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Special needs trusts are an essential tool for families who want to ensure the long-term financial security of their loved ones with disabilities. However, I know firsthand how overwhelming and confusing navigating the world of trusts can be.
In this episode of Parenting Impossible, I break down the essentials of special needs trusts in an accessible way. I share practical tips for choosing the right trustee and explain their responsibilities. Trustee’s are important—not just in managing the trust, but in making sure the beneficiary continues to receive the care and services they need. My goal is to simplify what often feels like a daunting process, stressing that choosing the right trustee, maintaining open communication, and making informed decisions are key to supporting the well-being and future of those we love.
In this episode, you will hear:
An overview of the responsibilities of a trustee.
How special needs trustees differ from regular trustees.
What factors should be considered when selecting a trustee.
How trust distributions affect public benefits eligibility.
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Being a caregiver can be tough and sometimes lonely. For caregiving moms, having a sense of community and connection is essential. Whether it's sharing tips on managing hectic schedules or simply lending an empathetic ear, having a supportive network of fellow moms can make all the difference in navigating the challenges of motherhood.
In this episode of Parenting Impossible, Annette Hines sits down with Jessica Patay, founder of We Are Brave Together. Inspired by her journey as a special needs mom, Jessica established the nonprofit in 2017 to create a safe, judgment-free space where caregiving moms can connect and support one another, addressing the exhaustion and isolation they often face. In this conversation, Jessica discusses the power of building supportive communities for those navigating the unique challenges of raising children with special needs, as explored in her anthology, Becoming Brave Together. Jessica reminds us that no mother should face their caregiving journey alone.
In this episode, you will hear:
How caregivers can prioritize their mental health effectively.
Why community is essential for supporting caregiving moms.
What makes building connections so vital in the world of caregiving.
How advocacy for caregivers and raising awareness about their struggles help combat stigma.
Resources from this Episode:
Website: https://www.wearebravetogether.org/
Listen to the Brave Together Parenting Podcast
Read Becoming Brave Together: Heroic, Extraordinary Caregiving Stories from Mothers Hidden in Plain Sight
LinkedIn: @jessica-patay
Instagram, Facebook, & YouTube: @wearebravetogether
Twitter/X: @wearebravemoms
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Parents often carry a heavy weight of shame and self-blame when their children face tough times. It's natural for them to feel responsible, but it's important to remember that not everything is within a parent’s control. By staying present and connecting with themselves, parents can let go of the burden of shame and find a more positive, hopeful way forward.
In this episode of Parenting Impossible, Annette Hines sits down with Celia Landman, a mindfulness educator and author of When the Whole World Tips: Parenting through Crisis with Mindfulness and Balance. They share an honest and heartfelt conversation about the real struggles of parenting during a crisis and how mindfulness and meditation can truly make a difference. Celia opens up about how parents can reconnect with their true selves and face difficult times without carrying the extra weight of blame or shame. By recognizing societal pressures, allowing themselves to feel a range of emotions, and offering compassionate support to one another, parents can find the grace and resilience they need to keep moving forward. This episode is a reminder that even in the toughest moments, there is hope and community. Parenting through a crisis is never easy, but it’s a journey no one has to take alone.
In this episode, you will hear:
Explore the key differences between mindfulness and meditation.
How mindfulness and meditation can benefit healing and self-awareness.
How societal pressures fuel feelings of shame and blame.
Why being present in someone’s pain is powerful.
Resources from this Episode:
Website: https://celialandman.com/
LinkedIn: @celia-landman-232185149
Instagram: @celiasacct
Facebook: @celia.landman
Read: When the Whole World Tips: Parenting through Crisis with Mindfulness and Balance
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Understanding the administration of special needs trusts can make a world of difference for people with disabilities, providing them with financial stability and peace of mind. These trusts—like third-party and first-party trusts—come with specific rules that trustees must follow to ensure the beneficiary can keep accessing essential public benefits.
In this episode of Parenting Impossible, I talk about the importance of building a solid relationship between trustees and beneficiaries. Understanding the basics of trust administration is valuable for everyone—not just those currently acting as trustees. I also stress how crucial it is to use clear, precise language and to accurately identify beneficiaries in trust documents. These details are essential to ensuring that beneficiaries keep access to the public resources they rely on. If you’re ready to take control of your trust administration knowledge and make a lasting impact, register for my Special Needs Advocacy and Planning Masterclass. This provides the tools and guidance you need to create a comprehensive life plan with confidence.
In this episode, you will hear:
Learn the difference between third-party and first-party special needs trusts.
What factors trustees should consider when making distribution decisions within special needs trusts.
What responsibilities trustees have when managing special needs trusts.
How trustees can protect the beneficiary's public benefits within special needs trusts.
Why it is essential for trustees to consult with professionals and understand tax implications.
Resources from this Episode:
Register for the Special Needs Advocacy and Planning Masterclass
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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For longtime listeners, it’s clear this podcast covers a wide range of topics—from family discussions about kids to conversations on adult disabilities. This conversation focuses on the challenges of balancing health and work while living with a chronic illness. Practices like meditation, journaling, and cognitive behavioral therapy (CBT) are powerful tools for managing mental health, offering ways to create a more stable and fulfilling life despite these ongoing challenges.
In this episode of Parenting Impossible, Annette Hines talks with Lauren Perna, leader of the Boston chapter of the Chronic Boss Collective, dedicated to supporting businesswomen and entrepreneurs managing chronic conditions. With a corporate background and personal experience with mental health struggles, Lauren understands the challenges of balancing ambition and well-being. She’s built a community where entrepreneurship and mental health go hand in hand, promoting self-awareness and the importance of self-care. Lauren also advocates for workplace cultures that prioritize both mental and physical health.
In this episode, you will hear:
What tools to use for managing mental health
Why it is important to create custom work arrangements
Why re-evaluating workplace cultures is important
How to balance being an ambitious entrepreneur while dealing with chronic conditions
Resources from this Episode:
Website: https://www.laurenperna.com/
LinkedIn: @laurenelizabethperna
Instagram & Facebook: @laurenpernacomms
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Parenting is a rewarding journey filled with love, laughter, and joy. However, it also comes with its fair share of challenges. From sleepless nights to tantrums in the grocery store, every parent faces obstacles along the way. But what happens when those challenges are compounded by raising a child with disabilities?
In this episode of Parenting Impossible, Annette Hines speaks with Joanne De Simone, a special education advocate, and author of “Fall and Recovery: Raising Children with Disabilities through Lessons Learned in Dance”, about the challenges of raising a child with disabilities and navigating the healthcare and education systems. Joanne, a former professional dancer turned advocate, shares her journey and the importance of building community support for parents facing similar struggles. She also discusses her role in securing a legislative change that allowed her son, Sebastian, to participate in NCAA D3 intercollegiate sports, a huge win in her commitment to inclusivity. True change for children with disabilities comes through relentless advocacy, collective support, and the belief that every challenge can be met with hope and resilience.
In this episode, you will hear:
Common challenges parents face when raising a child with disabilities
How parents can advocate for inclusive environments in the education system
Why community support is important for parents of children with disabilities
How can embracing hope and possibility lead to personal growth
Resources from this Episode:
Website: https://special-educationmom.com/
Read: “Fall and Recovery: Raising Children with Disabilities through Lessons Learned in Dance”
Facebook: @special-educationmom
Twitter/X, Instagram: @jojdesimone
LinkedIn: @joanne-de-simone
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Parenting a child with hearing loss comes with its own unique challenges and families may find themselves grappling with isolation and communication barriers. In these moments, community support and shared knowledge can make a world of difference.
In this episode of Parenting Impossible, Annette Hines welcomes Alaine Jacobs, a passionate advocate for the deaf community. Drawing from her personal experience as a parent, Alaine guides and supports others facing similar challenges. With a background in education, she helps families navigate both medical and educational systems, offering practical advice through her website, RaisingDeafKids.com, and her “Raising Deaf Kids” podcast. During the conversation, she addresses the ongoing debate within the deaf community about hearing loss, emphasizing that many view it not as a disability but as a normal variation of human experience. Alaine encourages respect for diverse opinions and choices, urging parents to connect with local and online communities to empower themselves in making informed decisions that best suit their family’s needs.
In this episode, you will hear:
Learn about key resources for parents of children with hearing loss.
Discover the divisions in the hearing loss community regarding cochlear implants
The importance of early diagnosis and intervention for hearing loss.
How to create a personalized communication plan for children with hearing loss.
Why parents of children with hearing loss need to connect with local and online communities for support and information.
Resources from this Episode:
Website: http://raisingdeafkids.com/
Listen to the Raising Deaf Kids Podcast
Facebook: @raisingdeafkids
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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The journey of caring for a child with disabilities is a tumultuous emotional ride. There are highs celebrating achievements and lows during setbacks. It's important to recognize those feelings and find healthy ways to cope along the way.
In this episode of Parenting Impossible, Annette Hines chats with Jessica Fein, author of Breath Taking: A Memoir of Family, Dreams, and Broken Genes and host of the I Don't Know How You Do It podcast. Jessica opens up about her journey parenting a child with MERRF syndrome, an ultra-rare degenerative disease, and emphasizes the importance of visibility for acceptance and inclusion. Instead of focusing solely on challenges, she stresses the need to highlight the unique strengths of children with disabilities, which fosters a more inclusive society. Annette and Jessica also discuss how vital it is to have a supportive community, as raising a child with disabilities truly takes a village.
In this episode, you will hear:
How writing can help parents cope with emotional challenges.
Ways to find beauty and joy amidst grief and sorrow.
Why advocating for awareness and inclusion is important for children with disabilities.
How a strong support system can benefit parents of children with disabilities.
Resources from this Episode:
Website: https://www.jessicafeinstories.com/
Read Breath Taking: A Memoir of Family, Dreams, and Broken Genes
Listen to I Don't Know How You Do It
Facebook:@jessica.fein.92
Instagram: @feinjessica
LinkedIn:@jessica-fein
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Music has a way of connecting people, transcending language barriers, and healing the soul. The discipline and dedication required to master an instrument can translate into valuable life skills that go beyond the music classroom.
In this episode of Parenting Impossible, Annette Hines spoke with Annie Ray, the founder of the Crescendo Orchestra program, a music class tailored for students with significant disabilities, and Parent Orchestra, which invites parents to join their children in learning music, fostering a vibrant community, and encouraging parental involvement in their kids' musical journeys. Annie passionately advocates for music education as a core subject, emphasizing the need to meet students where they are and tailor instruction to their unique needs. Her approach showcases music’s profound impact on students, transcending mere notes and rhythms. The Crescendo Orchestra program is a shining example of how music can transform the lives of young students, providing them with a sense of community, purpose, and hope for the future.
In this episode, you will hear:
Why emphasizing a student-centered approach fosters a joyful space for musical exploration without fear of judgment.
Ways the Parent Orchestra program has built a vibrant community of over 200 parents on a shared learning journey.
How music education sharpens cognitive abilities and instills resilience, helping students navigate challenges and embrace imperfections.
Ways fellow educators can launch inclusive music programs, advocating for equal access to the transformative power of music education.
Resources from this Episode:
Watch Annie’s TEDx Talk: https://www.ted.com/talks/annie_ray_the_sound_of_sucess
Learn More About Annie’s Program and GRAMMY win - Annie Ray: Music Educator
Learn More about the Parent Orchestra -
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Disability is a topic often surrounded by stigma and misconceptions, particularly within Kenyan communities, where the burden can become a significant financial strain on families. In Kenya, parents of children with disabilities face not only a lack of acceptance and support but also the heavy weight of stigma, which exacerbates their struggles.
In this episode of Parenting Impossible, Annette Hines and Thitu Muiruri, an accomplished filmmaker, sheds light on the pervasive stigma surrounding disabilities in African communities. Muiruri's documentary work delves into the struggles faced by parents of children with disabilities, revealing the harsh realities of societal judgment, lack of support, and financial hardships. Through her documentaries and short films, she seeks to spark critical discussions and educate the public about the challenges individuals with disabilities face. It's through these conversations that people can truly understand different perspectives, learn from one another, and work towards positive change.
In this episode, you will hear:
What challenges parents of children with disabilities in Kenya face.
How societal attitudes add to the struggles of individuals with disabilities and their families.
What role informal support networks among mothers play in the disabilities community.
What efforts are needed to provide resources and support to mothers of children with disabilities.
How to advocate for better accessibility in buildings and roads for individuals with disabilities and their families.
Resources from this Episode:
Website: https://thitu.art
Facebook: @thituproductions
Instagram:@thitu___
LinkedIn: @salthitumuiruri
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Parenting is a tough job and when you have a child with special needs, the challenges can be even more complex. From advocating for your child in school to finding the right therapy options, there are so many aspects of parenting a child with special needs that require extra care and attention. Amidst these pressures, marriages can face significant strain.
In this episode of Parenting Impossible, Annette Hines, Todd Evans PhD, MA, and Kristin Evans MA, MS, LMSW explore the challenges of raising a child with special needs. Todd and Kristin, authors of “How to Build a Thriving Marriage as You Care for Children with Disabilities,” share insights on balancing their dreams, their child's needs, and their marriage. They highlight the importance of parents prioritizing mental health and self-care to better support their children. Clear communication, emotional connection, and time management remain essential for effective care. Parents of children with special needs are encouraged to take time for themselves—self-care is crucial for caring for others.
In this episode, you will hear:
Why effective communication is important for parents of children with special needs
How parents of children with special needs can prioritize their own well-being
Healthy ways to recognize the address challenges in caregiving marriages
Why it is crucial to have a supportive partner during challenging times
How parents can effectively advocate for their child with special needs in school and medical settings
Resources from this Episode:
Website: https://disabilityparenting.com/
Read: How to Build a Thriving Marriage as You Care for Children with Disabilities
Facebook: Kristin.Evans.5895
Twitter: @AuthorKristinEv
Instagram: @disabilityparenting
LinkedIn: @Kristin-Evans
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Transition planning from school to adult life is a crucial aspect of ensuring individuals with additional needs have the support and resources they need to lead fulfilling lives. With the introduction of the new transition planning IEP form, understanding its purpose and how it benefits those in the transition process is essential.
In this episode of Parenting Impossible, Annette Hines and Graham Caldow dive deep into transition planning for young people with disabilities as they prepare for adulthood. Graham, drawing from his personal experiences and his book “What’s Possible? Plan A Better Future for Your Young Adult with Additional Needs,” discusses the importance of a structured yet personalized approach to goal-setting. He emphasizes the importance of involving young people in their own planning, using his “Red Giraffe” tool as both a symbol and a practical example of how transition planning can be tailored to fit each individual's unique needs. Transition planning focuses on setting goals and creating a roadmap to help individuals transition smoothly from school to post-school life, ensuring they have the skills and support needed to find purpose and achieve their goals.
In this episode, you will hear:
How the Red Giraffe planning tool can help individuals with disabilities
Why regularly assessing and adjusting transition plans matters
Finding top programs for smoothly transitioning students into employment
Strategies to make sure schools follow through on transition planning
Why finding purpose in daily life is crucial for individuals with disabilities
Resources from this Episode:
Website: www.redgiraffesolutions.com
Read What’s Possible? Plan A Better Future for Your Young Adult with Additional Needs
Listen to The Expanding Worlds Podcast
Facebook: @redgiraffesolutions
Instagram & LinkedIn: @grahamcaldow
Pinterest: @Red_Giraffe_Solutions
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Being a caregiver is a demanding role that requires immense strength, patience, and compassion. Caregivers often face challenges that can be physically, emotionally, and mentally draining. However, being resilient is crucial for caregivers to navigate the ups and downs of their caregiving journey.
In this episode, Annette Hines and Michelle Mercier have an in-depth conversation about what it really means to be resilient as a caregiver. Michelle, a business growth consultant, brings a unique perspective to the table, sharing her thoughts on the tough challenges caregivers face every day. She compares resilience to building a muscle, something that takes consistent effort and practice. As a caregiver, resilience is a powerful tool that can help navigate the challenges and uncertainties of caring for a loved one. By prioritizing self-care, seeking support, and practicing resilience, caregivers can better cope with the demands of their role and continue to provide the best care for their loved ones.
In this episode, you will hear:
The importance of resilience for caregivers
How to prioritize time freedom over money freedom
Why work-life integration is essential for personal well-being
How to model self-care habits to benefit children's well-being
What challenges are faced by caregivers of children with medical conditions
Resources from this Episode:
Website: https://www.MichelleAMercier
Facebook: @MichelleAMercier.1
Instagram: @michelle_a_mercier
LinkedIn: @michelle-a-mercier
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Navigating the world of IEPs (Individualized Education Programs) and 504 Plans can be overwhelming for parents and educators alike. Both IEPs and 504 plans provide essential educational support but differ in their goals, services, eligibility, and duration. IEPs offer specialized instruction with specific objectives and progress monitoring from pre-K through high school, while 504 plans ensure access and equity and can extend through college.
In this episode, Annette Hines and April Rehrig, the founder of Rise Educational Advocacy and Consulting, discuss the strengths and weaknesses of IEPs and 504 plans. April emphasizes the importance of positive language in IEP meetings, advocating for strength-based approaches, and involving students and parents in the planning process. By focusing on strengths, setting high expectations, and fostering a collaborative environment, parents and educators can help students reach their full potential. Join us for an episode that will change how you approach IEPs and 504 Plans. Learn how to advocate for your child using strength-based approaches and collaborative planning.
In this episode, you will hear:
The difference between an IEP and a 504 plan
How positive language benefits students in IEP meetings
Tips for transitioning students from IEPs to college
Why it is important to focus on a child's strengths in an IEP
How involving students in the IEP planning process empowers them
Resources from this Episode:
Website: https://www.riseeducationaladvocacy.com/
Facebook, Instagram, & Pinterest: @riseedadvocacy
LinkedIn: @aprilrehrigspecialeducationadvocate
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Are you ready for the new school year?
Back-to-school season can be both exciting and overwhelming for parents, especially those with children who have special needs or medical requirements. From my experience, preparing for a new school year when your child has special needs involves carefully reviewing their IEPs and healthcare plans. It’s really important to go over these and make sure everything’s up to date, and share any progress from summer activities. I’ve learned that building a good relationship with school staff and service providers makes a huge difference. It helps to start those conversations early, have open communication, and be your child’s biggest advocate. While the process can seem daunting, it's important to remember that supportive teams do exist. Finding these "gems" is key to creating a positive and enriching educational experience for your child.
In this episode, you will hear:
The importance of reviewing IEP/ISPs, healthcare plans, and progress notes to prepare children with special needs for the new school year.
How parents can build supportive, collaborative relationships with school staff and service providers.
Why understanding healthcare protocols and emergency procedures for the safety of children with medical needs at school is crucial.
How parents can identify positive, supportive teams in educational and adult support programs.
Engage with us:
Join our community: Circle of Care
Visit: Annette Hines
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Parents naturally want to make sure their child with disabilities is well taken care of, both now and in the future. It's not just about meeting the day-to-day needs but also thinking ahead to their long-term financial security. There's a lot to juggle—from managing medical expenses to planning for their financial future. It can feel pretty overwhelming and complicated.
In this episode, host Annette Hines welcomes financial planning expert, James Lange, to discuss the crucial need for specialized financial planning for parents of children with disabilities. James emphasizes the importance of working with advisors who understand the unique financial needs of these families and securing government benefits like SSI or SSDI to ensure long-term support. The conversation covers essential legal documents such as wills and trusts, and James offers a free copy of his book, “Retire Secure for Parents of a Child with a Disability,” packed with strategies for financial planning. Annette and James delve into the practical and emotional aspects of financial security, reflecting on how proactive planning can provide peace of mind and a brighter future for children with disabilities.
In this episode, you will hear:
The importance of collaborating with specialized financial planners and tax advisors for families with children with disabilities
Key government benefits essential for the financial support of children with disabilities
The necessity of creating appropriate wills, trusts, and powers of attorney tailored for children with disabilities
How proper financial planning can alleviate anxiety for parents raising children with disabilities
Why it is important to involve the child in the financial planning process
Resources from this Episode:
Free digital copy of Retire Secure for Parents of a Child with a Disability
Website: https://DisabledChildPlanning.com
Facebook: @RothRevolution
Twitter/X: @rothguy
LinkedIn:@jameslangecpa
Other Sites:https://PayTaxesLater.com
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
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The journey of caregiving is a delicate dance of emotions and responsibilities, especially for parents of disabled children who face societal pressures. Home and community care services provide essential support and respite, allowing families to maintain a safe environment and caregivers to recharge. Self-care, such as meditation or exercise, is critical for caregivers to sustain their well-being and continue their responsibilities.
In this episode, host Annette Hines sits with Kelley Coleman as she shares her journey of parenting a disabled child, revealing how it led her to write "No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports." Kelley expresses the importance of accessing accurate information and insights directly from individuals with disabilities to combat stigma and misconceptions. Her book serves as a practical guide for caregivers, filled with invaluable checklists, personal stories, and strategies for self-care, effective communication, and advocacy. Kelley and Annette bond over their shared love for practical tools, discussing the significance of job training in caregiving and urging caregivers to establish boundaries and prioritize their well-being. They reflect on their own experiences, the emotional toll of caregiving, and the power of a supportive community.
In this episode, you will hear:
Why it is important to seek insights from individuals with disabilities
Addressing the challenges faced by parents of disabled children
How caregivers can prioritize self-care and establish boundaries
Why it is important to advocate for home and community-based care services
What resources are available for caregivers of children with disabilities
Resources from this Episode:
Kelley Coleman: www.kelleycoleman.com
Facebook: @kelley.coleman.56
Instagram: @hellokelleycoleman
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Have you ever wondered how Social Security impacts those who are disabled or retired? I’ve seen firsthand how crucial it is for providing financial stability.
Earlier this month we spoke about Social Security and Work. In this episode of Parenting Impossible, I want to delve deeper into the basics of the critical topic of social security, public benefits, and financial planning for individuals with disabilities. Did you know that ABLE accounts are revolutionary, allowing you to save money without jeopardizing benefits like Medicaid and Supplemental Security Income (SSI)? Proper financial planning is crucial, as one misstep in managing assets can lead to the loss of these vital benefits. For SSI recipients and those on Social Security Disability Insurance (SSDI), understanding the nuances of your programs can make a big difference. Navigating social security benefits and work income can be challenging, but with the right knowledge and understanding, you can make informed decisions that benefit your financial stability.
In this episode, you will hear:
Learn about Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI)
How work income affects SSI benefits
How ABLE accounts can help manage assets without affecting SSI or Medicaid eligibility
Why planning for Medicaid coverage is important
Engage with us:
Join our community: Circle of Care
Visit: Annette Hines
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Imagine navigating a system where your needs are ignored due to your age. This is the reality for many adults with autism facing age discrimination. The fight against this injustice hinges on advocacy, personalization, and accessibility. Advocating for legislative changes ensures equality and fairness.
In this episode, host Annette Hines talks with Christina Gravina CEO & Founder of BILT (Bridging Independent Living Together, Inc.). Annette and Christina address age discrimination in autism services, highlighting the challenges adults face when denied support due to age. Christina advocates for legal changes and emphasizes personalized, goal-oriented services over the one-size-fits-all model. Her organization, BILT, offers one-on-one support, therapeutic mentoring, skill-building, and community integration, with options for private pay and insurance. They’ve also opened a center with small group classes and a high staff-to-client ratio, allowing clients to choose activities they enjoy. Christina stresses starting small, gathering feedback, and overcoming funding challenges to create effective programs for people with disabilities.
In this episode, you will hear:
Why you should advocate for legislative changes to address age discrimination in autism services.
How to provide individualized services tailored to the unique goals and interests of disabled individuals.
What payment options, such as private pay, school district funding, DDS payments, and insurance, can make services more accessible.
Ways to create meaningful programs for individuals with disabilities.
Resources from this Episode:
Website: www.biltne.org
Facebook, Instagram, & LinkedIn: biltinc
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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Talking about the challenges of disability can be tough and delicate. For those living with disabilities and their caregivers, every day brings unique hurdles that demand patience, creativity, and resilience. It’s crucial to focus on person-centered planning and get creative to make sure disabled individuals have the support they need to thrive.
In this episode, I get into the real challenges of disability and how crucial informed decision-making and proactive planning are for parents and caregivers. From my own experiences, I think it’s important to recognize our mistakes, stay resilient, and come up with creative solutions ourselves. I also share why having a solid disability or life plan matters, covering things like agency meetings, housing, financial support, and transitioning to adulthood. Effective communication, adaptability, and a supportive community are key to advocating for your loved ones. Let's keep supporting each other, staying resilient, and making informed decisions to ensure a brighter future for our kids and those we care for.
In this episode, you will hear:
Why it is important to create a disability or life plan for loved ones with disabilities.
How being creative can help navigate challenges for parents and caregivers of disabled individuals.
Why it is crucial to recognize mistakes and adjust plans when supporting individuals with disabilities.
What role effective communication plays in advocating for individuals with disabilities.
Why it is important to prioritize person-centered planning for individuals with disabilities.
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
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