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On this episode we speak with Jenny Sage, a parent of a pediatric sarcoma survivor, Gracie. Jenny shares her perspective on advocating for children with sarcoma and others in the sarcoma and pediatric cancer communities. We discuss supporting children and families through a sarcoma diagnosis, the importance of emotional processing, and ways to help others.
Jenny’s Instagram: @jgoodmansagehttps://www.instagram.com/jgoodmansage/
Jenny’s LinkedIn: https://www.linkedin.com/in/jenny-goodman-sage-333200a4/
CIC-DUX4 Subtype: https://curesarcoma.org/sarcoma-subtypes/cic-rearranged-sarcoma/
Sarcoma Patient Experience Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/?fbclid=PAZXh0bgNhZW0CMTEAAaYWR9Zq2nOoOAxRVn6dJ78MeJ2nAVrq29fKMIGAcuToCKD2JxCQTLEbP4A_aem_5lsjjYo6Ug28apsTbN-mjw
Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704
Caregiver Sarcoma Connect Facebook Group: https://www.facebook.com/groups/1342913339758774
Advocacy Weekend: https://curesarcoma.org/get-involved/sarcoma-advocacy/sarcoma-advocacy-weekend/
Sarcoma Centers: https://curesarcoma.org/support-resources/treatment-centers/
SFA Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/
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Mike Cacioppo, diagnosed with osteosarcoma in 2021, shares his experience of being a part of the sarcoma community as well as the amputee community and how advocacy for both has become a part of his life. He also talks about parenting while navigating a sarcoma diagnosis and how he maintains an optimistic mindset through all of the challenges he's faced.
Mike's Subtype: https://curesarcoma.org/sarcoma-subtypes/osteosarcoma/
Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704/
Mike's Instagram: https://www.instagram.com/mikec829/
RTCS Boston: https://curesarcoma.org/boston
Sarcoma Survey: https://www.surveymonkey.com/r/SFASarcomaSurvey
IRB Protocol ID 0686
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Fehlende Folgen?
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On this episode, Maria shares the sarcoma journey of her daughter Aubrie, who was diagnosed with CIC-DUX4. Maria speaks about the diagnosis experience of a teenager, including having conversations about fertility preservation before starting chemo and ways she's honoring Aubrey after her passing. While working to fulfill her daughter's bucket list, Maria has also been the driver for helping SFA bring the Race to Cure Sarcoma to Austin, Texas for its inaugural Austin race on March 22nd, 2025.
Content Warning: Death from sarcoma, death of a child.
Aubrie's Subtype: https://curesarcoma.org/sarcoma-subtypes/cic-rearranged-sarcoma/
Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704
Caregiver Connect Facebook Group: https://www.facebook.com/groups/1342913339758774
RTCS Austin: https://secure3.convio.net/soa/site/TR/RacetoCureSarcoma/General?fr_id=1454&pg=entry
All RTCS Locations: https://curesarcoma.org/race-to-cure-sarcoma/
Sarcoma Survey: https://www.surveymonkey.com/r/SFASarcomaSurvey
IRB Protocol ID 0686
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In this episode, we speak with the Brenneman family who lost their father and husband, David, 12 years ago. We discuss the care partner experience of navigating a spouse's sarcoma diagnosis while also raising young children and what it has been like for the family to find connection to David after his passing. The Brenneman family shares about how this experience has fit into their lives and evolved over the years and talk about their unique experience walking the Camino de Santiago to raise awareness and funds in support of the sarcoma community. Thank you to the Brenneman family for sharing their story and allowing us to be a small part of honoring David's legacy.
content warning: death from sarcoma, death of a parent, death of a spouse
AJ's Blog: https://www.200-miles-closer-to-dad.com/
David's Subtype: https://curesarcoma.org/sarcoma-subtypes/alveolar-rhabdomyosarcoma/
https://imermanangels.org
Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704
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We're thrilled to welcome Susie Donohue, a uterine leiomyosarcoma survivor, for our third episode! We talk about navigating a new sarcoma diagnosis, what exactly a sarcoma center is, and the decision to disclose or not disclose your diagnosis at work.
Join us after the episode on our new Sarcoma Stories Facebook group to discuss the episode. https://www.facebook.com/groups/512452631597704
Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/
Sarcoma Centers: https://curesarcoma.org/support-resources/treatment-centers/
Race to Cure Sarcoma: https://curesarcoma.org/race-to-cure-sarcoma/
Facebook Group: https://www.facebook.com/groups/512452631597704
Where to connect with Susie:
IG: @susie.donohue
LinkedIn: https://www.linkedin.com/in/susie-donohue-9286579/
FB: https://www.facebook.com/susie.donohue.9
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We're thrilled to welcome Jenna Pothier for our second episode! Join us as this DFSP survivor shares the importance of shared decision making between care team, patient, and care partners. She also talks about the challenges of being an adolescent young adult going through a life changing diagnosis during big life transitions, finding supportive communities and purpose in advocacy work, and shares her advice on supporting someone during their sarcoma diagnosis.
Join us after the episode on our new Sarcoma Stories Facebook group to discuss the episode. https://www.facebook.com/groups/512452631597704
Where to connect with Jenna:
IG: @jennapothier19
TikTok: https://www.tiktok.com/@jpot13
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Join us for our first episode of our new podcast "Sarcoma Stories". We're thrilled to welcome our first guest, Natasha Allen! Join us as this synovial sarcoma survivor shares her inspiring journey, from diagnosis and clinical trials to using social media as a therapeutic tool and platform for awareness.
Join us after the episode on our new Sarcoma Stories Facebook group to discuss the episode. https://www.facebook.com/groups/512452631597704
Where to connect with Natasha
IG: @natashaallen
TikTok: https://www.tiktok.com/@possiblynatasha
