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Becky Handley overheard her 12 year old daughter talk about having double vision to her ballet teacher in September of 2020 after complaining of headaches in the preceding days. The next day which was September 20th, Ava was diagnosed with DIPG. Ava did experience a six month honeymoon period from January of 2021 through July of 2021 but eventually her condition deteriorated and she passed away from this terrible form of Pediatric Brian cancer on June 15th of 2022.
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Mylaina Schippers beloved older brother Sal lived for over 6 years after his diagnosis of Leukemia in the early days of 2016 when Sal was 15 years old. Mylaina will talk about Sal's journey in which he had to go through 2 relapses but also had some good moments and accomplishments when he was feeling and doing well. Sal passed away from the Pediatric Blood cancer in April of 2022, one month after his 21st birthday.
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On October 24th of 2011 Reilly Cardella's best friend Kassie passed away from Leukemia when they were both 13 years old. Reilly will discuss the relationship that they had and the inspiration that Reilly developed to become a very strong voice in the cause of Pediatric Cancer. When Reilly was 20 years old she started her non-profit Love For Lady Bug which was named after Kassie, then became a Board Member and Vice President of the Glimmer of Hope Foundation , and in 2023 was voted Miss Apopka, which is a city of 55,000 located near Orlando Florida, and recognized her for all of the advocacy work that Reilly has been involved with. Her advocacy work for the Pediatric Cancer community will undoubtedly continue for many years to come.
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Makenna Thomas had a back that was painful, a right arm that turned numb, and fingers that she could not move, when she was diagnosed with Meningioma of the Spine in early 2018 at the age of 14. Makenna will talk about her battle both physically and even more so emotionally during that period and even beyond, and will also talk about her very successful recovery and life in which she is a senior at UCLA, is the President of the American Cancer Society on campus, oversees the Relay For Life Team at UCLA which is the leading fundraising college in the country for that event, and is studying neuroscience.
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Amiee Mittleman was told about a group of parents that had children who had been diagnosed with Neuroblastoma in 2023. This group had formed an organization called Band of Parents. After doing her research Amiee joined the group and was fortunate enough to connect with a doctor that had discovered an antibody for Neuroblastoma patients. Amiee's then 2 1/2 year old son Julian had been diagnosed with Stage 4 High Risk Neuroblastoma in December of 2022 and during his treatment in 2023, this antibody was given to Julian. In July of 2023, Julian had No Evidence of disease, and now, 14 months later, that designation still stands. Amiee now serves on Band of Parents Board of Directors.
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Melissa Nowicki's 3 year old son Brock was diagnosed with a Pediatric Brain cancer known as CIC-DUX4 Fusion Sarcoma in April of 2023. Both his surgery to remove his tumor and his follow up scans were perfect as 100 percent of his tumor was removed and there was no spreading of his disease. Brock is now 4 years old, was honored by the New England Revolution Professional Soccer team at Cancer Awareness Night on September 28th, and is doing well health wise.
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When Jamie Moore's 6 year old son Mason was experiencing headaches, having vomiting episodes, and having little energy, she and her husband were frustrated at first by the response they were receiving from doctors who did not recognize that what was happening to Mason was a "head issue". Mason was finally diagnosed with Anaplastic Large Cell Medulloblastoma on February 20th of 2023, had much of his treatment at St. Jude Childrens Research Hospital in Memphis, but for the most part the difficult treatment that he underwent did not help and he passed away on November 6th of 2023, just 10 months after his diagnosis.
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Jamie Buckner's beloved nephew Kyler passed away on March 2nd of 2021 after enduring a 16 month battle with the Pediatric Brian Cancer DIPG. Jamie is a filmmaker and he is currently working on a Documentary film which highlights Kyler's brain cancer fight. Jamie hopes to have this film completed in early 2025 and his initial marketing plans include having it shown at well known film festivals, and eventually having it shown at the White House to help raise awareness for this most dreaded form of Pediatric Brain Cancer
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After 2 year old Max Gagnon was diagnosed with B Cell Acute Lymphoblastic Leukemia in 2014 and went into remission , the hope and expectation for his dad Michael and mother Amber was that the worst was behind them. Max however, relapsed in 2022 and just completed his treatment in August of this year. Michael will talk about the past 10 years which hopefully will now lead to a path of good health for Max.
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Megan Nelson's mom felt an odd lump as she was hugging her 2 year old granddaughter Ella before returning home after Megan had given birth to her son Francis in 2020. Upon hearing this, Megan took Ella to her pediatrician and shortly thereafter she was diagnosed with the Kidney Cancer Wilms Tumor before this diagnosis was changed 3 days later to Stage 4 High Risk Neuroblastoma. Megan and her family were living in Virginia at the time but moved to Los Angeles so Ella could get her treatment at the Children's Hospital of Los Angeles. Now 4 years later, Ella is doing well and is living her best life possible.
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After noticeably limping during a soccer game in 2019, Maggie Spada's daughter Lucy was diagnosed with Ewings Sarcoma at the age of 9. After going through a very difficult treatment protocol, Lucy is now 5 years removed from this diagnosis and is doing very well. Maggie will talk about Lucy and will also talk about her Little Warriors Foundation, which she and her husband Piero started when they learned about how little money the Federal Government was contributing to Pediatric Cancer, and also learning about the treatments that Lucy and other Ewings Sarcoma patients have to go through, which has not changed in over 40 years.
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Michelle Zenie's son Cole, now 26 years old , married, and a High School Biology Teacher was diagnosed with Acute Lymphoblastic Leukemia in May of 2001. Michelle was also a teacher but decided after Cole's recovery to get involved as an activist and advocate in the cause of Pediatric Cancer. This led to her becoming the Executive Director of the Pediatric Cancer Foundation of Lehigh Valley in 2014, a position that Michelle has held for the past 10 years. This foundation focuses on whatever it can do to help individual families get through their pediatric cancer struggles during treatment , after treatment, and if there is an unfortunate bereavement situation
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Madison Cotton went to her Primary Care Physician because of troubling cysts in her breast in 2017 and the fact that her mother had already been through breast cancer. Madison was basically dismissed by her doctor and eventually in 2022 was diagnosed with Breast cancer. Since that time she has struggled both physically and emotionally with a variety of difficult issues that she has gone through as an AYA cancer patient, and has only begun to feel better and have a more meaningful existence during this summer season.
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When 10 year old Aaron Gaberman was diagnosed with a form of Pediatric Brain Cancer in May of 2005, his older brother Jon was right by his side from that day until this present day, doing whatever he could then and can now to be by his brothers side as a devoted sibling. The brothers will talk about the difficult experiences that they have had through the years , and the bond that they have established which is an unbreakable one.
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When Lauren Bujnicki's 2 year old daughter Madison had some symptoms that needed to be checked out, the thought was that she might have a Urinary Tract Infection. Everything seemed okay except for a urinalysis that was off, but just a few days later Madison developed a low grade fever, was irritable, and vomited.
Madison's diagnosis turned out to be the Kidney Cancer Stage 4 Wilms Tumor. This diagnosis was given in February of 2022 and for the next 8 months, Madison went through an arduous treatment protocol. By October of 2022, Madison did not have any Evidence of Disease and , now 2 years later as a 4 year old, Madison is doing as well as possible. -
Teri Gaberman's son Aaron was diagnosed with a rare form of Pediatric Brain Cancer when he was 10 years old in 2005. The next year Aaron contacted former New York Yankee great Bobby Murcer who had been diagnosed with a Glioma type of Brain Cancer at the end of 2006 and that started an incredible friendship which lasted until Bobby passed away on July 8th of 2008. Teri will talk about her son's amazing life and her Berni and Mercer non- profit which has helped and is helping so many in the Pediatric Cancer community.
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When Jessica Robertson's 7 year old son Kai developed severe leg pain on February 10th of 2024, Jessica and her husband thought that it might be a case of growing pains, as he had been totally healthy up until that point. Unfortunately after testing at Cook's Children's Hospital in Fort Worth, Texas, the shocking diagnosis 2 days later that was given to Kai and his family was B Cell Acute Lymphoblastic Leukemia. It has now been nearly 7 months since this diagnosis and Kai is doing well in his maintenance treatment program.
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Sadie Eirich's left eye seemed out of position in the early fall of 2022 and eventually led to her diagnosis in October of that year of the Pediatric Brain Cancer Medulloblastoma, which was located in the pineal region of her brain. Sadie was 14 years old at the time and her treatment initially took her to a children's hospital in Jefferson Louisiana where she had 5 surgeries, followed by 9 months of treatment at St. Jude Children's Research Hospital from December of 2022 through September of 2023. Sadie was found to have No Evidence of Disease in September of 2023 and that situation continues to be the case nearly a year later.
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After being diagnosed with Pre B Cell Acute Lymphoblastic Leukemia in September of 2005, Alisha Wagoner was able to completely recover from her battle with this form of Pediatric Blood Cancer and now, nearly 19 years later, she has put together quite a resume. This resume includes an outstanding college softball career, prestigious awards from both her athletic and humanitarian accomplishments, and the hope that her professional career will take her to becoming a personal trainer and owning her own gym.
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Kelley Bernard was diagnosed with Acute Lymphoblastic Leukemia when she was 14 years old and has now been cancer free for the past 16 years. Because of the treatment that she received from the nurses at Boston Children's Hospital , Kelley decided that she wanted to become a Pediatric Oncology Nurse which became her career path after graduating from St.Anselm's College with a Nursing Degree. Kelley has also participated 3 times in both the Boston Marathon Jimmy Fund Walk and the Pan Mass Challenge and is currently training for her upcoming boxing match hosted by the Non-Profit Haymakers For Hope.
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