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In our final Tit Talk episode for Season 3, Rosalina explores an intriguing (but small) study exploring how breast milk might aid early breast cancer detection using ctDNA. Published through Cancer Discovery, she discusses how this study uncovered a potential noninvasive screening method for pregnant and postpartum women. Rosalina unpacks the study's findings, discussing their implications for early detection and their possible influence on healthcare practices and insurance coverage. Join us as we uncover the fascinating potential of breast milk in breast cancer screening.
Resources:
The study: https://aacrjournals.org/cancerdiscovery/article/13/10/2180/729382/Early-Stage-Breast-Cancer-Detection-in-Breast
Dr. Eleonora Teplinsky’s Instagram reel about this study: https://www.instagram.com/reel/C0QRzeAgi9N/
Oncology Central article about the study:
https://www.oncology-central.com/how-a-maternal-instinct-led-researchers-to-the-latest-breast-cancer-detection-tool/
Cristina Saura interview with Oncology Central: https://www.oncology-central.com/could-breast-milk-hold-the-secret-to-early-breast-cancer-detection-an-interview-with-cristina-saura/
VHIO article about the study:
https://vhio.net/2023/09/14/vhio-discovers-potential-use-of-breast-milk-liquid-biopsy-for-the-early-diagnosis-of-breast-cancer/
2020 cancer cell in breast milk study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7642166/
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For this season 3 finale, we've saved the best episode for last. Rosalina and Shauna explore the intricate relationship between cancer and personal identity. They reflect on how the perception of being a "cancer patient" evolved from diagnosis to different life stages. The discussion spans how others perceive them, the challenges of disclosure, and the balance of embracing cancer as part of their story while maintaining separate personal spaces.
Episode Timestamps:
[00:02:09] Is Cancer a Part of Your Identity
[00:10:25] From Cancer Patient to Advocate
[00:11:26] Cancer Labels
[00:13:28] Cancer Survivor or Cancer Patient?
[00:26:03] It’s OK to Take a Break
[00:28:56] Feeling Like a Cancer Veteran
[00:31:30] Who is Shauna and Rosalina?
You can follow us on Instagram @TYFTSpodcast and email us at [email protected]
Please consider donating to our “Buy Me A Coffee” page. Your generous support will greatly assist us in continuing to produce quality content for our listeners. Every donation will get a shoutout on our podcast, as well as a free TYFTS sticker.
www.buymeacoffee.com/tyftspodcast
If you want to submit a quote about your breast cancer journey, visit the link below: Submit A Quote
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Eksik bölüm mü var?
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In the third episode of Tit Talk, Rosalina guides us through a study featured in JAMA Oncology in November 2023. Examining data from nearly 50,000 women in the UK, the study investigates the potential link between vaginal estrogen therapy and breast cancer-related mortality. The study's findings reveal no evidence of an elevated risk. As always, Rosalina encourages listeners to stay informed, seek advice from healthcare professionals, and feel empowered to make decisions that align with their well-being.
In this third season of the podcast, we had a dedicated episode on sexual health, where we spoke to medical oncologist and sexual health expert Dr. Laila Agrawal on a misconception about hormone-positive breast cancer and the use of vaginal estrogen. It's an episode worth catching up on, especially since discussions about women's sexual health are often overlooked.
Resources:
Main study: https://jamanetwork.com/journals/jamaoncology/article-abstract/2811413
Dr. Agrawal analysis of the main study: https://www.instagram.com/reel/C0HTzb2Ad9k/
More info on the model used in the study: https://sphweb.bumc.bu.edu/otlt/mph-modules/bs/bs704_survival/BS704_Survival6.html
ASCO 2018 recommendation: https://ascopubs.org/doi/full/10.1200/JCO.2017.75.8995
Medical study general analysis: https://www.youtube.com/watch?v=BHsdpg1OOf0
North American Menopause Society recommendation: https://www.menopause.org/docs/default-source/professional/nams-2022-hormone-therapy-position-statement.pdf
Recurrence study: https://pubmed.ncbi.nlm.nih.gov/37535961/
Dr. Agrawal’s post re: recurrence study: https://www.instagram.com/p/C0P9wdsg1nf/
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Shauna and Rosalina welcome Maddy Pollack and Shannon Cury, survivors of Hodgkin's and Non-Hodgkin's Lymphoma and the cohosts of the podcast "Cancer Actually Fucking Sucks." In this episode, Maddy and Shannon discuss their individual experiences with navigating an under-30 diagnosis, IVF, cancer survivorship, and the tools they used to reconnect their bodies and minds.
They share their personal reasons for starting their own podcast and the tough decision to end their show in early 2024. Although the podcast is ending, Maddy and Shannon are excited to expand their coaching careers and continue to help others in their health journeys.
Episode Timestamps:
[00:02:35] Maddy's Cancer Diagnosis
[00:05:38] Shannon's Cancer Diagnosis
[00:11:13] The "Good" Cancer
[00:12:34] Fertility Preservation
[00:27:56] Genetic Testing
[00:31:31] Finding Your Support Community
[00:37:45] Starting Cancer Actually Fucking Sucks
[00:46:47] Stopping the Podcast
[00:54:26] Cancer and Your Identity
[01:02:14] Lifestyle Changes
[01:14:59] Health Coaching and Breathwork
You can find Maddy and Shannon, their coaching programs, and their podcast on Instagram:
@maddypollak_health
@shancury
@canceractuallysuckspod
Website links can be found in their IG bios.
You can follow us on Instagram @TYFTSpodcast and email us at [email protected]
Please consider donating to our "Buy Me A Coffee" page. Your generous support will greatly assist us in continuing to produce quality content for our listeners. Every donation will get a shoutout on our podcast, as well as a free TYFTS sticker.www.buymeacoffee.com/tyftspodcast
If you want to submit a quote about your breast cancer journey, visit the link below: Submit A Quote
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In today’s episode, Shauna shares the confusing, isolating, and difficult road that is survivor’s guilt. While she navigated how to continue on with her second chance at life, she was met with pockets of darkness when she felt she should be grateful for the light of remission. Rosalina shares the boundaries she created to protect herself and why she hasn’t experienced survivor’s guilt, while Shauna speaks on the spiraling grief she has felt watching members of the cancer community advance in their diseases and how it’s a stark reminder of mortality when members pass on. Rather than succumbing to a guilt-ridden existence, Shauna continues to learn how to balance holding space for others.
Episode Timestamps:
[00:01:39] Survivor’s Guilt
[00:06:54] When Guilt Sends You Spiraling
[00:18:38] Take Me Instead Mentality
[00:20:59] Getting Lost in Grief
You can follow us on Instagram @TYFTSpodcast and email us at [email protected]
Please consider donating to our “Buy Me A Coffee” page. Your generous support will greatly assist us in continuing to produce quality content for our listeners.Every donation will get a shoutout on our podcast, as well as a free TYFTS sticker.
.www.buymeacoffee.com/tyftspodcast
If you want to submit a quote about your breast cancer journey, visit the link below: Submit A Quote
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Chiara, who faced stage IV breast cancer at 27, chats with Rosalina and Shauna about the misconceptions about cancer and the challenges of relationships after diagnosis. She opens up about the emotional and physical struggles of living with stage IV cancer, reflecting on how cancer changes who you are and what you want in life.
On dating apps, Chiara didn’t have much luck. She shares experiences of ghosting, judgment, and fetishization(yes, you read that correctly!), leading her to disengage from these platforms. But one day, at a friend’s party, she met David. After a few months, they hit it off and became more than just friends. However, Chiara shares how being in a serious relationship while dealing with a terminal illness is difficult for both her and David.
Episode Timestamps:
[00:02:58] You're Probably "Too Young For Cancer"
[00:05:30] We've Caught This Early, You'll be "Fine"
[00:09:33] I was Clueless About Breast Cancer
[00:13:17] Challenges of Living with Stage 4 Cancer
[00:16:17] The Nightmare of Insurance with Stage 4 Cancer
[00:21:36] Relationship Changes Due to Terminal Illness
[00:27:24] Dating with Terminal Cancer
Resources:
B-present.org
Metavivor.org - donates 100% of donation to Stage IV breast cancer research
You can follow us on Instagram @TYFTSpodcast and email us at [email protected]
Please consider donating to our “Buy Me A Coffee” page. Your generous support will greatly assist us in continuing to produce quality content for our listeners.Every donation will get a shoutout on our podcast, as well as a free TYFTS sticker.
www.buymeacoffee.com/tyftspodcast
If you want to submit a quote about your breast cancer journey, visit the link below: Submit A Quote
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Rosalina and Shauna dive deep into the intricacies of managing careers while navigating a cancer diagnosis. Their conversation encompasses crucial aspects such as disclosing a diagnosis at work, handling treatment while maintaining a career, and understanding legal rights like the American Disability Act and Family Medical Leave.
They share personal experiences regarding returning to work, establishing boundaries, seeking accommodations, and addressing job dissatisfaction. Additionally, they explore transitioning jobs during treatment, post-treatment job challenges, and the essential role of self-care and prioritization. Throughout the episode, they emphasize the importance of recognizing your rights, managing guilt, and accessing support from resources like Triage Cancer and Careers and Cancer.
Episode Timestamps:
[00:02:06] Our Jobs
[00:03:23] Approaching Employers About A Cancer Diagnosis
[00:07:56] Navigating Your Diagnosis While Working
[00:10:13] Paid Family Medical Leave
[00:13:20] Domestic Partner’s Insurance
[00:14:52] Domestic Partnership Insurance
[00:19:17] Advocate for Yourself by Creating a Work Plan
[00:26:58] When You’re Still Not Satisfied
[00:38:21] Should I Tell My Employer About My Diagnosis?
[00:41:58] Set Boundaries & Take Time For Yourself
[00:45:15] Learn About Your Rights
Resources:
https://www.domesticworkers.org/
https://triagecancer.org/
https://cancerandcareers.org/
You can follow us on Instagram @TYFTSpodcast and email us at [email protected]
Please consider donating to our “Buy Me A Coffee” page. Your generous support will greatly assist us in continuing to produce quality content for our listeners.Every donation will get a shoutout on our podcast, as well as a free TYFTS sticker.
www.buymeacoffee.com/tyftspodcast
If you want to submit a quote about your breast cancer journey, visit the link below: Submit A Quote
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Join us for an intimate conversation featuring four remarkable women—Aliza, Ashleigh, Jamie, and Nari (BIPOC)—as they candidly share their journeys through diagnoses, offering an up-close exploration of how they navigated the paths of motherhood and cancer. This special 'Part B' bonus series invites you to witness their unfiltered experiences, providing a heartfelt glimpse into the highs, lows, and unwavering strength that define their unique stories.
A huge thank you to Jamie for graciously sharing her experience in the POSITIVE Study— a study that looks at women who are looking to pursue pregnancy by temporarily pausing their hormone therapy medication in hopes of conceiving. Jamie's journey led to the miraculous birth of her son, Cash. For more information about the study, we've included some helpful links below.
Episode Timestamps:
[00:01:29] Aliza Bochner
[00:10:07] Ashleigh Van Son
[00:23:09] Jamie Pelishek
[00:34:28] Nari Baughman
[00:45:34] Outro
Resources:
https://www.dana-farber.org/newsroom/news-releases/2022/new-study-provides-encouraging-data-for-younger-breast-cancer-patients-looking-to-pursue-pregnancy
https://www.cancer.gov/news-events/cancer-currents-blog/2023/pausing-breast-cancer-treatment-to-conceive
Nari also spoke to us about Camp Kesem, which provides support for children whose parents have cancer. You can find out more here: https://www.kesem.org/
Instagram:
-Aliza @alizapollak
-Ashleigh @healthyhappyash
-Jamie @babyafterbreastcancer
-Nari does not have Instagram, but you can find her on Facebook: https://www.facebook.com/nlhbm125?mibextid=LQQJ4d
You can follow us on Instagram @TYFTSpodcast and email us at [email protected]
Please consider donating to our “Buy Me A Coffee” page. Your generous support will greatly assist us in continuing to produce quality content for our listeners.Every donation will get a shoutout on our podcast, as well as a free TYFTS sticker.
www.buymeacoffee.com/tyftspodcast
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Join us on a heartfelt journey as three remarkable women, Alyssa, Lauren, and Chantel(BIPOC), bravely share their emotional journeys through pregnancies intertwined with the unexpected diagnosis of breast cancer. This touching bonus series invites you to witness their raw experiences, offering a heartfelt glimpse into the highs, lows, and unwavering strength found amidst the complexities of their experiences.
Episode Time Stamps:
[00:01:54] Alyssa Brooks
[00:13:09] Lauren Cranmer
[00:23:04] Chantel Chantiluke
[00:34:08] Outro
Instagram:
Alyssa - @alyssadbrooks
Lauren -@laurenmcranmer
Chantel [email protected]
Here's a link to Chantel’s gofundme if you have the means to donate: https://gofund.me/9db1474a
Here’s where you can learn more about Lauren’s wellness coaching: www.yourwellnurse.com/giving-back
Don't forget to listen to the Part B series!
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TW - Body Image
In this episode, Rosalina opens up about her struggles with body image for the first time. She begins by shedding light on the overwhelming influence of media and societal pressures on body image and critically analyzing society's unattainable standards.
Throughout the episode, Rosalina and Shauna discuss their personal journeys with body image, from their early childhood days to their experiences during and after their journey with cancer. They address a range of issues, including the constant struggle to place trust in their own bodies, the emotional weight of dealing with weight gain during treatment, and the profound effects on their self-esteem, quality of life, and overall mental well-being.
This conversation explores the path to healing and self-acceptance during survivorship and sheds light on how self-worth extends far beyond one's clothing size.
Episode Timestamps:
[00:02:08] Redefining Beauty
[00:06:27] Not Giving Yourself Some Grace
[00:15:41] Do You Trust Your Body After Diagnosis?
[00:19:53] I am a Work In Progress, and That is OK
[00:35:08] Love Yourself
You can follow us on Instagram @TYFTSpodcast and email us at [email protected]
Please consider donating to our “Buy Me A Coffee” page. Your generous support will greatly assist us in continuing to produce quality content for our listeners. Every donation will get a shoutout on our podcast, as well as a free TYFTS sticker..www.buymeacoffee.com/tyftspodcast
If you want to submit a quote about your breast cancer journey, visit the link below: Submit A Quote
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Disclaimer: This episode is for educational purposes only and should not replace medical advice. Always consult a healthcare professional for personalized guidance.
Join Rosalina and Shauna for this insightful episode as we sit down with Dr. Laila Agrawal, a medical oncologist specializing in breast cancer at Norton Cancer Institute who runs a sexual health clinic for women with cancer. This episode addresses the taboo topic of sexual health that affects previvors, survivors, and thrivers, regardless of relationship status. We dissect important topics encompassing the intricate interplay of biological, physiological, and social factors. We dismantle misconceptions and equip you with insights into enriching your sexual well-being to rediscover pleasure and intimacy and gain guidance on communicating your sexual health concerns with medical professionals. At the end of the episode, Dr. Agrawal answers questions from our Instagram community.
Resources:-
Vaginal moisturizer / Vulvovaginal moisturizers - Good Clean Love (with hyaluronic acid), Hyalogyn, Revaree
-Water-based lubricants Good Clean Love, Luvena
-Silicone-based lubricants - Uberlube
Episode Timestamps:
[00:09:08] Why Is Women's Sexual Health Is Important?
[00:12:39] Bio-Psycho-Social Model
[00:14:15] The Effects of Your Sexuality For Previvors/Survivors/Thrivers
[00:21:53] How to Initiate Conversations about Your Sexual Health
[00:24:17] Questions to Ask Healthcare Providers About Sexual Health
[00:25:40] Debunking Misconceptions Of Vaginal Estrogen
[00:29:34] Non-Hormone Vaginal Moisturizer
[00:31:26] Vaginal Moisturizer vs Lubricants
[00:35:10] Sex Health Rapid Fire Round
[00:38:23] Rediscovering Pleasure After Diagnosis
[00:41:02] Pain With Penetration Is Not Always Caused By Dryness
[00:43:46] Sex Therapist vs Pelvic Floor Therapist
[00:46:26] Strategies To Maintain Healthy Relationships & Intimacy
[00:48:54] Sexual Health Takeaways
[00:50:36] Listener Questions Answered
If you enjoy this episode, please share it with your friends. Help us reach more women by subscribing and rating us on Apple Podcast, Spotify, and YouTube.
You can follow us on Instagram @TYFTSpodcast and email us at [email protected]
If you want to submit a quote about your breast cancer journey, visit the link below to submit one: Submit A Quote
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TW: Hair Loss.
Shauna and Rosalina share their respective experiences of hair loss, regrowth, and maintenance throughout treatment for breast cancer. Methods such as cold-capping are utilized to try and minimize loss, but with the inevitable fall-out, both Shauna and Rosalina resorted to additional measures outside of chemo treatment, such as hair extensions, trying out wigs, and wearing baseball hats. They discuss the traumas associated with losing hair during chemotherapy, how they coped, and how they feel about their hair growth and maintenance going forward.
Episode Timestamps:
[00:09:32] Embracing the New Chapter of Your Hair Journey
[00:17:26] Hair Pre-Cancer VS. Post-Cancer
[00:18:35] How's our Scalp Doing Since Cold-Capping?
[00:20:44] Trying Hair Regrowth Serums
[00:22:45] Where the Fuck Did My Lashes Go?
[00:25:46] Body Hair
[00:27:36] Eyebrows Post Chemo
[00:29:05] Hair Becoming Your Identity
[00:32:39] Was Cold Capping Worth It?
If you enjoy this episode, please share it with your friends. Help us reach more women by subscribing and rating us on Apple Podcast, Spotify, and YouTube.
You can follow us on Instagram @TYFTSpodcast and email us at [email protected]
If you want to submit a quote about your breast cancer journey, visit the link below: Submit A Quote
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We are ending our October voice memo series with some Survivor stories. They share about what survivorship is like and how to best prepare others after a cancer diagnosis.
We want to mention that we did put a call out for Stage 4 Thrivers to share their stories and experiences but did not receive any submission to air the episode. We know October can be very heavy for many of us in the community and we are all just doing our best to get by.
We will be leaving the voice message link active for any Stage 4 Thriver who would like to submit a voice message later down the line. We hope to air any submissions we receive by the end of the season. Visit the link below to leave us a message: Click here to leave us a message.https://www.speakpipe.com/msg/s/321705/5/8dgau3mz696xrhku
You can follow us on Instagram @TYFTSpodcast and email us at [email protected]
Please consider donating to our “Buy Me A Coffee” page. Your generous support will greatly assist us in continuing to produce quality content for our listeners.Every donation will get a shoutout on our podcast, as well as a free TYFTS sticker..www.buymeacoffee.com/tyftspodcast
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Rosalina and Shauna explore the theme of grief and its significance in the context of their lives as young individuals whose cancer diagnoses have disrupted their paths. They pause to reflect on their lives before their encounters with cancer, sharing personal memories to pay tribute to the things they've had to let go.
The conversation examines the distinctions between "moving on" and "finding acceptance," prompting questions about whether achieving genuine closure is a reachable goal or an ongoing, ever-changing process. They also touch upon the transformations in their perspectives following their experiences with cancer, emphasizing an enhanced capacity for compassion and a reevaluation of their life priorities.
Resources:
Growing Around Your Grief Model by Dr.Tonkins:
https://whatsyourgrief.com/growing-around-grief/Stages of Grief:
https://www.healthline.com/health/stages-of-griefOption-b.org
Episode Timestamps:
[00:01:06] Housekeeping Items/Updates
[00:03:30] Our Pre-Cancer Lives
[00:06:48] Grief is Complicated
[00:08:19] Finding Help - Therapist & Spiritual Advisor/Coach
[00:14:28] It's OK to Cry
[00:20:23] Have Compassion for Yourself [00:23:41] Processing Grief Takes Time
[00:29:57] Finding Acceptance & Closure
[00:40:06] Our New Perspectives After Cancer
If you enjoy this episode, please share it with your friends. Help us reach more women by subscribing and rating us on Apple Podcast, Spotify, and YouTube.You can follow us on Instagram @TYFTSpodcast and email us at [email protected]
Please consider donating to our “Buy Me A Coffee” page. Your generous support will greatly assist us in continuing to produce quality content for our listeners.Every donation will get a shoutout on our podcast, as well as a free TYFTS sticker.www.buymeacoffee.com/tyftspodcast
If you want to submit a quote about your breast cancer journey, visit the link below: Submit A Quote
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This week, we’re sharing voice messages from four Previvors in the community. You’ll hear their stories and the incredible advice they have for others who have recently discovered their gene mutations.We are still looking for voice memo submissions for our next mini-episode airing next Friday for anyone else who would like to participate.
We want to know "What Is It Like To Be A Survivor? What Advice Would You Give To Those Who Have Been Diagnosed?"
Visit the link below to submit a voice memo:https://www.speakpipe.com/msg/s/321705/4/pux8cgcj9s5xqc4m
If you enjoy this episode, please share it with your friends. Help us reach more women by subscribing and rating us on Apple Podcast, Spotify, and YouTube.You can follow us on Instagram @TYFTSpodcast and email us at [email protected]
Please consider donating to our “Buy Me A Coffee” page. Your generous support will greatly assist us in continuing to produce quality content for our listeners. Every donation will get a shoutout on our podcast and a free TYFTS sticker.
www.buymeacoffee.com/tyftspodcast
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In this episode of "Tit Talk," Rosalina challenges the prevailing misconception that breast cancer only affects older people and reinforces that no one is too young to get cancer.
She highlights the concerning statistics reflecting the rising breast cancer rates among young women under 40.
Due to the heightened rising cancer rate, Rosalina introduces the "CheckMate" initiative pioneered by the Brem Foundation, which offers a free Breast Health Quiz to empower women with a comprehensive understanding of their breast cancer risk factors. The core message behind CheckMate is to underscore the profound significance of early detection. With one in eight women confronting a breast cancer diagnosis, early detection significantly enhances survival rates.
The episode concludes with Rosalina stressing the importance of self-breast examinations and promoting candid conversations with healthcare professionals about breast health, breast density, and genetic testing. She underscores the growing need for a greater emphasis on prevention among young women, emphasizing that organizations like the Brem Foundation and the Young Breast Cancer Project play a vital role in providing essential education on prevention for the younger population.
Resources:
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2808381
https://www.washingtonpost.com/wellness/2023/08/22/breast-cancer-young-women-increase/
https://www.breastcancer.org/facts-statistics
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7973811/
https://www.breastcancer.org/risk/risk-factors/dense-breasts
https://www.breastcancer.org/research-news/acr-2023-screening-guidelines
https://www.huffpost.com/entry/should-i-worry-latinas-an_b_1019838
Brem Foundation: https://www.bremfoundation.org/
Breast Health Quiz: https://breastquiz.bremfoundation.org/
https://breastquiz.bremfoundation.org/sources
Young Breast Cancer Project: https://www.youngbreastcancer.org/
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In this solo episode, Rosalina takes you on her journey with her participation in an exercise clinical trial focusing on strength training through UCLA. This study was to help alleviate joint pain caused by anastrozole, an aromatase inhibitor drug. Working closely with a personal trainer, Rosalina shares her transformative experience of strengthening her bones and gaining muscle mass.
She celebrates the power of exercise and how it empowered her to take an active role in her recovery and survivorship journey. Through her story, she emphasizes the crucial role of clinical trials and the need for better representation of minority groups and people of color to improve cancer treatments and create personalized cancer plans.
Resources: IDEA Study: https://classic.clinicaltrials.gov/ct2/show/NCT03953157
Breast Cancer Trials: https://www.breastcancertrials.org/
Breast Cancer Trials Myths and Facts: https://www.breastcancertrials.org/BCTIncludes/WhyParticipate/MythsAndFacts.html
National Cancer Institute: https://www.cancer.gov/about-cancer/treatment/clinical-trials
**Check your insurance for fitness benefits
If you enjoy this episode, please share it with your friends. Help us reach more women by subscribing and rating us on Apple Podcast, Spotify, and YouTube.You can follow us on Instagram @TYFTSpodcast and email us at [email protected]
If you want to submit a quote about your breast cancer journey, submit one here: Submit A Quote
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While Shauna wasn’t actively seeking out clinical trials during and following treatment, she felt it was important to be a part of the data considering her age and type of breast cancer. To her benefit, Shauna’s clinical trials were all low-to-no risk, participating in data collection at NYU, logging her caffeine intake, providing genetic information, and doing an at-home interview.
It’s hard to see the immediate benefits of these trials, especially when almost everything surrounding breast cancer is painful and mentally taxing, but Shauna details the importance of the bigger picture, providing insight to others and pooling resources for the inevitable future patients.
Resources:The Cancer Patient Instagram:https://www.instagram.com/thecancerpatient/
Caffeine Clinical Trial at NYU: https://clinicaltrials.med.nyu.edu/clinicaltrial/1091/radiation-dermatitis-phase-1/
Rare Patient Voice Referral Code: https://rarepatientvoice.com/rp/TooYoungForThisShitPodcast
If you enjoy this episode, please share it with your friends. Help us reach more women by subscribing and rating us on Apple Podcast, Spotify, and YouTube.You can follow us on Instagram @TYFTSpodcast and email us at [email protected]
Please consider donating to our “Buy Me A Coffee” page. Your generous support will greatly assist us in continuing to produce quality content for our listeners.Every donation will get a shoutout on our podcast, as well as a free TYFTS sticker..www.buymeacoffee.com/tyftspodcast
If you want to submit a quote about your breast cancer journey, submit one here: Submit A Quote
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This week, We share voice messages from our listeners who gave their tips and advice to individuals and/or corporations who are considering donating to breast cancer awareness.
We are still looking for voice memo submissions for our next mini episode airing next friday.
This mini episode will feature the Previvors in the community.If you are a Previvor and want to participate, we want to know “What is it like to be a Previvor? What advice would you give to those who just found out about their gene mutation?”
Visit the link below to submit your voice memo:https://www.speakpipe.com/msg/s/321705/3/4yt2v3d8ktysytqt
If you enjoy this episode, please share it with your friends. Help us reach more women by subscribing and rating us on Apple Podcast, Spotify, and YouTube.You can follow us on Instagram @TYFTSpodcast and email us at [email protected]
Please consider donating to our “Buy Me A Coffee” page. Your generous support will greatly assist us in continuing to produce quality content for our listeners.Every donation will get a shoutout on our podcast, as well as a free TYFTS sticker..www.buymeacoffee.com/tyftspodcast
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In this episode, Rosalina and Shauna are joined by Andrea, a young breast cancer survivor and healthcare advocate of Mexican-German descent (her mother is Mexican, and her father is German). The conversation explores Andrea's personal journey with breast cancer, which began during the COVID-19 pandemic while she was studying for her Masters in Budapest, Hungary. She shares the challenges she faced in managing her diagnosis in a foreign country where she didn't speak the language, and the complexities of returning to the US due to COVID-19 restrictions.
Upon her return to the US, Andrea faced some significant challenges with her healthcare insurance, and she found that the support she was hoping to receive from her parents during the early stages of her diagnosis fell short, leaving her to navigate the diagnosis alone.
As she acclimated to life back in the US, she became involved in a health literacy project aimed at improving patient outcomes in the Latino community. The episode highlights Andrea's contributions to the health literacy project in Orange County, California, which aimed to educate the Latino community, especially Latinas, about women's health and the importance of mammograms, and other related health topics. Both Rosalina and Andrea, who are both Latinas and first-gens, shed light on cultural barriers, healthcare disparities, and the stigma surrounding cancer and preventative care within the Latino community.
You can follow Andrea at @andreahansoc
Episode Timestamps:
[00:01:19] Housekeeping Items/Updates
[00:05:04] Getting Diagnosed in a Foreign Country
[00:10:08] Coping Mechanism
[00:13:49 ]Insurance is Such a Bitch
[00:19:08] Andrea's Relationship with Parents
[00:30:00] Health Literacy Project
[00:32:51] Why Aren't Latinas Getting Mammograms?
[00:37:10] Cultural Barriers & The Latino Community
[00:44:35] Fear of Discrimination
[00:49:07] How The Kelly Clarkson Show Impacted our Parents
[00:49:07] Health Literacy Project & Cafecito Session
[00:58:54] Nutritionist Strategies To Encourage Healthier Choices
[01:01:41] Why Health Equity Is Important
[01:04:53] Health Equity: Affordability and Access
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