Bölümler
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Host, Kevin Jess, talks about Rare Disease Day which is just around the corner
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Kevin Jess talks about recent papers published and about to be published concerning changing the diagnostic criteria for HD
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Bunny Clark talks about The Walk for Huntington's Disease May 28th
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Kevin Jess announces charity closings and discusses what's next for WeHaveAFace.
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Kevin Jess talks about the feeling of worthlessness and how the media may drive this feeling.
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Jen and Kevin discuss possible implications of the overturning of Roe v Wade for the Huntington's Community
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Jen and Kevin talk about hope, testing and other topics
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Kevin and Jen talk about a number of things but are focusing on the upcoming International Education Day, June 25
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Kevin talks about memories of his wife Sheila and how it's important to nurture friendships
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Jen gets an unexpected call and discussion ensues.
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Jen and Kevin chat about disappointments over the years in the Huntington's Disease community
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Jen and Kevin chat about the death of a loved one and strategies leading up to and after death.
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Kevin and Jen kick off a series of coffee talks concerning Huntington's Disease
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James speaks about the Project Change and an array of topics
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Erin speaks with Kevin about her 5 1/2 year struggle with fertility amidst having a diagnosis of HD
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Kevin Jess speaks about his wife Sheila, how they met up until her recent passing.
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Please listen to James Valvano interview Jennifer Simpson HDSA on the HDParityAct! It's time to pass the HD Parity Act and remove the two-year waiting period for Medicare and SSDI! We must communicate the dire need of these medical supports and services to the US Congress!
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