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In this episode of the Young Tongues podcast, Barbara talks to Maria Scott, a 47-year-old tongue cancer survivor. Maria shares her journey from being diagnosed with pre-cancerous cells in 2014 to going through stage 4 squamous cell carcinoma of the tongue. She discusses the rigorous treatments she underwent, including a hemiglossectomy, neck dissection, radiation, and chemotherapy. Maria also details the long-term effects of her treatment, such as radiation fibrosis, which severely limits her mobility and quality of life. Despite the challenges, Maria highlights the importance of advocating for oneself and finding joy in life through the support of her family, partner, and dogs. She expresses hope for new treatments and trials that may alleviate the symptoms of radiation fibrosis and improve the lives of cancer survivors.
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In this episode of the Young Tongues podcast, Barbara and Jamie open up about recent challenges and personal milestones. Jamie shares the anxiety of discovering a new bump on her tongue and the immense relief when it turned out not to be cancer. Barbara reflects on her ambitious November plans that didn’t unfold as she hoped and bravely discusses her recent diagnosis of lipoedema. Together, they emphasize how important it is to care for every aspect of our health—not just the parts tied to a cancer diagnosis.
As the holidays approach, their conversation shifts to the joys and complexities of the season. They share honest reflections on navigating food challenges, social interactions, and finding balance amidst the festivities, offering thoughtful tips and coping strategies to help others facing similar struggles. Throughout, Barbara and Jamie remind listeners of the incredible support and understanding within the Young Tongues community.
Before signing off, they take a moment to express their deep gratitude to their listeners and community for the strength and connection they bring, wishing everyone a warm and joyful Christmas filled with love and self-care.
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In this episode of the Young Tongues podcast, host Barbara interviews Dr. Melina Wyndon, MD from the University of Kentucky, a specialist in head and neck and microvascular reconstructive surgery. Dr. Wyndon discusses her medical journey, the complexities of tongue cancer surgeries, and her research on HPV-related cancers. She explains the surgical process, including the selection of donor sites for reconstructive flaps, and addresses listener questions. Dr. Wyndon highlights the importance of early diagnosis and the challenges in healthcare delivery while expressing hope for advancements through clinical trials and immunotherapy.
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In this week's episode of the Young Tongues Podcast, we sit down with Steven, a beloved community member and actor who has been experiencing recurrent tongue cancer since 1997. Steven opens up about his journey from his initial diagnosis while working at Walt Disney World, to enduring multiple treatments—surgeries, radiation, and chemotherapy—and the emotional rollercoaster that followed. Steven's story highlights the importance of early detection, the critical role of speech therapy, and the struggle to avoid feeling 'othered' due to health and social anxieties. He delves into the power of community support, sharing how friends and supportive networks have helped him through his darkest moments.
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In this episode of the Young Tongues podcast, hosts Barbara and Jamie explore the multifaceted experience of 'scanxiety' — the anxiety associated with awaiting medical scan results. They discuss the profound psychological impact and communication challenges surrounding their tongue cancer diagnoses. The conversation incorporates personal anecdotes, revealing how different communication approaches from healthcare providers influence a patient's mental well-being. Additionally, the episode covers coping mechanisms, both involuntary and deliberate, such as physical activities, meditation, and setting public goals. The hosts also highlight the role of support groups, community involvement, and the emotional toll of survivor's guilt. They address the importance of early diagnosis, support during grief, and maintaining personal boundaries within the support community. Moreover, the discussion touches on facing online trolling and the significance of raising awareness about tongue cancer.
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In this episode of the Young Tongues podcast, Barbara, along with her co-host Jamie, delves into the mental health struggles faced by young tongue cancer patients. They discuss the significant lack of mental health support in cancer treatment plans and stress the need for mental strength and agility. Personal anecdotes shed light on the long-term trauma, everyday challenges, and the importance of maintaining a balanced mindset. The conversation highlights coping mechanisms such as therapy, meditation, and breathing techniques, as well as the profound impact of peer support groups and virtual meetups. The episode addresses the prevalence of depression, anxiety, and PTSD-like symptoms, while also underscoring the importance of seeking professional help. The role of community support and relatable peers in emotional well-being is emphasised, providing a holistic view on navigating life during and after cancer treatment.
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In this insightful episode of the Young Tongues podcast, host Barbara interviews Mus Tarry, a local councillor from Surrey, who shares his personal experience with tongue cancer. Mus recounts his journey from early symptom detection in 2022, through his diagnosis, to undergoing major surgery. The narrative delves into the emotional and logistical challenges faced, highlighting the critical support from medical professionals, his place of work, and loved ones. Mus details the process of preparing for surgery, the intense experience of recovery in the ICU, and subsequent complications that led to multiple operations. Additionally, this episode explores his encounters with chemo-radiation, underlining the physical and emotional toll alongside the importance of maintaining routines and the significant impact of a supportive community. Throughout, Mus's story is one of resilience, determination, and the crucial role of family, healthcare teams, and community support in navigating and overcoming such a profound medical journey.
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In this episode of the Young Tongues podcast, we hear from Candi, a former nurse and police constable, who shares her deeply personal journey with tongue cancer. Candi opens up about her early life, career, and family, leading up to the moment she first discovered something was wrong during a routine dentist visit. She recounts the shock of her diagnosis, the emotional weight of sharing the news with her family, and the grueling medical path that followed, including multiple surgeries and a long hospital stay. Throughout the episode, Candi candidly discusses her recovery process, the physical and emotional changes she has faced, and her determination to find a new sense of normalcy. She also talks about her aspirations to return to work and the ongoing challenges of navigating life as a cancer survivor, offering listeners both insight and hope.
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In this episode of the Young Tongues podcast, hosts Barbara and Jamie reunite after an eventful summer break, sharing deeply personal stories and meaningful reflections. Barbara opens up about her trip back home to Switzerland, where she raised awareness for tongue cancer while balancing her role as CEO of the Young Tongues charity. Meanwhile, Jamie recounts the harrowing experience of her family’s evacuation during a California wildfire. Together, they reflect on their journeys as tongue cancer survivors and how these life-changing experiences continue to shape their advocacy, work, and personal growth. Looking ahead, they tease upcoming episodes featuring inspiring interviews with fellow tongue cancer survivors, offering listeners a chance to hear powerful stories from the community and deepen awareness around tongue cancer.
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In this episode of the Young Tongues podcast, Barbara interviews Jennifer Alexander, a member of the community, who shares her experience with tongue cancer. Jennifer talks about her various diagnoses since her early twenties, her struggles with treatments, and her surgeries. She emphasizes the importance of HPV vaccination for preventing HPV+ oral cancer and shares her experiences in advocating for cancer awareness. The conversation also touches on the psychological impacts of a cancer diagnosis, the stigma associated with HPV, and the importance of not feeling ashamed.
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In this episode of the Young Tongues podcast, host Barbara Fountain interviews Angilee Wilkerson about her experience with tongue cancer. Angilee, who noticed something was wrong when her tongue moved to one side, was diagnosed with stage 3 tongue cancer. Despite being given a 40% chance of survival with chemo and radiation, Angilee with the support of ther clinical team opted for a wait and watch approach. Three years out from surgery Angilee is still cancer free. Angilee also discusses her invention, TOUGLES, a device to help tongue cancer survivors eat and improve speech. The episode touches on her recovery journey, the impact of the surgery on her eating and speech, and the emotional and psychological aspects of her choices.
https://www.tougles.com/
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In this episode of the Young Tongues podcast, Barbara and Jamie continue their chat about radiation. Jamie recounts her struggles during this treatment phase, including severe dry mouth, thick mucus, painful blisters, and burns. She describes the coping mechanisms she employed, such as using a humidifier and experimenting with various soothing products. Jamie highlights the difficulty of maintaining her oral health and energy levels, battling weight loss, and dealing with the emotional toll. She talks about her struggles to keep up with treatment towards the end and her progress post-radiation, emphasizing the challenges of regaining her sense of taste and normalcy. The episode also underscores the importance of community support and connecting with others who have undergone similar experiences.
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In this episode of the Young Tongues podcast, Jamie introduces a guest very dear to her heart, Steph, who played a vital role during her own tongue cancer diagnosis. Steph, a critical care nurse, details her journey from discovering a lump under her chin to being diagnosed with stage three squamous cell carcinoma of the oral tongue. She recounts the initial misdiagnoses, the eventual diagnosis process, her 12-hour surgery, and the emotional and physical struggles during recovery. Steph also shares her grueling experience with radiation treatment, the lasting physical effects, and the emotional toll of her journey. She emphasizes the importance of finding a supportive community of fellow cancer survivors and shares how her life and career have changed post-cancer. The episode concludes with Steph providing advice for newly diagnosed patients and a light-hearted discussion on fictional characters they identify with.
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In this episode of the Young Tongues podcast, Barbara discusses her summer activities and experiences with her co-host Jamie. Jamie delves into her radiation experience for tongue cancer, including preparations, side effects, and the emotional journey. They touch upon the significance of having a support system, especially during COVID-19, and highlight the importance of mentally preparing yourself. The episode concludes with a listener question about regaining feeling in post-surgery areas, followed by a teaser for an upcoming interview with another patient.
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In this episode of the Young Tongues podcast, Barbara interviews Andrea Rodriguez, a fellow tongue cancer patient from Texas. Andrea shares her journey, starting from her first dental appointment at just 18 being diagnosed with leukoplakia, through multiple diagnoses and the impact treatment had on her her emotional and physical health. She details the initial appearance of lesions, the progression to cancer, surgeries, and subsequent radiation therapy. Andrea emphasizes the importance of community support, mental health, and the invaluable assistance she received from the Young Tongues community. The conversation underscores the significance of staying positive, seeking help, and the impact of a supportive network during such a challenging experience.
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In this episode of the Young Tongues podcast, co-hosts Barbara and Jamie discuss the challenges and experiences faced after tongue cancer surgery, particularly the transition from hospital to home. Both hosts open up about their personal struggles, including managing fatigue, the psychological impact of their surgeries, and the unique issues of caring for young children post-surgery. The episode also touches on their different decisions regarding post-surgery radiation therapy and their eventual return to work, highlighting how varied and personal these journeys can be.
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In this episode of the Young Tongues podcast, Barbara chats with Sarah and Cheryl from Cancer Sex and Intimacy. They dive into their project, which tackles the often-ignored topic of sex and intimacy for cancer patients. Sarah opens up about her Hodgkin's lymphoma treatment and its toll on her sexual health, while Cheryl shares her journey with stage 4 neuroendocrine cancer and the lack of support for intimacy after treatment. They stress how crucial it is to talk about sexual health in cancer care, the importance of supportive communities, and the need for better communication between patients and doctors. They also discuss their booklet, 'Pleasure and Intimacy: A Guide for People Living with Cancer,' and share personal stories about reclaiming sexual health, the impact of cancer on relationships, and dealing with menopause.
To get a copy of the 'Pleasure & Intimacy' booklet please email us at [email protected] or find us on instagram @sex_cancer_intimacy. The information is predominantly aimed at women and non-binary people but there is definitely something for everyone so please don't hesitate to ask us for a copy.
The booklet was put together for the Cancer, Sex & Intimacy project by Fruit fly Collective with graphic design by Daphne Vanden Borre.
For menopause support look to Make Menopause Matter and @dianedanzebrink for their amazing booklet 'Understanding Menopause'
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In this week's episode, Young Tongues podcast hosts Barbara Fountain and Jamie Powell return after a six-month hiatus to catch up and discuss their plans for season 2. Barbara shares her recent experience walking 100K across the Jordan desert and updates on her struggle with chronic fatigue. Jamie talks about her summer in Southern California and her progress with trying new foods. The hosts express gratitude for their listeners' support and unveil a big development: a substantial donation from Oracle Head and Neck Cancer UK that allows Barbara to work full-time on Young Tongues. They tease the next episode focused on sex and intimacy after cancer and emphasize the importance of advocacy and self-care in their journeys. The episode maintains their usual blend of candid conversation and humor.
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In this episode we look at the 48 hours after being released from hospital with all it's tirals and tribulations
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Jamie & Barbara are joined by their first ever guest Hannah and discuss the ins and out of hospital life after surgery.
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