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From identifying as "having" chronic pain to "recovering" from chronic pain, Caitlin shares her inner and outer journey around reframing and moving through elements of her pain and the strong mind-body connection many aspects contain.
She also shares information on chronic pain and pain reprocessing therapy, a mind-body intervention that focuses on rewiring neural pathways to eliminate neuroplastic chronic pain.Remember that we never walk this journey alone. Helpful numbers if you or someone you love finds themself in need quickly:
988- suicide and crisis hotline
741 741 - crisis text hotline
911- medical emergencies -
In this episode, Caitlin shares two frameworks that are helpful for discernment, prioritization, and doing some spring cleaning of the self that she uses with herself and clients. Hope you find it supportive to you if it resonates:)
More information on the Wellness Wheel: https://www.unh.edu/health/wellbeing-wheel
More information on Stones, Pebbles, and Sand: https://www.thebusyllama.com/rocks-pebbles-sand/Remember that we never walk this journey alone. Helpful numbers if you or someone you love finds themself in need quickly:
988- suicide and crisis hotline
741 741 - crisis text hotline
911- medical emergencies -
Fehlende Folgen?
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“The best analogy is that a two-hour operation is about as hard on your body as running a 5-kilometer race as fast as you can go. If you were going to do a 5K, you would train for it. It also makes sense that our patients should train for surgery."
- Michael Englesbe, MD
In today's episode, Caitlin and Steph chat about surgery. Caitlin has had two back surgeries and Steph is preparing for a thymectomy. Preparation for surgery is something we don't always think about. Often times, we don't realize the impact we can have on surgical and post-surgical outcomes. Diet, routine, meditation, and creating a network of support are all important elements of healing post-surgery. Listen in for more!References:
https://www.aamc.org/news/want-better-surgical-results-get-patients-step
https://www.premierhealth.com/your-health/articles/health-topics/before-surgery-five-important-ways-to-prepare
Remember that we never walk this journey alone. Helpful numbers if you or someone you love finds themself in need quickly:
988- suicide and crisis hotline
741 741 - crisis text hotline
911- medical emergencies -
In this episode, Caitlin and Steph explore when you know it is the right time to go for a second and, even, third opinion. Finding the "right treatment" is not linear - often times it takes a team bringing different perspectives/approaches to the table. Our hope is that you walk away from this episode with helpful questions and tools to explore what might be next for you on your journey to healing.
References:https://www.yalemedicine.org/news/second-opinions#:~:text=%E2%80%9CPatients%20should%20seek%20another%20opinion,treatment%20options%2C%E2%80%9D%20she%20says.
https://www.healthpartners.com/blog/how-to-get-a-second-opinion/
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management - Mayo Clinic Proceedings
Getting a Second Opinion for Myasthenia Gravis (myasthenia-gravis.com)
Remember that we never walk this journey alone. Helpful numbers if you or someone you love finds themself in need quickly:
988- suicide and crisis hotline
741 741 - crisis text hotline
911- medical emergencies -
In today’s episode, Steph offers a quick update about her recent visit to the Mayo Clinic in Rochester, Minnesota. She shares what the experience was like, the new diagnosis they discovered, and what life in the near future looks like.
Remember that we never walk this journey alone. Helpful numbers if you or someone you love finds themself in need quickly:
988- suicide and crisis hotline
741 741 - crisis text hotline
911- medical emergencies -
Stephanie and Caitlin are together in person!
In this episode, they discuss how their pain and disability have given them the freedom to explore their creative expression, introspection, and shifted their relationships to a place that is ultimately freeing.
In what ways are you reshaping your life and finding freedom alongside your own life changes?Remember that we never walk this journey alone. Helpful numbers if you or someone you love finds themself in need quickly:
988- suicide and crisis hotline
741 741 - crisis text hotline
911- medical emergencies -
Caitlin and Stephanie welcome their very first guest, Stephanie's husband Marselys Lucero!
Mars shares with us about his history of partnership with Stephanie, growing together through Steph's MG diagnosis, and the challenges, difficulties, and beauty that comes from being a caregiver and a spouse. Mars also shares about the best ways to care for caregivers and how to be present to your loved ones in their new reality.
If you're a caregiver, know a caregiver, or want to just hear their beautiful love story tbh, this episode is for you!Remember that we never walk this journey alone. Helpful numbers if you or someone you love finds themself in need quickly:
988- suicide and crisis hotline
741 741 - crisis text hotline
911- medical emergencies -
Snowball, a 12 year old pup, is joining Steph's journey with MG. Hear about how Steph came to the decision and why they say "never say never." Thank you to AMA Animal Rescue in Brooklyn, NY for a wonderful adoption experience. We would do it all over again!
Remember that we never walk this journey alone. Helpful numbers if you or someone you love finds themself in need quickly:
988- suicide and crisis hotline
741 741 - crisis text hotline
911- medical emergencies -
When back pain leads to back surgeries and long term debilitating pain and anxiety leads to missing out on your authentic self, diving deeper into the why behind it all became an urgent exploration for Caitlin. In this episode, she shares about the complicated and diverse nature in which people encounter chronic pain, and elaborates on her experience with chronic pain and anxiety across her life.
TW: Eating disorders
Sources:
Aroke, E. N., Joseph, P. V., Roy, A., Overstreet, D. S., Tollefsbol, T. O., Vance, D. E., & Goodin, B. R. (2019). <p>Could epigenetics help explain racial disparities in chronic pain?</p> Journal of Pain Research, Volume 12, 701–710. https://doi.org/10.2147/jpr.s191848
Biopsychosocial Factors that Underlie Racial Disparities in Pain Outcomes, Comorbidities, Inequities, and Barriers to Treatment. Current Pain and Headache Reports, 27(1), 1–10. https://doi.org/10.1007/s11916-022-01098-8
Chronic Pain. Cleveland Clinic. https://my.clevelandclinic.org/health/diseases/4798-chronic-pain
Mossey, J. (2011b). Defining Racial and Ethnic Disparities in Pain Management. Clinical Orthopaedics and Related Research, 469(7), 1859–1870. https://doi.org/10.1007/s11999-011-1770-9
Nestel, S. (2012). Colour Coded Health Care: The Impact of Race and Racism on Canadians’ Health. In The Wellesley Institute. https://www.wellesleyinstitute.com/wp-content/uploads/2012/02/Colour-Coded-Health-Care-Sheryl-Nestel.pdfNew Fact Sheets Show Growing Racial Disparities in Canada | OCASI. (n.d.). https://ocasi.org/new-fact-sheets-show-growing-racial-disparities-canada
Overstreet, D. S., Pester, B. D., Wilson, J. M., Flowers, K. M., Kline, N. K., & Meints, S. M. (2022). The Experience of BIPOC Living with Chronic Pain in the USA: Biopsychosocial Factors that Underlie Racial Disparities in Pain Outcomes, Comorbidities, Inequities, and Barriers to Treatment. Current Pain and Headache Reports, 27(1), 1–10. https://doi.org/10.1007/s11916-022-01098-8
Socioeconomic status and occurrence of chronic pain: a meta-analysis. Rheumatology, 60(3), 1091–1105. https://doi.org/10.1093/rheumatology/keaa758
What are Anxiety Disorders? (n.d.). https://www.psychiatry.org/patients-families/anxiety-disorders/what-are-anxiety-disorders#:~:text=Anxiety%20is%20a%20normal%20reaction,involve%20excessive%20fear%20or%20anxiety.Remember that we never walk this journey alone. Helpful numbers if you or someone you love finds themself in need quickly:
988- suicide and crisis hotline
741 741 - crisis text hotline
911- medical emergencies -
In this episode, Steph explores her journey with Bipolar II and Myasthenia Gravis. She takes us through what she calls her "mental health timeline" and offers reflections on how Bipolar has shaped her life over the past decade. Steph also shares more deeply about her new diagnosis of Myasthenia Gravis and how both Bipolar and MG have become her greatest teachers. Remember, you are always able!
Remember that we never walk this journey alone. Helpful numbers if you or someone you love finds themself in need quickly:
988- suicide and crisis hotline
741 741 - crisis text hotline
911- medical emergencies
Sources:
Myasthenia Gravis Foundation of America:
https://myasthenia.org/
NAMI: National Alliance on Mental Illness
https://www.nami.org/About-Mental-Illness/Mental-Health-Conditions/Bipolar-Disorder
National Institute of Mental Health
https://www.nimh.nih.gov/health/statistics/bipolar-disorderRemember that we never walk this journey alone. Helpful numbers if you or someone you love finds themself in need quickly:
988- suicide and crisis hotline
741 741 - crisis text hotline
911- medical emergencies -
We're talking today about timelines and the breaking, bending, resetting, and releasing of goals or objectives that are bullshit in the face of what we're dealing with.
Caitlin is almost a year post-surgery and finishing up her MPH and is ready for change but not sure if her body can handle. Steph is trying out a new infusion for her MG and balancing expectations on symptom alleviation. Join us as we discuss when the rigidity has to go and how we can more deeply love ourselves exactly where we are.
Remember that we never walk this journey alone. Helpful numbers if you or someone you love finds themself in need quickly:
988- suicide and crisis hotline
741 741 - crisis text hotline
911- medical emergenciesRemember that we never walk this journey alone. Helpful numbers if you or someone you love finds themself in need quickly:
988- suicide and crisis hotline
741 741 - crisis text hotline
911- medical emergencies -
Welcome to Able. In this episode, we, Caitlin and Stephanie share about our friendship and our life journeys that led them to Able. In speaking about our own experiences, we hope you feel seen and held in your own journey, whatever that may be.
Remember that we never walk this journey alone. Helpful numbers if you or someone you love finds themself in need quickly:
988- suicide and crisis hotline
741 741 - crisis text hotline
911- medical emergenciesRemember that we never walk this journey alone. Helpful numbers if you or someone you love finds themself in need quickly:
988- suicide and crisis hotline
741 741 - crisis text hotline
911- medical emergencies
