Episodi
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In this special episode Jillian sat down with Ariella Elm. Ariella is a content creator on TikTok who covers politics, local and global news. With Election Day just around the corner we discuss voting and accessibility and making sure that disabled voices are heard and disabled votes are counted.
Election Resources:
https://vote.gov
https://www.ada.gov
Find Out How to Vote in Your State - AAPD
Follow Ariella: TikTok: @ariellaelm Instagram: ariella.elm Threads: @ariella.elm Twitter/X: @AriellaElm YouTube: Ariella Elm Substack: https://ariellaelm.substack.com
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]
Read With Me:
Goodreads
The StoryGraph
This episode was edited and produced by Ben Curwin
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In this special episode it is just me and the microphone as I share a little life update as I will be having surgery in the matter of days which means the podcast will be on a bit of hiatus. I then discuss what it has been like to live and exist in my body during this time, the impact it has had on my physical, mental, emotional, and social health before looking ahead to the future, talking about what I'm looking forward to and working towards.
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]
Read With Me:
Goodreads
The StoryGraph
This episode was edited and produced by Ben Curwin
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Episodi mancanti?
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In this week’s episode I sat down with Madison Lawson. Madison is a journalist, model and disability rights activist. Recognizing the importance of authentic representation in media from a young age, Madison strives to bring light to the disabled experience and to create a world that is more equitable for the next generation of disabled people. We discuss the relationship between history and accessibility, how perceptions perpetuate behaviors, the realities of simply existing as a disabled person and much, much more.
Follow Madi: Instagram: @wheelchairbarbie
Watch Madison Share Her Story HERE
Access the Vote: Muscular Dystrophy Association
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]
This episode was edited and produced by Ben Curwin.
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In this week’s episode I sat down with April Lockhart. April, coined the Internet's "Disabled Fashion Girlie", has become a pioneer in the disabled community through her online fashion content. Her approach to vulnerable storytelling about her limb difference online has amassed millions of views and empowered many within the disabled community to express themselves through style. With September being Fashion Month here in New York City we discuss all things fashion from shopping for clothes as disabled women to, as she puts it, normalising disability in the fashion industry, much, much more.
Follow April: Instagram: @aprillockhart TikTok: @april_lockhart YouTube: April Lockhart
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]
This episode was edited and produced by Ben Curwin.
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In this week’s episode I sat down with Steven Verdile. Steven is the founder of Squeaky Wheel Media, a nonprofit organization that empowers disabled writers to use humor to combat ableism, and the first-ever satire publication focused on disability. We discuss the ways in which traditional comedy spaces are inaccessible, why it was so important to build a team of writers with voices that are authentic and genuine, how The Squeaky Wheel consistently finds the right balance of laughter and reality, and much, much more.
Follow Steven: Instagram: @sillyverdile Twitter: @StevenVerdile Website: https://www.stevenverdile.com
Follow The Squeaky Wheel: Instagram: @thesqkywheel Website: https://thesqueakywheel.org Facebook: The Squeaky Wheel
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]
This episode was edited and produced by Ben Curwin.
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In this week’s episode I sat down with Sophia Herzog Gibb. Sophia is a two-time medal-winning Paralympian, having competed as a swimmer in the 2016 and 2020 Paralympic Games in Rio and Tokyo. She is now joining NBC as a contributor covering the 2024 Paralympic Games in Paris. We discuss the excitement and media coverage surrounding this year's Paralympics, important language you need to know, how she prepared to take on this role, what it means to her to be the first little person commentator at NBC, and much, much more.
Follow Sophia: Instagram: @sophiaherzog Twitter: @SophiaHerzog
Follow Team USA: Instagram: @teamusa TikTok: @teamusa Twitter/X: @TeamUSA YouTube: Team USA Website: https://www.teamusa.com
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]
This episode was edited and produced by Ben Curwin.
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In this week’s episode I sat down with Tiffany Yu. Tiffany is the CEO & Founder of Diversability, an award-winning social enterprise to elevate disability pride, the Founder of the Awesome Foundation Disability Chapter, and the author of The Anti-Ableist Manifesto: Smashing Stereotypes, Forging Change, and Building a Disability-Inclusive World. We discuss the creation and evolution of Diversability, the work that happens in community and solidarity, being an amplifier of other disabled voices and much, much more.
Follow Tiffany: Instagram: @imtiffanyyu Twitter: @ImTiffanyYu LinkedIn: Tiffany A. Yu, MSc TikTok: @imtiffanyyu Website: https://www.tiffanyyu.com
Buy The Anti-Ableist Manifesto:
Yu & Me Books
Amazon
Barnes & Noble
Books-A-Million
Bookshop
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]
This episode was edited and produced by Ben Curwin.
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In this week’s episode I sat down with Tilly Griffiths. Tilly is a two-time Stanford graduate from the United Kingdom, recently completing her Master's degree in Communication with an emphasis on data journalism during which she focused on telling impactful, data-driven stories about the disabled experience. As a full-time power wheelchair user living with Spinal Muscular Atrophy, she also dedicated much of her time outside of the classroom to building community on campus for her fellow disabled students. We discuss the cultural shift about disability on college campuses, the balance between being in and being defined by our community, making the decision to never settle or stay put and much, much more.
Follow Tilly: Instagram: @itsmetillyg
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]
This episode was edited and produced by Ben Curwin.
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In this week’s episode I sat down with Shaunta-Maé Alexander. Shaunta-Maé is an incredibly gifted Public Speaker, Adaptive Athlete, Brand Ambassador, Influencer, Actress, Author, Philanthropist, Distance Runner, and 2024 “People’s Choice” Webby Award Winner. Her personal story of hard work, determination, tenacity, and faith through her disabilities has been used to help motivate and encourage the masses publicly. After sharing her incredible story and fitness journey we discuss training with the healed version of ourselves, the beauty of uncertainty, our shared love for Peloton and Cynthia Erivo and much, much more.
Follow Shaunta-Maé: Instagram: @shauntamae_ Peloton Leaderboard: MaeBackBaby
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast Peloton Leaderboard: jillian_ilana TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]
This episode was edited and produced by Ben Curwin.
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In this week’s episode I sat down with Kayla Hamilton. Kayla is a Texas-born, Bronx based performance maker, dancer, educator, and consultant. She is a Bessie Award-winning dancer and her performance, choreographic and disability arts work has been presented by institutions across New York City and the U.S. In July of 2024 she announced the creation of Circle O, a new cultural organization established by and for Black Disabled and other multiply marginalized creatives. We discuss her journey to becoming a dancer, creating space in places where disability is often not welcome, the stories that can be told and the voices that can be heard through the art of movement and much, much more.
Buy Tickets: Open Call: Kayla Hamilton at The Shed HERE
Follow Kayla: Website: https://www.khamiltonprojects.com/k-a-y-l-a-h-a-m-i-l-t-o-n
Follow Circle O: Instagram: @circleo_org Website: https://www.circleo.org
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]
This episode was edited and produced by Ben Curwin.
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In this week’s episode I welcomed back Aubrey Smalls. Aubrey is an actor, filmmaker, and content creator with dwarfism who uses his platforms to educate people about what it means to be a little person and dwarfism history. We discuss how the historical beliefs, behaviors, perceptions and prejudices towards people with dwarfism have persisted and evolved through to present day in a world where conversations are now being driven by algorithms and the mainstream media and how it impacts the dwarfism community.
Follow Aubrey: Instagram: @theaubreysmalls , @dwarfismhistory TikTok: @aubreysmalls Website: https://www.dearaverageheightpeople.com
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]
This episode was edited and produced by Ben Curwin.
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In this week’s episode I sat down with Daisy Friedman. Daisy is a writer and director based out of New York City. Her history as a multi-organ transplant recipient has drawn her to create work that centers on the intersections of tradition, intimacy, embodiment, and disability. We discuss the spaces in between disabled and not, the power in telling disabled stories that are raw, visceral, and personal, the making and importance of her acclaimed short film As You Are, spoilers ahead, and much, much more.
Watch As You Are: https://www.shortoftheweek.com/2024/05/07/as-you-are/
Follow Daisy: Instagram: @daisyfriedman_ Website: https://www.daisyfriedman.com
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: [email protected]
This episode was edited and produced by Ben Curwin
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In this week’s episode it is just me and the microphone as I sit in my thoughts and feels and reflect on the Little People of America national conference that just took place in Baltimore. I explain what the national conference is, reflect on what the week meant to me and yes, there was certainly some laughter and perhaps tears.
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: [email protected]
This episode was edited and produced by Ben Curwin
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In this week’s episode I sat down with Rebecca Williford. Rebecca is a seasoned, nationally recognized disability community leader and an ardent disability rights litigator, currently serving as the President & CEO of Disability Rights Advocates (or DRA), the leading national nonprofit disability rights legal center whose mission is to advance the rights, inclusion, and equity of people with disabilities through high-impact litigation, education, and advocacy. We discuss the role legal action plays in the disability rights movement, how DRA is changing the fabric of society and what it means to be a disabled person, and much, much more.
Follow Rebecca: Instagram: @rebecca.williford.dra LinkedIn: Rebecca Williford
Follow Disability Rights Advocates: Instagram: @dralegal LinkedIn: Disability Rights Advocates Website: https://dralegal.org
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: [email protected]
This episode was edited and produced by Ben Curwin
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In this week’s episode I sat down with Pamela Rae Schuller. Pamela is an internationally known disability and mental health advocate, and professional stand-up comedian. We discuss how she combines comedy and storytelling with a message about inclusion and mental health, how certain humor has to be earned, being powerfully snarky, underestimating our younger selves and much, much more.
Follow Pamela: Instagram: @pamelacomedy YouTube: Pamela Comedy Website: https://pamelacomedy.com/
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: [email protected]
This episode was edited and produced by Ben Curwin
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In this week’s episode I sat down with Muroj Negha. Muroj is a fashion designer who is striving to redefine the boundaries of fashion and empower individuals of short stature to express themselves authentically. We discuss trying to fit into spaces and clothing that are not designed for our bodies, the inaccessibility of adaptive fashion for people of short stature, how she is building a brand for herself, the community, and ultimately for everyone, and much, much more.
Follow Muroj: Instagram: @muroj_negha Website: https://muroj.art/ , https://www.graduatefashionweek.com/search-portfolios/muroj-negha
Follow Muroj Negha Fashion: Instagram: @murojnegha.fashion
Body Measurements Google Doc HERE
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: [email protected]
This episode was edited and produced by Ben Curwin
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In this week’s episode I sat down with Syanne Centeno-Bloom. Syanne is a prominent civil/disability rights activist, content creator and signed model. She has worked with brands like Dove, Thistle and Spire and Victoria’s Secret and also currently serves as a council member for Courage for America, confronting extremist ideologies by far-right lawmakers head-on. We discuss diversity and trends in disability representation, the beauty of vulnerability, showing that being disabled is being human and much, much more.
Follow Syanne: Instagram @syannebloom
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: [email protected]
This episode was edited and produced by Ben Curwin
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In this week’s episode I sat down with Alex Barone. Alex is an actor who can be seen in The Luckiest Girl Alive, Dopesick, as well as the fifth season of Mayans M.C. where he played the character of Bottles. Alex is also an advocate for performers with disabilities and is a mentor to children with limb differences. We discuss wanting to see disabled characters that are sexy and have grit, disability as a brand in the entertainment industry, that disabled people are some of the toughest people you will ever meet, and much, much more.
Follow Alex: Instagram: @alexjbarone
Learn More About Camp No Limits: https://www.nolimitsfoundation.org/
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: [email protected]
This episode was edited and produced by Ben Curwin
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In this week’s episode I sat down with Joshua Castille and Caden Zane Marshall. Joshua is a Deaf performance artist who strives to form meaningful collaborations that explore the boundaries of art. He has worked on various projects in different roles including ASL master, director, actor, set designer, and more. Caden is a seasoned performer, American Sign Language interpreter, and influencer. Caden's 15+ years of experience in the theatre community has led him to focus on topics of queer activism and advocacy for inclusive spaces and works of art that highlight underrepresented communities. We discuss how shows like Deaf West’s Big River and Spring Awakening revolutionized how Broadway saw deaf people on stage, advocating for theater that incorporates rather than tokenizes, why we need to have deaf and disabled people in the rooms where decisions are made and much, much more.
Follow Joshua: Instagram: @castillejoshua Twitter: @CastilleJoshua Website: https://www.joshuacastille.com/
Watch Josh perform Satisfied from Hamilton HERE
Follow Caden: TikTok: @themusicaldealer Instagram: @whereiscaden YouTube: The Musical Dealer Website: https://cadenzane.com/
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: [email protected]
This episode was edited and produced by Ben Curwin
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In this week’s episode I sat down with Madison Tevlin. Madison is an award-winning model, host, content creator, actor and advocate. She shatters the expectations people have about Down syndrome, reminding everyone that it is the least interesting thing about her. We discuss the powerful “Assume That I Can” video and the impact of authentic storytelling, how fun it is to defy expectations when we are underestimated, what it means to her to be someone the next generation is looking up to and much, much more.
Follow Madison: Instagram: @madisontevlin TikTok: @madisontevlin YouTube: Madison Tevlin Website: https://www.madisontevlin.com/
Watch the "Assume That I Can" video HERE
Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: [email protected]
This episode was edited and produced by Ben Curwin
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