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Disability is a topic often surrounded by stigma and misconceptions, particularly within Kenyan communities, where the burden can become a significant financial strain on families. In Kenya, parents of children with disabilities face not only a lack of acceptance and support but also the heavy weight of stigma, which exacerbates their struggles.
In this episode of Parenting Impossible, Annette Hines and Thitu Muiruri, an accomplished filmmaker, sheds light on the pervasive stigma surrounding disabilities in African communities. Muiruri's documentary work delves into the struggles faced by parents of children with disabilities, revealing the harsh realities of societal judgment, lack of support, and financial hardships. Through her documentaries and short films, she seeks to spark critical discussions and educate the public about the challenges individuals with disabilities face. It's through these conversations that people can truly understand different perspectives, learn from one another, and work towards positive change.
In this episode, you will hear:
What challenges parents of children with disabilities in Kenya face.
How societal attitudes add to the struggles of individuals with disabilities and their families.
What role informal support networks among mothers play in the disabilities community.
What efforts are needed to provide resources and support to mothers of children with disabilities.
How to advocate for better accessibility in buildings and roads for individuals with disabilities and their families.
Resources from this Episode:
Website: https://thitu.art
Facebook: @thituproductions
Instagram:@thitu___
LinkedIn: @salthitumuiruri
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Parenting is a tough job and when you have a child with special needs, the challenges can be even more complex. From advocating for your child in school to finding the right therapy options, there are so many aspects of parenting a child with special needs that require extra care and attention. Amidst these pressures, marriages can face significant strain.
In this episode of Parenting Impossible, Annette Hines, Todd Evans PhD, MA, and Kristin Evans MA, MS, LMSW explore the challenges of raising a child with special needs. Todd and Kristin, authors of “How to Build a Thriving Marriage as You Care for Children with Disabilities,” share insights on balancing their dreams, their child's needs, and their marriage. They highlight the importance of parents prioritizing mental health and self-care to better support their children. Clear communication, emotional connection, and time management remain essential for effective care. Parents of children with special needs are encouraged to take time for themselves—self-care is crucial for caring for others.
In this episode, you will hear:
Why effective communication is important for parents of children with special needs
How parents of children with special needs can prioritize their own well-being
Healthy ways to recognize the address challenges in caregiving marriages
Why it is crucial to have a supportive partner during challenging times
How parents can effectively advocate for their child with special needs in school and medical settings
Resources from this Episode:
Website: https://disabilityparenting.com/
Read: How to Build a Thriving Marriage as You Care for Children with Disabilities
Facebook: Kristin.Evans.5895
Twitter: @AuthorKristinEv
Instagram: @disabilityparenting
LinkedIn: @Kristin-Evans
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Eksik bölüm mü var?
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Transition planning from school to adult life is a crucial aspect of ensuring individuals with additional needs have the support and resources they need to lead fulfilling lives. With the introduction of the new transition planning IEP form, understanding its purpose and how it benefits those in the transition process is essential.
In this episode of Parenting Impossible, Annette Hines and Graham Caldow dive deep into transition planning for young people with disabilities as they prepare for adulthood. Graham, drawing from his personal experiences and his book “What’s Possible? Plan A Better Future for Your Young Adult with Additional Needs,” discusses the importance of a structured yet personalized approach to goal-setting. He emphasizes the importance of involving young people in their own planning, using his “Red Giraffe” tool as both a symbol and a practical example of how transition planning can be tailored to fit each individual's unique needs. Transition planning focuses on setting goals and creating a roadmap to help individuals transition smoothly from school to post-school life, ensuring they have the skills and support needed to find purpose and achieve their goals.
In this episode, you will hear:
How the Red Giraffe planning tool can help individuals with disabilities
Why regularly assessing and adjusting transition plans matters
Finding top programs for smoothly transitioning students into employment
Strategies to make sure schools follow through on transition planning
Why finding purpose in daily life is crucial for individuals with disabilities
Resources from this Episode:
Website: www.redgiraffesolutions.com
Read What’s Possible? Plan A Better Future for Your Young Adult with Additional Needs
Listen to The Expanding Worlds Podcast
Facebook: @redgiraffesolutions
Instagram & LinkedIn: @grahamcaldow
Pinterest: @Red_Giraffe_Solutions
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Being a caregiver is a demanding role that requires immense strength, patience, and compassion. Caregivers often face challenges that can be physically, emotionally, and mentally draining. However, being resilient is crucial for caregivers to navigate the ups and downs of their caregiving journey.
In this episode, Annette Hines and Michelle Mercier have an in-depth conversation about what it really means to be resilient as a caregiver. Michelle, a business growth consultant, brings a unique perspective to the table, sharing her thoughts on the tough challenges caregivers face every day. She compares resilience to building a muscle, something that takes consistent effort and practice. As a caregiver, resilience is a powerful tool that can help navigate the challenges and uncertainties of caring for a loved one. By prioritizing self-care, seeking support, and practicing resilience, caregivers can better cope with the demands of their role and continue to provide the best care for their loved ones.
In this episode, you will hear:
The importance of resilience for caregivers
How to prioritize time freedom over money freedom
Why work-life integration is essential for personal well-being
How to model self-care habits to benefit children's well-being
What challenges are faced by caregivers of children with medical conditions
Resources from this Episode:
Website: https://www.MichelleAMercier
Facebook: @MichelleAMercier.1
Instagram: @michelle_a_mercier
LinkedIn: @michelle-a-mercier
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Navigating the world of IEPs (Individualized Education Programs) and 504 Plans can be overwhelming for parents and educators alike. Both IEPs and 504 plans provide essential educational support but differ in their goals, services, eligibility, and duration. IEPs offer specialized instruction with specific objectives and progress monitoring from pre-K through high school, while 504 plans ensure access and equity and can extend through college.
In this episode, Annette Hines and April Rehrig, the founder of Rise Educational Advocacy and Consulting, discuss the strengths and weaknesses of IEPs and 504 plans. April emphasizes the importance of positive language in IEP meetings, advocating for strength-based approaches, and involving students and parents in the planning process. By focusing on strengths, setting high expectations, and fostering a collaborative environment, parents and educators can help students reach their full potential. Join us for an episode that will change how you approach IEPs and 504 Plans. Learn how to advocate for your child using strength-based approaches and collaborative planning.
In this episode, you will hear:
The difference between an IEP and a 504 plan
How positive language benefits students in IEP meetings
Tips for transitioning students from IEPs to college
Why it is important to focus on a child's strengths in an IEP
How involving students in the IEP planning process empowers them
Resources from this Episode:
Website: https://www.riseeducationaladvocacy.com/
Facebook, Instagram, & Pinterest: @riseedadvocacy
LinkedIn: @aprilrehrigspecialeducationadvocate
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Are you ready for the new school year?
Back-to-school season can be both exciting and overwhelming for parents, especially those with children who have special needs or medical requirements. From my experience, preparing for a new school year when your child has special needs involves carefully reviewing their IEPs and healthcare plans. It’s really important to go over these and make sure everything’s up to date, and share any progress from summer activities. I’ve learned that building a good relationship with school staff and service providers makes a huge difference. It helps to start those conversations early, have open communication, and be your child’s biggest advocate. While the process can seem daunting, it's important to remember that supportive teams do exist. Finding these "gems" is key to creating a positive and enriching educational experience for your child.
In this episode, you will hear:
The importance of reviewing IEP/ISPs, healthcare plans, and progress notes to prepare children with special needs for the new school year.
How parents can build supportive, collaborative relationships with school staff and service providers.
Why understanding healthcare protocols and emergency procedures for the safety of children with medical needs at school is crucial.
How parents can identify positive, supportive teams in educational and adult support programs.
Engage with us:
Join our community: Circle of Care
Visit: Annette Hines
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Parents naturally want to make sure their child with disabilities is well taken care of, both now and in the future. It's not just about meeting the day-to-day needs but also thinking ahead to their long-term financial security. There's a lot to juggle—from managing medical expenses to planning for their financial future. It can feel pretty overwhelming and complicated.
In this episode, host Annette Hines welcomes financial planning expert, James Lange, to discuss the crucial need for specialized financial planning for parents of children with disabilities. James emphasizes the importance of working with advisors who understand the unique financial needs of these families and securing government benefits like SSI or SSDI to ensure long-term support. The conversation covers essential legal documents such as wills and trusts, and James offers a free copy of his book, “Retire Secure for Parents of a Child with a Disability,” packed with strategies for financial planning. Annette and James delve into the practical and emotional aspects of financial security, reflecting on how proactive planning can provide peace of mind and a brighter future for children with disabilities.
In this episode, you will hear:
The importance of collaborating with specialized financial planners and tax advisors for families with children with disabilities
Key government benefits essential for the financial support of children with disabilities
The necessity of creating appropriate wills, trusts, and powers of attorney tailored for children with disabilities
How proper financial planning can alleviate anxiety for parents raising children with disabilities
Why it is important to involve the child in the financial planning process
Resources from this Episode:
Free digital copy of Retire Secure for Parents of a Child with a Disability
Website: https://DisabledChildPlanning.com
Facebook: @RothRevolution
Twitter/X: @rothguy
LinkedIn:@jameslangecpa
Other Sites:https://PayTaxesLater.com
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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The journey of caregiving is a delicate dance of emotions and responsibilities, especially for parents of disabled children who face societal pressures. Home and community care services provide essential support and respite, allowing families to maintain a safe environment and caregivers to recharge. Self-care, such as meditation or exercise, is critical for caregivers to sustain their well-being and continue their responsibilities.
In this episode, host Annette Hines sits with Kelley Coleman as she shares her journey of parenting a disabled child, revealing how it led her to write "No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports." Kelley expresses the importance of accessing accurate information and insights directly from individuals with disabilities to combat stigma and misconceptions. Her book serves as a practical guide for caregivers, filled with invaluable checklists, personal stories, and strategies for self-care, effective communication, and advocacy. Kelley and Annette bond over their shared love for practical tools, discussing the significance of job training in caregiving and urging caregivers to establish boundaries and prioritize their well-being. They reflect on their own experiences, the emotional toll of caregiving, and the power of a supportive community.
In this episode, you will hear:
Why it is important to seek insights from individuals with disabilities
Addressing the challenges faced by parents of disabled children
How caregivers can prioritize self-care and establish boundaries
Why it is important to advocate for home and community-based care services
What resources are available for caregivers of children with disabilities
Resources from this Episode:
Kelley Coleman: www.kelleycoleman.com
Facebook: @kelley.coleman.56
Instagram: @hellokelleycoleman
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Have you ever wondered how Social Security impacts those who are disabled or retired? I’ve seen firsthand how crucial it is for providing financial stability.
Earlier this month we spoke about Social Security and Work. In this episode of Parenting Impossible, I want to delve deeper into the basics of the critical topic of social security, public benefits, and financial planning for individuals with disabilities. Did you know that ABLE accounts are revolutionary, allowing you to save money without jeopardizing benefits like Medicaid and Supplemental Security Income (SSI)? Proper financial planning is crucial, as one misstep in managing assets can lead to the loss of these vital benefits. For SSI recipients and those on Social Security Disability Insurance (SSDI), understanding the nuances of your programs can make a big difference. Navigating social security benefits and work income can be challenging, but with the right knowledge and understanding, you can make informed decisions that benefit your financial stability.
In this episode, you will hear:
Learn about Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI)
How work income affects SSI benefits
How ABLE accounts can help manage assets without affecting SSI or Medicaid eligibility
Why planning for Medicaid coverage is important
Engage with us:
Join our community: Circle of Care
Visit: Annette Hines
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Imagine navigating a system where your needs are ignored due to your age. This is the reality for many adults with autism facing age discrimination. The fight against this injustice hinges on advocacy, personalization, and accessibility. Advocating for legislative changes ensures equality and fairness.
In this episode, host Annette Hines talks with Christina Gravina CEO & Founder of BILT (Bridging Independent Living Together, Inc.). Annette and Christina address age discrimination in autism services, highlighting the challenges adults face when denied support due to age. Christina advocates for legal changes and emphasizes personalized, goal-oriented services over the one-size-fits-all model. Her organization, BILT, offers one-on-one support, therapeutic mentoring, skill-building, and community integration, with options for private pay and insurance. They’ve also opened a center with small group classes and a high staff-to-client ratio, allowing clients to choose activities they enjoy. Christina stresses starting small, gathering feedback, and overcoming funding challenges to create effective programs for people with disabilities.
In this episode, you will hear:
Why you should advocate for legislative changes to address age discrimination in autism services.
How to provide individualized services tailored to the unique goals and interests of disabled individuals.
What payment options, such as private pay, school district funding, DDS payments, and insurance, can make services more accessible.
Ways to create meaningful programs for individuals with disabilities.
Resources from this Episode:
Website: www.biltne.org
Facebook, Instagram, & LinkedIn: biltinc
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Talking about the challenges of disability can be tough and delicate. For those living with disabilities and their caregivers, every day brings unique hurdles that demand patience, creativity, and resilience. It’s crucial to focus on person-centered planning and get creative to make sure disabled individuals have the support they need to thrive.
In this episode, I get into the real challenges of disability and how crucial informed decision-making and proactive planning are for parents and caregivers. From my own experiences, I think it’s important to recognize our mistakes, stay resilient, and come up with creative solutions ourselves. I also share why having a solid disability or life plan matters, covering things like agency meetings, housing, financial support, and transitioning to adulthood. Effective communication, adaptability, and a supportive community are key to advocating for your loved ones. Let's keep supporting each other, staying resilient, and making informed decisions to ensure a brighter future for our kids and those we care for.
In this episode, you will hear:
Why it is important to create a disability or life plan for loved ones with disabilities.
How being creative can help navigate challenges for parents and caregivers of disabled individuals.
Why it is crucial to recognize mistakes and adjust plans when supporting individuals with disabilities.
What role effective communication plays in advocating for individuals with disabilities.
Why it is important to prioritize person-centered planning for individuals with disabilities.
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Sexuality education is a crucial aspect of personal development, but it often overlooks those with disabilities. These individuals deserve access to information that empowers them to make informed decisions about their bodies and relationships. Empowerment through education can be a shield against abuse and exploitation.
In this episode, Annette Hines dives into a crucial conversation with Katherine McLaughlin, CEO and Lead Trainer at Elevatus Training. They tackle the challenging yet essential topic of discussing sexuality, especially for parents of children with disabilities. Katherine introduces her comprehensive 22-lesson curriculum designed to support these vital conversations, emphasizing the importance of teaching bodily autonomy, consent, and decision-making to prevent abuse and promote healthy relationships. Annette and Katherine explore how inclusive training programs must evolve to reflect the fluidity of modern sexuality, embracing diverse perspectives on gender and sexual orientation. Join us for this engaging and eye-opening discussion that aims to foster a more inclusive and supportive society.
In this episode, you will hear:
Why it is important to teach individuals with disabilities about bodily autonomy and consent
How empowering individuals with disabilities in decision-making processes helps them navigate risk
What topics parents should focus on when discussing challenging issues like sexuality with their children
Why it is crucial for training programs to address the diversity of gender identities and sexual orientations
How integrating sexuality education into communities can lead to healthier relationships and overall well-being
Resources from this Episode:
Website: https://www.elevatustraining.com/
LinkedIn: @katherine-mclaughlin
Facebook: https://www.facebook.com/elevatustraining
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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How do you navigate the stormy waters of divorce when adult children with disabilities are involved? It's a tough situation that needs careful planning and thought to make sure everyone in the family is okay.
In this episode, Annette Hines provides insights into the challenges faced by divorcing parents of adult children with disabilities, emphasizing the need for clear communication and effective guardianship. She advises keeping the adult child out of the divorce process and separating their welfare discussions from other divorce issues. Hines also highlights the importance of estate planning, recommending neutral third-party trustees, and including life insurance policies in divorce agreements for ongoing financial support. Additionally, she explains the legal steps needed to direct child support payments into a trust, protecting public benefits like SSI and Medicaid.
In this episode, you will hear:
Why effective communication is crucial in co-guardianships
How life insurance policies can be utilized in divorce agreements to support dependents
The benefits of involving a neutral third party in managing special needs trust
Why adult children with disabilities should be kept out of the divorce process
How child support payments can be directed into a trust to protect public benefits like SSI and Medicaid
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Preserving family history is like capturing a piece of time in a bottle. It allows us to pass down memories, stories, and experiences to future generations. Whether it's old photographs, letters, or even recipes, archiving family history is a meaningful way to honor our past and ensure that it lives on for years to come.
In this episode, host Annette Hines talks with Angela Todd, a family history buff who’s passionate about preserving memories, inspired by her journey with her daughters, Elizabeth and Caroline, who faced some tough times in the NICU. She’s all about capturing those family moments but is not a fan of modern scrapbooking because it doesn't last. Instead, Angela suggests going digital with photos and carefully organizing the originals so that family stories stay intact and easy to access. Through her teaching program, she helps women document their kids' lives, making sure to include everyday moments and the stories of people often left out, like those with special needs, to build complete and inclusive family archives.
In this episode, you will hear:
The role of archivists in preserving historical documents.
Why it is important to include diverse voices and materials in archives.
The challenges of traditional scrapbooking and how digitization helps in preserving family legacies
Why it is essential to document the stories and experiences of individuals with special needs.
Where family archives can be donated for preservation.
Resources from this Episode:
Angela Todd: https://angelaltodd.com/
Contact: [email protected]
LinkedIn: @angelaleightodd
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Are you missing out on your social security benefits? Social Security updates may not be the most riveting topic, but they’re a lifeline for those who depend on these benefits. Whether you’re already receiving Social Security or planning for the future, keeping up with the latest changes can make navigating the system a whole lot smoother.
In this episode, host Annette Hines delves into the intricacies of the recent updates to Social Security benefits, specifically focusing on In-Kind Support and Maintenance (ISM) and overpayments. She expresses concerns about the impact of ISM on Social Security recipients, particularly those on SSI. Annette argues that including shelter costs in ISM calculations perpetuates poverty among recipients, making it especially difficult for them to secure housing in high-cost areas. She also underscores the importance of addressing the shelter component of ISM to reduce financial strain, and she highlights the need to streamline the overpayment recovery process to mitigate the burden on beneficiaries.
In this episode, you will hear:
How to understand the asset limits for Social Security benefits to ensure eligibility and compliance with regulations
Why it is important to learn about Substantial Gainful Activity (SGA) and its implications for individuals with disabilities receiving benefits.
How to utilize Impairment-Related Work Expenses (IRWE) to reduce income for the trial work period and maintain benefits
What to consider about subsidization from employers to prevent disabled workers from exceeding substantial gainful activity levels.
How to stay informed about recent changes to Social Security benefits and overpayment recovery rates to manage repayment demands.
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Have you ever wondered how to ensure financial security for a disabled loved one after you're gone? Or perhaps you're looking for ways to navigate the complexities of estate planning when it comes to disability benefits. In either case, understanding the ins and outs of Qualified Disability Trusts (QDTs) is a game-changer.
In this episode, host Annette Hines talks with Mark Worthington, Senior Counsel at Special Needs Law Group of Massachusetts, P.C.. Annette and Mark discussed the intricacies of qualified disability trusts and the significant impact of the Secure Act and Secure 2.0 regulations on retirement and estate planning. These regulations have introduced essential adjustments, particularly affecting minimum distribution requirements and allowing charities to be designated as beneficiaries, providing greater flexibility in special needs trusts (SNTs). This is invaluable information that will make all the difference for you and your loved one’s futures.
In this episode, you will hear:
How the Secure Act and Secure 2.0 Regulations impact minimum distribution requirements and charity beneficiaries
Why you should be thoughtful about your trustees
What the tax implications of third-party special needs trusts are based on income earned and distributions made
How a trust can inherit an IRA
What you need to know about ABLE Accounts and why you should have one
Resources from this Episode:
Mark W. Worthington: https://specialneeds-law.com/about-us/mark-w-worthington/
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Having been a caregiver for a disabled loved one, I know firsthand how lonely it can feel. However, our communities are key to dispeling isolation and forging connections during these hard times.
In this episode of Parenting Impossible, I share my motto 'create the things you wish existed,' and delve into how building a support network has been my lifeline. Getting involved in local organizations, support groups, and advocacy efforts has helped me find valuable resources and work toward a more inclusive society. For caregivers, having a support system is crucial to prevent burnout, provide emotional support, and offer practical assistance. Connecting with other caregivers for advice and accessing respite care services has been vital for my well-being. Knowing I have a community to lean on has been a game-changer.
In this episode, you will hear:
Why I believe building supportive networks is crucial for caregivers of disabled individuals
How I've seen engaging in parent support groups benefit families with disabled members
The impact I've noticed community engagement has on individuals and families navigating disability
Engage with us:
Join our community: Circle of Care
Visit: Annette Hines
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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While living in a society that can sometimes seem overwhelmingly critical and exclusive, creating an atmosphere of inclusivity and acceptance is vital, especially for individuals with disabilities. For a parent to a child with special needs, balancing feelings of guilt, the challenges of self-care, and the importance of fostering acceptance can be difficult.
In this episode, host Annette Hines talks with Debi Arsenault about her experiences raising her son Carson, who has a clinical diagnosis of Angelman Syndrome. Debi opens up about the hurdles she’s faced with state services, the advocacy work she's done for Carson, and how it’s all impacted her family. She talks passionately about the need for inclusivity, understanding non-verbal communication, and the importance of educating others about disabilities. Debi's children's book, "The Magic of the Man with the Sunglasses," is a heartfelt story promoting kindness and acceptance, reminding us that everyone has their own unique "magic" to share with the world.
In this episode, you will hear:
Ways to advocate for those with disabilities to get a proper diagnosis and find the right care and services
What it means to recognize the unique value and "magic" in everyone
How understanding and interpreting non-verbal communication is significant
Learn the crucial role of support systems for parents and caregivers of children with disabilities
Discover the emotional realities of parenting a child with disabilities
Resources from this Episode:
LinkedIn: Deborah Arsenault
Book: The Magic of the Man with the Sunglasses
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Mantras and positive affirmations have become powerful tools in helping me find balance, harmony, and peace in my life.
In this episode, I share a significant milestone for my family: my daughter Caroline is finishing college after a challenging journey. To celebrate, we're heading to Alaska for a family trip we've long dreamed of and saved for over the years. However, this exciting trip is shadowed by a deep sense of guilt. I grapple with the thought that this wonderful experience is only possible because Elizabeth is no longer with us. Despite these feelings, I hold onto the belief that Elizabeth would want us to enjoy this time together and create new memories. If you're experiencing similar emotions, remember you're not alone.
In this episode, you will hear:
Why it's important to honor and celebrate significant achievements
How recognizing and addressing challenging feelings is essential for emotional healing and personal growth
Ways mantras and positive affirmations can help maintain balance, harmony, and peace
Reasons connecting with others with similar experiences is invaluable
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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In a world where societal norms often dictate limitations based on physical abilities, Ben Lou, 20, an award-winning MIT physics and math wiz, and his mother, Jenny Huang, are beacons of hope in disability advocacy. Living with Spinal Muscular Atrophy (SMA), Ben has defied expectations and achieved remarkable success, including acceptance to MIT. With Jenny’s tireless help and support, Ben scored a perfect score on his math SAT, and he now maintains a 5.0 GPA at MIT, where he is studying Math, Physics, and Philosophy and hopes to earn his PhD in Physics.
In this episode, Jenny reflects on their early years, the challenges of raising a child with a disability, and the decision to support Ben's educational aspirations at MIT. She shares the importance of never giving up, seeking help, and the continuous journey of personal growth. Ben shares the importance of setting high standards, his motivation to excel, and the impact of strong family support. Together, they discuss the role of comprehensive care and the critical need for advocacy to promote a more inclusive society.
In this episode, you will hear:
How individuals with disabilities can achieve extraordinary goals.
Why strong family and caregiver networks are crucial for the success of individuals with disabilities.
How comprehensive care plans, including physical, emotional, and educational support, are essential for thriving with disabilities.
Ways setting high standards and pursuing goals can lead to significant achievements despite physical limitations.
Why planning for future independence and support ensures long-term success and well-being.
Resources from this Episode:
Instagram: @team.ben_
Watch Ben Lou’s speech: here
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com/
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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