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Season 6 Episode 2 When Scott, a childhood cancer survivor turned advocate, and Rosalie, the director of government relations and advocacy from St. Baldrick's Foundation, joined me, Rosaria Kozar, the conversation was nothing short of inspiring. Our dialogue cut through the complexities of advocacy, unraveling how crucial policies like the STAR Act shape the landscape of pediatric cancer care. We shared the often unseen struggles that follow the victory of 'beating' cancer — the continuous health battles, risks of secondary cancers, and the psychological toll on families.
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Season 6 Episode One: Join me at the mic with Dr. Pei Wang, who is the Vice President of Clinical Development and Technical Operations, and Dr. Nicole Nunez, who is the Manager of Regulatory Affairs and Patient Engagement of Eureka Therapeutics. Eureka Therapeutics is a clinical-stage biopharmaceutical company located in the Bay Area of California, focused on developing novel therapies for cancer treatment, specifically solid tumors such as liver cancer.
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Season 5 Episode Join me as I interview Stacey of The Rare Patient Voice! I am so excited to publish this episode! She joined the Rare Patient Voice team in 2021. She is personable, empathetic, and caring about childhood cancer. Additionally, she builds long-lasting relationships with patients and family caregivers. The Rare Patient Voice connects patients and caregivers with research opportunities and more.
More about the Rare Patient Voice:
They are celebrating our 10th anniversary and have raised their patient and family caregiver reward to $120 an hour. Rare Patient Voice has over 100,000 participants in our panel and over 3,000 Referral Partners.
For more information and show notes:
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Organization Website:
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Season 5 Episode 7- Join me at the mic with Ashley Brooks. She is down to Earth and breaks down her experience as a young survivor. She discusses the ups and downs of her experience and how she is rising above her late effects.
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Season 5 Episode 6: Meet me at the mic with Bonnie Trainer for an authentic and raw conversation about what it means to be a caregiver and caretaker. Hear her suggestions for parents and also identify with her on childhood cancer treatment. [This was recorded before the end of treatment]
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Season 5 Episode 5: Join me at the mic with Chris Woodruff, the CEO of Lighthouse. Lighthouse is a non-profit located in Georgia. Lighthouse's mission is to strengthen families living through childhood cancer by offering restorative retreats and helpful resources. Tune in to hear about what they can provide for your family and the history behind what they do.
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Season 5 Episode 4 Join me at the mic with Meg Gallagher, who discusses everything from friendship and the end of treatment. What she says about childhood cancer and aya cancer might surprise you. She gives a fresh perspective on life with and after cancer and advice for caregivers—a remarkable young woman and survivor of Leukemia.
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Season 5 Episode 3 Join me as I interview Adriana Lewin, a momcologist of a fantastic survivor. Hear her story of triumph during hardship and what she is up to now in the childhood cancer world. She is revolutionizing the coming together of caregivers through mental health and more.
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Season 5 Episode 2 Join me with Jessica Nelson of My Cancer Story. She is not only a podcaster but a thriver following a battle with Thyroid Cancer. As a thirty-year-old AYA patient, she struggled with cancer on multiple levels. Now thriving, she tells her story here on Living With Scanxiety.
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Season 5 Episode 1: Join me while I speak with Kris Jerome, CEO of Anna's Pals believes that childhood cancer patients need a safe environment, away from the clinics and hospitals, to bond with family and friends. Listen and learn how they want to provide a place for immune-compromised children that will improve their morale and mindset.
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Season 4 Episode 7: Join me as I interview activist and advocate for childhood cancer, Chad Ehlers. We discuss everything from his presence on social media to caregiving his child Mia, who is currently battling Leukemia.
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Season 4 Episode 6: Listen and find out how you and your child can benefit from their services for sarcoma patients. A philanthropy professional, Alyssa O’Driscoll has been at the helm of the Sarcoma Alliance since 2017. She has a family history of sarcoma and knows the important role patient advocacy has when facing a difficult diagnosis. Alyssa’s experience includes leadership at healthcare nonprofits such as Harvard teaching hospital, Dana-Farber Cancer Institute, and Intermountain Healthcare.
She received her undergraduate degree from the University of Kentucky and holds both her MBA and MPA. In May 2021 she completed her Nonprofit Management Certificate from Harvard University Extension School.Support the show
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Season 4 Episode 5: Sit with me as I chat with a board member of the non-profit, Stupid Cancer, David Richman. We touch on AYA cancer, Stupid Cancer, the non-profit, his experiences with oncology, and his work as a humanitarian. For all the details of this episode, tune in. The childhood community can't miss this one!
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Season 4 Episode 4: Join me as a chat with author and momcologist Samarrah Clayman gives a summary of her son's journey as a warrior of brain cancer, sibling, and more. She also discusses her book. Her story is touching and she is vulnerable discussing her pediatric cancer journey as a mom.
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Season 4 Episode 4: Part II with Dr. Frances Baumgarten of Fran's Place: Center for Cancer Counseling. In this part, we discuss pediatric cancer, and how her Çancer for Counseling can help all people involved in the journey on a mental health level.
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Season 4 Episode 3: This is part 1 with Dr. Frances Baumgarten of Fran's Place: Center for Cancer Counseling. In this part, we discuss all things childhood cancer in relationship to parenting and caregiving. Tune in to hear more.
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Season 4 Episode 2: Self Proclaimed coffee-loving, cancer Survivor, advocate, positive thinker, and philanthropist joins me at the mic for an intimate look into his story. We discuss so much, from hiding his diagnosis and how parents can better communicate and his fall and rise as an advocate.
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Season 4 Episode 1: Join me as I talk with the mother of Vincent The Conquer. He is currently battling pediatric brain cancer. We discuss all things cancer and Vincent's journey as a cancer warrior. Everything from neurosurgery to research and even social media is touched upon through her perspective. Learn how to better help your child through her story as a momcologist.
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Season 3 Episode 12: Join me as you get an inside look at the non-profit Strong Little Souls. From customized care packages to wishes, they are worldwide accessible. But they offer so much more. Please tune in to find out what they can do for your child with cancer, also how this pediatric oncology support started.
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Season 3 Episode 11 Join me for a therapeutic look at what trauma can do to a relationship and how to hold it together with Valerie Hamaker; LPC, NCC, CPT, SATP. She is also the host of Voices About Living, which she will summarize during this show. So tune in and hear about siblings, marriage, and more during the face of childhood cancer.
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