Episodi
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In this replay of an Aging & Amazing Book Club discussion, we engage in a deep and emotional conversation with Carolyn Birrell, discussing her personal experience as a caregiver for her mother, who had dementia.\
Carolyn, author of Walking with Fay: My Motherās Uncharted Path into Dementia, shares her story of coping with the challenges of caregiving, its emotional toll, and the need to find humor and love in the face of difficult and unlovable behavior from her mother. She also shares the emotional story of the last days of her motherās life during the height of the COVID-19 lockdown.
Throughout, Carolyn emphasizes the need for caregivers to find encouragement in being more loving during this difficult process, even when faced with resentment and disappointment. One of the most notable insights shared is Carolyn's reflection on learning to see past the unlovable behavior of her mother and to remember the person she fell in love with.
Quotes
Balancing Care and Judgment: "One of the most frightening things for me during that time was the perception from others that I was being overreactive and controlling and was inserting myself into my mother's life unnecessarily."
Caring for a Loved One with Dementia: "I was able to manage her quality of care, but I wasn't able to manage her quality of life."
Finding Encouragement in Challenging Times: "When I wrote the book, I thought I was writing it for people who were feeling alone and I wanted them to know that no, you're not alone, that others have gone through this just like you. You're going to be okay and hang in there."
Finding Humor and Love in Caregiving: "And I think what I really learned from this whole thing is trying to find the humor and the spirit of actual loving this person who has become oftentimes unlovable."
In this episode, you will:
Ā· Uncover insightful tips for navigating the unique challenges of dementia caregiving
Ā· Understand the profound impact of COVID-19 on dementia care
Ā· Discover effective coping strategies for dementia caregivers during challenging times.
Ā· Learn about the valuable support and resources available through the Alzheimer's Association support groups
After the podcast
Read Carolynās AlzAuthors post
Purchase Walking With Fay now
Note: We are an Amazon Associate and may receive a small commission from book sales.
Connect with Carolyn
Facebook
Instagram
LinkedIn
Website
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others.
Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
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Unexpectedly, a physician's journey of caring for her father with Alzheimer's disease leads to groundbreaking insights. From reversing cognitive decline to the impact of emotional trauma, Dr. Helena Popovic shares a wealth of evidence-based strategies for caregivers. Her unique blend of personal experience and scientific knowledge sheds light on effective coping strategies and self-care techniques for those caring for individuals with Alzheimer's. Get ready to dive into a treasure trove of information, humor, and wisdom, as Dr. Popovic reveals the power of joy, gratitude, and holistic well-being in the face of Alzheimer's disease.
Quotes
"The human brain is continually altering its function, cell number, circuitry, and chemistry as a direct result of everything we do, experience, think and believe. This is called neuroplasticity." - Helena Popovic
"The most important thing I could give him would be genuine joy, love, enthusiasm. So just looking after ourselves is just in itself already looking after the other person." - Helena Popovic
"The greatest gift that we can give to the people we care about are our life force, our energy, our enthusiasm, our passion." - Helena Popovic
In this episode, you will:
Discover effective coping strategies to ease the challenges of caring for someone with Alzheimer's.Learn about potential methods to slow down or reverse cognitive decline in Alzheimer's patients.Explore the impact of emotional trauma on the risk of developing Alzheimer's and how to mitigate its effects.Uncover self-care techniques to maintain your well-being while caring for a loved one with Alzheimer's.Understand the benefits of practicing gratitude for your mental health and overall resilience.Purchase "In Search of My Father"
Connect with Dr. Helena Popovic
Facebook
Instagram
YouTube
LinkedIn
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others.
Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
Weāve got merch! Shop our Store
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Episodi mancanti?
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Have you heard these myths about faith's role in caregiving?
Myth 1: Faith won't make a difference in the practical challenges.Myth 2: Caregivers must be perfect in their faith to make a difference.Myth 3: Faith won't alleviate the emotional toll of caregiving.Let's unravel them with our guest Dorothy Horne in this replay of Books & Chit Chat with Aging & Amazing. We touch on everything from clinical trials to the role of faith, and the power of community and positive narratives on the dementia journey.
Dorothy, a retired first-grade teacher and former columnist for a local newspaper, brings a unique perspective to the conversation as she shares her caregiving journey with her husband, Byron, who was diagnosed with early-onset Alzheimer's. Through her faith and resilience, Dorothy has found moments of grace and strength in the midst of the challenges of dementia caregiving. Her heartfelt reflections and personal experiences offer valuable insights into the role of faith in navigating the complexities of Alzheimer's and dementia, providing inspiration and support for others on similar paths. She has shared these insights in two books: Glimpses of Grace: Walking in Hope Through Alzheimer's and Ordinary Days and Glimpses of Grace: And Grace Will Lead Us Home.
In this episode, you will:
Explore the profound impact of faith in providing strength and comfort while navigating the challenges of dementia caregiving.Learn how to break free from the negative stereotypes and misconceptions surrounding an Alzheimer's or dementia diagnosis.Encounter the concept of ālightbearersā and how to become one.Discover the transformative power of community support in finding emotional resilience and practical assistance.Prepare for a positive and fulfilling life beyond caregiving by understanding the transition process and available resourcesAfter the podcast
Read Dorothyās AlzAuthors post
Purchase Glimpses of Grace: Walking in Hope Through Alzheimer's and Ordinary Days and Glimpses of Grace: And Grace Will Lead Us Home now.
Note: We are an Amazon Associate and may receive a small commission from book sales.
Connect with Dorothy
Website
Facebook
Twitter
LinkedIn
Mentions
Michael Verde's work - For those interested in Michael Verde's work and his insights on dementia care, you can explore his organization, Memory Bridge, and access his resources and speaking engagements.
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others.
Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
Weāve got merch! Shop our Store
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Caring for a spouse with dementia is a deeply challenging and emotional journey. In this episode, hosts Marianne Sciucco and Christy Byrne Yates bring together three extraordinary guests: Richard Creighton (aka Frank Brown), Scott Rose, and Tio Stib (aka Stephen Miller), who share their personal experiences and hard-earned insights.
Richard Creighton shares his journey caring for his wife Kate, who is in the advanced stages of Alzheimer's. He discusses the daily routines that bring them joy and emphasizes the profound impact of kindness and community support. Richard blogs about their Alzheimerās journey at Living with Alzheimerās.com. Learn more about Richard at AlzAuthors.com.
Scott Rose opens up about the heartbreaking realization of his wife Maureenās cognitive decline due to frontotemporal dementia. He chronicles their experience in his book We Danced: Our Story of Love and Dementia, and highlights the importance of maintaining dignity and understanding communication challenges. Learn more about Scott on AlzAuthors.com.
Tio Stib, who lost his sight around the same time his wife, Maria, was diagnosed with Alzheimer's, offers a unique perspective. He captures their poignant and humorous moments in his book My Dementia Diary: A blind caregiverās journey with his wife and her dementia, and discusses the cultural differences in dementia care between Mexico and the U.S. Learn more about Tio at AlzAuthors.com.
After the podcast
Purchase We Danced: Our Story oove and Dementia
Purchase My Dementia Diary: A blind caregiverās journey with his wife and her dementia
Note: We are an Amazon Associate and may receive a small commission from book sales.
Resources mentioned:
Judy Cornish, The Dawn Method
Lingraphica - A device that can help with communication for individuals with speech and language difficulties due to dementia.
Security Camera with Two-Way Speaker - A security camera with a two-way speaker can be used to communicate with a loved one who may have difficulty using traditional communication devices. It allows for verbal interaction and reassurance.
Children's Songs - Using familiar children's songs can help soothe and engage individuals with dementia, providing a sense of comfort and familiarity.
Love and Patience - The most important takeaway is the need for love, patience, and understanding when caring for a loved one with dementia. This includes being patient with family members and caregivers who may have different perspectives on the care process.
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others.
Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
Weāve got merch! Shop our Store
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Marianne and Christy engage in a heartfelt conversation with Allene Symons, devoted caregiver to her late husband Allen, who battled Lewy Body dementia. Sheās the author of Love in a Time of Caterpillars: A Memoir of Monarchs and Caregiving. Her unique perspective on utilizing butterfly gardening as a source of therapy and joy, along with her insights on managing personal health crises during caregiving, make her a compelling and relatable guest. Allene shares how their hobby of tending to a butterfly garden became a source of therapy and hope, offering moments of respite and joy amidst the challenges of dementia. The simple act of observing caterpillars transforming into butterflies not only brought light to her husband's eyes but also became a cherished activity that bonded their caregivers with the natural world, providing a sense of purpose and connection. Allene's story beautifully illustrates the profound impact of outdoor activities and nature therapy in dementia care, showcasing the power of finding beauty and comfort in the midst of adversity. Her experiences highlight the importance of nature therapy, and the challenges faced by caregivers, especially amidst the disruptions caused by the COVID-19 pandemic. She also shares the difficulties she endured when she was diagnosed and treated for breast cancer during the pandemic.
Quote
"The extreme flexibility we need when we're caregivers who are a loved one with dementia is core to the journey."
In this episode you will:
Discover the unexpected connection between butterfly gardening and dementia care.Find out how one caregiver found joy and solace in nature therapy.Learn effective strategies for managing technology with dementia patients.Understand the unique impact of COVID-19 on dementia care and how to navigate it.Explore the compassionate use of loving lies in dementia caregiving.Embrace the importance of outdoor activities in improving the emotional well-being of dementia patients.After the podcast
Read Alleneās AlzAuthors post: we'll get this once it's published.
Connect with Allene
Website
LinkedIn
X-Twitter
Facebook
Instagram
Purchase Love in a Time of Caterpillars now.
Note: We are an Amazon Associate and may receive a small commission from book sales.
Mentions
Alzheimerās Association Companion cards PDF (download and print)
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others.
Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
Weāve got merch! Shop our Store
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One parent with dementia is challenging enough, but when you have TWO parents with dementia while raising young children itās easy to fall into despair and chaos. When Christy Byrne Yates, a licensed educational psychologist, writer, and speaker, found herself in this situation she learned the necessary skills she needed to not only provide care to her parents and children but also to herself.
In this replay of the AlzAuthors Aging & Amazing Books & Chit Chat discussion, she shares her insights, offering practical tips on navigating family dynamics, building a legacy of love in caregiving, and providing emotional resilience and support
Christy's openness about her emotional struggles and the lessons learned from her parents offers a profound exploration of the caregiving experience, reminding listeners of the enduring power of love, empathy, and self-discovery within the caregiving journey. Her unique perspective and heartfelt reflections make this episode a must-listen for anyone seeking valuable insights and guidance in managing the complexities of caregiving for aging parents, especially those dealing with dementia.
Author of Building a Legacy of Love: Thriving in the Sandwich Generation, sheās a member of the AlzAuthors management team, and co-host and producer of the "Untangling Alzheimer's & Dementia" podcast.
In this episode, you will:
Discover the power of self-care while caring for parents with dementia.Uncover the secrets to building a lasting legacy of love in your caregiving journey.Navigate and defuse challenging family dynamics while caring for loved ones.Unlock the top tips for managing the unique challenges of being a sandwich generation caregiver.About Christy Byrne Yates, MS
In addition to being an author, Christy is a Licensed Educational Psychologist (LEP), a credentialed school psychologist, a speaker, and life coach. As the mother of two ā now grown ā children, she became an expert in navigating lifeās challenges and opportunities, including living in the āSandwich Generation,ā those raising children while caring for aging parents.
After the podcast
Read Christyās AlzAuthors post: Christy Yates Helps Caregivers Raising Children Ease the Squeeze
Purchase Building a Legacy of Love: Thriving in the Sandwich Generation.
Note: We are an Amazon Associate and may receive a small commission from book sales.
Connect with Christy Byrne Yates
Website and blog
Twitter
Facebook
Instagram
LinkedIn
YouTube
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others.
Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
Weāve got merch! Shop our Store
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In this heartfelt episode of AlzAuthors, we dive into the emotional and practical aspects of caring for loved ones with dementia, with a special focus on family memories and intergenerational bonds. Jeannette Fazzari Jones shares a particularly touching story about her experiences with her grandparentsā dementia, detailing both the struggles and joys she encountered along the way. She is the author of the beautifully illustrated children's book, Meatballs for Grandpa.
We talk about how the many senses like touch and smell impact memory, and how to use sensory activities to connect not just with our person with dementia, but with children who may yearn to stay connected to a beloved person. As an educator, Jeanette speaks to the kinds of activities that can be used with young children who may read or listen to the story. We discuss the traditions of cooking and treasured recipes that are handed down through families that keep family connected. Jeanette is the author of the beautifully illustrated children's book, Meatballs for Grandpa.
After listening to this warm and delicious episode, you might just be inspired to cook a big batch of meatballs!
Connect with Jeannette
Buy Meatballs for Grandpa
Read her AlzAuthors blog post - need to add link
Website
Instagram
Facebook
Twitter/X
About the Moderators
Marianne Sciucco
Christy Byrne Yates
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others.
Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
Weāve got merch! Shop our Store
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Christy Byrne Yates moderates an Aging & Amazing book club discussion with co-host Marianne Sciucco on the value of fiction in dementia caregiving.
Marianne, a founder and manager of AlzAuthors, and also board president, podcast producer and host, draws from her experiences as a nurse and personal caregiver to share her journey and the inspiration behind her novel, "Blue Hydrangeas: An Alzheimer's Love Story."
A registered nurse, she was drawn into the world of Alzheimer's and dementia care through personal experiences with family members affected by the disease. Working in the dementia unit of a nursing home, she found her calling in caring for individuals impacted by cognitive diseases. Her encounters with patients in various stages of memory impairment sparked a deep curiosity and desire to find solutions to improve their comfort and well-being.
It was a serendipitous meeting with an elderly couple, where the wife had Alzheimer's and the husband was her devoted caregiver, that inspired Marianne to embark on her writing journey. Fueled by her passion for highlighting the often-overlooked male caregivers, her book delves into the emotional complexities of Alzheimer's and the unwavering love and hope that sustains caregivers through the challenges.
Marianne's unique perspective and firsthand experiences bring authenticity to her narrative, offering readers a heartfelt glimpse into the world of Alzheimer's and the profound impact it has on those touched by its reach. She believes fiction can be an in important tool in educating people about Alzheimer's and dementia, offering a "soft landing space," where readers can not only find facts but discover the human story found in all dementia situations.
In this episode, you will:
Explore the process of writing books about Alzheimer's and the impact of storytelling on raising awareness.Gain valuable insights into navigating the complexities of dementia diagnosis and care, empowering you to make informed decisions.Understand the impact of Alzheimer's on families and gain insights into fostering resilience and coping mechanisms.Navigate the complexities of dementia diagnosis and care with valuable insights and expert perspectives.After the podcast
Read Marianne's AlzAuthors postPurchase Blue Hydrangeas, an Alzheimer's love storyAbout the Moderators
Marianne Sciucco
Christy Byrne Yates
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others.
Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
We've got merch! Shop our Store
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Welcome to the AlzAuthors podcast, where we explore the power of collaboration and unity within the dementia community. In this episode, we're joined by Gina Awad from the U.K, who has channeled her passion for dementia care into valuable insights for caregivers. Her journey began at a young age, witnessing the impact of dementia on individuals in care homes, which fueled her dedication to the cause. Her background in health and social care, combined with her personal experiences, has led her to author the illustrated book "United: Caring for Our Loved Ones with Dementia," providing caregivers with practical strategies and emotional support.
We discuss the challenges of competition in the field of dementia support, emphasizing the importance of working together to benefit those living with dementia and their families.
We also delve into the collaborative process behind the creation of "United." Gina and her illustrator, the late Tony Husband, decided to join forces during COVID-19 lockdown to make a difference for people with dementia and their caregivers.
Throughout the episode, we explore the significance of involving individuals directly impacted by dementia in conversations and initiatives, as emphasized by the phrase "Not about us without us." Gina shares a powerful story about a man with dementia trying to withdraw money from a bank, which led to an opportunity for her to educate bank staff about dementia and share the story in a local paper.
We also talk about the rich support groups available for care partners and those living with dementia, as well as the Reading Well initiative, which released a list of 20 books, including contributions from authors living with dementia, to be available in public libraries across England and Wales.
Join us as we explore the importance of collaboration, unity, and the sharing of experiences within the dementia community through Gina Awad's work and insights.
Connect with Gina
Read her AlzAuthors blog post
Gina hosts a quarterly radio show on Phonic 106.8 FM āLiving Better with Dementiaā with over 70 shows to tune into at your leisure.: https://www.mixcloud.com/livingwithdementia/
LinkedIn
Twitter
About the Moderators
Marianne Sciucco
Christy Byrne Yates
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others.
Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
We've got merch! Shop our Store
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In this podcast, host Marianne Sciucco is joined by an ensemble of talented poets to officially launch our anthology, Poetry for the Dementia Journey. This collection brings together caregivers who have personally navigated the complexities of caregiving, diagnosis, and emotional upheavals tied to Alzheimer's and dementia.
They write about many of the situations common to caregivers: the impact of the initial diagnosis, moving into assisted living or memory care, saying goodbye. From touching moments with loved ones to the nuanced challenges of caregiving, these poems offer solace, understanding, and a break from the isolating silence often surrounding dementia.
Whether youāre a caregiver, a family member, or someone seeking to understand the impact of Alzheimer's, this anthology and todayās episode provide a profound sense of connection and empathy. You'll experience a myriad of emotions, from sadness to joy, despair and hope. In the end, you will be comforted in knowing that you are not alone.
Takeaways:
Ā· Gain insight into the profound impact of personal storytelling on Alzheimer's.
Ā· Understand the unique challenges and emotional impact of early onset Alzheimer's on families.
Ā· Explore the benefits of creative expression in providing holistic care for individuals with dementia.
Purchase Poetry for the Dementia Journey
Timestamps and page numbers:
2:30 Mariana Mcdonald, Diagnosis, p.30
5:06 Austin Alexis, Dementia Intrigue (not in book)
7:12 Sue Fagalde Lick, You Dance, p.80
8:42 Gail Thomas, A Daughter's Garland, p.114
10:28 Judith H. Montgomery, Mother's Day at Aspen Ridge Assisted Living, p.101
12:10 Ann Campanella, Child Mother, p.62
13:43 Margaret Stawowy, Mother Country, p.162
15:33 Eileen Kennedy, Ritual, p.59
16:41 Joy Johnston, At the Crossroads, p.167
17:47 Sherri Levine, Stealing Flowers from the Neighbors, p.147
20:37 Patricia McKernon Runkle, Given the Mother Word PURE, p.119
21:52 Alan Bern, Boxae, p.17
24:59 Kelly Dumar, Mrs. Bean's Snow, p.158
29:00 Renee Terry Mucci, Life, p.127
30:55 Eileen Kennedy, End of Day, p.60
31:59 Mariana Mcdonald, All the Books, p.31
34:10 Austin Alexis, The Patient, p.95
36:58 Gail Thomas, Alchemy, p.116
39:47 Alan Bern, Dream of Tangles, p.15
40:40 Judith Montgomery, Sometimes, p.103
43:56 Kelly Dumar, How He Asks, p.157
45:15 Ann Campanella, Beyond Words, p.63
47:01 Margaret Stawowy, Signs of Her Decline, p.163
About the Moderator
Marianne Sciucco
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others.
Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
We've got merch! Shop our Store
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How would you navigate the complication of having your spouse display Dissociative Identity Disorder - previously called Multiple Personality Disorder - alongside symptoms of Alzheimerās? Today, we delve into the memoir "Don't Forget to Dance" with Marc Alderdice for our June Books & Chit Chat with Aging and Amazing. Marc takes us on a poignant journey through his wife Mary's battle with early-onset Alzheimer's, starting at age 59, and the extraordinary challenges they faced together, including her struggles with dissociative identity disorder.
We explore the deeply personal experiences that shaped Marc's narrative, his wife Maryās determination to do all she could to prepare herself for a dementia diagnosis and how his scientific background influenced their approach to Mary's care. Marc also shares how he embraced the role of a male caregiver in a predominantly female sphere, the importance of self-care, and the insights gained from support groups continuing to meet virtually since Covid.
You'll hear about the significance of activities and physical gestures in communicating with nonverbal loved ones, the inspiration behind the book's title, and how Mary, despite her diagnosis, found joy in new hobbies and activities.
Join us as we uncover themes of love, resilience, and the relentless pursuit of happiness amidst the trials of Alzheimer's.
Quote:
I think our journey is positive and encouraging in the sense that it shows you really can make the best out of a bad situation. The person with Alzheimer's and the loved ones can be as happy as possible. It may take some work, and it may take a little bit to change your mindset for how you approach things, but it certainly worked for us. - Marc Alderdice
In this episode, you will:
Understand the unique experiences of the Alzheimer's journeyPrepare yourself emotionally and mentally for the impact of Alzheimer's,Discover strategies to arm yourself with the resilience and coping strategies needed to face the journey ahead.Explore the relationship between dissociative identity disorder and Alzheimer'sDiscover valuable techniques for communicating with nonverbal Alzheimer's patients, fostering deeper connections and understanding.After the Podcast
Buy the Book
Listen to Previous Podcast with Marc
Find more about Marc
Follow Marc on Social Media:
LinkedIn
Facebook
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
We've got merch! Shop our Store
Purchase our new anthology, Poetry for the Dementia Journey
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Welcome back to the podcast where we share the powerful stories of those who have been impacted by Alzheimer's and dementia. In this episode, Christy and Marianne sit down with Sue Fagalde Lick, a remarkable poet, author, musician, and dog lover from the Oregon coast. Sue shares her deeply moving story of caring for her husband, Fred, throughout their Alzheimerās journey until his passing.
We dive into Sue's earlier work, Childless by Marriage, and explore her latest writings on widowhood and life after dementia, including her poetry anthologies and newly published memoir, No Way Out of This: Loving a Partner with Alzheimerās, which beautifully intertwines the romance and challenges of life with Fred. Sue opens up about the support she unexpectedly received from friends, the therapeutic value of writing, and the importance of maintaining agency and preparedness as a caregiver.
Sue's candor about the hardships of caregiving in a rural area, the emotional impact of rehoming pets, and the solace she finds in music and community will resonate deeply with listeners.
We also discuss the creation of our new anthology, Poetry for the Dementia Journey, for which Sue volunteered to serve as editor and formatter.
Join us for a heartfelt conversation that highlights resilience, love, and the importance of support systems in the caregiving journey.
Key Takeaways
Living Through Dementia TwiceCoping with a Spouseās Alzheimer'sEmbracing the Caregiver RoleThe Difficulties of Relocating for Medical CareThe Healing Power of Writing The Role of Pets in Caregiving and TherapyLearn more about Sue at AlzAuthors.com
Connect with Sue
Website
Blog
Facebook author page
Twitter
Can I do It Alone? on Substack
Purchase Sueās books
No Way Out of This
Gravel Road Ahead
Childless by Marriage
Blue Chip Stamp Guitar
Dining Alfresco with My Dog
About the Hosts
Marianne Sciucco
Christy Byrne Yates
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
We've got merch! Shop our Store
Purchase our new anthology, Poetry for the Dementia Journey
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This podcast is a replay of our recent panel discussion on LGBTQ+ caregiver concerns, hosted by Sue Evans of Kensington Senior Living and AlzAuthors. Authors Laura Davis, Christopher MacLellan, Vincent Zappacosta, and Douglass Christensen joined Sue, Christy and I as we delved into the complexities of caregiving within the LGBTQ+ community. They shared personal stories, insightful advice, and meaningful discussions about their caregiving journeys, offering knowledge and support to others currently caring for a loved one.
Empathy emerged as a recurring theme during the discussion. The group explored how understanding and compassion are foundational to a positive caregiving experience, especially in the face of stigmas surrounding dementia and LGBTQ+ identities.
The panelists underscored the critical importance of legal documents such as power of attorney and healthcare proxies. These tools grant caregivers the authority needed to make vital decisions during emergencies. The LGBTQ+ community, in particular, benefits from these preparations to navigate potential biases and ensure their loved onesā wishes are honored. They emphasized that preparing documents and passwords in advance can prevent needless complications, resonating with caregivers who might find themselves thrust into unexpected situations.
The episode illuminated unique challenges faced by LGBTQ+ caregivers. Issues such as isolation and the need to select healthcare providers comfortable with their orientation were discussed candidly. Positive experiences in inclusive areas like California and New York City contrasted with occasional instances of discrimination, as shared by Vincent and Douglas when they faced resistance in having Douglass recognized as family. Legal tools and personal anecdotes underscored the power of preparedness in overcoming personal bigotry and ensuring smooth caregiving and end-of-life processes.
The insights from this episode of the AlzAuthors podcast offer hope and guidance for caregivers, especially those navigating the additional layers of complexity tied to LGBTQ+ identities.
About the Authors
Laura Davis, The Burning Light of Two Stars
Christopher MacLellan, What's the Deal with Caregiving?
Vincent Zappacosta and Douglass Christensen, Dementia-Mama-Drama
About the Moderators
Marianne Sciucco, Blue Hydrangeas, an Alzheimer's love story
Christy Byrne Yates, Building a Legacy of Love: Thriving in the Sandwich Generation
Kensington Senior Living
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
We've got merch! Shop our Store
Purchase our new anthology, Poetry for the Dementia Journey
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Vicki Tapia is a founder of AlzAuthors and the author of Somebody Stole My Iron: A Family Memoir of Dementia. In this replay of a recent Aging and Amazing book club discussion, Vicki shares profound insights from her personal experiences. She discusses how caring for two parents with dementia placed a considerable strain on her personal support system. A long-distance caregiver, she found the challenges of managing her parent's concerning behaviors and medical needs from 200 miles away daunting. Their rural community and limited medical resources confounded the situation as well. Her only sibling's chosen absence from the situation was another stressor. Newly married, she was reticent to lean on her supportive physician husband too hard. Her adult children were also supportive but lived far away, making it difficult to ask them for help.
A lifelong journaler, she resolved her feelings and worries by putting pen to paper, eventually coming to the realization that she had written a book. Initially, she hesitated to publish her book due to privacy concerns but was encouraged to do so by positive feedback. Her decision to publish was also influenced by her desire to help others navigate similar experiences. Somebody Stole My Iron was published in 2014 and was a finalist for the High Plains Book Awards in 2015. Each chapter ends with "Lesson Learned," imparting valuable insight and inspiration to caregivers.
Three Key Takeaways
1. Finding Humor in Hardships: Vicki emphasizes the importance of finding humor in difficult situations, which can provide emotional relief and resilience.
2. The Necessity of Self-Care: Vicki's guilt over taking a trip is a common sentiment among caregivers. Her mother's philosophy, "life is for the living," underscores the need for self-care and balance, reminding caregivers to also focus on their own well-being.
3. Patience and Kindness: Through her experience, Vicki learned the crucial caregiving virtues of patience, respect, and kindness. She advises new caregivers to meet their loved ones where they are and to let go of guilt and expectations.
Learn more about Vicki at AlzAuthors.com.
About the Moderators
Marianne Sciucco, Blue Hydrangeas, an Alzheimer's love story
Christy Byrne Yates, Building a Legacy of Love: Thriving in the Sandwich Generation
Purchase our new anthology, Poetry for the Dementia Journey
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
We've got merch! Shop our Store
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Welcome to another insightful episode of Untangling Alzheimer's and Dementia, and a replay of our recent book club with Aging and Amazing. In this episode, we bring together a panel of poets who share a common threadāeach has navigated the challenges of caring for a loved one with dementia. Your hosts, Marianne Sciucco and Ann Campanella, along with guest authors Daniel Potts, MD, Sue Fagalde Lick, Sherri Levine, and Margaret Stawowy delve into the world of poetry as a powerful outlet for expressing the complex emotions tied to Alzheimer's and dementia care.
Listen as these courageous caregivers discuss how poetry provides solace and a sense of connection amidst the trials of caregiving. From Sherri Levine's poignant reflections on taking flowers to her mother in hospice, to Margaret Stawowy's candid portrayal of medicating her mother, and Dan Pottsās therapeutic use of art and poetry to connect with his father, each story shines a light on the personal battles and moments of tenderness that define the caregiving experience.
We also have laughter amid the hardships as Sue Lick shares a day in the life at a nursing home through her evocative poetry. Don't miss her heartwarming tale of memory care residents joyously indulging in ice cream.
Tune in to find inspiration, empathy, and perhaps a new way to process your own experiences through the beauty of poetry.
Three Key Takeaways
1. Therapeutic Expression: Poetry serves as a potent form of therapy, helping caregivers process complex emotions and find joy amidst adversity.
2. Community and Support: Sharing stories and artistic expressions can cultivate a community of support, making the dementia journey less isolating.
3. Finding Humor: Embracing moments of joy and laughter is crucial, as highlighted by our lighthearted story, showing the importance of positivity in caregiving.
About the Authors
Sherri Levine, Stealing Flowers from the
Neighbors
Sue Fagalde Lick, Gravel Road Ahead
Daniel Potts, MD, Bringing Art to Life
Margaret Stawowy, co-editor of Storms
of the Inland Sea, an anthology with Jim Cokas
About the Moderators
Ann Campanella, What Flies Away and The Beach Poems
Marianne Sciucco, Blue Hydrangeas, an Alzheimer's love story
Pre-order our new anthology, Poetry for the Dementia Journey.
Register for our Poetry Reading June 3 at 4 pm EST.
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
We've got merch! Shop our Store
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Perhaps you canāt cure or even prevent Alzheimerās, but what if you could slow the disease progression? Want to unlock the secrets to living in the moment with Alzheimer's? Get ready to embrace practical advice and actionable insights for a positive journey with Alzheimer's and dementia in this podcast with Danel Gibbs, MD.
Heās a retired neurologist with extensive knowledge in the anatomy of the brain and the disease process of Alzheimer's and dementia. His personal experience living with Alzheimer's provides a unique perspective, enhancing his credibility in discussing practical approaches to managing these conditions. Heās the author of "A Tattoo on My Brain" and "Dispatches from the Land of Alzheimer's," which offer a collection of essays and vignettes that provide valuable insights into the cognitive health and well-being of those living with Alzheimer's or dementia. His writing style, which simplifies complex scientific concepts, ensures that his work is accessible to a wide range of audiences, and his contributions to the understanding and management of Alzheimer's and dementia make him an essential guest on the podcast.
Quotes:
āFor those of us on the Alzheimer's journey, it's really important to embrace the moment and not dwell on the frustration of trying to remember the past and plan for the future. Happiness and peace come from focusing on the moment.ā - Daniel Gibbs, M.D.
āWe don't have to wait for a cure. We can just do things that really make a significant difference, that are available, evidence proven, and don't cost anything. Except maybe a gym membership.ā - Daniel Gibbs, M.D.
In this episode, you will:
Explore real-life experiences of living with Alzheimer's and gain insights on managing the daily challenges.Discover the surprising link between sense of smell loss and Alzheimer's disease, and how it may impact early detection.Uncover the powerful impact of exercise on slowing the progression of Alzheimer's and enhancing overall well-being.Learn about dietary approaches that may help slow down the advancement of Alzheimer's disease.Resources mentioned:
Trial MatchNational Institutes on Health - Clinical TrialsMind DietMediterranean DietAfter the Podcast
Buy the Dispatches from the Land of Alzheimer's and A Tattoo on My Brain
Watch the documentary A Tattoo on My Brain
Read Danielās AlzAuthors Post
Visit Danielās Blog
Listen to Previous Podcasts:
Daniel Gibbs, MD Untangles His Personal Battle Against Alzheimerās Disease
Writing Through the Fog
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
We've got merch! Shop our Store
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Delight in the surprising journey of Ruth Stevens, from crafting a stage play to penning a heartfelt novel about Alzheimer's. Delve into the unexpected twists and turns as Ruth shares her personal experiences and the emotional impact of her work. Stay tuned for eye-opening insights on turning personal stories into fiction and a sneak peek into her upcoming duology. Get ready to be captivated by Ruth's incredible journey, as she shares the highs and lows of her creative process.
For our March installment of Books & Chit Chat, our monthly Book Club collaboration with Aging & Amazing, we talk with Ruth Stevens, a former public relations professional from New York City and LA, and the author of the debut novel "Stage Seven," inspired, in part, by her personal experience dealing with her mother's Alzheimer's disease and decline. A fiction story acquisitions editor with AlzAuthors and a member of the Dramatists Guild of America and Women's Fiction Writers Association, Ruth brings a unique perspective to her writing, infusing humor and tenderness into a difficult topic. Her storytelling abilities, honed through a career in creative writing, advertising campaigns, and numerous articles for magazines, newspapers, and journals, shine through in her work, offering a compelling and relatable portrayal of Alzheimer's and its impact on family dynamics. Like enjoying a performance of her play, youāll laugh, youāll cry, youāll learn a lot. Have a listen.
Quote:
āI feel like your play gave me permission to move on with my lifeā. - Audience member
In this episode, you will:
Explore real-life Alzheimer's caregiving experiences and gain insights into navigating the challenges with compassion and understanding.Discover the art of turning personal stories into compelling fiction, finding inspiration from the heart-wrenching yet beautiful moments of caregiving.Uncover the captivating journey within the novel "Stage Seven" by Ruth Stevens, delving into the emotional landscape of Alzheimer's and its impact on families.Understand the profound impact of Alzheimer's on family dynamics, gaining new perspectives on how to navigate relationships and support systems during difficult times.After the Podcast
Buy the Book Stage Seven
Find more about Ruth Stevens at https://ruthfstevens.com/
Listen to Ruth on on the Hilarity for Charity (HFC) and AlzAuthors Summer Book Club
Follow Ruth on Social Media:
Instagram
Facebook
Goodreads
Blog
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
We've got merch! Shop our Store
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When youāre caregiving, it can often feel like you are out there on your own without direction or resources. Sometimes, it can even feel like your healthcare providers arenāt able to meet your needs. If any of this sounds familiar, this episode will be of comfort.
Our special guest is Lance A. Slatton.
Lance A. Slatton, the founder of a prominent home care company in southeastern Michigan, brings a wealth of personal experience and professional expertise to the table. His caregiving journey, rooted in profound connections with his grandparents and later involving the care of his grandmother during her dementia and his father's health crisis, has deeply influenced his perspective on family caregiver support. Drawing from these experiences, Lance established his own home care company, driven by a commitment to improving caregiver well-being and patient care. His unique insights, stemming from real-life situations, position him as a credible and valuable resource for individuals navigating similar caregiving challenges.
Quotes:
Knowing you are not alone is crucial. Seek out others who can understand and relate to what you're going through and educate yourself. - Lance A. Slatton
If you've seen one person with dementia, you've only seen that one person. There are so many different variables and all these situations. - Lance A. Slatton
I wanted to put something out there that is talking to family caregivers. It's half book, half guide, going through the whole caregiving journey with a lot of great resources and information. - Lance A. Slatton
In this episode, you will:
Uncover effective caregiving challenges and innovative solutions for better patient care.Learn how to utilize valuable resources for dementia care to improve your loved one's quality of life.Explore practical ways to enhance family caregiver support and well-being.Understand the impact of personal caregiving experiences on professional paths and career growth.Learn about upcoming collaborations on the All Home Care Matters PodcastHear about Lanceās forthcoming book!After the Podcast
Enriched Life Home Care Services https://www.elhcs.com/
All Home Care Matters Podcast https://allhomecarematters.com/
Lance's Book: All Home Care Matters Official Family Caregivers' Guide
Ethics of Social Media show: Social Media Episode
Unboxing Show: Unboxing Episode
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
We've got merch! Shop our Store
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This is a replay of our book club discussion with our friends at Aging & Amazing. "Books & Chit Chat" is a monthly book club featuring a title from the AlzAuthors collection. Throughout the month, readers participate in a discussion in the book club's Circle community at Aging & Amazing, then meet with the author for an in-depth discussion of the book and the caregiving journey. The online discussions are typically moderated by Andrea Couture, but she was unavailable for this episode so AlzAuthor founder, manager and author Marianne Sciucco is in her place for this episode.
Florrie Munat, the author behind "Be Brave, a Wife's Journey through Caregiving," brings a deeply personal and touching account of her caregiving experience for her husband, Chuck, who faced a stroke and Lewy body dementia. Through her memoir, Florrie provides a candid and insightful portrayal of the challenges and triumphs she encountered, offering a beacon of hope and understanding for caregivers navigating similar paths. Her tender storytelling and unwavering strength make her a compelling and relatable guest, bringing a wealth of wisdom and empathy to our discussion on the complexities of dementia caregiving. We're honored to have Florrie's unique perspective and compassionate voice on the Podcast.
Quote:
When love and duty are one, then Grace is within you. - Florrie Munat
In this episode, you will:
Gain insights into the caregiving journey for dementia patients and discover effective support strategies.Explore the therapeutic benefits of writing as a tool for caregivers to navigate their emotions and experiences.Learn how to effectively navigate complex family dynamics in the context of providing care for individuals with dementia.Discover the powerful benefits of journaling as a coping mechanism and reflective practice during the caregiving journey.Understand the unique challenges and symptoms associated with Lewy Body Dementia to better support individuals with this condition.After the Podcast
Register for Books & Chit Chat
Purchase Be Brave: A Wifeās Journey Through
Caregiving, which is available as a paperback, and on Audible
Note: We are an Amazon Associate and may receive a small
commission on book sales at no cost to you
Connect with Aging & Amazing
Hear Florrie speak about Lewy Body Dementia on Untangling Alzheimer's & Dementia
Read Florrie's AlzAuthors post: Memoir, Be Brave: A Wifeās Journey Through Caregiving by Florrie Munat
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Hereās what you need to know
We've got merch! Shop our Store
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By Christy Byrne Yates, MS, California, US
Podcast Description: Discover the unexpected truth about dementia care from a professional who found herself on the other side of caregiving. Get ready to uncover the surprising insights that transformed her perspective and could change yours too. Find out what left her reevaluating her own caregiving advice and how she's now championing an empowering approach for other caregivers. It's a revelation that could reshape the way you think about dementia care and caregiving.
Mary Ann Drummond, a highly experienced nurse with a career spanning over 30 years, is a prominent figure in the realm of dementia care. Her book, Meet Me Where I Am: An Alzheimer's Care Guide, is a comprehensive resource derived from her extensive work in memory care settings. It offers practical strategies and insights tailored to the unique challenges of dementia caregiving. In collaboration with Dr. Beatrice Tauber Prior, Mary Ann co-authored Grandma and Me, a children's guide for Alzheimer's and dementia, emphasizing her commitment to addressing the broader impact of these conditions on families. With her wealth of nursing knowledge and literary skills, Mary Ann's contributions have significantly advanced the understanding and support available for individuals living with dementia and their caregivers.
Quotes:
āGive yourself grace. You're only human. There're going to be days where you don't always do exactly what you might know to do, but it's not wrong. It's just human.ā
āIt's about capabilities. It's less about the limitations and more about the abilities.ā
In this episode, you will:
Gain valuable insights into dementia care from real-life experiences.Discover the importance of prioritizing self-care as a caregiver.Learn to recognize and leverage individual capabilities in dementia care.Overcome challenges in decision-making as a caregiver for someone with dementia.Explore how to create a dementia-friendly caregiving environment for enhanced well-being.After the Podcast
Ā· Meet Me Where I Am ā An Alzheimerās Care Guide
Ā· Grandma and Me ā A Kidās Guide for Alzheimerās and Dementia
I Choose to Remember, a reminiscence therapy aid - available exclusively on the Angel Tree Publishing website.Connect with MaryAnn
Twitter at @RNforAlz for more information and updates.
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimerās and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you donāt miss a word. If our authorsā stories move you, please leave a review. And donāt forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimerās and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
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