in Fish and Mercury Levels
46:02 Detoxing Mercury and Sushi Concerns
47:08 Reactions to Sushi and Scombroid Food Poisoning
48:43 Sensitivity to Scents and Environmental Triggers
49:30 Long-Term Antihistamine Use and Dementia
52:21 Reactions to Laundry and Facial Products
56:23 Treatment Options after Failing Xolair
57:12 Food Dyes and MCAS
58:18 EMFs and MCAS
59:22 Why Some Doctors Fail to Believe in MCAS
01:03:41 Immunotherapy for Allergies and MCAS
01:04:56 Managing Heat, Sun, and Exercise Triggers
01:09:54 Diagnosing MCAS and Lab Testing Challenges
01:11:20 Final Thoughts and Finding Answers
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority! 🧬🔬🦓
Resources:
Learn about Dr. Tania Dempsey, MD:
Website: https://www.drtaniadempsey.com/
Twitter Link: https://twitter.com/drtaniadempsey
Instagram Link: https://www.instagram.com/drtaniadempseymd/
Facebook Link: https://www.facebook.com/taniadempseymd/
Linkedin Link: https://www.linkedin.com/in/tania-dempsey-m-d-82834a44
Mast Cell Matters Podcast
https://podcasts.apple.com/us/podcast/mast-cell-matters-deep-dives-on-mcas-with-tania/id1717106678
Article: Learned Cautions Regarding Antibody Testing in MCAS
https://pubmed.ncbi.nlm.nih.gov/37566881/
Article: Diagnosis of mast cell activation syndrome: a global "consensus-2
https://pubmed.ncbi.nlm.nih.gov/32324159/
Article: Molecular Mechanisms of Scombroid Food Poisoning
https://pubmed.ncbi.nlm.nih.gov/36614252/
Supportive Oligonucleotide Therapy (SOT) as a Potential Treatment for Viral Infections and Lyme Disease: Preliminary Results
https://pubmed.ncbi.nlm.nih.gov/36412742/
Efficacy of Double-Dose Dapsone Combination Therapy in the Treatment of Chronic Lyme Disease/Post-Treatment Lyme Disease Syndrome (PTLDS) and Associated Co-infections: A Report of Three Cases and Retrospective Chart Review
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7690415/
#MCAS #MastCell #MastCellActivationSyndrome #MastCellActivationDisorder #MastCellDisease
#EDSAwarenessMonth #HSDAwarenessMonth
#Podcast #BendyBodiesPodcast #BendyBuddy #BendyBodies #HypermobilityMD
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In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs of
Ehlers-Danlos Syndromes.
Dr. Bluestein emphasizes the importance of EDS awareness, as many people are still not getting the evaluations and care they need. She also debunks several myths about EDS, including the misconception that EDS does not cause pain and that only geneticists can diagnose it. She emphasizes the importance of early intervention and appropriate treatment for better patient outcomes.
They cover the importance of understanding Mast Cell Activation Syndrome (MCAS), the challenges faced by individuals with EDS in their relationships, and how to communicate with romantic partners and family members.
Colbert and Dr. Bluestein also discuss the impact of EDS in the workplace and provide tips for employers and coworkers to support individuals with EDS. The conversation emphasizes the need for awareness, empathy, and support for individuals with EDS and other poorly recognized conditions.
Takeaways
EDS Awareness Month is an opportunity to educate and spread awareness about Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), and associated conditions.
Healthcare professionals should listen to their patients and believe them, even if a clear diagnosis is not yet established.
Teachers, daycare providers, and nannies can play a crucial role in identifying hypermobility conditions in children.
Coaches and athletic instructors should be aware of the signs of EDS in athletes and dancers and provide resources for further evaluation and support.
Several myths about EDS, such as the misconception that EDS does not cause pain and that only geneticists can diagnose it, should be debunked.
Early intervention and appropriate treatment are crucial for better patient outcomes.
Mast Cell Activation Syndrome (MCAS) is an important condition to consider in individuals with environmental sensitivities, even if their tryptase levels are not elevated.
Understanding and empathy are crucial in relationships where a partner has EDS or HSD, as the condition can cause dynamic disability and varying needs.
Communication is key in relationships, and using mirroring techniques and talking boundaries can help improve understanding and compassion.
Employers and coworkers should show support and offer accommodations to individuals with EDS, such as checking in with them, providing grace, and making the workplace more accessible.
Increasing awareness about EDS and related conditions is essential to foster empathy, support, and better partnerships in healthcare, workplaces, and society.
Chapters ➡
00:00 Introduction and EDS Awareness Month
09:30 Identifying Hypermobility Conditions in Children
31:06 Early Intervention and Appropriate Treatment
42:04 Supporting Individuals with EDS in the Workplace
54:59 The Importance of Awareness and Empathy for EDS and Related Conditions
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority! 🧬🔬🦓
Resources:
https://www.ehlers-danlos.com/
https://iadms.org/
https://www.edsguardians.org/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10328215/
https://pubmed.ncbi.nlm.nih.gov/34524722/
#EDSAwarenessMonth #EDSAwareness #EhlersDanlosMyths #HSD #MCAS
#Hypermobility #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD
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In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms. Dr. Pierotti emphasizes the importance of shifting the mindset from seeing an injury as a disaster to viewing it as a challenge that can be overcome. She also highlights the role of social support in the recovery process and the need for dancers to define success in ways that are within their control. Additionally, Dr. Pierotti addresses the challenges dancers face when transitioning between different forms of dance or when they have to give up dancing altogether. When transitioning out of dance, it is important to consider your values and what truly matters to you in life. This will help guide your future goals and decisions. It is also helpful to reflect on who you admire and what you admire about them, as this can highlight your own values. Grief and loss are common when leaving a dance career, and it is important to acknowledge and process these emotions. The dance world can be more supportive by adopting a positive coaching approach and focusing on the whole athlete, not just their performance. Developing mental skills and self-awareness is crucial for dancers and can be beneficial for everyone.
Chapters ➡
00:00 Introduction
00:54 Introducing Dr. Chelsea Pierotti
01:13 Coping with Injuries
03:38 Coping Mechanisms
06:34 The Influence of Childhood Experiences
08:29 Developing Resilience
09:48 Transitioning from Dance
12:11 The Role of Pain
13:09 Challenges Faced by Hypermobile Dancers
13:23 Supporting Dancers through Challenges
17:49 The Importance of Social Support
18:43 Grief and Loss of a Dance Career
20:34 Developing Resilience and Coping Strategies
24:57 The Importance of Values
27:52 Shifting the Dance Culture
29:25 Coping with Career Shifts
33:22 Positive Coaching Approach
35:55 Developing Mental Skills
36:51 Applying Mental Skills to Life
37:24 The Importance of Self-Awareness in Dance
38:25 Mindset: Controlling the Controllables
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority! 🧬🔬🦓
Learn about Dr. Pierotti:
https://chelseapierotti.com
https://instagram.com/dr.chelsea.pierotti
#Dancers #Dance #Injuries #Transitions #Grief #MentalSkills
#Hypermobility #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD
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Dr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients. Dr. Tick also highlights the significance of nutrition in reducing chronic pain and inflammation. Additionally, she explores various modalities, such as acupuncture and manual therapies, as effective strategies for pain relief. Dr. Heather Tick discusses the impact of habits on movement and the importance of developing healthy movement practices. She also explores various modalities for pain relief, including heat, cold, Epsom salt baths, and movement therapies like yoga and Tai Chi. Dr. Tick emphasizes the role of mast cells in the stress response and the importance of managing diet to reduce mast cell activation. She discusses the effectiveness of laser therapy, ozone injections, and shockwave therapy for pain management. Dr. Tick also addresses the overprescription of medications and the potential benefits of supplements. She provides insights into the appropriate use of interventional pain management and the risks associated with steroid injections. Finally, she discusses the challenges of determining the expertise of medical professionals and the need for caution when considering regenerative medicine.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority! 🧬🔬🦓
Resources:
Learn more about Dr. Tick
https://heathertickmd.com/
https://www.facebook.com/heathertickmd/
Heather Tick - YouTube
Buy Dr. Tick’s book
https://tinyurl.com/3na9zchp
Fibromyalgia and other pain conditions
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3236313/
Evidence-Based Nonpharmacologic Strategies for Comprehensive Pain Care: The Consortium Pain Task Force White Paper (Dr Tick is the first author)
https://www.sciencedirect.com/science/article/pii/S1550830718300223
Medical errors
https://pubmed.ncbi.nlm.nih.gov/28186008/
https://nap.nationalacademies.org/resource/9728/To-Err-is-Human-1999--report-brief.pdf
https://psnet.ahrq.gov/issue/incidence-adverse-events-and-negligence-hospitalized-patients-results-harvard-medical
Sham acupuncture
https://www.frontiersin.org/journals/neuroscience/articles/10.3389/fnins.2022.834112/full
Acupuncture in the emergency department
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8896475/
Risk of stroke after chiropractic manipulation
https://www.jmptonline.org/article/S0161-4754(14)00267-X/fulltext
WUSTL program developed by Shirley Sahrmann, PT, PhD
https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/
Mast cells: Versatile gatekeepers of pain
https://www.sciencedirect.com/science/article/abs/pii/S0161589014000546
Carla Stecco, MD
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In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints. She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program. She emphasizes the importance of proper alignment and biomechanics in everyday activities and explains why traditional physical therapy approaches may not be effective for hypermobile patients. Susan also discusses the role of bracing and supports in providing stability and controlling motion. She explains the benefits of using different types of braces for the feet, ankles, pelvis, and neck, and emphasizes the need for proper sizing and education for both patients and physical therapists. Susan also shares her experience with durable medical equipment (DME) and provides recommendations for clinicians interested in offering bracing services. She concludes by highlighting the resources available for further education and support in the field of hypermobility. Watching this episode on YouTube is recommended since there are some graphics used.
Takeaways
Proper alignment and biomechanics are crucial for protecting joints and managing symptoms in hypermobile individuals.
Traditional physical therapy approaches may not be effective for hypermobile patients and can even worsen symptoms.
The Finding Functional Foundations approach focuses on teaching patients proper alignment and functional movement patterns.
Bracing and supports can provide stability and control motion in hypermobile joints. Proper support and bracing can help manage symptoms and improve function in patients with hypermobility.
Different types of braces are available for the feet, ankles, pelvis, and neck, and proper sizing is crucial for optimal support.
Education and guidance are essential for both patients and physical therapists to ensure the correct use of braces and maximize their benefits.
Clinicians interested in offering bracing services should consider the specific needs of their patients, stock commonly used sizes, and collaborate with DME suppliers.
Chapters ➡
00:00 Introduction
01:22 Background and Interest in Hypermobility
11:56 Neurological Interest and Stroke Recovery
16:23 Traditional Physical Therapy Approaches
25:24 Importance of Bracing and Supports
39:18 Feet and Ankle Support
40:28 Pelvis Support
43:32 Neck Braces
51:46 Dispensing DME and Bracing
56:56 Carrying Products in the Clinic
01:02:59 Final Thoughts and Resources
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority! 🧬🔬🦓
Resources:
Chalela Physical Therapy Institute for EDS and CCI/Cervical Instability
Bendy Bodies's Amazon Page
Eclipse Cervical Collar - Thuasne USA
https://www.ehlers-danlos.com/echo/
Patricia Stott, PT, DPT, ATC, CHT, CYT | MedBridge
https://www.tamingthezebra.org/
Hypermobility/Ehlers-Danlos Syndrome Educational Handouts
#ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast
#BendyBodiesPodcast #BendyBuddy #HypermobilityMD #Bauerfeind
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This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin. The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers the impact of connective tissue disorders on various body systems and provides practical tips for modifying physical therapy approaches. The book emphasizes the importance of addressing primary issues and understanding the complexity of each individual's presentation. The chapters cover topics such as modifying movement for gentle exercise, addressing deconditioning and weakness, building confidence and safe strengthening programs, finding physical therapists open to working with EDS patients, expanding the toolkit for physical therapy, and more.
Takeaways
The book 'Taming the Zebra' fills a void in understanding and provides physical therapists with the knowledge to effectively work with patients with HSD and EDS.
The book emphasizes the importance of addressing primary issues and understanding the individualized nature of each patient's presentation.
A collaborative approach between therapists and patients is essential in managing overlapping problems and setbacks. Modifying movement can allow individuals with HSD and EDS to engage in gentle exercise and maintain movement despite physical limitations.
Deconditioning and weakness are common issues for individuals with HSD and EDS, and addressing these problems requires a comprehensive approach that considers the underlying causes and individual goals.
Physical therapists should approach treatment with intention, focusing on building confidence and creating safe strengthening programs tailored to the individual's needs.
Expanding the toolkit of physical therapy techniques, such as neural rehabilitation and manual therapies, can improve outcomes for individuals with HSD and EDS.
Chapters ➡
00:00 Introduction and Background
01:58 Motivation for Writing the Book
03:28 Challenges in Managing EDS and HSD
06:08 Different Types of Hypermobility and Connective Tissue Disorders
07:35 Approaching Physical Therapy for EDS and HSD
09:21 Primary Treatment Approach and Identifying Key Issues
21:04 Approaching Physical Therapy with Overlapping Problems
22:48 Non-Linear Path of Physical Therapy
31:01 Modifying Movement for Gentle Exercise
31:21 Addressing Deconditioning and Weakness
35:13 Neural Rehabilitation and Muscle Firing
36:09 Steps to Successful Strengthening
40:18 Expanding the Toolkit for Physical Therapy
43:13 Approaching Stabilization and Alignment
56:32 Hypermobility Hacks
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority! 🧬🔬🦓
Resources:
Virtual book event sign up
https://www.tamingthezebra.org
http://www.elevationwellness.co/
www.goodhealthphysicaltherapy.com/clinic-staff/
www.medbridge.com/heather-purdin-physical-therapy
https://www.olagrimsby.com/courses-page/
https://www.naiomt.com
https://feldenkrais.com
https://counterstrain.com
https://frequencyspecific.com
https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/where-in-the-world-is-shirley-sahrmann/
#ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast #TamingTheZebra
#BendyBodiesPodcast #BendyBuddy #HypermobilityMD
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