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Hannah(31) - ileostomy in 2017. Hannah just wants to be herself. All of her health challenges are only making her stronger.
How do you balance influencing and building ostomy awareness while avoiding the glorification of suffering?
Why are you drawn to helping those who have struggled more than most?
In this social media world, it's easy to forget there's more to each of us besides our illness. Why don't you show off your bag like so many?
Join Hannah and me as we shoot the sh!$ about getting over our negative thoughts and back our best life with an ostomy.
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@Paul_Wischmeyermd (50) Jejunostomy, (like an ileostomy, without the ileum). Paul has 30+ years of experience with his #ostomy. As an ICU Physician, he gets to advocate to many #ostomates at his hospital. A professor, @dukemedschool
Question: Have your doctors been wrong? Have you done everything you were told and just ended up more sick and with more illnesses from the side effects?
YOU are the CEO of your own health!!
HYDRATION! HYDRATION! HYDRATION!
Are you drinking @gatorade? Hear why Paul is a huge advocate for hydrating ostomates properly and Gatorade is his drink of choice.
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Eksik bölüm mü var?
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Just had her ostomy 3 WEEKS AGO!! Did she feel prepared? How'd her first changes go? What's her biggest fear? Will she figure skate again? What has this process taught her about herself? Do you just all of a sudden get ok with poop? Hell no!! And so much more! Enjoy Jacquelin's charm and humor. This is definitely an hour worth listening to! @jayquelinz93 @courage_and_crohns
#lifestyleostomyathletes
@jayquelinz93
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Pam Wall - Ileostomy since (1989) and you'd never know it. She's a soldier! Known to most for her sailing expertise, Pam has sailed all over the world with her ostomy, and getting supplies was never an issue. "I still don't believe it!"
Pam's father was the first person in the US with an ostomy. She recalls him going out into the ocean and taking off the appliance, to let the saltwater soothe the skin. Wow! She has 2 sisters with an ostomy as well. That's what I call a built-in support group!!
My top 2 takeaways from Pam..."Don't waste your time in a relationship, if your partner doesn't support you in this life. It's not worth it!" So true!!
AND..."I get about 2 weeks of wear time from one appliance!"
Wait, WHAT?!?! That's some wear time! Go Pam!!
LISTEN, LIKE, SUBSCRIBE, & SHARE!!
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Ostomy noise!! My biggest insecurity from the start! Are ileostomies the same? "It's so loud, I hated leaving the house. Really, I'm sick and now I have this embarrassing orchestra following me everywhere." Garrett Taira and I compare and share about our ostomies and our crappy sounds.
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#ostomy #theOG #crohns #crohnsandcolitis #ostomybomb #ostomylife #ostomyawareness #ostomybag #badassbaglife #crohnsdisease #theostomyguy #breakingthestigma #crohnswarrior #doublebagginit #chronicillness #crohnsandcolitisfoundation #baghalffull #beatingtheodds #theresgoodinthisworld
#invisibleillness #crohnswarrior #ostomy #theOG #crohns #crohnsandcolitis #ostomybomb #ostomylife #ostomyawareness #ostomybag #badassbaglife #crohnsdisease #theostomyguy #breakingthestigma #crohnswarrior #doublebagginit #chronicillness #ostomyinspo #crohnsandcolitisfoundation #baghalffull #beatingtheodds #theresgoodinthisworld #invisibleillness #nocolonstillrollin #how.u.feeling #mentalhealth #mentalhealthawareness #mensmentalhealth #masterlistener #listentoyourbody
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Justan(32)- Crohn's('91) and ileostomy('11), Is bringing Sexy Back to ostomates. He'll make a WOCN blush without even trying. On any "shitty" day, we need a pick me up...
That's exactly what you'll get from Justan!
SUBSCRIBE
www.theostomyguy.com
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Stephanie Bension(31) - Crohn's '04, Ileostomy '13 from a complete colectomy. Stephanie chooses every day to see goodness in her situation and everyone in her life. Learning the mechanics of her ostomy was just the beginning of her journey. We all feed off the love and energy of those around us. We need others to thrive!
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Ryan Voorhis(39) - Crohn's('91) - Ileostomy('02), Chef and co-owner of Nude Dude Food, isn't letting his ostomy determine his life, he does. There's so much more to life, than sitting around and feeling sorry for yourself. We're sick whether we stay home or go, so why not go.
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Trey Johnson(27) - Crohn’s - Ileostomy in 2014 Trey is an all-around badass, who defines his own life. Rugby player and bouncer, fear isn't something Trey's familiar with. As a husband and father, Crohn's and an ostomy have been instrumental in his growth in humility and gentleness. Follow him @manofsteel0408
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He has a rare condition called Chronic Intestinal Pseudo Obstruction that resulted in his ileostomy at 22. We're all just trying to live as normal of a life as possible. Garrett is no exception. He is a creative genius and as authentic as they come. His family has kept him grounded and his friends keep him sane. He'll crack you up!
Follow him @garretttaira
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Jack(26) - Ileostomy at 11 and 24 years old and a JPouch for 6 years in between. Diagnosed with Ulcerative Colitis in '98 when he was 5. When Jack looks back at his journey, he wishes he would have been open to having a stoma sooner rather than trying and taking every drug out there. Though he still has challenges, life is so much better w a stoma.
#ostomy #theOG #crohns #crohnsandcolitis #ostomybomb #ostomylife #ostomyawareness #ostomybag #badassbaglife #crohnsdisease #theostomyguy #breakingthestigma #crohnswarrior #doublebagginit #chronicillness #crohnsandcolitisfoundation #baghalffull #beatingtheodds #theresgoodinthisworld
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Amber Tresca(47) - Ulcerative Colitis '89 and a J-Pouch '99. Amber realized early that sharing her story helped others. She is the host of the ABOUT IBD podcast, a blogger, and a writer about all things IBD. At the end of the day, she's a mom and wife, battling like the rest of us.
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Jeff Yohe (29) - Loop Ileostomy 2019 - Be Savage, Not Average, is Jeff's motto. He wakes up every day with a purpose. He completed the Spartan Race with his ostomy and spends every day teaching others to #besavagenotaverage @mstbfitness
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Brittany (31) - Ulcerative Colitis - Healthy living and good nutrition are key to a happy life with auto-immune disorders. It's not easy and we don't always get it right but working with a partner could be the change you need.
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Sarah Zielinski (30) Crohn's Sarah's story of brokenness and rebuilding, healing and victory, suffering, and sacrifice will have you excited to be alive. "Being dragged by a truck and being left for dead was the lowest of my low but damn do I shine bright now!"
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Teacher and Evangelist, Chris Stewart, helps us talk through seeing our suffering through its proper lens. You don't have to like it, but you have to learn to deal with it.
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Larry Dorame - Husband and father, has Gastroparesis and Ileostomy - palliative care just began - Just when you think you can't suffer anymore... more is dumped right in your lap. Larry and his wife Casey share their journey and how Faith and Family keep all the pieces together.
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Carson (11 years old) Ileostomy, Ehlers Danlos Syndrome. Since Carson can remember, he's always been sick. Without his mom Hayley, his journey wouldn't have been quite as much fun. They've become "buds". Carson pushes the pedal to the metal and Mom is constantly pumping the breaks. Sound familiar? Get inspired by this young man's determination to let the whole world know about EDS and the Ostomy Life. Please subscribe to our youtube channel.
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Chrissy (32): Crohn's ('05), ILESOSTOMY ('06) and Proctocolectomy ('15).
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The emotional toll is much higher than the physical one for most of us. We're all just winging it. Faith and family are Chrissy's foundation and often in unexpected ways they show up along the way to guide us. Come! Listen how everyday, she attempts to wake up and keep going, whether she wants to or not.
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https://youtu.be/NcDO92zNW-M
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Instagram - @lifewithcrohns
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#chronie #crohnswarrior #ileostomy #colonstomy #ostomy #ibd -
Wife, Mother, Counselor, Founder, Exec. Dir., Author COVID19 teacher of 2, and oh yeah, she just won: Mrs. Oklahoma International 2020; Ashleigh talks about her busy life with IBD and the virtues that have grown her because of her health battle.
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